Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 it could possibly be from the Prednisone. I recently had my eyes checked and my eye doctor stated that I needed to have them checked about every 6 months due to the prednisone affects them and could cause glaucoma. Thanks,Bonnie RohrerAdministrative AssistantGovernment Card Services757-624-6212 -----Original Message-----From: cpruyn2002 <colleen.pruyn@...> [mailto:colleen.pruyn@...]Sent: Tuesday, December 10, 2002 10:54 AM Subject: [ ] blood shot eyesHello there,I have AIH and was diagnosed in August 2002. I have been on the Prednisone and Immuran for almost 4 months. My enzymes are normal. I am on 5mg of Prednisone and 100mg of Immuran. I am feeling much better but, my eyes have visable red blood vessels in them? Is this becasue of the meds? Also, my hair is falling out in handfuls and the Dr swears that it is not a result of the meds but becasue of the trama my body went through???? Any advice? Anyone? Ny home remedies to get rid of the blood shot eyes? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 I know that Prednisone thins your skin? Right? I saw the ophthalmologist. I don't have uveitis or glaucoma? RE: [ ] blood shot eyes it could possibly be from the Prednisone. I recently had my eyes checked and my eye doctor stated that I needed to have them checked about every 6 months due to the prednisone affects them and could cause glaucoma. Thanks,Bonnie RohrerAdministrative AssistantGovernment Card Services757-624-6212 -----Original Message-----From: cpruyn2002 <colleen.pruyn@...> [mailto:colleen.pruyn@...]Sent: Tuesday, December 10, 2002 10:54 AM Subject: [ ] blood shot eyesHello there,I have AIH and was diagnosed in August 2002. I have been on the Prednisone and Immuran for almost 4 months. My enzymes are normal. I am on 5mg of Prednisone and 100mg of Immuran. I am feeling much better but, my eyes have visable red blood vessels in them? Is this becasue of the meds? Also, my hair is falling out in handfuls and the Dr swears that it is not a result of the meds but becasue of the trama my body went through???? Any advice? Anyone? Ny home remedies to get rid of the blood shot eyes? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 Hi Colleen, Glad to hear from you again...I recall we spoke via email when you were first being diagnosed! Well, I have had the blood shot eyes, but mine were around long before the meds. It was one of the first things I noticed when I started feeling like something was wrong...I never had any real noticable symptoms, though. I still have the blood shot eyes sometimes and don't know why. Also, Imuran does cause hair loss and my hair has been falling out ever since I started taking it. It became worse when I lowered my prednisone and increase my Imuran dosage, so I am certain that is what is causing it. Try Nioxin shampoo and conditioner. It is expensive, but has helped me with this some. Best, > Hello there, > I have AIH and was diagnosed in August 2002. I have been on the > Prednisone and Immuran for almost 4 months. My enzymes are normal. I > am on 5mg of Prednisone and 100mg of Immuran. I am feeling much > better but, my eyes have visable red blood vessels in them? Is this > becasue of the meds? Also, my hair is falling out in handfuls and the > Dr swears that it is not a result of the meds but becasue of the > trama my body went through???? Any advice? Anyone? Ny home remedies > to get rid of the blood shot eyes? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 I've never had bloodshot eyes caused by any meds - have you got dry eyes? Bloodshot eyes for me was always another sign that my BP was on the up again which required a further increase in my BP meds. I guess you have regular BP checks? My meds never caused hairloss but once my LFT's were more under control my hair grew back. Jan RE: [ ] blood shot eyes it could possibly be from the Prednisone. I recently had my eyes checked and my eye doctor stated that I needed to have them checked about every 6 months due to the prednisone affects them and could cause glaucoma. Thanks,Bonnie RohrerAdministrative AssistantGovernment Card Services757-624-6212 -----Original Message-----From: cpruyn2002 <colleen.pruyn@...> [mailto:colleen.pruyn@...]Sent: Tuesday, December 10, 2002 10:54 AM Subject: [ ] blood shot eyesHello there,I have AIH and was diagnosed in August 2002. I have been on the Prednisone and Immuran for almost 4 months. My enzymes are normal. I am on 5mg of Prednisone and 100mg of Immuran. I am feeling much better but, my eyes have visable red blood vessels in them? Is this becasue of the meds? Also, my hair is falling out in handfuls and the Dr swears that it is not a result of the meds but becasue of the trama my body went through???? Any advice? Anyone? Ny home remedies to get rid of the blood shot eyes? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 " ...SCIG does not take away all reactions - just the anaflaxis (sp?) . still got horrendous headaches...I could not stand it...we switched from Gammunex to Polygam (which will soon be called Gammaguard S/D). We got no headaches...but just a thought... " Dayna - There you are! I was just starting to think that you might be facing some heavy stuff with your kids. Thinking of Kate and your family and hoping that she turns a corner for the better soon. Poor baby! I was hoping that you would see Becki's post (I was referring to you when I said that another family was having SCIG reactions). Sending healing wishes, mom CVIDer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Becky, I work with a home care company that has been really helpful with tips to lessen the side effects... Who are you using to get the Vivaglobin? We are on Gammagard Liquid and infuse once a week... had the " aseptic Meningitis reaction to IVIG>>>and we don't even premed now with SCIG> Re: Blood shot eyes >Dana, I am so sorry to hear that one of your pumpkins is in the hospital! I hope all is going well and will keep you guys in my prayers. We actually already tried the Polygam & Gammaguard on Reagon in IVIG form and she reacted to both of them even with premeds/postmeds and with it given over a 9 hour time period. Even worse than she is to the SCIG. I get frustrated putting her through this when there is absolutely no difference in her health if she is on IVIG or off of it. The kid is never sick. My older daughter just tested positive to strep and Reagon drank after her and still didn't get it. But I can also understand the drs. point of view...a kid with an IGG of 40, in their point of veiw, is likely very at risk. I guess we'll keep plugging along on the SCIG and see if her reactions get better. Any info. or advice you can dig up would be greatly appreciated though. The drs. here just looked at me like I was crazy when I told them. Becki > " We are using the Vivaglobulin. " > > Becky - > > Just a thought for you. When was on SCIG - I was told something that I thought was really important. SCIG does not take away all reactions - just the anaflaxis (sp?) . still got horrendous headaches. Like you, the frustration came in for me when we were getting headaches 2 times a week (we were doing 1 gram x2 weekly) - I could not stand it. I made the decision to go back to IVIG - because it was better to go back - and have it be one time every three weeks - not 2 times a week. HOWEVER - when we went back - we switched from Gammunex to Polygam (which will soon be called Gammaguard S/D). We got no headaches, then I had the nurse slowly up the dose, and again no headache. Now - we're at max rate with no side effects. I'm not saying it would help Reagan - but just a thought. > > I'm going to see our immunologist in a bit - I'll ask about the red, irratated eyes and see what the mechanism is that causes it. > > We're inpatient at our hospital (Kate is - the boys are with Grandma and Grandpa)- and have been for 10 days for PICC line for IVI antibiotics (the PICC infultrated, and we had to get a second one) so I have limited Email access. > > Dayna > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
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