Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 I AGREE WITH HIM !!!!!!!!!! Lynda ----- Original Message ----- From: Noland R. Durnell, P.E. low dose naltrexone Sent: Tuesday, February 17, 2004 5:49 PM Subject: Re: [low dose naltrexone] my neuro and ldn Leigh: Please don't wait until April to start another battle to get LDN. Start it NOW! It's to your benefit and every day counts. Also, I wouldn't care who I got the prescription from as long as I got it. Take charge of your life. You'll be glad you did. Noland ----- Original Message ----- From: Leigh Ann Rozlog ldn Sent: Tuesday, February 17, 2004 1:34 PM Subject: [low dose naltrexone] my neuro and ldn I was dx with RRMS in 1994 and I have never (nor will I ever) taken any ABCR drugs, much to the chagrin of my neuro. I take Flax seed oil everyday along with a multivitamin, and for the most part, have been fairly well. I've been reading about the benefits of LDN for a while and figured I would ask my neuro the next I time I met with her. Three weeks ago Thursday I woke up tingling and numb everywhere from the neck down. I immediately started chugging my flax oil, taking 25mg of Benadryl every 4 hours, and trying not to panic. I started feeling better by Friday afternoon and was only left with tingling/numbness in the lower half of my legs, a band of tightness around my chest, and a slight tingling in my fingertips. I didn't call my neuro right away because my symptoms are usually always sensory and she doesn't treat sensory problems, and this was the same -- no muscle weakness that I can tell. I've continued to improve, but I decided I should at least give my neuro a call to fill her in, so I left a message for her nurse. I heard back from the nurse 7 days later saying my neuro didn't need to see me unless I had weakness and that she does not prescribe LDN because it is not an approved MS drug but they had openings in many of their ABCR clinical trials if I was interested. She was clearly not listening to me! I've been refusing them all along, what would make her think I'd start them now? I've since added Inosine tablets to my arsenal and I really believe they are helping, but I'd like to start LDN also.I now have an appnt with a new neuro scheduled for April 13th. I'm seriously debating whether or not to see if my friend (who is a D.O) would be willing to get me a script before I see my new doc or wait till April, although there is a chance he won't prescribe it either. I am just so frustrated with my neuro, as I like her personally, but I see what a tool for the drug company she is and that bothers me. My other concern is my dh and I have been trying to have another child, and I worry about becoming pg while on the LDN, and what would happen if I stopped it while pg. Getting pg is probably a long shot as I'm almost 36 and we've been trying for almost 2 years with no success.......but I always have to keep it in the back of my mind.Thanks for listening to my ramblings!Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 I was dx with RRMS in 1994 and I have never (nor will I ever) taken any ABCR drugs, much to the chagrin of my neuro. I take Flax seed oil everyday along with a multivitamin, and for the most part, have been fairly well. I've been reading about the benefits of LDN for a while and figured I would ask my neuro the next I time I met with her. Three weeks ago Thursday I woke up tingling and numb everywhere from the neck down. I immediately started chugging my flax oil, taking 25mg of Benadryl every 4 hours, and trying not to panic. I started feeling better by Friday afternoon and was only left with tingling/numbness in the lower half of my legs, a band of tightness around my chest, and a slight tingling in my fingertips. I didn't call my neuro right away because my symptoms are usually always sensory and she doesn't treat sensory problems, and this was the same -- no muscle weakness that I can tell. I've continued to improve, but I decided I should at least give my neuro a call to fill her in, so I left a message for her nurse. I heard back from the nurse 7 days later saying my neuro didn't need to see me unless I had weakness and that she does not prescribe LDN because it is not an approved MS drug but they had openings in many of their ABCR clinical trials if I was interested. She was clearly not listening to me! I've been refusing them all along, what would make her think I'd start them now? I've since added Inosine tablets to my arsenal and I really believe they are helping, but I'd like to start LDN also. I now have an appnt with a new neuro scheduled for April 13th. I'm seriously debating whether or not to see if my friend (who is a D.O) would be willing to get me a script before I see my new doc or wait till April, although there is a chance he won't prescribe it either. I am just so frustrated with my neuro, as I like her personally, but I see what a tool for the drug company she is and that bothers me. My other concern is my dh and I have been trying to have another child, and I worry about becoming pg while on the LDN, and what would happen if I stopped it while pg. Getting pg is probably a long shot as I'm almost 36 and we've been trying for almost 2 years with no success.......but I always have to keep it in the back of my mind. Thanks for listening to my ramblings! Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Interesting story; glad to hear your MS hasn't progressed beyond sensory symptoms; from what I've heard that is a good indication overall. With regard to your Dr.'s refusal to prescribe LDN, its not always that they are in the drug company's pockets (although it sure seems that way). It can also be the fear of liability. It seems to me that Doctors are trained " if patient has disease X, proscribe medicine Y " . Its really pretty mechanical, and anything that goes outside of the " usual,customary, and reasonable " treatment is ignored. I'd suggest that you offer to sign a waiver and see if that helps? For what its worth I'm getting my LDN from a DO, not my neuro, although he knows about it. > I was dx with RRMS in 1994 and I have never (nor will I ever) taken any > ABCR drugs, much to the chagrin of my neuro. I take Flax seed oil > everyday along with a multivitamin, and for the most part, have been > fairly well. I've been reading about the benefits of LDN for a while > and figured I would ask my neuro the next I time I met with her. > > Three weeks ago Thursday I woke up tingling and numb everywhere from the > neck down. I immediately started chugging my flax oil, taking 25mg of > Benadryl every 4 hours, and trying not to panic. I started feeling > better by Friday afternoon and was only left with tingling/numbness in > the lower half of my legs, a band of tightness around my chest, and a > slight tingling in my fingertips. I didn't call my neuro right away > because my symptoms are usually always sensory and she doesn't treat > sensory problems, and this was the same -- no muscle weakness that I > can tell. I've continued to improve, but I decided I should at least > give my neuro a call to fill her in, so I left a message for her nurse. > I heard back from the nurse 7 days later saying my neuro didn't need to > see me unless I had weakness and that *she* *does not prescribe LDN > because it is not an approved MS drug* but they had openings in many of > their ABCR clinical trials if I was interested. She was clearly not > listening to me! I've been refusing them all along, what would make her > think I'd start them now? I've since added Inosine tablets to my > arsenal and I really believe they are helping, but I'd like to start LDN > also. > > I now have an appnt with a new neuro scheduled for April 13th. I'm > seriously debating whether or not to see if my friend (who is a D.O) > would be willing to get me a script before I see my new doc or wait till > April, although there is a chance he won't prescribe it either. I am > just so frustrated with my neuro, as I like her personally, but I see > what a tool for the drug company she is and that bothers me. My other > concern is my dh and I have been trying to have another child, and I > worry about becoming pg while on the LDN, and what would happen if I > stopped it while pg. Getting pg is probably a long shot as I'm almost > 36 and we've been trying for almost 2 years with no success.......but I > always have to keep it in the back of my mind. > > Thanks for listening to my ramblings! > > Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 It seems like a lot of us are getting more support from our PCP's and not the neuros. The neuros don't seem to have any interest in coloring outside the lines. ----- Original Message ----- From: " ll2669 " <ll2669@...> <low dose naltrexone > Sent: Tuesday, February 17, 2004 2:05 PM Subject: [low dose naltrexone] Re: my neuro and ldn > Interesting story; glad to hear your MS hasn't progressed > beyond sensory symptoms; from what I've heard that is a > good indication overall. > > With regard to your Dr.'s refusal to prescribe LDN, its > not always that they are in the drug company's pockets > (although it sure seems that way). It can also be the > fear of liability. It seems to me that Doctors are > trained " if patient has disease X, proscribe medicine Y " . > Its really pretty mechanical, and anything that goes > outside of the " usual,customary, and reasonable " > treatment is ignored. I'd suggest that you offer to > sign a waiver and see if that helps? > > For what its worth I'm getting my LDN from a DO, not > my neuro, although he knows about it. > > > > > I was dx with RRMS in 1994 and I have never (nor will I ever) taken > any > > ABCR drugs, much to the chagrin of my neuro. I take Flax seed oil > > everyday along with a multivitamin, and for the most part, have > been > > fairly well. I've been reading about the benefits of LDN for a > while > > and figured I would ask my neuro the next I time I met with her. > > > > Three weeks ago Thursday I woke up tingling and numb everywhere > from the > > neck down. I immediately started chugging my flax oil, taking 25mg > of > > Benadryl every 4 hours, and trying not to panic. I started feeling > > better by Friday afternoon and was only left with tingling/numbness > in > > the lower half of my legs, a band of tightness around my chest, and > a > > slight tingling in my fingertips. I didn't call my neuro right > away > > because my symptoms are usually always sensory and she doesn't > treat > > sensory problems, and this was the same -- no muscle weakness that > I > > can tell. I've continued to improve, but I decided I should at > least > > give my neuro a call to fill her in, so I left a message for her > nurse. > > I heard back from the nurse 7 days later saying my neuro didn't > need to > > see me unless I had weakness and that *she* *does not prescribe LDN > > because it is not an approved MS drug* but they had openings in > many of > > their ABCR clinical trials if I was interested. She was clearly > not > > listening to me! I've been refusing them all along, what would > make her > > think I'd start them now? I've since added Inosine tablets to my > > arsenal and I really believe they are helping, but I'd like to > start LDN > > also. > > > > I now have an appnt with a new neuro scheduled for April 13th. I'm > > seriously debating whether or not to see if my friend (who is a > D.O) > > would be willing to get me a script before I see my new doc or wait > till > > April, although there is a chance he won't prescribe it either. I > am > > just so frustrated with my neuro, as I like her personally, but I > see > > what a tool for the drug company she is and that bothers me. My > other > > concern is my dh and I have been trying to have another child, and > I > > worry about becoming pg while on the LDN, and what would happen if > I > > stopped it while pg. Getting pg is probably a long shot as I'm > almost > > 36 and we've been trying for almost 2 years with no > success.......but I > > always have to keep it in the back of my mind. > > > > Thanks for listening to my ramblings! > > > > Leigh > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Leigh: Please don't wait until April to start another battle to get LDN. Start it NOW! It's to your benefit and every day counts. Also, I wouldn't care who I got the prescription from as long as I got it. Take charge of your life. You'll be glad you did. Noland ----- Original Message ----- From: Leigh Ann Rozlog ldn Sent: Tuesday, February 17, 2004 1:34 PM Subject: [low dose naltrexone] my neuro and ldn I was dx with RRMS in 1994 and I have never (nor will I ever) taken any ABCR drugs, much to the chagrin of my neuro. I take Flax seed oil everyday along with a multivitamin, and for the most part, have been fairly well. I've been reading about the benefits of LDN for a while and figured I would ask my neuro the next I time I met with her. Three weeks ago Thursday I woke up tingling and numb everywhere from the neck down. I immediately started chugging my flax oil, taking 25mg of Benadryl every 4 hours, and trying not to panic. I started feeling better by Friday afternoon and was only left with tingling/numbness in the lower half of my legs, a band of tightness around my chest, and a slight tingling in my fingertips. I didn't call my neuro right away because my symptoms are usually always sensory and she doesn't treat sensory problems, and this was the same -- no muscle weakness that I can tell. I've continued to improve, but I decided I should at least give my neuro a call to fill her in, so I left a message for her nurse. I heard back from the nurse 7 days later saying my neuro didn't need to see me unless I had weakness and that she does not prescribe LDN because it is not an approved MS drug but they had openings in many of their ABCR clinical trials if I was interested. She was clearly not listening to me! I've been refusing them all along, what would make her think I'd start them now? I've since added Inosine tablets to my arsenal and I really believe they are helping, but I'd like to start LDN also.I now have an appnt with a new neuro scheduled for April 13th. I'm seriously debating whether or not to see if my friend (who is a D.O) would be willing to get me a script before I see my new doc or wait till April, although there is a chance he won't prescribe it either. I am just so frustrated with my neuro, as I like her personally, but I see what a tool for the drug company she is and that bothers me. My other concern is my dh and I have been trying to have another child, and I worry about becoming pg while on the LDN, and what would happen if I stopped it while pg. Getting pg is probably a long shot as I'm almost 36 and we've been trying for almost 2 years with no success.......but I always have to keep it in the back of my mind.Thanks for listening to my ramblings!Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 That definitely appears to be a true statement. Noland ----- Original Message ----- From: " " <jatrac1@...> <low dose naltrexone > Sent: Tuesday, February 17, 2004 3:12 PM Subject: Re: [low dose naltrexone] Re: my neuro and ldn > It seems like a lot of us are getting more support from our PCP's and not > the neuros. The neuros don't seem to have any interest in coloring outside > the lines. > > >> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 I originally got LDN from a phone interview, but my nuro renewed it for me after he saw the results. ----- Original Message ----- From: Noland R. Durnell, P.E. low dose naltrexone Sent: Tuesday, February 17, 2004 5:49 PM Subject: Re: [low dose naltrexone] my neuro and ldn Leigh: Please don't wait until April to start another battle to get LDN. Start it NOW! It's to your benefit and every day counts. Also, I wouldn't care who I got the prescription from as long as I got it. Take charge of your life. You'll be glad you did. Noland ----- Original Message ----- From: Leigh Ann Rozlog ldn Sent: Tuesday, February 17, 2004 1:34 PM Subject: [low dose naltrexone] my neuro and ldn I was dx with RRMS in 1994 and I have never (nor will I ever) taken any ABCR drugs, much to the chagrin of my neuro. I take Flax seed oil everyday along with a multivitamin, and for the most part, have been fairly well. I've been reading about the benefits of LDN for a while and figured I would ask my neuro the next I time I met with her. Three weeks ago Thursday I woke up tingling and numb everywhere from the neck down. I immediately started chugging my flax oil, taking 25mg of Benadryl every 4 hours, and trying not to panic. I started feeling better by Friday afternoon and was only left with tingling/numbness in the lower half of my legs, a band of tightness around my chest, and a slight tingling in my fingertips. I didn't call my neuro right away because my symptoms are usually always sensory and she doesn't treat sensory problems, and this was the same -- no muscle weakness that I can tell. I've continued to improve, but I decided I should at least give my neuro a call to fill her in, so I left a message for her nurse. I heard back from the nurse 7 days later saying my neuro didn't need to see me unless I had weakness and that she does not prescribe LDN because it is not an approved MS drug but they had openings in many of their ABCR clinical trials if I was interested. She was clearly not listening to me! I've been refusing them all along, what would make her think I'd start them now? I've since added Inosine tablets to my arsenal and I really believe they are helping, but I'd like to start LDN also.I now have an appnt with a new neuro scheduled for April 13th. I'm seriously debating whether or not to see if my friend (who is a D.O) would be willing to get me a script before I see my new doc or wait till April, although there is a chance he won't prescribe it either. I am just so frustrated with my neuro, as I like her personally, but I see what a tool for the drug company she is and that bothers me. My other concern is my dh and I have been trying to have another child, and I worry about becoming pg while on the LDN, and what would happen if I stopped it while pg. Getting pg is probably a long shot as I'm almost 36 and we've been trying for almost 2 years with no success.......but I always have to keep it in the back of my mind.Thanks for listening to my ramblings!Leigh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Leigh, Do whatever it takes to get ldn. It is your life!! When I found out my neuro couldn't prescribe the ldn for me because of the legal dept for her medical group I cried and cried... then I decided I would find someone who would give me the ldn. The dr I called told me how excited he was about ldn for ms people.... and fit me in the very next day!! I am so glad I am on it. It has been a month now. I still experience a lot of pain, but I sleep better, my endurance is better...and other little things. I hope I see more improvement over time!! It is hard to fight when we are the ill ones....usually with limited energy, but it is worth it!! Lori http://www.healthyways.20fr.com personal website Quote Link to comment Share on other sites More sharing options...
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