Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Granny, I've been on Novantrone too short a time to tell you whether it's doing me any good. Like the ABCRs and LDN, Novantrone use is largely to halt progression rather than bring about a reversal of damage. Data from studies indicate 66% of MSers who use it show good results--33% with a reduction in relapse rate and another 33% who actually show some improvement. I'm not afraid of my treatments. I have had no problems with them thus far, except that my white cell count drops dramatically in the second week after an infusion (this is normal on Novantrone), so I have to avoid possibly infectious people. I also get dry mouth and dry eyes, and I have to take something for that. While there have been serious cardiac problems with Novantrone, that has been an extremely small percentage of people, and these problems appear at lifetime maximum or beyond it (one patient withheld info from his doctor in order to go beyond lifetime max, and he died). Novantrone users have to have cardiac testing done again by the 8th infusion, and some researchers recommend doing it more often than that, say, by the 5th. That's a little scary, yes, but for me it's a lot better than looking at the kind of disability I'm facing with the disease progression as fast as it has been for me. Hope this helps, Galoux Quote Link to comment Share on other sites More sharing options...
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