Guest guest Posted February 23, 2003 Report Share Posted February 23, 2003 Hi Judi, and the babies will definitely be in my thoughts and prayers. All my best to you and yours. Love and hugs, Alan > Hello good people, > > Hope you all had a good Sunday. We finally got to church, though we > wondered last night with the prediction of many inches of snow. We > had rain, ice, and about an inch of snow. > > I found out I definitely AM allergic to Keflex. My tongue & lips > started to swell last night, so Ron took me to the ER. Great, one > more thing I can't take. They also took me off the Duratuss, and I'm > supposed to see my pcp tomorrow. Right now got a nasty headache and > still coughing, so I guess I will obey. > > has her amnio test Tuesday morning, and wants me to be there > with her as Duane has to work. That's gonna be fun, as I'll have to > leave home by 6 AM to get there by 8. But right now I'd walk through > fire to be with her. Her doc thinks they may deliver Thurs. or Fri. > Please keep her & babies in your prayers--I think they're working! > > Peace & grace to all, > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 i am so sorry to hear about your latest allergic reaction. seems like you just keep battling. you are a strong woman and probably running on adrenaline. hang in there and get some rest when you can. ok?? kathy in il (keeping my fingers crossed!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hey sunnfun, I've been on LDN for a week too, 3mg. I feel a lot stronger, but get really sleepy in the afternoon for a while. Last night was the first night I didn't actually sleep better than before I started taking it. Couldn't get to sleep, couldn't stay asleep. And once I did go to sleep I woke up with a nasty spasm and shock across my lower back. Not Lhermittes, but at least as obnoxious. It didn't repeat itself. Another mystery. Isn't life full of them though! My legs are kind of stiff too, but feel stronger. Can anyone tell me if the stiffness goes away after a while? Another thing I've noticed is a change in my appetite. I'm just not snacky anymore, what a blessing. And my stomach feels better, quite a relief since I have been mildly nauseated for several months. My insides seem to be working much better. Anybody else had appetite changes? Thanks, ----- Original Message ----- From: " sunnfunfla " <sunnfunfla@...> <low dose naltrexone > Sent: Thursday, February 12, 2004 6:01 PM Subject: [low dose naltrexone] Hi to all > I'm another " newbie " . . . Have been taking ldn for MS for about a > week. I've had MS for over 20 yrs, I've been a real rebel when it > comes to the ABCR injectables. I'm proud to say I've been doing > very well with my disease. Let me ask everyone an obvious > question. I'm experiencing some of the common side effects of ldn, > (I take 3.0 every night around 9:00pm) leg stiffness and trouble > getting back to sleep when getting to use the bathroom (usually > once). I have noticed a lot more energy throughout the day, wish > really excites me. I want to thank everyone for their helpful > comments. It's a shame more people aren't aware of ldn, I try to > tell as many as possible. Until the next time. I look forward to > your comments. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hey , Nope, unfortunately lack of appetite is not been one of my side effects. . .lol I need to hit my health club to handle that one. It will be interesting to see our progress. . 3mg for one week, good luck! SunnFun -----Original Message-----From: [mailto:jatrac1@...] Sent: Thursday, February 12, 2004 9:24 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Hi to allHey sunnfun, I've been on LDN for a week too, 3mg.I feel a lot stronger, but get really sleepy in the afternoon for a while.Last night was the first night I didn't actually sleep better than before Istarted taking it. Couldn't get to sleep, couldn't stay asleep. And once Idid go to sleep I woke up with a nasty spasm and shock across my lower back.Not Lhermittes, but at least as obnoxious. It didn't repeat itself.Another mystery. Isn't life full of them though!My legs are kind of stiff too, but feel stronger. Can anyone tell me if thestiffness goes away after a while?Another thing I've noticed is a change in my appetite. I'm just not snackyanymore, what a blessing. And my stomach feels better, quite a relief sinceI have been mildly nauseated for several months. My insides seem to beworking much better.Anybody else had appetite changes?Thanks, ----- Original Message ----- From: "sunnfunfla" <sunnfunfla@...><low dose naltrexone >Sent: Thursday, February 12, 2004 6:01 PMSubject: [low dose naltrexone] Hi to all> I'm another "newbie". . . Have been taking ldn for MS for about a> week. I've had MS for over 20 yrs, I've been a real rebel when it> comes to the ABCR injectables. I'm proud to say I've been doing> very well with my disease. Let me ask everyone an obvious> question. I'm experiencing some of the common side effects of ldn,> (I take 3.0 every night around 9:00pm) leg stiffness and trouble> getting back to sleep when getting to use the bathroom (usually> once). I have noticed a lot more energy throughout the day, wish> really excites me. I want to thank everyone for their helpful> comments. It's a shame more people aren't aware of ldn, I try to> tell as many as possible. Until the next time. I look forward to> your comments.>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 I noticed a change in my appetite after starting LDN. I just don't eat as much and most of the time I don't eat an evening meal. Just not hungry. I may have lost a couple of pounds, but not enough to get concerned. Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 If the stiffness dosn't go away after a month or so cut back slightly on your dose, opening the capsule and dumping out a small amount works for some until they get a new prescription for a smaller amount . Only one week is way too soon to figure out what will be best though.As I have said before we are in it for the long haul, give it time there is no hurry,this is being tested right now by all of us who are on ldn.and for the benefit of all concerned lets try to be patient. Can this sleepy in the afternoon be your system coming back to life and you are not used to putting out that much?I like too think so!Reg. -------Original Message------- From: low dose naltrexone Date: 02/12/04 19:25:28 low dose naltrexone Subject: Re: [low dose naltrexone] Hi to all Hey sunnfun, I've been on LDN for a week too, 3mg.I feel a lot stronger, but get really sleepy in the afternoon for a while.Last night was the first night I didn't actually sleep better than before Istarted taking it. Couldn't get to sleep, couldn't stay asleep. And once Idid go to sleep I woke up with a nasty spasm and shock across my lower back.Not Lhermittes, but at least as obnoxious. It didn't repeat itself.Another mystery. Isn't life full of them though!My legs are kind of stiff too, but feel stronger. Can anyone tell me if thestiffness goes away after a while?Another thing I've noticed is a change in my appetite. I'm just not snackyanymore, what a blessing. And my stomach feels better, quite a relief sinceI have been mildly nauseated for several months. My insides seem to beworking much better.Anybody else had appetite changes?Thanks, ----- Original Message ----- From: "sunnfunfla" <sunnfunfla@...><low dose naltrexone >Sent: Thursday, February 12, 2004 6:01 PMSubject: [low dose naltrexone] Hi to all> I'm another "newbie". . . Have been taking ldn for MS for about a> week. I've had MS for over 20 yrs, I've been a real rebel when it> comes to the ABCR injectables. I'm proud to say I've been doing> very well with my disease. Let me ask everyone an obvious> question. I'm experiencing some of the common side effects of ldn,> (I take 3.0 every night around 9:00pm) leg stiffness and trouble> getting back to sleep when getting to use the bathroom (usually> once). I have noticed a lot more energy throughout the day, wish> really excites me. I want to thank everyone for their helpful> comments. It's a shame more people aren't aware of ldn, I try to> tell as many as possible. Until the next time. I look forward to> your comments.>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 It is probable that your leg stiffness and insomnia will go away in 2-3 weeks. Noland ----- Original Message ----- From: " sunnfunfla " <sunnfunfla@...> <low dose naltrexone > Sent: Thursday, February 12, 2004 7:01 PM Subject: [low dose naltrexone] Hi to all > I'm another " newbie " . . . Have been taking ldn for MS for about a > week. I've had MS for over 20 yrs, I've been a real rebel when it > comes to the ABCR injectables. I'm proud to say I've been doing > very well with my disease. Let me ask everyone an obvious > question. I'm experiencing some of the common side effects of ldn, > (I take 3.0 every night around 9:00pm) leg stiffness and trouble > getting back to sleep when getting to use the bathroom (usually > once). I have noticed a lot more energy throughout the day, wish > really excites me. I want to thank everyone for their helpful > comments. It's a shame more people aren't aware of ldn, I try to > tell as many as possible. Until the next time. I look forward to > your comments. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 I live in the UK. How do you get LDN if the doctor won't prescribe it. I have had a word with my MS nurse and she is looking into it. She did say someone else had asked for it but it couldn't be prescribed because it wasn't licensed. Pat -------Original Message------- From: low dose naltrexone Date: 02/16/04 17:31:52 low dose naltrexone Subject: Re: [low dose naltrexone] Hi to all It is probable that your leg stiffness and insomnia will go away in 2-3 weeks. Noland ----- Original Message ----- From: "sunnfunfla" <sunnfunfla@...> <low dose naltrexone > Sent: Thursday, February 12, 2004 7:01 PM Subject: [low dose naltrexone] Hi to all > I'm another "newbie". . . Have been taking ldn for MS for about a > week. I've had MS for over 20 yrs, I've been a real rebel when it > comes to the ABCR injectables. I'm proud to say I've been doing > very well with my disease. Let me ask everyone an obvious > question. I'm experiencing some of the common side effects of ldn, > (I take 3.0 every night around 9:00pm) leg stiffness and trouble > getting back to sleep when getting to use the bathroom (usually > once). I have noticed a lot more energy throughout the day, wish > really excites me. I want to thank everyone for their helpful > comments. It's a shame more people aren't aware of ldn, I try to > tell as many as possible. Until the next time. I look forward to > your comments. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 I used to work in NI..Belfast. ANY GP if willing can write a prescription for the liquid form called an extemporaneous prescription, whereby you need a "decent" pharmacy willing to make it up..this gets round the need to use a manufactured capsule with no license, as the tablet form is licensed. It's very easy n (Pharmacist) e-mail benquinn@... I'll leave my phone no. if you e-mail me personally ----- Original Message ----- From: peter SIMPSON low dose naltrexone Sent: Monday, February 16, 2004 7:34 PM Subject: Re: [low dose naltrexone] Hi to all I live in the UK. How do you get LDN if the doctor won't prescribe it. I have had a word with my MS nurse and she is looking into it. She did say someone else had asked for it but it couldn't be prescribed because it wasn't licensed. Pat -------Original Message------- From: low dose naltrexone Date: 02/16/04 17:31:52 low dose naltrexone Subject: Re: [low dose naltrexone] Hi to all It is probable that your leg stiffness and insomnia will go away in 2-3 weeks. Noland ----- Original Message ----- From: "sunnfunfla" <sunnfunfla@...> <low dose naltrexone > Sent: Thursday, February 12, 2004 7:01 PM Subject: [low dose naltrexone] Hi to all > I'm another "newbie". . . Have been taking ldn for MS for about a > week. I've had MS for over 20 yrs, I've been a real rebel when it > comes to the ABCR injectables. I'm proud to say I've been doing > very well with my disease. Let me ask everyone an obvious > question. I'm experiencing some of the common side effects of ldn, > (I take 3.0 every night around 9:00pm) leg stiffness and trouble > getting back to sleep when getting to use the bathroom (usually > once). I have noticed a lot more energy throughout the day, wish > really excites me. I want to thank everyone for their helpful > comments. It's a shame more people aren't aware of ldn, I try to > tell as many as possible. Until the next time. I look forward to > your comments. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 That's a good point n .. in the UK even if the GP scripts the government should cover it. In the Republic though a consultant has to script for the health boards to pay. Phil and Grace will write prescriptions n, but the patients have to pay themselves as neither are consultants. Do you see any legal loop hole here? Thanks > I used to work in NI..Belfast. ANY GP if willing can write a prescription for the liquid form called an extemporaneous prescription, whereby you need a " decent " pharmacy willing to make it up..this gets round the need to use a manufactured capsule with no license, as the tablet form is licensed. It's very easy > n (Pharmacist) > e-mail benquinn@s... > I'll leave my phone no. if you e-mail me personally > ----- Original Message ----- > From: peter SIMPSON > low dose naltrexone > Sent: Monday, February 16, 2004 7:34 PM > Subject: Re: [low dose naltrexone] Hi to all > > > I live in the UK. How do you get LDN if the doctor won't prescribe it. I have had a word with my MS nurse and she is looking into it. She did say someone else had asked for it but it couldn't be prescribed because it wasn't licensed. > > Pat > > -------Original Message------- > > From: low dose naltrexone > Date: 02/16/04 17:31:52 > low dose naltrexone > Subject: Re: [low dose naltrexone] Hi to all > > It is probable that your leg stiffness and insomnia will go away in 2-3 > weeks. > > Noland > > ----- Original Message ----- > From: " sunnfunfla " <sunnfunfla@y...> > <low dose naltrexone > > Sent: Thursday, February 12, 2004 7:01 PM > Subject: [low dose naltrexone] Hi to all > > > > I'm another " newbie " . . . Have been taking ldn for MS for about a > > week. I've had MS for over 20 yrs, I've been a real rebel when it > > comes to the ABCR injectables. I'm proud to say I've been doing > > very well with my disease. Let me ask everyone an obvious > > question. I'm experiencing some of the common side effects of ldn, > > (I take 3.0 every night around 9:00pm) leg stiffness and trouble > > getting back to sleep when getting to use the bathroom (usually > > once). I have noticed a lot more energy throughout the day, wish > > really excites me. I want to thank everyone for their helpful > > comments. It's a shame more people aren't aware of ldn, I try to > > tell as many as possible. Until the next time. I look forward to > > your comments. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Not quite true, if a GP (normal Physician) wants to use a licensed drug at a lower dose, theyre entitled to do so, and normally ask the Pharmacist to compund an " extemporaneous " version, normally a liquid. This allows use of micro-doses of drugs, eg for paediatrics, etc. there is no objection from the Paymasters (GMS payments board ) to this quite rare type of prescribing. This is why 6 out of my 7 patients are getting liquig form :-) it's free, legal, and above board ----- Original Message ----- From: " mboylebradley " <mboylebradley@...> <low dose naltrexone > Sent: Wednesday, February 18, 2004 1:24 PM Subject: [low dose naltrexone] Re: Hi to all > That's a good point n .. in the UK even if the GP scripts the > government should cover it. In the Republic though a consultant has > to script for the health boards to pay. Phil and Grace will write > prescriptions n, but the patients have to pay themselves as > neither are consultants. Do you see any legal loop hole here? > Thanks > > > > I used to work in NI..Belfast. ANY GP if willing can write a > prescription for the liquid form called an extemporaneous > prescription, whereby you need a " decent " pharmacy willing to make it > up..this gets round the need to use a manufactured capsule with no > license, as the tablet form is licensed. It's very easy > > n (Pharmacist) > > e-mail benquinn@s... > > I'll leave my phone no. if you e-mail me personally > > ----- Original Message ----- > > From: peter SIMPSON > > low dose naltrexone > > Sent: Monday, February 16, 2004 7:34 PM > > Subject: Re: [low dose naltrexone] Hi to all > > > > > > I live in the UK. How do you get LDN if the doctor won't > prescribe it. I have had a word with my MS nurse and she is looking > into it. She did say someone else had asked for it but it couldn't > be prescribed because it wasn't licensed. > > > > Pat > > > > -------Original Message------- > > > > From: low dose naltrexone > > Date: 02/16/04 17:31:52 > > low dose naltrexone > > Subject: Re: [low dose naltrexone] Hi to all > > > > It is probable that your leg stiffness and insomnia will go > away in 2-3 > > weeks. > > > > Noland > > > > ----- Original Message ----- > > From: " sunnfunfla " <sunnfunfla@y...> > > <low dose naltrexone > > > Sent: Thursday, February 12, 2004 7:01 PM > > Subject: [low dose naltrexone] Hi to all > > > > > > > I'm another " newbie " . . . Have been taking ldn for MS for > about a > > > week. I've had MS for over 20 yrs, I've been a real > rebel when it > > > comes to the ABCR injectables. I'm proud to say I've > been doing > > > very well with my disease. Let me ask everyone an obvious > > > question. I'm experiencing some of the common side > effects of ldn, > > > (I take 3.0 every night around 9:00pm) leg stiffness and > trouble > > > getting back to sleep when getting to use the bathroom > (usually > > > once). I have noticed a lot more energy throughout the > day, wish > > > really excites me. I want to thank everyone for their > helpful > > > comments. It's a shame more people aren't aware of ldn, > I try to > > > tell as many as possible. Until the next time. I look > forward to > > > your comments. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Hi n ... Is there any issue with the capsules? .... because people are experiencing problems and from what you say should not be. Thanks > > > I used to work in NI..Belfast. ANY GP if willing can write a > > prescription for the liquid form called an extemporaneous > > prescription, whereby you need a " decent " pharmacy willing to make it > > up..this gets round the need to use a manufactured capsule with no > > license, as the tablet form is licensed. It's very easy > > > n (Pharmacist) > > > e-mail benquinn@s... > > > I'll leave my phone no. if you e-mail me personally > > > ----- Original Message ----- > > > From: peter SIMPSON > > > low dose naltrexone > > > Sent: Monday, February 16, 2004 7:34 PM > > > Subject: Re: [low dose naltrexone] Hi to all > > > > > > > > > I live in the UK. How do you get LDN if the doctor won't > > prescribe it. I have had a word with my MS nurse and she is looking > > into it. She did say someone else had asked for it but it couldn't > > be prescribed because it wasn't licensed. > > > > > > Pat > > > > > > -------Original Message------- > > > > > > From: low dose naltrexone > > > Date: 02/16/04 17:31:52 > > > low dose naltrexone > > > Subject: Re: [low dose naltrexone] Hi to all > > > > > > It is probable that your leg stiffness and insomnia will go > > away in 2-3 > > > weeks. > > > > > > Noland > > > > > > ----- Original Message ----- > > > From: " sunnfunfla " <sunnfunfla@y...> > > > <low dose naltrexone > > > > Sent: Thursday, February 12, 2004 7:01 PM > > > Subject: [low dose naltrexone] Hi to all > > > > > > > > > > I'm another " newbie " . . . Have been taking ldn for MS for > > about a > > > > week. I've had MS for over 20 yrs, I've been a real > > rebel when it > > > > comes to the ABCR injectables. I'm proud to say I've > > been doing > > > > very well with my disease. Let me ask everyone an obvious > > > > question. I'm experiencing some of the common side > > effects of ldn, > > > > (I take 3.0 every night around 9:00pm) leg stiffness and > > trouble > > > > getting back to sleep when getting to use the bathroom > > (usually > > > > once). I have noticed a lot more energy throughout the > > day, wish > > > > really excites me. I want to thank everyone for their > > helpful > > > > comments. It's a shame more people aren't aware of ldn, > > I try to > > > > tell as many as possible. Until the next time. I look > > forward to > > > > your comments. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Yes, because the capsules are not a licensed medicine, the Health Boards will not permit their use, unless a consultant prescribes them. Even then, the local area Board must make a decision whether to permit them on the (free) " Long-term illness scheme " ..they woull be more afraid of using an unlicensed medicine because of risks of litigation ----- Original Message ----- From: " mboylebradley " <mboylebradley@...> <low dose naltrexone > Sent: Thursday, February 19, 2004 1:23 PM Subject: [low dose naltrexone] Re: Hi to all > Hi n ... Is there any issue with the capsules? .... because > people are experiencing problems and from what you say should not be. > Thanks > > > > > > I used to work in NI..Belfast. ANY GP if willing can > write a > > > prescription for the liquid form called an extemporaneous > > > prescription, whereby you need a " decent " pharmacy willing to > make it > > > up..this gets round the need to use a manufactured capsule with no > > > license, as the tablet form is licensed. It's very easy > > > > n (Pharmacist) > > > > e-mail benquinn@s... > > > > I'll leave my phone no. if you e-mail me personally > > > > ----- Original Message ----- > > > > From: peter SIMPSON > > > > low dose naltrexone > > > > Sent: Monday, February 16, 2004 7:34 PM > > > > Subject: Re: [low dose naltrexone] Hi to all > > > > > > > > > > > > I live in the UK. How do you get LDN if the doctor > won't > > > prescribe it. I have had a word with my MS nurse and she is > looking > > > into it. She did say someone else had asked for it but it > couldn't > > > be prescribed because it wasn't licensed. > > > > > > > > Pat > > > > > > > > -------Original Message------- > > > > > > > > From: low dose naltrexone > > > > Date: 02/16/04 17:31:52 > > > > low dose naltrexone > > > > Subject: Re: [low dose naltrexone] Hi to all > > > > > > > > It is probable that your leg stiffness and insomnia > will go > > > away in 2-3 > > > > weeks. > > > > > > > > Noland > > > > > > > > ----- Original Message ----- > > > > From: " sunnfunfla " <sunnfunfla@y...> > > > > <low dose naltrexone > > > > > Sent: Thursday, February 12, 2004 7:01 PM > > > > Subject: [low dose naltrexone] Hi to all > > > > > > > > > > > > > I'm another " newbie " . . . Have been taking ldn for MS > for > > > about a > > > > > week. I've had MS for over 20 yrs, I've been a real > > > rebel when it > > > > > comes to the ABCR injectables. I'm proud to say I've > > > been doing > > > > > very well with my disease. Let me ask everyone an > obvious > > > > > question. I'm experiencing some of the common side > > > effects of ldn, > > > > > (I take 3.0 every night around 9:00pm) leg stiffness > and > > > trouble > > > > > getting back to sleep when getting to use the bathroom > > > (usually > > > > > once). I have noticed a lot more energy throughout > the > > > day, wish > > > > > really excites me. I want to thank everyone for their > > > helpful > > > > > comments. It's a shame more people aren't aware of > ldn, > > > I try to > > > > > tell as many as possible. Until the next time. I > look > > > forward to > > > > > your comments. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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