Re: Wow. . . full of energy!

[Guest guest]

Hi ... Dr Bihari's first MS patient... nearly 19 years ago ...

started on 3mg LDN ... as far as I know she is still on 3mg LDN as

are many of his patients. She has remained stable. She is his

daughters best friend. He increased the dose to 4.5mg for many

because 3mg only seemed to work for 85% of people and always

recommends 4.5mg incase one should fall into that 15% ... and the

dose at 4.5mg is so small that it is not going to do any harm ...

like covering the bases. It looks like 3mg is working for you so I

would stick with it unless you personally feel more comfortable with

4.5mg.

All the Best

PS ... If you can possibly find the time ... You must add a

search engine to the LDN homepage ... it is hard to find stuff there

now ... picky but essential ...

> Hi Everyone,

> I have SPMS since 1982, with the right diet, lots of excercise and

a

> positive outlook I have managed to stay out of a wheelchair. I'm so

> greatful I finally found ldn. . . not allowing myself to give into

> the " CRABS " I was on a lifetime search for something to stop the

> progression, finally! I've been on ldn for about 2 weeks, I'm over

> the leg stiffness and the sleepless nights, I'm really starting to

> feel fantastic! My question is this, do I simply stay on the 3mg

for

> a while or do I venture out and increase my dose the next appt.

with

> my neuro?? Thanks for all your comments, it's really helped me

stay

> in touch with what to expect.

>

[Guest guest]

I was taking 3.0 since Day 1 last April. Back in October I asked my neuro to change my script to 4.5, but asked that they be filled in 1.5 MG caps. So I get 180 caps per refill (2 months worth of 4.5). I was taking 3.0 until last week. I can also drop back down to 3.0 if/when I want. If I decide to stay on 4.5, I may ask for another script for 4.5 caps because they're cheaper and use 1/3 less filler than taking 3 1.5 caps each night. Actually, I refilled my 3.0's also, so since last week I've been taking a 3.0 with a 1.5 instead of 3 1.5's.

So far I don't know if I notice any real difference, but it's only been 8 days so far and I didn't notice anything with 3.0 until Day 9... so I don't know if it's better, but it surely isn't any worse, so far. I'm also dealing with the subconscious stress of my mom being in ICU since last Wednesday, so maybe it's just balancing things out.

Good luck with whatever you choose. Gotta do your own experimenting for yourself and see what you feel works best.

JMHO of course. YMMV.

----- Original Message -----

From: sunnfunfla

low dose naltrexone

Sent: Wednesday, February 18, 2004 18:39

Subject: [low dose naltrexone] Wow. . . full of energy!

Hi Everyone,I have SPMS since 1982, with the right diet, lots of excercise and a positive outlook I have managed to stay out of a wheelchair. I'm so greatful I finally found ldn. . . not allowing myself to give into the "CRABS" I was on a lifetime search for something to stop the progression, finally! I've been on ldn for about 2 weeks, I'm over the leg stiffness and the sleepless nights, I'm really starting to feel fantastic! My question is this, do I simply stay on the 3mg for a while or do I venture out and increase my dose the next appt. with my neuro?? Thanks for all your comments, it's really helped me stay in touch with what to expect.

[Guest guest]

Good morning,:

Great news.

I'd recommend staying on 3 mg for at least 3 months and then you could do

some experimenting if you still wanted to.

Noland

----- Original Message -----

From: " sunnfunfla " <sunnfunfla@...>

<low dose naltrexone >

Sent: Wednesday, February 18, 2004 4:39 PM

Subject: [low dose naltrexone] Wow. . . full of energy!

> Hi Everyone,

> I have SPMS since 1982, with the right diet, lots of excercise and a

> positive outlook I have managed to stay out of a wheelchair. I'm so

> greatful I finally found ldn. . . not allowing myself to give into

> the " CRABS " I was on a lifetime search for something to stop the

> progression, finally! I've been on ldn for about 2 weeks, I'm over

> the leg stiffness and the sleepless nights, I'm really starting to

> feel fantastic! My question is this, do I simply stay on the 3mg for

> a while or do I venture out and increase my dose the next appt. with

> my neuro?? Thanks for all your comments, it's really helped me stay

> in touch with what to expect.

>

>

>

>

>

>

>