Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 I've read good things about Skip's Pharmacy, somewhere on the east coast of Florida (maybe Boca Raton??). I called and spoke to Skip and he was very helpful. His number is 1-800-553-7429, fax 561-218- 8873. As soon as I get the results of my muscle biopsy in about a week, I'll raise the issue of an Rx for LDN with my neuro. Skip doesn't know anyone who takes it for ALS, but I did write to the LDN website editor and this was his response: " ALS is of unknown etiology and there had been some reports that there might be an autoimmune mechanism at work in ALS. If so, LDN acts to halt all autoimmune activity and would be worth trying. In addition, there had been some early reports that there were improvements in pulmonary function test results among a few people with ALS. " No miracles, but it can't hurt to try. Edith > > > > I did post on the living with als site, but haven't had any replies > > yet. Yours was the only one. I also think Gomez (is that > > Yolanda?) is planning to take it for PLS. > > Edith > > > > -- > . > ,-._|\ Covington > / Oz \ > \_,--.x/ > v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Melbourne, Australia! A bit far from Florida, but I'm happy to say my husband and I visited Melbourne about 5 years ago when we took a 5-week trip to New Zealand and Australia. We were entranced by the fairy penguins, and enjoyed walking around the city with people we met through a worldwide organization that exchanged visits to each other's homes. So glad we made the trip when we had the physical ability to do so. I hope my neuro is as open-minded as yours. I only met him twice, once for the original consult and the second time was for the emg tests. I mentioned LDN to him and he knew nothing about it. I'll wait for the results of my tests before raising the topic again. Please keep me posted on how the LDN is working for you. AFter all, PLS is a variant of ALS, so if it works for you, it may help me too. Edith > > > I've read good things about Skip's Pharmacy, somewhere on the east > > coast of Florida (maybe Boca Raton??). I called and spoke to Skip > > and he was very helpful. His number is 1-800-553-7429, fax 561- 218- > > 8873. > > > > As soon as I get the results of my muscle biopsy in about a week, > > I'll raise the issue of an Rx for LDN with my neuro. Skip doesn't > > know anyone who takes it for ALS, but I did write to the LDN website > > editor and this was his response: > > > > " ALS is of unknown etiology and there had been some reports that > > there might be an autoimmune mechanism at work in ALS. If so, LDN > > acts to halt all autoimmune activity and would be worth trying. In > > addition, there had been some early reports that there were > > improvements in pulmonary function test results among a few people > > with ALS. " > > > > No miracles, but it can't hurt to try. > > Edith > > > > > > --- In low dose naltrexone , C <covo@m...> wrote: > > > Yep, got my script today - as I thought my GP was very supportive > > of my > > > decision to use it even though she hadn't heard of it before. Now > > all I > > > have to do is try to track down a local compounding chemist. > > Closest > > > I've found so far is 25 miles away in Melbourne. > > > > -- > . > ,-._|\ Covington > / Oz \ > \_,--.x/ > v Quote Link to comment Share on other sites More sharing options...
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