Re: info on LDN

[Guest guest]

Some information is available on This is MS and Remedyfind:

An explanation of how it might work (though showing this to a doctor

might insult them since They Know it All Already):

http://www.thisisms.com/encyclopedia-1.html

LDN trial for Crohn's:

http://www.thisisms.com/article1.html (includes a link to the clinic)

LDN Review Thread (though this again might insult a doctor, as these

are anecdotal):

http://www.thisisms.com/ftopict-1.html

Another LDN Review Thread + Description of how it might work:

http://www.remedyfind.com/rem.asp?id=4393

Good luck!

--- In low dose naltrexone , " jendimas1 " <jdimas@m...>

wrote:

> Are there any sites here on the net that give info about LDN

besides

> here and the ldn.org site?

[Guest guest]

Jen:

Try the following sites for information:

www.LDNinfo.org

http://www.mwt.net/~drbrewer/

http://goodshape.net/LDNHighlights.html

http://www.remedyfind.com

http://www.voy.com/156761/

http://www.digitalnaturopath.com/treat/T74481.html

http://www.msrc.co.uk/index.cfm?fuseaction=show & pageid=628 & CFID=493365 & CFTOK

http://www.vrhotwires.com/Bill_Meikle/MS/LDNandMS.html

http://disc.server.com/Indices/148285.html

http://www.thisisms.com/forum-10.html

Noland

----- Original Message -----

From: " jendimas1 " <jdimas@...>

<low dose naltrexone >

Sent: Tuesday, February 17, 2004 11:01 AM

Subject: [low dose naltrexone] info on LDN

> Are there any sites here on the net that give info about LDN besides

> here and the ldn.org site?

> I was wonderinf if there is any additional info out there that I

> should take to my DR.

> Thanks

> Jen

>

>

>

>

>

[Guest guest]

Hello Everyone,

I'm relatively new to the group, have been reading your discussions

of ldn with great interest for weeks now. For background--I was dxd

in 1982 with MS. Faired pretty well for the most part with relatively

manageable symptoms all these years, although over the course of the

last few years things have been more difficult. Last summer, however,

I had a major relapse, bedridden for months, etc. Finally started to

come out of it and reluctantly agreed to begin Copaxone in November.

Went back into a downward spirol almost immediately that was worse

than the previous relapse. Have been on the mend for probably the

last month or so, thankfully.

I am very enthusiastic about getting on ldn as soon as possible,

especially after reading that ldn seems to reverse new symptoms that

have developed within the 3 months prior to starting ldn (my first

post was in regard to this. Thanks! to those who responded).

Besides reading all of the groups posts, I have also been doing as

much outside research on ldn as I can. I want to be prepared when I

ask my neuro for the script. As a result, I have found what I

consider some very interesting info and wanted to share it with the

group. The slant of my research into ldn comes from the idea of ldn

being precribed " off-label " as so many other meds are versus the so-

called need for " clinical trials " as so many of your drs seem to

respond to your desire for a prescription to try it.

My neuro put me on Amantadene (fda approved for Parkinson's) several

years ago, and recently, Provigil (fda approved for Narcolepsy). I'm

sure many of us have been prescribed meds " off-label " countless

times. Did all of these drugs require " clinical trials " before our

drs wrote the scripts? According to my research, it seems drs are

allowed by the fda to prescribe meds for a new " off-label " use with

as little as a couple of articles written by drs regarding their own

experience with patients on the meds and getting the articles

published in various medical literature. There is controversy about

this, but maybe those of you already on ldn could encourage your drs

to pursue this, and it could then be widely precribed.

My research is ongoing but I wanted to share what I've come up with

so far. Some of it relates to issues raised here (Naltrexone vs

ReVia, etc.), most of it is info I think might help me convince my

neuro to prescribe it (scientific/medical vs anecdotal), a little is

of personal interest you might also find of interest. It's quite

extensive already so instead of copying it to this post, I'll just

list the URLs for you. I hope you find it helpful and informative,

sorry this is rather lengthy already without including the specific

info.

re: off-label Naltrexone/ReVia

http://www.currentpsychiatry.com/2002_08/08_02_kleptomania.asp

http://www.something-fishy.org/doctors/medications.php

http://www.fdainfo.com/bimo.html

You can search " off-label Naltrexone or ReVia " to find numerous

conditions it's being prescribed.

re: off-label controversy

http://www.independent.org/tii/news/001125Esposito.html

http://www.cbc.ca/consumers/market/files/health/off_label

http://www.ncpa.org/iss/hea/2002/pd041602e.html

re: governmental role/removing barriers for drug approval

http://aspe.os.dhhs.gov/health/reports/cocaine/4cases.htm

re: maker of Naltrexone/ReVia

http://www.stockfunnel.com

re: liver toxicity

http://www.lancegooberman.com/liver.htm

re: fyi

http://www.pathmed.com/p/49,85.html

http://www.pathmed.com/p/42,50.html

My best to all of you.

Lesa

[Guest guest]

Lesa,

Thanks for a great post. . . . the additional info you included was wonderful!

-----Original Message-----

From: Lesa

[mailto:lesah@...]

Sent: Friday, February 20, 2004

2:27 PM

To:

low dose naltrexone

Subject: [low dose naltrexone] Re:

Info on LDN

Hello Everyone,

I'm relatively new to the group, have been reading

your discussions

of ldn with great interest for weeks now. For

background--I was dxd

in 1982 with MS. Faired pretty well for the most

part with relatively

manageable symptoms all these years, although over

the course of the

last few years things have been more difficult.

Last summer, however,

I had a major relapse, bedridden for months, etc.

Finally started to

come out of it and reluctantly agreed to begin

Copaxone in November.

Went back into a downward spirol almost

immediately that was worse

than the previous relapse. Have been on the mend

for probably the

last month or so, thankfully.

I am very enthusiastic about getting on ldn as

soon as possible,

especially after reading that ldn seems to reverse

new symptoms that

have developed within the 3 months prior to

starting ldn (my first

post was in regard to this. Thanks! to those who

responded).

Besides reading all of the groups posts, I have

also been doing as

much outside research on ldn as I can. I want to

be prepared when I

ask my neuro for the script. As a result, I

have found what I

consider some very interesting info and wanted to

share it with the

group. The slant of my research into ldn comes

from the idea of ldn

being precribed " off-label " as so many

other meds are versus the so-

called need for " clinical trials " as so

many of your drs seem to

respond to your desire for a prescription to try

it.

My neuro put me on Amantadene (fda approved for

Parkinson's) several

years ago, and recently, Provigil (fda approved

for Narcolepsy). I'm

sure many of us have been prescribed meds

" off-label " countless

times. Did all of these drugs require

" clinical trials " before our

drs wrote the scripts? According to my research,

it seems drs are

allowed by the fda to prescribe meds for a new

" off-label " use with

as little as a couple of articles written by drs

regarding their own

experience with patients on the meds and getting

the articles

published in various medical literature. There is

controversy about

this, but maybe those of you already on ldn could

encourage your drs

to pursue this, and it could then be widely

precribed.

My research is ongoing but I wanted to share what

I've come up with

so far. Some of it relates to issues raised here

(Naltrexone vs

ReVia, etc.), most of it is info I think might

help me convince my

neuro to prescribe it (scientific/medical vs

anecdotal), a little is

of personal interest you might also find of

interest. It's quite

extensive already so instead of copying it to this

post, I'll just

list the URLs for you. I hope you find it helpful

and informative,

sorry this is rather lengthy already without

including the specific

info.

re: off-label Naltrexone/ReVia

http://www.currentpsychiatry.com/2002_08/08_02_kleptomania.asp

http://www.something-fishy.org/doctors/medications.php

http://www.fdainfo.com/bimo.html

You can search " off-label Naltrexone or

ReVia " to find numerous

conditions it's being prescribed.

re: off-label controversy

http://www.independent.org/tii/news/001125Esposito.html

http://www.cbc.ca/consumers/market/files/health/off_label

http://www.ncpa.org/iss/hea/2002/pd041602e.html

re: governmental role/removing barriers for drug

approval

http://aspe.os.dhhs.gov/health/reports/cocaine/4cases.htm

re: maker of Naltrexone/ReVia

http://www.stockfunnel.com

re: liver toxicity

http://www.lancegooberman.com/liver.htm

re: fyi

http://www.pathmed.com/p/49,85.html

http://www.pathmed.com/p/42,50.html

My best to all of you.

Lesa

[Guest guest]

I especially liked the response to the liver toxicity This seems to be the only real holdback when you approach your doctor and it is spelled out here very plainly. If any one doesn't read this then you will not be prepared when you ask for your ldn prescription. I also didn't know that there were no drugs tested by the FDA on children and so therefore most drugs prescribed to children were "offlabel" persay.,Reg.

-------Original Message-------

From: low dose naltrexone

Date: 02/20/04 19:07:25

low dose naltrexone

Subject: RE: [low dose naltrexone] Re: Info on LDN

Lesa,

Thanks for a great post. . . . the additional info you included was wonderful!

-----Original Message-----From: Lesa [mailto:lesah@...] Sent: Friday, February 20, 2004 2:27 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Info on LDN

re: off-label Naltrexone/ReVia http://www.currentpsychiatry.com/2002_08/08_02_kleptomania.asphttp://www.something-fishy.org/doctors/medications.phphttp://www.fdainfo.com/bimo.htmlYou can search "off-label Naltrexone or ReVia" to find numerous conditions it's being prescribed.re: off-label controversyhttp://www.independent.org/tii/news/001125Esposito.htmlhttp://www.cbc.ca/consumers/market/files/health/off_labelhttp://www.ncpa.org/iss/hea/2002/pd041602e.htmlre: governmental role/removing barriers for drug approvalhttp://aspe.os.dhhs.gov/health/reports/cocaine/4cases.htmre: maker of Naltrexone/ReViahttp://www.stockfunnel.comre: liver toxicityhttp://www.lancegooberman.com/liver.htmre: fyihttp://www.pathmed.com/p/49,85.htmlhttp://www.pathmed.com/p/42,50.htmlMy best to all of you.Lesa

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Hello Everyone,

Felt it was important to update info regarding the links I listed, as

some of the info can seem endless or worse, difficult to find what I

intended.

Linking to www.stockfunnel.com you have to go to " Pharmaceuticals &

Biotech " then scroll down to " Bristol Meyers-Squibb " (BMY) New York,

NY CEO Dolan. Careful reading under " BMY Acquisitions and

Alliances " reveals a minor mention of ReVia, but the rest of the info

in the Bristol Meyers-Squibb section is interesting info on the

company. (Maybe they'd be interested in knowing we're out here, as

they look as if they're in need of increased sales.) Linking to

http://aspe.os.dhhs.gov/health/reports/cocaine/4cases.htm

after the initial info on Naltrexone, be sure to read " Case Study 2:

Naltrexone " for an interesting read on the complete history of it's

development. I hope this is helpful to those interested.

Thanks, and Reg for the feedback. I'm still researching, and

trying to relocate info I seem to have lost I think from PathMed. In

a footnote referencing a natural supplement I am interested in there

was mention made regarding a study in mice where the substance

blocked endorphins in what might be much the same way Naltrexone does.

My best to all.

Lesa

" Reg Kreil " <regkreil@h...> wrote:

> I especially liked the response to the liver toxicity This seems to

be the only real holdback when you approach your doctor and it is

spelled out here very plainly. If any one doesn't read this then you

will not be prepared when you ask for your ldn prescription. I also

didn't know that there were no drugs tested by the FDA on children

and so therefore most drugs prescribed to children were " offlabel "

persay.,Reg.

>

> -------Original Message-------

>

> From: low dose naltrexone

> Date: 02/20/04 19:07:25

> low dose naltrexone

> Subject: RE: [low dose naltrexone] Re: Info on LDN

>

> Lesa,

> Thanks for a great post. . . . the additional info you included was

> wonderful!

>

>

> -----Original Message-----

> From: Lesa [mailto:lesah@s...]

> Sent: Friday, February 20, 2004 2:27 PM

> low dose naltrexone

> Subject: [low dose naltrexone] Re: Info on LDN

>

> re: off-label Naltrexone/ReVia

> http://www.currentpsychiatry.com/2002_08/08_02_kleptomania.asp

> http://www.something-fishy.org/doctors/medications.php

> http://www.fdainfo.com/bimo.html

> You can search " off-label Naltrexone or ReVia " to find numerous

> conditions it's being prescribed.

>

> re: off-label controversy

> http://www.independent.org/tii/news/001125Esposito.html

> http://www.cbc.ca/consumers/market/files/health/off_label

> http://www.ncpa.org/iss/hea/2002/pd041602e.html

>

> re: governmental role/removing barriers for drug approval

> http://aspe.os.dhhs.gov/health/reports/cocaine/4cases.htm

>

> re: maker of Naltrexone/ReVia

> http://www.stockfunnel.com

>

> re: liver toxicity

> http://www.lancegooberman.com/liver.htm

>

> re: fyi

> http://www.pathmed.com/p/49,85.html

> http://www.pathmed.com/p/42,50.html

>

>

> My best to all of you.

>

> Lesa