Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 I know this sounds silly but honey, as sticky as it is, helps prevent the scarring as well as helping to prevent infection of the pox. Just put a dab of it on the pox.... probably won't help too much with the itchiness but it does help with the scarring and infections. You want dark, dark honey... the light ones are good but it's the darker honeys that appear to have more antibacterial properties. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 You are correct about that curve ball, but maybe it is a bommerang. My daughter got the chickenpox when her arthritis was active. We were at clinical for her knne injection, she had one lesion on her stomach-checked by the drs, but no one thought chickenpox. Two days later she awoke with them all over,a mild case. I would be courius to know if other Jra kids had mild or severe cases. Good Luck Bye SHU Happy Thanksgiving Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 my thoughts are with you and your child yikes take it one day at a time thats how it is here just when i THINK we can get in a routine and melissa is getting to school everyday something throws a ball at us Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 When melissa had chicken pox when she was 7 yrs old she broke out everywhere eyes nose mouth private areas you name it she got it there my mother in law said to keep her in bed and just put a white t shirt on her with white panties and dab calamine potion on her spots she was cleared within 7 to 10 days my mother in law said this also that if they dont break out good they have a chance to catch them again Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 My daughter had a very mild case at the age of 1, diagnosed with JRA at 5. She had colic when she was born for three months, cried all the time, am wondering now if she was born with JRA. > You are correct about that curve ball, but maybe it is a bommerang. My > daughter got the chickenpox when her arthritis was active. We were at > clinical for her knne injection, she had one lesion on her stomach- checked by > the drs, but no one thought chickenpox. Two days later she awoke with them > all over,a mild case. I would be courius to know if other Jra kids had mild > or severe cases. Good Luck Bye SHU > Happy Thanksgiving Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 Prayers out to you . I know that Chicken Pox is a real concern for children being treated as ours. ~ Venting.... Aaaaaaarrrrrgggghhhhhh. Hannah has come down with chicken pox (albeit a mild case), presumably from the varicella vaccine she got 3 weeks ago. She is, henceforth, off her usual meds until this resolves. Off Naprosyn until she scabs, off MTX until her immunity is built back up. The ped rheumy is estimating 4-6 weeks. Meanwhile she's flaring badly in her right knee, the same one that's been aspirated/injected TWICE already. I've said it before and I'll say it again. Everytime I think we've got a handle on this disease it throws a curve ball. eGroups Sponsor For links to websites with JRA info please visit: http://www.geocities.com/Heartland/Village/8414/Links.html To manage your subscription settings, visit: subscribe/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 My daughter had a severe case of chickenpox. This is after they gave her aclovir (which if given within the first 24 hours outbreak is suppose to lessen the severity of the disease). Not only was she covered, she ran very high temps and vomited constantly. Her pediatrician and I were on the phone constantly for monitoring her situation and she was also taken in twice for an exam during her siege. The " funny " thing about it was some parent got mad at me because their child was exposed to the chicken pox because my daughter attended Head Start the day before she broke out. She started being feverish following her half day at head start and broke out 24 hours later ( a non school day). I felt that I should at least alert Head start that there was a good bet that the children had been exposed with Chicken Pox (we never did know where Meghann got them). I kind of flew off the handle and berated the parent with the facts that because somewhere my child had been exposed, she now had to be taken off her meds that kept her arthritis at bay. She was at risk to having a very severe case because her immunities were not like most children and he was upset because his child MIGHT come down with Chickenpox. I list MIGHT because I have never had them and all 4 of my children have had them. Go figure. Oh well It wasn't exactly a shining moment; but as a parent with a chronically ill child (since birth I might add) I'm entitled to a few melt downs LOL. Sharon Re: Venting.... > You are correct about that curve ball, but maybe it is a bommerang. My > daughter got the chickenpox when her arthritis was active. We were at > clinical for her knne injection, she had one lesion on her stomach-checked by > the drs, but no one thought chickenpox. Two days later she awoke with them > all over,a mild case. I would be courius to know if other Jra kids had mild > or severe cases. Good Luck Bye SHU > Happy Thanksgiving > > > > For links to websites with JRA info please visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > To manage your subscription settings, visit: > subscribe/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 I had chicken pox when I was 16...it was terrible, a very bad case. My mom gave me benadryl around the clock, which helped me sleep, and when I was awake I found a lukewarm Aveeno bath to be very comforting. Ashleigh didn't get the vaccine, but had them when she was 2. Kelsey hasn't yet had them. She also hasn't had the vaccine yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2000 Report Share Posted November 22, 2000 - Interesting about the colic. had colic, too. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2000 Report Share Posted November 23, 2000 In a message dated 11/21/2000 9:50:37 AM Pacific Standard Time, wildbick@... writes: > Everytime I think we've > got a handle on this disease it throws a curve ball. Life is never Dull is it ( God, I pray for dull now and again ) Marcie, s Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2000 Report Share Posted November 23, 2000 In a message dated 11/21/2000 10:14:12 AM Pacific Standard Time, akally@... writes: > probably won't help too much with the itchiness If she has no open pox, try a bath in baking soda....it helps take away the itch Marcie, s Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2000 Report Share Posted November 23, 2000 In a message dated 11/21/2000 2:52:02 PM Pacific Standard Time, contessa12399@... writes: > She had colic when she was born for three months, cried all the time, > am wondering now if she was born with JRA. > Funny you say that ..., 17, diagnoses at13, and an easy case cf chicken pax at 3, alsohad colic as a child. She also loked to....Lets see how I can describe it, she would put her hands on the end ( arm rest ) of the sofa and kean over it rocking, dre me nuts, I wonder now if she was treating her achy joints ( if she did in fact have it even back then ) Marcie, s Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2000 Report Share Posted November 23, 2000 In a message dated 11/21/2000 3:47:02 PM Pacific Standard Time, rsgerfen@... writes: > my daughter attended Head Star A great program, My 3 girls attended. My ex works for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 > In a message dated 11/21/2000 9:50:37 AM Pacific Standard Time, > wildbick@... writes: > > > Everytime I think we've > > got a handle on this disease it throws a curve ball. > Life is never Dull is it ( God, I pray for dull now and again ) > > Marcie, s Mom Yes ... I second these thoughts ~Georgina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Hi , Incredible! Aloha, Georgina Gerfen wrote: > > My daughter had a severe case of chickenpox. This is after they gave her > aclovir (which if given within the first 24 hours outbreak is suppose to > lessen the severity of the disease). Not only was she covered, she ran very > high temps and vomited constantly. Her pediatrician and I were on the phone > constantly for monitoring her situation and she was also taken in twice for > an exam during her siege. > The " funny " thing about it was some parent got mad at me because their child > was exposed to the chicken pox because my daughter attended Head Start the > day before she broke out. She started being feverish following her half > day at head start and broke out 24 hours later ( a non school day). I felt > that I should at least alert Head start that there was a good bet that the > children had been exposed with Chicken Pox (we never did know where Meghann > got them). > I kind of flew off the handle and berated the parent with the facts that > because somewhere my child had been exposed, she now had to be taken off her > meds that kept her arthritis at bay. She was at risk to having a very > severe case because her immunities were not like most children and he was > upset because his child MIGHT come down with Chickenpox. I list MIGHT > because I have never had them and all 4 of my children have had them. Go > figure. Oh well It wasn't exactly a shining moment; but as a parent with a > chronically ill child (since birth I might add) I'm entitled to a few melt > downs LOL. > > Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hi Sally Are u in the UK as I am, and are having difficulties getting my docs to take LDN seriously. My MS nurse says no to it. I will be seeing my neuro on the 11th March and wondered how you managed to get your doctor to prescribe it. Hope you dont mind me asking but need to try something that will help my MS and your symptoms are very similar to mine. take good care kind regards Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hi, Lin, My neuro did not take LDN seriously either. I got it through another doc. Many on here have said that a GP is more likely to prescribe it than a neuro. My neuro would not even listen to me. He even kept telling me that I did not mean what I was saying. Each time I said NALTREXONE, he corrected me and told me I meant NOVANTRONE. I assured him I did not. Aggravating. The doctor who prescribed it was willing to listen to me and read the info available. I think that you can even go with a phone consult, right? I hope you find a means to get it if that is what you want! Sally in Indiana -----Original Message-----From: linsthename@... [mailto:linsthename@...]Sent: Wednesday, February 25, 2004 8:18 AMlow dose naltrexone Subject: Re: [low dose naltrexone] Venting....Hi SallyAre u in the UK as I am, and are having difficulties getting my docs to take LDN seriously.My MS nurse says no to it. I will be seeing my neuro on the 11th March and wondered how you managed to get your doctor to prescribe it.Hope you dont mind me asking but need to try something that will help my MS and your symptoms are very similar to mine.take good carekind regardsLin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Good morning, Lin: You might want to copy some of the information from the following sites to give/refer your Doctor's to: http://www.msrc.co.uk/index.cfm?fuseaction=show & pageid=628 & CFID=493365 & CFTOK http://www.remedyfind.com http://www.vrhotwires.com/Bill_Meikle/MS/LDNandMS.html http://disc.server.com/Indices/148285.html http://www.thisisms.com/forum-10.html www.LDNinfo.org http://www.mwt.net/~drbrewer/ http://goodshape.net/LDNHighlights.html http://www.voy.com/156761/ http://www.digitalnaturopath.com/treat/T74481.html You will see Dr. Bob Lawrence's address in the UK listed at the end of the first article shown above. At www.acam.org there are 7 Doctor's listed in England that are supposed to be forward thinking Doctors that you could call and ask them if they are aware of LDN and write prescriptions for it.Also, you could call a number of Homeopathic or Naturopathic Doctors in the area and ask them the same. Another source might be to call some local compounding pharmacies and ask if they know of any Doctors who prescribe Low Dose Naltrexone. Noland ----- Original Message ----- From: linsthename@... low dose naltrexone Sent: Wednesday, February 25, 2004 6:17 AM Subject: Re: [low dose naltrexone] Venting.... Hi SallyAre u in the UK as I am, and are having difficulties getting my docs to take LDN seriously.My MS nurse says no to it. I will be seeing my neuro on the 11th March and wondered how you managed to get your doctor to prescribe it.Hope you dont mind me asking but need to try something that will help my MS and your symptoms are very similar to mine.take good carekind regardsLin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi Lin read your email to the group it is very hard to get anybody to take you seriously in uk about ldn but there are various ways to get it, one is to see your neurologist privately "expensive"but you tell him then !!! because your paying, thats what i have done or you can get a perscription from the states over the phone then get the pills sent to you, you have topay by credit card but its much cheaper than the neurologist if you want to know more drop me a line and i will explain it all to you. hope this helps . Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi, I asked my neuro and doctor to prescribe me ldn but was told no. I am a little worried about taking it without doctors or neuros supervision. Do you know of any doctors in Kent UK that actually prescribe ldn? my e-mail is linsthename@... Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 On Fri, 27 Feb 2004 10:58:09 EST, you wrote: >Hi, > >I asked my neuro and doctor to prescribe me ldn but was told no. I am a >little worried about taking it without doctors or neuros supervision. Do you know >of any doctors in Kent UK that actually prescribe ldn? > >my e-mail is linsthename@... > >Lin Get the paperwork from Dr Lawrence bob.lawrence@... and give it to you own GP. He/she may then prescribe it and get your local pharmacy to order some from the listed UK manufacturer. It is only an advantage if you can get it on a NHS prescription because the UK manufacturer charges a lot. It's all explained in the paperwork. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Lin That is why you need to talk to Dr. Bihari. He will answer all of your questions. If you need him he will get right back to you. I talked to him on the phone and got my prescriptions. At the beginning, I had problems that I thought were related to the LDN. I called him and he got right back to me. It turned out that I had low blood pressure and even on the phone he was able to figure it out. He suggested that I have my blood pressure checked. I had just had it checked a couple of days before and he did hit me right on the button. I did have low blood pressure. But because I had just started the LDN, I thought that it was that that was giving me problems. Not too many other doctors know much about LDN. so if you are able to get them to prescribe it, they still can't help you much if you have problems. I feel very confident with Dr. Bihari. Marie ----- Original Message ----- From: linsthename@... low dose naltrexone Sent: Friday, February 27, 2004 10:58 AM Subject: Re: [low dose naltrexone] Venting.... Hi,I asked my neuro and doctor to prescribe me ldn but was told no. I am a little worried about taking it without doctors or neuros supervision. Do you know of any doctors in Kent UK that actually prescribe ldn?my e-mail is linsthename@...Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 Hello Hello, How do I get to talk to Dr. Bihari? Do you have a telephone number for him?Aage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 Dr. Bernard Bihari, 212-929-4196. ----- Original Message ----- From: aageloul@... low dose naltrexone Sent: Friday, February 27, 2004 10:28 PM Subject: Re: [low dose naltrexone] Venting.... Hello Hello, How do I get to talk to Dr. Bihari? Do you have a telephone number for him?Aage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 You must be a patient of his to speak with him.(only fair) The phone number for Dr. B is on the LDN site. www.low dose naltrexone.org Quote Link to comment Share on other sites More sharing options...
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