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, thank you. I'll go with it for a longer time .

----- Original Message -----

From: Lynda Phelps

low dose naltrexone

Sent: Saturday, February 07, 2004 7:41 AM

Subject: Re: [low dose naltrexone] LDN

Dear ,

Don't stop! I felt terrible, worse, for two full weeks. Then I started feeling better than I have for years. That seems to be how it works for most people. Go with it for at least a month. I know how difficult it is to feel worse, but it is WORTH IT!

Lynda

----- Original Message -----

From: maria van velzen

I am a CFS (chronic fatigue syndrome) patient and started LDN 3mg last monday, but I worsened and I am feeling bad. Does somebody understand this? I thought I should improve immediately. Now I am a little bit afraid LDN does not work for me.

I hope I am wrong and that I must have more patience. Is there someone who this effect of LDN recognizes?

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Thank you I don't give up It's good for me to read your story

----- Original Message -----

From: sandra

low dose naltrexone

Sent: Saturday, February 07, 2004 3:20 PM

Subject: Re: [low dose naltrexone] LDN

The Key to our bodies tolerating something NEW is DRINK lots OF clean filtered water....take your body weight divide by 2 and turn that number into ounzes and thats how much water our bodies need..i.e. 140 lbs.divided by 2 is 70 so 70 ounzes.of water daily......Sandy..

----- Original Message -----

From: JeanCatalano@...

low dose naltrexone

Sent: Saturday, February 07, 2004 9:03 AM

Subject: Re: [low dose naltrexone] LDN

I started LDN three nights ago. My first night I woke up exactly at 2:00 a.m. and continued to constantly wake up until about 4:30. Woke up with a slight headache. The second night was absolutely horrible. I thought I would end up in the hospital. It truly felt like my head would explode. I was hot and nauseous and of course could not go to work. I ended up staying in bed until 5:00 in the afternoon. Then I started to feel better. I was afraid to take it again but I reallly want this to work and from what I read sometimes it takes a week or so for your system to get used to it. Well I woke up only once and NO HEADACHE. I feel great today. Thank God for sure. So I say don't give up. I hope this helps.Jean

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,

The LDN stops the progression of ms, it is not a cure. Hopefully, you will experience some improvement but not necessarily. The major benefit is that the progression has stopped.

Regards,

Tom

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Thank you Tom for the information you gave me.

Now I haVE another question...Can anyone answwer this question for

me. My doctor gave me a script for 1 (2.5mg) of LDN twice a day...

that equal up to 5.0mg a day...isn't that too much medication for

one to take a day....and was it a good idea for me to open a capsule

and put a little in a whole capsule to try and make 4.5mg

myself... : )??

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That just goes to show ya the Doc knows nothing about ldn. First of all 5.0 mgs is way too much and you have to take ldn at a specific time at night so how does twice daily work? Not at all! Take 3.0 or 4.5 at 10:00 p.m. only and sit back and watch the results! Of course you can change your time, within reason, to suit your schedule. Reg.

-------Original Message-------

From: low dose naltrexone

Date: 02/08/04 20:26:18

low dose naltrexone

Subject: [low dose naltrexone] Re: LDN

Thank you Tom for the information you gave me.Now I haVE another question...Can anyone answwer this question for me. My doctor gave me a script for 1 (2.5mg) of LDN twice a day... that equal up to 5.0mg a day...isn't that too much medication for one to take a day....and was it a good idea for me to open a capsule and put a little in a whole capsule to try and make 4.5mg myself... : )??

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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Hello:

If you quit your full time job because of doctors orders, are you not eligible for disability income? I left my full time job because of MS and I receive disability.

Just something you might want to look into.

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Hi All:

I was wondering if anyone has had to stop taking LDN for a considerable length of time, in my case it will be for about 3 weeks due to surgery.

If so, do you quickly revert back to your previous symptoms or have an attack?

Thanks

Dianna

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Hi Dianna I will never give up my ldn. I go back to the way I was within fourty-eight hours of taking the last pill! The good news is that I know I will recover totally within the next forty-eight hours and be even better! It's kind of a catch 22 you pay for running out but you get a better result when you start again.I don't know about attacks but they sound ugly, or is relying on attends and your wheel chair again when previously you had no bladder problems and were walking like having an attack? Reg.

-------Original Message-------

From: low dose naltrexone

Date: 02/14/04 20:52:54

low dose naltrexone

Subject: [low dose naltrexone] Re: LDN

Hi All:I was wondering if anyone has had to stop taking LDN for a considerable length of time, in my case it will be for about 3 weeks due to surgery.If so, do you quickly revert back to your previous symptoms or have an attack?ThanksDianna

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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Good morning, mymsmess:

The following will hopefully provide you with information you can use.

www.LDNinfo.org

http://www.mwt.net/~drbrewer/

http://goodshape.net/LDNHighlights.html

http://www.remedyfind.com

http://www.voy.com/156761/

http://www.digitalnaturopath.com/treat/T74481.html

http://www.msrc.co.uk/index.cfm?fuseaction=show & pageid=628 & CFID=493365 & CFTOK

http://www.vrhotwires.com/Bill_Meikle/MS/LDNandMS.html

At www.acam.org there are 5 Doctor's listed in West Virginia that are

supposed

to be forward thinking Doctors that you could call and ask them if they are

aware of LDN and write prescriptions for it.

Also, you could call a number of Homeopathic or Naturopathic Doctors in the

area and ask them the same.

Another source might be to call some local compounding pharmacies and ask if

they know of any Doctors who prescribe Low Dose Naltrexone.

The following also provides some additional information:

Doctors who have prescribed LDN. Some of these will do it over the phone

charging a consultation fee.

Dr. Bernard Bihari New York, NY 212-929-4196

Dr. Sidney, NY 607-561-2000

Dr. Carole Saratoga Springs, NY 518-587-3438

Dr. Guddesblatt, Bayshore, Long Island, NY 631-666-3939

Dr. Stafford Colorado Springs, CO 719-636-5234

Dr. Bruce Sharpnack Hickory, PA 724-356-2273

Dr. Jeff Esper Erie, PA 814-877-4600

Sullivan Mechanicsburg, PA 717-697-5050

Dr. Patti Townely Dwight, IL 815-584-3343

Dr. Myers Skokie, IL 847-677-2980

Dr. Alan Buchman Chicago, IL 312-695-5620

Dr. Bernard s Vernon Hills, Illinois 847-367-0843

Dr. Stanley Knep (Neuro) Clifton, NJ 973-471-3680

Dr. LaCrosse, Wisconsin 608-785-0038

Dr. ph Wezensky, MD, GP

Kokopelli Health & Wellness Grand Junction, CO 970-263-4660

Email: mommyv3@...

website http://www.friendswithms.com

www.tahoma-clinic.com On-line clinic

http://www.acam.org/dr_search/ Dr. search

www.lef.org search of innovative DR.

Pharmacies that fill LDN prescriptions correctly which may or may not

include the pharmacies listed on the LDN website:

=================================================

The Prescription Center Wisconsin 800-203-9066

Skip's Pharmacy Boca Raton, Florida

800-553-7429

Fallston Pharmacy Beatty Fallston, land., 410-879-9000

fallstonpharmacy@...,

(From Dr. Bihari's website)

Irmat Pharmacy ; New York, NY 212-685-0500

Village Apothecary New York, NY 212-807-7566

Key Pharmacy South Kent, WA 800-878-1322

The Medicine Shoppe, Canandaigua, NY 800-396-9970

's Pharmacy, Toronto, Canada 800-361-6624 &

416-488-2600

If you don't have any success with the above information, let me know and

I can probably think of something else.

Noland

----- Original Message -----

From: " mymsmess " <mymsmess@...>

<low dose naltrexone >

Sent: Friday, February 13, 2004 8:36 AM

Subject: [low dose naltrexone] LDN

> Can anyone pleade help me with info about LDN? I talked to my neuro

> about it and he doesn't have a clue. I have had to stop my copaxone

> shots due to the high co-pay of my husbands insurance. I'm almost out

> of my Neurontin. I've stopped the prozac.The only thing i do take is

> Tylenol P.M. to help me sleep. I've been to the dept. of human

> resourses to see if i can get a medical card for help with the copay.

> They said our spend down would be almost $2000.00. If i had that i

> could afford the shots and other meds my self. I was working with PSI

> for help with the co-pay then they informed me they were out of

> funds. They then refered me to NORD. I'm still waiting on paper work

> from them. I quit my full time job in october under my drs. orders. I

> then took a part time job at a florist, which I've had to also quit

> due to the fatigue. Can anyone please tell me how to get in contact

> with a dr. that prescribes LDN? I live in West Virginia, but I go to

> a Dr. at the University of Virginia. My primary Neuro has moved to

> another state. Thanks for all your help and may GOD BLESS YOU.

>

>

>

>

>

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Possibly, the majority of fats that we consume are not the best or most healthy kinds?? I don't diet. I just try to eat as healthy a diet as I can without being so strict that I get obsessed. I feel as if I already have a 'full plate' so to speak!

Marcie

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I read yesterday on MSwath.ca that mylen is made of fatty tissue and that is why the mylin is attacked! If this is true why would any of us need to diet? It doesn't make much sense to me. I am a big woman.

FlashyKathy

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interesting theory:

ANNALS OF NEUROLOGY News Alert

Wiley & Sons, Inc.

February 18, 2004

Embargo date: February 23, 2004 at 12:00AM, EST

Multiple Sclerosis

New Data Challenge Theories Of Multiple Sclerosis

Earliest Pathology Exams Uncover Unexpected Cell Death

A new view of multiple sclerosis (MS) may arise from the first

extensive study of brain tissue from the earliest hours during a

bout of the disease. The results, published February 23, 2004, in

the online edition of the ls of Neurology, suggest that the

earliest event is not, as previously believed, a misguided immune

system attack on a brain substance called myelin. The full study

will be available on February 23 via Wiley InterScience

(http://www.interscience.wiley.com/annalsofneurology).

Instead, the first event appears to be the death of the brain cells

that produce myelin, triggering a subsequent immune system mop-up

operation to clean up the cells and the myelin, said author W.

Prineas, MBBS, of the University of Sydney in Australia.

Multiple sclerosis is an enigmatic disorder of the nerve fibers of

the brain and spinal cord. Scarring (sclerosis) replaces myelin,

which normally insulates the nerves from damage and speeds

electrical conduction through the fibers.

Depending on which nerve fibers are hindered, patients can

experience problems ranging from weakness and clumsiness to

numbness, visual disturbances, and even emotional and intellectual

alterations. In some patients, MS manifests itself in cycles of

relapse and remission; in other patients, the disease may progress

to a stage of severe debilitation, either slowly or rapidly.

According to Prineas, the study he conducted with co-author

H. Barnett, MBBS, began several years ago while he was working at

the New Jersey Medical School in Newark. A fellow neuropathologist

in Manhattan asked whether Prineas and his colleagues would be

interested in examining brain tissue from a 14-year-old girl who

died unexpectedly 17 hours into a relapse.

Sudden death can occur in MS if the damage (or lesion) occurs in

parts of the brain that control vital functions such as breathing

and blood circulation.

" This patient proved to be unique in the history of multiple

sclerosis in that there was lesion available for study that was less

than a day old, " said Prineas.

According to the dominant theory of MS, when the researchers

examined the hours-old lesion, they should have found the beginnings

of an immune system attack.

But Prineas and Barnett noticed that the myelin in the lesion was

still intact, and there was no evidence that the typical armada of

immune system cells and molecules had moved into the area yet.

Instead, oligodendrocytes cells, which produce the myelin, were

dying. Myelin is, in fact, an extension of oligodendrocytes that

wraps itself around nearby nerve fibers.

" This encouraged us to re-examine other early MS cases in

our brain bank, " said Prineas. " Similar lesions, albeit extremely

rare, were identified in a number of other early MS cases, which

allowed us to conclude that the changes observed probably occur at

the onset of any typical new lesion. "

The results could have significant consequences for MS research,

much of which is focused on understanding why the immune system

attacks myelin. The focus may have to shift to understanding why the

myelin-producing cells begin to die.

" The important point, at this stage of our investigation,

seems to be that we have no laboratory model for this sort

of pathology, " said Prineas.

Article: " Relapsing and Remitting Multiple Sclerosis:

Pathology of the Newly Forming Lesion, " by H.

Barnett, MBBS and W. Prineas, MBBBS, ls of

Neurology online edition; February 23, 2004.

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HI TOM-

WOULD YOU GO TO AN MS CLINIC THAT WAS A COMPREHENSIVE

CENTER - THEY WOULD PRESCRIBE MORE THAN THE A,B,C'S, MAYBE

HAVE ACCESS TO COMPUTERS FOR EDUCATION, LEARN HOW TO APPLY

FOR SSI BENEFITS, TALK TO LAWYERS, WORK OUT W/ A THERAPIST,

OR JUST TALK WITH OTHERS GOING THROUGH THE SAME THING? THIS

IS JUST A SHORT LIST OF IDEAS. WHAT SERVICES WOULD YOU LIKE

TO SEE?

BESTAUNT

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Bestaunt,

I understand that there is going to be an MS Clinic established exactly as you describe in Phoenix, Arizona. It is just now in the planning stages. It is so sorely needed everywhere but at least it is a start.

It is a wonderful and needed idea, a comprehensive center that could address all the needs of an ms'er.

I guess the problem is money, it would take plenty. However, with as many ms'er's as there are I think it could and should be done.

Regards,

Tom

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In a message dated 2/21/2004 7:18:29 PM Eastern Standard Time, BESTAUNT@... writes:

SO FAR, LDN, EXERCISE AND A LOW FAT DIET HAVE BEEN MOST BENEFICIAL FOR ME. I DO TAKE COPAXONE AND AVONEX.

And you are still getting good results? the avonex dosen't stop the LDN from working? My rebif did but it is a slightly different interferone... Just wondering, goodness knows whatever works with this crazy disease.

Peace,

Zil

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THANKS TOM.

I'LL LOOK INTO THE PHOENIX CLINIC - DO YOU LIVE IN ARIZONA?

I'M JUST TIRED OF HEARING THAT SOME PEOPLE DON'T GET THE

HELP THEY NEED.

WHAT HAVE YOU FOUND TO BE THE BEST THERAPIES YOU'VE TRIED.

SO FAR, LDN, EXERCISE AND A LOW FAT DIET HAVE BEEN MOST

BENEFICIAL FOR ME. I DO TAKE COPAXONE AND AVONEX.

BESTAUNT (MONA)

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I DO FEEL GOOD WITH THE COMBINATION. TWO WEEKS AGO, I

DECIDED TO STOP THE AVONEX. I DON'T NOTICE ANY DIFFERENCE -

SO I MAY START THE AVONEX ALONG WITH THE COPAXONE AGAIN. I

HAVE CATARACT SURGERY ON THURSDAY, SO I'M GOING TO STOP THE

LDN UNTIL FRIDAY. I DON'T WANT THE LDN TO INTERFERE WITH

THE ANESTHETIC AND PAIN MEDICATIONS. I'M NERVOUS - HAS

ANYONE ELSE HAD CATARACT SURGERY?

BESTAUNT

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Howdy-

You're sure "right on' there---only occasionally do we come across a doctor who is "indeed" out there to "help" and stand up for the hippocratic oath that they took----If I were a doc, I would long for the patient that I could truly help--couldl provide relief in ways that others would not. I don't think that doctors realize that a person with a chronic condition would be willing to try "anything" even if it offered only a glimmer of hope---we' d even sign a contract that there would be no lawsulit if it didn't work! Sometimes we can feel pretty "desperate".... <S>

Pam

Take off on a romantic weekend or a family adventure to these great U.S. locations.

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THANKS PAM.

I FEEL THE SAME WAY.

I HAVE A WONDERFUL DOCTOR WHO TRULY WANTS TO SEE HIS

PATIENTS FEEL BETTER.

WE NEED TO STAND UP FOR BETTER CARE. DEMAND MORE FROM DRS

AND PHARMACEUTICAL COMPANIES. AND, HELP EACH OTHER. I

LEARN MORE FROM FELLOW MS'ERS THAN FROM ANYONE ELSE. THAT'S

WHY I ENJOY THIS SITE SO MUCH.

BESTAUNT (MONA)

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,

This is an extremely interesting article, I am very much looking

forward to the full study info. Maybe the research will finally start

going in the right direction and mainstream won't be so quick to

dismiss other approaches to research in all areas of medicine. Thank

you so much for sharing this.

My best to all.

Lesa

PS: Too Interesting Not To Reiterate Original Post!

--- In low dose naltrexone , " " <davizona@c...>

wrote:

> interesting theory:

> ANNALS OF NEUROLOGY News Alert

> Wiley & Sons, Inc.

> February 18, 2004

> Embargo date: February 23, 2004 at 12:00AM, EST

> Multiple Sclerosis

> New Data Challenge Theories Of Multiple Sclerosis

> Earliest Pathology Exams Uncover Unexpected Cell Death

> A new view of multiple sclerosis (MS) may arise from the first

> extensive study of brain tissue from the earliest hours during a

> bout of the disease. The results, published February 23, 2004, in

> the online edition of the ls of Neurology, suggest that the

> earliest event is not, as previously believed, a misguided immune

> system attack on a brain substance called myelin. The full study

> will be available on February 23 via Wiley InterScience

> (http://www.interscience.wiley.com/annalsofneurology).

> Instead, the first event appears to be the death of the brain cells

> that produce myelin, triggering a subsequent immune system mop-up

> operation to clean up the cells and the myelin, said author W.

> Prineas, MBBS, of the University of Sydney in Australia.

> Multiple sclerosis is an enigmatic disorder of the nerve fibers of

> the brain and spinal cord. Scarring (sclerosis) replaces myelin,

> which normally insulates the nerves from damage and speeds

> electrical conduction through the fibers.

> Depending on which nerve fibers are hindered, patients can

> experience problems ranging from weakness and clumsiness to

> numbness, visual disturbances, and even emotional and intellectual

> alterations. In some patients, MS manifests itself in cycles of

> relapse and remission; in other patients, the disease may progress

> to a stage of severe debilitation, either slowly or rapidly.

> According to Prineas, the study he conducted with co-author

> H. Barnett, MBBS, began several years ago while he was working at

> the New Jersey Medical School in Newark. A fellow neuropathologist

> in Manhattan asked whether Prineas and his colleagues would be

> interested in examining brain tissue from a 14-year-old girl who

> died unexpectedly 17 hours into a relapse.

> Sudden death can occur in MS if the damage (or lesion) occurs in

> parts of the brain that control vital functions such as breathing

> and blood circulation.

> " This patient proved to be unique in the history of multiple

> sclerosis in that there was lesion available for study that was

less than a day old, " said Prineas.

> According to the dominant theory of MS, when the researchers

> examined the hours-old lesion, they should have found the

beginnings of an immune system attack.

> But Prineas and Barnett noticed that the myelin in the lesion was

> still intact, and there was no evidence that the typical armada of

> immune system cells and molecules had moved into the area yet.

> Instead, oligodendrocytes cells, which produce the myelin, were

> dying. Myelin is, in fact, an extension of oligodendrocytes that

> wraps itself around nearby nerve fibers.

> " This encouraged us to re-examine other early MS cases in

> our brain bank, " said Prineas. " Similar lesions, albeit extremely

> rare, were identified in a number of other early MS cases, which

> allowed us to conclude that the changes observed probably occur at

> the onset of any typical new lesion. "

> The results could have significant consequences for MS research,

> much of which is focused on understanding why the immune system

> attacks myelin. The focus may have to shift to understanding why

the myelin-producing cells begin to die.

> " The important point, at this stage of our investigation,

> seems to be that we have no laboratory model for this sort

> of pathology, " said Prineas.

> Article: " Relapsing and Remitting Multiple Sclerosis:

> Pathology of the Newly Forming Lesion, " by H.

> Barnett, MBBS and W. Prineas, MBBBS, ls of

> Neurology online edition; February 23, 2004.

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Hi Bestaunt,

No I live in Cape Cod but will be moving to Florida soon. That clinic in Phoenix is in the planning stage.

Go to www.copingandprevailing.com If you cannot afford the book send me your mailing address and I will send it to you. It spells out supplements, etc.

I will be off line from 2/24-3/8.

Regards,

Tom

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My wife has had cataract surgery and I was programmed for it. But, I went

to taking bilberry and got rid of the cataracts completely. My Optometrist

won't even discuss cataracts or how I got rid of them with me. I guess I

got into his pocketbook!

Noland

----- Original Message -----

From: <BESTAUNT@...>

<low dose naltrexone >

Sent: Sunday, February 22, 2004 8:06 AM

Subject: Re: [low dose naltrexone] LDN

> I DO FEEL GOOD WITH THE COMBINATION. TWO WEEKS AGO, I

> DECIDED TO STOP THE AVONEX. I DON'T NOTICE ANY DIFFERENCE -

> SO I MAY START THE AVONEX ALONG WITH THE COPAXONE AGAIN. I

> HAVE CATARACT SURGERY ON THURSDAY, SO I'M GOING TO STOP THE

> LDN UNTIL FRIDAY. I DON'T WANT THE LDN TO INTERFERE WITH

> THE ANESTHETIC AND PAIN MEDICATIONS. I'M NERVOUS - HAS

> ANYONE ELSE HAD CATARACT SURGERY?

> BESTAUNT

>

>

>

>

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here's another way to get rid of cataracts. you use non pasturized

honey

Honey for cataract

Using bee products for treating and prophylaxis of many diseases,

when the other traditional methods are unsuccessful is highly

effective.

Fresh comb-honey cures:

„h Various traumatic, dystrophic, inflammatory lesions of cornea,

conjunctivitis, accompanied by erosive and ulcerous processes, which

are hard to cure;

„h Ulcerous blepharitis and blepharo-conjunctivitis, relapsed

keratitis, cornea ulcers of traumatic and inflammatory origin,

consequences of thermal and chemical burns;

„h Cornea dimness (walleye) appeared in the result of herpetic

keratitis 1,5-6 months later after cupping an inflammatory process.

A newly prepared honey solution with increasing every 2-3 days

concentration is dropped into eyes 5-6 times a day. The treatment

course lasts 3-4 weeks. In some cases 2 or even 3 courses are

necessary with a month¡¦s break;

„h The initial age cataract. 2-3 courses lasting 1,5 months. 2 drops

3-5 times a day;

„h Progressive children short-sightedness;

„h Retina diseases, connected with microcirculation disorders ( in

particular with venous thrombosis, retina dystrophy;

Directions for use:

A fresh comb honey dissolved with distilled or boiled water in 1:4,

1:3, 1:2, 1:1 proportions (a teaspoonful of comb honey for 2,3,4

teaspoonfuls of water- concentration gradually increases) drop into

eyes:

(1:4) 2 drops 3 times a day-3 days;

(1:3) 2 drops 4 times a day- 3 days;

(1:2) 2 drops 5 times a day- 3 days;

(1:1) 2 drops 6 times a day-1,5 months

attention!

A prepared solution can be kept in the refrigerator no longer than a

week. It is also possible to make it daily, using the remains for

drinking. At the beginning of the treatment a burning in the eyes

can appear but it will soon be over, so you can go on with your

treatment.

Besides dropping honey into the eyes it is necessary to take 10 mgr.

of apilac 3 times a day 45 minutes before meals for 2-3 weeks.

Ruzankina T Novosibirsk

- My wife has had cataract surgery and I was programmed for it.

But, I went

> to taking bilberry and got rid of the cataracts completely. My

Optometrist

> won't even discuss cataracts or how I got rid of them with me. I

guess I

> got into his pocketbook!

>

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