Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Steve: Have you experienced insomnia and/or leg stiffness at the 4.5 mg level? Noland ----- Original Message ----- From: " wkendz 32 " <wkendz32@...> <low dose naltrexone > Sent: Thursday, February 12, 2004 9:24 AM Subject: [low dose naltrexone] Questions for Steve... > " It's not all good news. I've been on LDN for 12 months and I'm not > doing well at all. After a few months of improvement I started to get > worse again and have been going downhill ever since. > > Steve " > > Hi Steve....I'm not sure if I have asked you to detail a few things or not > but I was first wondering where you are having your LDN compounded. Next, I > would be wondering what dose you are on and then whether you are taking > anything else that might be contradicting the LDN like something containing > a narcotic. Also, what time of the day are you taking it? There just might > be a clue in here somewhere to helping you...{{{hugs}}} JoyceF > > _________________________________________________________________ > Find great local high-speed Internet access value at the MSN High-Speed > Marketplace. http://click.atdmt.com/AVE/go/onm00200360ave/direct/01/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 On Thu, 12 Feb 2004 10:24:25 -0600, you wrote: > " It's not all good news. I've been on LDN for 12 months and I'm not >doing well at all. After a few months of improvement I started to get >worse again and have been going downhill ever since. > >Steve " > >Hi Steve....I'm not sure if I have asked you to detail a few things or not >but I was first wondering where you are having your LDN compounded. Next, I >would be wondering what dose you are on and then whether you are taking >anything else that might be contradicting the LDN like something containing >a narcotic. Also, what time of the day are you taking it? There just might >be a clue in here somewhere to helping you...{{{hugs}}} JoyceF > It comes from Bob Lawrence and I'm sure it's a reliable source. I started on 4.5mg but I am currently on a reducing dose because it seems to help most. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 On Thu, 12 Feb 2004 10:05:26 -0700, you wrote: >Steve: > >Have you experienced insomnia and/or leg stiffness at the 4.5 mg level? > >Noland > No, it just stopped having any beneficial effect. I dropped to 3.0mg and got some relief but no where near as much as when I first started. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Steve: Have you tried adjusting the time at which you take the LDN starting at 9:00 PM and backing off a half hour every 2-3 days until you reach 2:00 AM? This might help. However, don't adjust the dosage until you find a time that appears to be the best. Noland ----- Original Message ----- From: <steve@...> <low dose naltrexone > Sent: Thursday, February 12, 2004 10:35 AM Subject: Re: [low dose naltrexone] Questions for Steve... > On Thu, 12 Feb 2004 10:24:25 -0600, you wrote: > > > " It's not all good news. I've been on LDN for 12 months and I'm not > >doing well at all. After a few months of improvement I started to get > >worse again and have been going downhill ever since. > > > >Steve " > > > >Hi Steve....I'm not sure if I have asked you to detail a few things or not > >but I was first wondering where you are having your LDN compounded. Next, I > >would be wondering what dose you are on and then whether you are taking > >anything else that might be contradicting the LDN like something containing > >a narcotic. Also, what time of the day are you taking it? There just might > >be a clue in here somewhere to helping you...{{{hugs}}} JoyceF > > > > It comes from Bob Lawrence and I'm sure it's a reliable source. > > I started on 4.5mg but I am currently on a reducing dose because it > seems to help most. > > Steve > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 On Tue, 17 Feb 2004 10:20:15 -0700, you wrote: >Steve: > >Have you tried adjusting the time at which you take the LDN starting at 9:00 >PM and backing off a half hour every 2-3 days until you reach 2:00 AM? This >might help. However, don't adjust the dosage until you find a time that >appears to be the best. > >Noland > Yes, I've tried from 20:00 to 03:00. It is difficult to determine which time gives the best results because of too many other variables. At the moment 23:00 seems best but only marginally better than any other time. It is a very convenient time because I'm usually just going to bed. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi , I have been reading a lot about these attacks while on LDN being underlying infections. Could they be caused by something as simple as a yeast infection?? I had a real set back after one week on LDN and I was not sick like people said to check for. The only thing going on was a yeast infection, I get them often as I am a diabetic. I just don't consider them illness anymore. It is gone and the attack slowly eased off, it took another five days, I am better than before LDN but not like I was after that first week, I was great then. I don't mind having to suffer every attack I ever had if I can get back to how well I was that after that first week! Give up on LDN? NO WAY! thanks for your help Peace, Zil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 ANYone on LDN with cancer experience pain or burning......while on LDN....take care Sandy ----- Original Message ----- From: zillba@... low dose naltrexone Sent: Tuesday, February 17, 2004 7:46 PM Subject: Re: [low dose naltrexone] Re: Questions for Steve... Hi , I have been reading a lot about these attacks while on LDN being underlying infections. Could they be caused by something as simple as a yeast infection?? I had a real set back after one week on LDN and I was not sick like people said to check for. The only thing going on was a yeast infection, I get them often as I am a diabetic. I just don't consider them illness anymore. It is gone and the attack slowly eased off, it took another five days, I am better than before LDN but not like I was after that first week, I was great then. I don't mind having to suffer every attack I ever had if I can get back to how well I was that after that first week! Give up on LDN? NO WAY! thanks for your help Peace, Zil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Lori Taheebo Tea..or Pau D'arco..works well..available at health food stores......Sandy ----- Original Message ----- From: Lori s low dose naltrexone Sent: Tuesday, February 17, 2004 8:21 PM Subject: RE: [low dose naltrexone] Re: Questions for Steve... I would love any suggestions for getting rid of Candida. I have had this for a long time and haven’t been able to get rid of it. Lori s -----Original Message-----From: mboylebradley [mailto:mboylebradley@...] Sent: Tuesday, February 17, 2004 5:05 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Questions for Steve... Hi Zil, Without question yeast plays a huge role in all of this. A friend of mine was about to give up on LDN until she discovered that she was running an underlying yeast infection unknown to her. It makes sense that she would be a candidate as she endured years of steroids. The way she discovered that candida was the issue was by doing the following simple test. I believe that many who start LDN may give up on it because they have yeast issues after periods of steroids ...HOW CAN YOU TELL IF YOU HAVE A CANDIDA INFECTION?Take the following simple test. First thing in the morning, right after you wake up, spit into a clear glass of water. Tap water is fine. Check the water every 15 minutes for up to one hour. If you have a candida yeast infection, you will see strings (like legs) traveling down into the water from the saliva floating on the top. Cloudy saliva will sink to the bottom of the glass, or cloudy specks will seem to be suspended in the water. If there are no strings and the saliva is still floating after at least one hour, you most likely do not have a candida overgrowth. This test is remarkably accurate. The amount of strings or cloudiness, and the speed at which they develop, will even give you an indication of how serious the overgrowth is. The faster it develops and the more you see, the more severe the overgrowth.There are many ways to treat this and if it is an issue without a doubt once addressed the LDN seems more effective.All the Best> Hi , > I have been reading a lot about these attacks while on LDN being underlying > infections. Could they be caused by something as simple as a yeast infection??> I had a real set back after one week on LDN and I was not sick like people > said to check for. The only thing going on was a yeast infection, I get them > often as I am a diabetic. I just don't consider them illness anymore. It is > gone and the attack slowly eased off, it took another five days, I am better than > before LDN but not like I was after that first week, I was great then. I > don't mind having to suffer every attack I ever had if I can get back to how well > I was that after that first week! Give up on LDN? NO WAY!> thanks for your help> Peace,> Zil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Good, Steve. It appears that you have established a " best " time for you. Now, I'd recommend adjusting the dosage taken at that time until you find the dosage that appears to work the best for you. However, keep in mind that you may be one of those people who do not exhibit miracles but only experience a stopping of the progression. Noland > Yes, I've tried from 20:00 to 03:00. It is difficult to determine > which time gives the best results because of too many other variables. > At the moment 23:00 seems best but only marginally better than any > other time. It is a very convenient time because I'm usually just > going to bed. > > Steve > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 On Tue, 17 Feb 2004 15:31:11 -0700, you wrote: >Good, Steve. It appears that you have established a " best " time for you. >Now, I'd recommend adjusting the dosage taken at that time until you find >the dosage that appears to work the best for you. However, keep in mind >that you may be one of those people who do not exhibit miracles but only >experience a stopping of the progression. > >Noland > > I have already tried adjusting the dose. I started at 4.5mg but later dropped to 3mg. It has not stopped progression. My symptoms improved at first but after three months started to get worse again. I have primary progressive MS and I'm fairly sure that LDN is less effective. It helps a bit but not for long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Hi Steve, I believe that LDN is just as effective for PPMS .... my husband is testament to that. The recommended dose is 4.5mg because 3mg only works for 85% of people. I honestly believe that LDN works for all MS unless it is not compounded right. Sometimes it appears not to work due an underlying infection that acts on old scarring .... and sometimes (although rarely) people find out that they don't have MS. > > >Good, Steve. It appears that you have established a " best " time for you. > >Now, I'd recommend adjusting the dosage taken at that time until you find > >the dosage that appears to work the best for you. However, keep in mind > >that you may be one of those people who do not exhibit miracles but only > >experience a stopping of the progression. > > > >Noland > > > > > > I have already tried adjusting the dose. I started at 4.5mg but later > dropped to 3mg. It has not stopped progression. My symptoms improved > at first but after three months started to get worse again. I have > primary progressive MS and I'm fairly sure that LDN is less effective. > It helps a bit but not for long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Hi Zil, Without question yeast plays a huge role in all of this. A friend of mine was about to give up on LDN until she discovered that she was running an underlying yeast infection unknown to her. It makes sense that she would be a candidate as she endured years of steroids. The way she discovered that candida was the issue was by doing the following simple test. I believe that many who start LDN may give up on it because they have yeast issues after periods of steroids ... HOW CAN YOU TELL IF YOU HAVE A CANDIDA INFECTION? Take the following simple test. First thing in the morning, right after you wake up, spit into a clear glass of water. Tap water is fine. Check the water every 15 minutes for up to one hour. If you have a candida yeast infection, you will see strings (like legs) traveling down into the water from the saliva floating on the top. Cloudy saliva will sink to the bottom of the glass, or cloudy specks will seem to be suspended in the water. If there are no strings and the saliva is still floating after at least one hour, you most likely do not have a candida overgrowth. This test is remarkably accurate. The amount of strings or cloudiness, and the speed at which they develop, will even give you an indication of how serious the overgrowth is. The faster it develops and the more you see, the more severe the overgrowth. There are many ways to treat this and if it is an issue without a doubt once addressed the LDN seems more effective. All the Best > Hi , > I have been reading a lot about these attacks while on LDN being underlying > infections. Could they be caused by something as simple as a yeast infection?? > I had a real set back after one week on LDN and I was not sick like people > said to check for. The only thing going on was a yeast infection, I get them > often as I am a diabetic. I just don't consider them illness anymore. It is > gone and the attack slowly eased off, it took another five days, I am better than > before LDN but not like I was after that first week, I was great then. I > don't mind having to suffer every attack I ever had if I can get back to how well > I was that after that first week! Give up on LDN? NO WAY! > thanks for your help > Peace, > Zil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 On Wed, 18 Feb 2004 00:22:32 -0000, you wrote: >Hi Steve, I believe that LDN is just as effective for PPMS .... my >husband is testament to that. The recommended dose is 4.5mg because >3mg only works for 85% of people. I honestly believe that LDN works >for all MS unless it is not compounded right. Sometimes it appears >not to work due an underlying infection that acts on old >scarring .... and sometimes (although rarely) people find out that >they don't have MS. > Your husband is lucky. I have been taking LDN for over a year and it has not stopped my progression. It helps a bit so I keep taking it. I was on 4.5mg for most of the time. I definitely have MS. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 I would love any suggestions for getting rid of Candida. I have had this for a long time and haven’t been able to get rid of it. Lori s -----Original Message----- From: mboylebradley [mailto:mboylebradley@...] Sent: Tuesday, February 17, 2004 5:05 PM To: low dose naltrexone Subject: [low dose naltrexone] Re: Questions for Steve... Hi Zil, Without question yeast plays a huge role in all of this. A friend of mine was about to give up on LDN until she discovered that she was running an underlying yeast infection unknown to her. It makes sense that she would be a candidate as she endured years of steroids. The way she discovered that candida was the issue was by doing the following simple test. I believe that many who start LDN may give up on it because they have yeast issues after periods of steroids ... HOW CAN YOU TELL IF YOU HAVE A CANDIDA INFECTION? Take the following simple test. First thing in the morning, right after you wake up, spit into a clear glass of water. Tap water is fine. Check the water every 15 minutes for up to one hour. If you have a candida yeast infection, you will see strings (like legs) traveling down into the water from the saliva floating on the top. Cloudy saliva will sink to the bottom of the glass, or cloudy specks will seem to be suspended in the water. If there are no strings and the saliva is still floating after at least one hour, you most likely do not have a candida overgrowth. This test is remarkably accurate. The amount of strings or cloudiness, and the speed at which they develop, will even give you an indication of how serious the overgrowth is. The faster it develops and the more you see, the more severe the overgrowth. There are many ways to treat this and if it is an issue without a doubt once addressed the LDN seems more effective. All the Best > Hi , > I have been reading a lot about these attacks while on LDN being underlying > infections. Could they be caused by something as simple as a yeast infection?? > I had a real set back after one week on LDN and I was not sick like people > said to check for. The only thing going on was a yeast infection, I get them > often as I am a diabetic. I just don't consider them illness anymore. It is > gone and the attack slowly eased off, it took another five days, I am better than > before LDN but not like I was after that first week, I was great then. I > don't mind having to suffer every attack I ever had if I can get back to how well > I was that after that first week! Give up on LDN? NO WAY! > thanks for your help > Peace, > Zil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Hi Lori .. I am sure that Threelac works ... many other products may also do. All the Best > > Hi , > > I have been reading a lot about these attacks while on LDN being > underlying > > infections. Could they be caused by something as simple as a yeast > infection?? > > I had a real set back after one week on LDN and I was not sick like > people > > said to check for. The only thing going on was a yeast infection, > I get them > > often as I am a diabetic. I just don't consider them illness > anymore. It is > > gone and the attack slowly eased off, it took another five days, I > am better than > > before LDN but not like I was after that first week, I was great > then. I > > don't mind having to suffer every attack I ever had if I can get > back to how well > > I was that after that first week! Give up on LDN? NO WAY! > > thanks for your help > > Peace, > > Zil > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Hi Steve ... I am sorry to hear that. SUCKS! I am curious why you moved to 3mg ... All the Best > > >Hi Steve, I believe that LDN is just as effective for PPMS .... my > >husband is testament to that. The recommended dose is 4.5mg because > >3mg only works for 85% of people. I honestly believe that LDN works > >for all MS unless it is not compounded right. Sometimes it appears > >not to work due an underlying infection that acts on old > >scarring .... and sometimes (although rarely) people find out that > >they don't have MS. > > > > Your husband is lucky. I have been taking LDN for over a year and it > has not stopped my progression. It helps a bit so I keep taking it. I > was on 4.5mg for most of the time. I definitely have MS. > > Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 For yeast infections, Dr. Sullivan (who prescribes my LDN) suggested I take Yeast Defense by Nutrition Now. I take one capsule in the morning and one in the evening. You can find it in health foods stores or order it online. Does the trick! -----Original Message-----From: Lori s [mailto:Lori@...]Sent: Tuesday, February 17, 2004 8:22 PMlow dose naltrexone Subject: RE: [low dose naltrexone] Re: Questions for Steve... I would love any suggestions for getting rid of Candida. I have had this for a long time and haven’t been able to get rid of it. Lori s -----Original Message-----From: mboylebradley [mailto:mboylebradley@...] Sent: Tuesday, February 17, 2004 5:05 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Questions for Steve... Hi Zil, Without question yeast plays a huge role in all of this. A friend of mine was about to give up on LDN until she discovered that she was running an underlying yeast infection unknown to her. It makes sense that she would be a candidate as she endured years of steroids. The way she discovered that candida was the issue was by doing the following simple test. I believe that many who start LDN may give up on it because they have yeast issues after periods of steroids ...HOW CAN YOU TELL IF YOU HAVE A CANDIDA INFECTION?Take the following simple test. First thing in the morning, right after you wake up, spit into a clear glass of water. Tap water is fine. Check the water every 15 minutes for up to one hour. If you have a candida yeast infection, you will see strings (like legs) traveling down into the water from the saliva floating on the top. Cloudy saliva will sink to the bottom of the glass, or cloudy specks will seem to be suspended in the water. If there are no strings and the saliva is still floating after at least one hour, you most likely do not have a candida overgrowth. This test is remarkably accurate. The amount of strings or cloudiness, and the speed at which they develop, will even give you an indication of how serious the overgrowth is. The faster it develops and the more you see, the more severe the overgrowth.There are many ways to treat this and if it is an issue without a doubt once addressed the LDN seems more effective.All the Best> Hi , > I have been reading a lot about these attacks while on LDN being underlying > infections. Could they be caused by something as simple as a yeast infection??> I had a real set back after one week on LDN and I was not sick like people > said to check for. The only thing going on was a yeast infection, I get them > often as I am a diabetic. I just don't consider them illness anymore. It is > gone and the attack slowly eased off, it took another five days, I am better than > before LDN but not like I was after that first week, I was great then. I > don't mind having to suffer every attack I ever had if I can get back to how well > I was that after that first week! Give up on LDN? NO WAY!> thanks for your help> Peace,> Zil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 On Wed, 18 Feb 2004 01:36:15 -0000, you wrote: >Hi Steve ... I am sorry to hear that. SUCKS! I am curious why you >moved to 3mg ... >All the Best > 4.5mg was giving me occasional abdominal cramps during the night. It's a known side effect which went away as soon as I dropped to 3mg. I still try the higher dose for 5 days and the cramps come back. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Eliminate, or at the very least, significantly reduce refined sugar and flour intake. Caprylic acid helps to get rid of it too. You can go to the healthfood store to get suggestions if you don't have a Naturopath Doc to help advise. Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Steve: Did you exhibit insomnia and leg stiffness attributable to the LDN when you were at the 4.5 mg level? Noland ----- Original Message ----- From: <steve@...> <low dose naltrexone > Sent: Tuesday, February 17, 2004 5:02 PM Subject: Re: [low dose naltrexone] Questions for Steve... > On Tue, 17 Feb 2004 15:31:11 -0700, you wrote: > > >Good, Steve. It appears that you have established a " best " time for you. > >Now, I'd recommend adjusting the dosage taken at that time until you find > >the dosage that appears to work the best for you. However, keep in mind > >that you may be one of those people who do not exhibit miracles but only > >experience a stopping of the progression. > > > >Noland > > > > > > I have already tried adjusting the dose. I started at 4.5mg but later > dropped to 3mg. It has not stopped progression. My symptoms improved > at first but after three months started to get worse again. I have > primary progressive MS and I'm fairly sure that LDN is less effective. > It helps a bit but not for long. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 On Wed, 18 Feb 2004 09:01:14 -0700, you wrote: >Steve: > >Did you exhibit insomnia and leg stiffness attributable to the LDN when you >were at the 4.5 mg level? > >Noland > No, just abdominal cramps. The side effect came as a bit of a shock for such a small dose difference but I have tested it repeatedly over a long period. I'm OK on 3mg but 4.5mg is just too much. According to Du Pont abdominal cramps is the main reason for people giving up 25 - 50mg Naltrexone. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Steve: You appear to be in need of a discussion with Dr. Bihari since you have such a complex problem. Noland ----- Original Message ----- From: <steve@...> <low dose naltrexone > Sent: Wednesday, February 18, 2004 3:11 AM Subject: Re: [low dose naltrexone] Re: Questions for Steve... > On Wed, 18 Feb 2004 01:36:15 -0000, you wrote: > > >Hi Steve ... I am sorry to hear that. SUCKS! I am curious why you > >moved to 3mg ... > >All the Best > > > > 4.5mg was giving me occasional abdominal cramps during the night. It's > a known side effect which went away as soon as I dropped to 3mg. I > still try the higher dose for 5 days and the cramps come back. > > Steve > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 On Wed, 18 Feb 2004 10:25:41 -0700, you wrote: >Steve: > >You appear to be in need of a discussion with Dr. Bihari since you have such >a complex problem. > >Noland > Wrong country. It is difficult to arrange a time or place or method of payment. For now I'll stick to 3mg. I don't expect to improve. If my progression slows down I will keep on the low dose. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 HI STEVEMAYBE YOU SHOULD GO UP NOT DOWN. i KNOW IT IS SUPPOSED TO BE LOW DOSE BUT I STARTED ON 25.0 MG. IT HAS MADE A BIG DIFFERENCE. I USE TO USE A WALKER AND WAS READY FOR A WHEELCHAIR. I CAN NOW WALK WITHOUT ANY ASSISTANCE. SO MUCH HAPPENED IN THE FIRST WEEK. AFTER MY FIRST DAY I NO LONGER HAD ANY PAIN. I HAVE NO FATIGUE, BALANCE IS BETTER. IT COULD BE WORTH A TRY TO TRY IT THAT WAY FOR A WEEK. WE ARE THE TEST SUBJECTS FOR PEOPLE WITH MS. FLASHYKATHY ----- Original Message ----- From: mboylebradley low dose naltrexone Sent: Tuesday, February 17, 2004 8:36 PM Subject: [low dose naltrexone] Re: Questions for Steve... Hi Steve ... I am sorry to hear that. SUCKS! I am curious why you moved to 3mg ...All the Best> > >Hi Steve, I believe that LDN is just as effective for PPMS .... my > >husband is testament to that. The recommended dose is 4.5mg because > >3mg only works for 85% of people. I honestly believe that LDN works > >for all MS unless it is not compounded right. Sometimes it appears > >not to work due an underlying infection that acts on old > >scarring .... and sometimes (although rarely) people find out that > >they don't have MS.> > > > Your husband is lucky. I have been taking LDN for over a year and it> has not stopped my progression. It helps a bit so I keep taking it. I> was on 4.5mg for most of the time. I definitely have MS.> > Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 I thought about it for a while but to get that much naltrexone would be rough you can't just get it from the store! Reg. -------Original Message------- From: low dose naltrexone Date: 02/18/04 13:34:39 low dose naltrexone Subject: Re: [low dose naltrexone] Re: Questions for Steve... HI STEVEMAYBE YOU SHOULD GO UP NOT DOWN. i KNOW IT IS SUPPOSED TO BE LOW DOSE BUT I STARTED ON 25.0 MG. IT HAS MADE A BIG DIFFERENCE. I USE TO USE A WALKER AND WAS READY FOR A WHEELCHAIR. I CAN NOW WALK WITHOUT ANY ASSISTANCE. SO MUCH HAPPENED IN THE FIRST WEEK. AFTER MY FIRST DAY I NO LONGER HAD ANY PAIN. I HAVE NO FATIGUE, BALANCE IS BETTER. IT COULD BE WORTH A TRY TO TRY IT THAT WAY FOR A WEEK. WE ARE THE TEST SUBJECTS FOR PEOPLE WITH MS. FLASHYKATHY ----- Original Message ----- From: mboylebradley low dose naltrexone Sent: Tuesday, February 17, 2004 8:36 PM Subject: [low dose naltrexone] Re: Questions for Steve... Hi Steve ... I am sorry to hear that. SUCKS! I am curious why you moved to 3mg ...All the Best> > >Hi Steve, I believe that LDN is just as effective for PPMS .... my > >husband is testament to that. The recommended dose is 4.5mg because > >3mg only works for 85% of people. I honestly believe that LDN works > >for all MS unless it is not compounded right. Sometimes it appears > >not to work due an underlying infection that acts on old > >scarring .... and sometimes (although rarely) people find out that > >they don't have MS.> > > > Your husband is lucky. I have been taking LDN for over a year and it> has not stopped my progression. It helps a bit so I keep taking it. I> was on 4.5mg for most of the time. I definitely have MS.> > Steve ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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