Re: Reply from Montel Foundation

[Guest guest]

I just received the same message.

--- In low dose naltrexone , " loma1956 " <district@u...>

wrote:

> Here`s the reply I got:- The Montel Foundation does not endorse

any

> specific medication or treatment pertaining to MS. The foundation

> specifically fundraises for the research of MS. Thank you for

> thinking of us.....

[Guest guest]

IBID.

There's your answer. Health? No. MONEY? Yes.

Here we have something that may give hope and returned freedom to countless thousands and they won't even check it out because to do so would be an endorsement.

Their words are key. They don't want a treatment that works, then they wouldn't have to Research any more, and that's where the idea of Fund Raising is. If you Find an Answer, you don't need to keep researching, no research, no need to raise money.

Everything is politics and business.

----- Original Message -----

From:

low dose naltrexone

Sent: Friday, March 05, 2004 13:42

Subject: [low dose naltrexone] Re: Reply from Montel Foundation

I just received the same message.> Here`s the reply I got:- The Montel Foundation does not endorse > any specific medication or treatment pertaining to MS. The foundation > specifically fundraises for the research of MS. Thank you for > thinking of us.....

[Guest guest]

My reply to their reply:

I seriously wish you would reconsider. Naltrexone is NOT an " MS

medication " . It is an off-label medication approved for other uses,

but only one trial is currently being researched right now, and that

is for people with Chron's disease. Many with MS have reported

positive benefits. Also, while Mr. ' position may be one a

steering clear of specific drug endorsements, that is not entirely

true either. I noticed on his website that he does indeed advocate

the use of medical marijuana for symptomatic relief. Now please

tell me; how is that different from a very inexpensive, non-

patented, virtually side-effect free drug that we are trying to

increase awareness about? I urge to give this more attention.

> > Here`s the reply I got:- The Montel Foundation does not

endorse

> > any specific medication or treatment pertaining to MS. The

foundation

> > specifically fundraises for the research of MS. Thank you for

> > thinking of us.....

[Guest guest]

it is patented by Dr. Bihari ask him about it…

He’s agreed to study it in Ireland on MS… Now it’s a matter

of money.

From:

[mailto:samsmith494@...]

Sent: Friday, March 05, 2004 2:54

PM

To:

low dose naltrexone

Subject: [low dose naltrexone] Re:

Reply from Montel Foundation

My reply to their reply:

I seriously wish you would reconsider.

Naltrexone is NOT an " MS

medication " . It is an off-label

medication approved for other uses,

but only one trial is currently being

researched right now, and that

is for people with Chron's disease.

Many with MS have reported

positive benefits. Also, while Mr.

' position may be one a

steering clear of specific drug endorsements,

that is not entirely

true either. I noticed on his website

that he does indeed advocate

the use of medical marijuana for symptomatic

relief. Now please

tell me; how is that different from a very

inexpensive, non-

patented, virtually side-effect free drug

that we are trying to

increase awareness about? I urge to

give this more attention.

[Guest guest]

You know the M.S. society in Alberta said essentially the same thing to me when I approached them Four months ago.They won't endorse any drug either kinda makes you sick don't it.

Reg

-------Original Message-------

From: low dose naltrexone

Date: 03/05/04 11:52:29

low dose naltrexone

Subject: Re: [low dose naltrexone] Re: Reply from Montel Foundation

IBID.

There's your answer. Health? No. MONEY? Yes.

Here we have something that may give hope and returned freedom to countless thousands and they won't even check it out because to do so would be an endorsement.

Their words are key. They don't want a treatment that works, then they wouldn't have to Research any more, and that's where the idea of Fund Raising is. If you Find an Answer, you don't need to keep researching, no research, no need to raise money.

Everything is politics and business.

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Exactly the reply I got today.

----- Original Message -----

From: " loma1956 " <district@...>

<low dose naltrexone >

Sent: Friday, March 05, 2004 10:38 AM

Subject: [low dose naltrexone] Reply from Montel Foundation

> Here`s the reply I got:- The Montel Foundation does not endorse any

> specific medication or treatment pertaining to MS. The foundation

> specifically fundraises for the research of MS. Thank you for

> thinking of us.....

>

>

>

>

>

[Guest guest]

I got the copy and paste form letter as well. but I relied back as follows anf I'll let you know what I get back this time

Dear Ms White,

I appreciate you response to my letter. However you misunderstand me, I would never expect the Montel foundation or any MS foundation to endorse a drug. Treatment is a very personal thing between one's doctor and one's self.

I read the goals on the website before I wrote to you, part of it read: to raise national awareness, and to educate the public.

This is what I was speaking about in my letter. Awareness of alternatives to the ABC drugs and education about something that, as I said before, can make waiting for the cure more tolerable and improve the lives of the chronically ill.

I did see the site gave many links and information, the one about how to get aid in paying the incredibly high prices of ABC drugs is a good thing, but kinda seems like an endorsement of that treatment as they are the only drugs or treatment on the site itself without having to go to a link. The most I would expect would be a short statement of what it is and a link. This would not be an endorsement but education. After all we with MS are a part of the public that I am sure the foundation wishes to educate