Secondary Progressive MS and LDN

[Guest guest]

If it was me, I wouldn't quit the LDN!!

Marcie

[Guest guest]

I have RRMS, but I mix my own Naltraxone in water and have no problem with

fillers because there are no fillers. It is not difficult to mix one's own

and eliminate filler problems.

----- Original Message -----

From: " lindafahrbach " <Lee@...>

<low dose naltrexone >

Sent: Wednesday, February 18, 2004 10:35 AM

Subject: [low dose naltrexone] Secondary Progressive MS and LDN

> Anyone else out there who is Secondary Progressive and using LDN.

> What have your results been? I started out with benign MS, went to

> Relapsing/Remitting, and am now Secondary Progressive. Was first

> diagnosed in 1988. Have been on Betaseron, Copaxone, Rebif, and

> back on Copaxone. I walk with a cane, have a drop-foot brace, and

> my left arm and hand are basically useless. Copaxone has stabilized

> my lesions but not my symptoms. Started LDN about three months ago-

it would help my spasticity in my left arm and hand, but nothing has

> happened there. I'm getting discouraged after reading about all of

> still remain on Copaxone. The only improvements I've seen are

> better sleeping and better bladder control at night. I was hoping

> thes miracles, and I'm getting tired of experimenting with fillers.

> Calcium carbonate gave me gas pains, lactose gave me burning in my

> stomach, and corn starch is doing the same. I'm nearing the point

> of stopping LDN. Any advice would be appreciated.

..

[Guest guest]

Anyone else out there who is Secondary Progressive and using LDN.

What have your results been? I started out with benign MS, went to

Relapsing/Remitting, and am now Secondary Progressive. Was first

diagnosed in 1988. Have been on Betaseron, Copaxone, Rebif, and

back on Copaxone. I walk with a cane, have a drop-foot brace, and

my left arm and hand are basically useless. Copaxone has stabilized

my lesions but not my symptoms. Started LDN about three months ago--

still remain on Copaxone. The only improvements I've seen are

better sleeping and better bladder control at night. I was hoping

it would help my spasticity in my left arm and hand, but nothing has

happened there. I'm getting discouraged after reading about all of

thes miracles, and I'm getting tired of experimenting with fillers.

Calcium carbonate gave me gas pains, lactose gave me burning in my

stomach, and corn starch is doing the same. I'm nearing the point

of stopping LDN. Any advice would be appreciated.

[Guest guest]

,

I also have secondary progressive MS. Diagnosed in 1997, symptoms since 1993. Had problems with ldn with lactose filler (3 mg dose). Ordered from Irmat and had no problems. The incredible pain in the bones from waist down disappeared two days after the Irmat dose and badder functoin is much better. I've come to realize that I will not be one of the lucky ones who will walk. I guess it is the fine are of rejoicing with those who rejoice and mourn with those who mourn.

Beth

>From: "lindafahrbach"

>Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] Secondary Progressive MS and LDN >Date: Wed, 18 Feb 2004 15:35:15 -0000 > >Anyone else out there who is Secondary Progressive and using LDN. >What have your results been? I started out with benign MS, went to >Relapsing/Remitting, and am now Secondary Progressive. Was first >diagnosed in 1988. Have been on Betaseron, Copaxone, Rebif, and >back on Copaxone. I walk with a cane, have a drop-foot brace, and >my left arm and hand are basically useless. Copaxone has stabilized >my lesions but not my symptoms. Started LDN about three months ago-- >still remain on Copaxone. The only improvements I've seen are >better sleeping and better bladder control at night. I was hoping >it would help my spasticity in my left arm and hand, but nothing has >happened there. I'm getting discouraged after reading about all of >thes miracles, and I'm getting tired of experimenting with fillers. >Calcium carbonate gave me gas pains, lactose gave me burning in my >stomach, and corn starch is doing the same. I'm nearing the point >of stopping LDN. Any advice would be appreciated. > Watch high-quality video with fast playback at MSN Video. Free!

[Guest guest]

Good morning, Lee:

My advise to you is " Don't even think about stopping taking LDN " . I would

try Avicel which is an inert cellulose material for the filler such as

Skip's Pharmacy uses. Or, a vitamin mixture for a filler such as The

Compounder Pharmacy uses. an acidophilus filler is also another

alternative.

Also, even though you are not experiencing the " miracles " that some are

experiencing, you have shown some improvement. Maybe more will come with

time. However, we must never forget that the purpose of LDN is not to cure

but to stop progression. Anything else is a welcome side effect.

It appears that you are like my wife, allergic to everything. She's

probably even allergic to me but I'm afraid to have her tested for that.

She's been tested for nearly everything else and was positive for darn near

everything.

Bottom line: Hang in there and don't give up! Quitter's never win! I

realize it is a tough battle but we are all pulling for you.

Noland

----- Original Message -----

From: " lindafahrbach " <Lee@...>

<low dose naltrexone >

Sent: Wednesday, February 18, 2004 8:35 AM

Subject: [low dose naltrexone] Secondary Progressive MS and LDN

> Anyone else out there who is Secondary Progressive and using LDN.

> What have your results been? I started out with benign MS, went to

> Relapsing/Remitting, and am now Secondary Progressive. Was first

> diagnosed in 1988. Have been on Betaseron, Copaxone, Rebif, and

> back on Copaxone. I walk with a cane, have a drop-foot brace, and

> my left arm and hand are basically useless. Copaxone has stabilized

> my lesions but not my symptoms. Started LDN about three months ago--

> still remain on Copaxone. The only improvements I've seen are

> better sleeping and better bladder control at night. I was hoping

> it would help my spasticity in my left arm and hand, but nothing has

> happened there. I'm getting discouraged after reading about all of

> thes miracles, and I'm getting tired of experimenting with fillers.

> Calcium carbonate gave me gas pains, lactose gave me burning in my

> stomach, and corn starch is doing the same. I'm nearing the point

> of stopping LDN. Any advice would be appreciated.

>

>

>

>

>

>

[Guest guest]

, I wouldn't stop traking LDN. Its not always easy, miracles

happen just to a few, but for me, stopping the progression is worth

so much.

Hang on,

Chey

[Guest guest]

My prescription is for 50 mg. Naltraxone Tablets. I cut them in half, crush half a pill in a mortar and pestle, and add 48 ml water. I take 8 ml. a night which is 4.17 mg. Naltraxone. 50 mg. tabs is how it is prescribed for all other uses here in Massachusetts.

----- Original Message -----

From: LarryGC

low dose naltrexone

Sent: Thursday, February 19, 2004 1:27 AM

Subject: Re: [low dose naltrexone] Secondary Progressive MS and LDN

You're mixing pure naltrexone powder? Or ReVia tabs? If ReVia tabs, you have filler in the tabs. If pure naltexone powder, how did you manage to get a script for that???

----- Original Message -----

From: Lynda Phelps

low dose naltrexone

Sent: Wednesday, February 18, 2004 08:55

Subject: Re: [low dose naltrexone] Secondary Progressive MS and LDN

I have RRMS, but I mix my own Naltraxone in water and have no problem withfillers because there are no fillers. It is not difficult to mix one's ownand eliminate filler problems.

[Guest guest]

You're mixing pure naltrexone powder? Or ReVia tabs? If ReVia tabs, you have filler in the tabs. If pure naltexone powder, how did you manage to get a script for that???

----- Original Message -----

From: Lynda Phelps

low dose naltrexone

Sent: Wednesday, February 18, 2004 08:55

Subject: Re: [low dose naltrexone] Secondary Progressive MS and LDN

I have RRMS, but I mix my own Naltraxone in water and have no problem withfillers because there are no fillers. It is not difficult to mix one's ownand eliminate filler problems.

[Guest guest]

Beth,

What filler does Irmat use?