Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 hey thats me! My letter to montel, sorry its long. sure it's kiss ass but maybe I'll get something back *chuckleling, Can I say kiss ass on here?* the subject line reads, while we wait for a cure. Dear Mr. , I write to you about a very important drug that may stop the progression of MS. It also has improved the life of many of us living with MS. My GP didn't know about it, my neurologist didn't either. I only got them to prescribe it to me by asking them to find what harm it could do to try it. They found no harm in it and I have been on it one month. The drug is called LDN standing for Low Dose Naltrexone. LDN is a FDA approved drug at a 50 mg dose, for MS I take 4.5 mgs, less than one-tenth. This is not the first drug to be used "off label" they do it for cancer patients a lot. I won't speak for others but allow me to tell you what happened to me. I was on a cane and considering getting one of those four footted ones, I was leaning on it so heavy. The MS fatigue was killing me, all I could do was sit in my easy chair the whole day long. I was losing bladder control which was very upsetting being potty trained for some time. I was taking the drug rebif and spiraling into a depression like I had never felt. Every day I woke to new symptoms. ly I was frightened, if this is what MS was about I didn't know if I could do it. I started the LDN and I really thought it was my imagination, but after only five days I had to admit I didn't have that active of an imagination, I was feeling better! I sat down my cane and I ran down the steps to my house. I walked so much that day I made my legs sore. I had better bladder control, I had more energy I felt stronger! Now I still felt like I had MS but it was so much easier to deal with. Now after a month the pins and needles have vanished, the cramps in my feet, legs and arms are gone. The Low Dose Naltrexone Homepage that is the link, I will be the first one to say it reads like an ad, but there is no money in it. The drug is safe and cheap, There are no double blind clinical studies for that very reason. The patent has expired, the drug company cannot make any money on it so who would sponsor an expressive trial? Now I did not stop with this homepage, I went and joined a LDN group, I wanted to hear what real people were saying about it. I was amazed people all over the world were using this. And the range of effects were just as amazing. From people getting no help with symptoms, to people getting up out of wheelchairs and everywhere in between! Sir, I, no we, need your help. I have gotten two doctors on board and I need YOU. Sure I could sit here and do nothing, after all I am more comfortable as I wait for a cure. But I know the absolute horror of this disease. Why should we suffer because there are no clinicals to convince doctors this is for real? It is for real and this can improve the quality of people's lives while we all wait for a cure. That is what we are all doing isn't it? LDN is not a cure and you will find no one who will claim it is. I am already going off medicines I have been taking because I no longer need them. Please sir, I have no idea who shifts through the many emails you must get here, But I do hope this letter finds you somehow, as much as we are loved and supported, NO one understands this disease like those of us living with it. I thank you for your time and all you have done in education. Now I ask you to step up once more, to have the courage to take a chance, it really is harmless (allergy excepted but that is rare) and the rewards can be so great! You have been a champion for MS in many ways, how about one more? Sincerly, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 now THIS is grass roots! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 In a message dated 3/5/2004 12:59:37 AM Eastern Standard Time, jatrac1@... writes: Don’t just send emails to Montel go to his board we’re trying to reach him there too! He does read there when he has time to I cna't find where to get to his board Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Dear Zil, What a fantastic idea!! I have just sent off my email and I suggest everyone in the Group do the same. We need to get attention and many similar letters will. Love, > How about we send a bottle to Montel , he has RRMS and his own talk > show.... oh the power of the media,even in daytime TV! > Hey he has a website, I think I will drop him a note maybe if we ALL drop him > a note we can get his attention. > Montel MS Foundation Just a thought. > Zil > Never give up, never surrender Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Here is the letter I sent Montel . It only took a few minutes. You have nothing to lose by sending off an email. *********** Dear Friends, I do not have MS. I have a condition called " erythema nodosum " , an autoimmune disorder, and I moderate an EN Support Group. Here is my webpage: http://www.geocities.com/erythema_nodosum/Home_Page.html and my Group: erythema nodosum/ I am always doing EN research on the internet and happened upon info for a new application for an old drug that was getting succesful results with MS and other autoimmune disorders. It is called Low Dose Naltrexone. I have been reading the posts on their Group site: low dose naltrexone/ as well as their website: www.low dose naltrexone.org and I am impressed. Obviously little research is being done. There isn't much money to be made since this drug is off patent. I suggested we needed " star power " and a group member posted your wonderful website. I do hope you will look at this and see if there is anyway you can have Mr. investigate or instigate research into this promising treatment. Thank you for reading this. Best wishes, Strecker ********* If I get a reply, I will inform the LDN Group. > > How about we send a bottle to Montel , he has RRMS and his > own talk > > show.... oh the power of the media,even in daytime TV! > > Hey he has a website, I think I will drop him a note maybe if we ALL > drop him > > a note we can get his attention. > > Montel MS Foundation Just a thought. > > Zil > > Never give up, never surrender Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Hi , I also sent Montel an e-mail about LDN when I first heard about it 2 months ago. I never received a reply but maybe if he keeps getting them he'll respond. My gut feeling is that he is tied in to Teva and Copaxone so he chooses to avoid the LDN issue. Good luck, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Dear Zil, That is a very well written and sincere letter. You are not kissing anyone's butt (ladylike way to say it) you simply stated what is, and as you so rightly mentioned only those with MS can fully appreciate what you have experienced. Your letter should get a lot of attention. But it is easy to overlook a few letters as Montel must get tons of letters. So please send in a letter especially if you have gotten good results. We need to flood Montel with testimonals so his people will notice us. Love, > hey thats me! > My letter to montel, sorry its long. sure it's kiss ass but maybe I'll get > something back *chuckleling, Can I say kiss ass on here?* the subject line > reads, while we wait for a cure. > > Dear Mr. , > I write to you about a very important drug that may stop the progression of > MS. It also has improved the life of many of us living with MS. My GP didn't > know about it, my neurologist didn't either. I only got them to prescribe it to > me by asking them to find what harm it could do to try it. They found no harm > in it and I have been on it one month. The drug is called LDN standing for > Low Dose Naltrexone. LDN is a FDA approved drug at a 50 mg dose, for MS I take > 4.5 mgs, less than one-tenth. This is not the first drug to be used " off > label " they do it for cancer patients a lot. > > I won't speak for others but allow me to tell you what happened to me. I was > on a cane and considering getting one of those four footted ones, I was > leaning on it so heavy. The MS fatigue was killing me, all I could do was sit in my > easy chair the whole day long. I was losing bladder control which was very > upsetting being potty trained for some time. I was taking the drug rebif and > spiraling into a depression like I had never felt. Every day I woke to new > symptoms. ly I was frightened, if this is what MS was about I didn't know if I > could do it. I started the LDN and I really thought it was my imagination, but > after only five days I had to admit I didn't have that active of an > imagination, I was feeling better! I sat down my cane and I ran down the steps to my > house. I walked so much that day I made my legs sore. I had better bladder > control, I had more energy I felt stronger! Now I still felt like I had MS but it > was so much easier to deal with. Now after a month the pins and needles have > vanished, the cramps in my feet, legs and arms are gone. The Low Dose > Naltrexone Homepage > that is the link, I will be the first one to say it reads like an ad, but > there is no money in it. The drug is safe and cheap, There are no double blind > clinical studies for that very reason. The patent has expired, the drug company > cannot make any money on it so who would sponsor an expressive trial? > Now I did not stop with this homepage, I went and joined a LDN group, I > wanted to hear what real people were saying about it. I was amazed people all > over the world were using this. And the range of effects were just as > amazing. From people getting no help with symptoms, to people getting up out of > wheelchairs and everywhere in between! > Sir, I, no we, need your help. I have gotten two doctors on board and I need > YOU. Sure I could sit here and do nothing, after all I am more comfortable as > I wait for a cure. But I know the absolute horror of this disease. Why should > we suffer because there are no clinicals to convince doctors this is for > real? It is for real and this can improve the quality of people's lives while we > all wait for a cure. That is what we are all doing isn't it? LDN is not a > cure and you will find no one who will claim it is. I am already going off > medicines I have been taking because I no longer need them. > Please sir, I have no idea who shifts through the many emails you must get > here, But I do hope this letter finds you somehow, as much as we are loved and > supported, NO one understands this disease like those of us living with it. > I thank you for your time and all you have done in education. Now I ask you > to step up once more, to have the courage to take a chance, it really is > harmless (allergy excepted but that is rare) and the rewards can be so great! You > have been a champion for MS in many ways, how about one more? > Sincerly, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 I sent my letter this evening, briefly detailing my experiences of the last 30 days and asking Mr help in getting research started. The more the better! With as many people as are posting here we should be able to send a lot of emails to Mr Montel ... ----- Original Message ----- From: " Strecker " <rebeccastrecker@...> <low dose naltrexone > Sent: Thursday, March 04, 2004 7:56 PM Subject: [low dose naltrexone] Re: Reply to Zil > Dear Zil, > That is a very well written and sincere letter. You are not > kissing anyone's butt (ladylike way to say it) you simply stated what > is, and as you so rightly mentioned only those with MS can fully > appreciate what you have experienced. Your letter should get a lot of > attention. But it is easy to overlook a few letters as Montel must get > tons of letters. So please send in a letter especially if you have > gotten good results. We need to flood Montel with testimonals so his > people will notice us. > Love, > > > > > > > > > hey thats me! > > My letter to montel, sorry its long. sure it's kiss ass but maybe > I'll get > > something back *chuckleling, Can I say kiss ass on here?* the > subject line > > reads, while we wait for a cure. > > > > Dear Mr. , > > I write to you about a very important drug that may stop the > progression of > > MS. It also has improved the life of many of us living with MS. My > GP didn't > > know about it, my neurologist didn't either. I only got them to > prescribe it to > > me by asking them to find what harm it could do to try it. They > found no harm > > in it and I have been on it one month. The drug is called LDN > standing for > > Low Dose Naltrexone. LDN is a FDA approved drug at a 50 mg dose, > for MS I take > > 4.5 mgs, less than one-tenth. This is not the first drug to be used > " off > > label " they do it for cancer patients a lot. > > > > I won't speak for others but allow me to tell you what happened to > me. I was > > on a cane and considering getting one of those four footted ones, I was > > leaning on it so heavy. The MS fatigue was killing me, all I could > do was sit in my > > easy chair the whole day long. I was losing bladder control which > was very > > upsetting being potty trained for some time. I was taking the drug > rebif and > > spiraling into a depression like I had never felt. Every day I woke > to new > > symptoms. ly I was frightened, if this is what MS was about I > didn't know if I > > could do it. I started the LDN and I really thought it was my > imagination, but > > after only five days I had to admit I didn't have that active of an > > imagination, I was feeling better! I sat down my cane and I ran > down the steps to my > > house. I walked so much that day I made my legs sore. I had better > bladder > > control, I had more energy I felt stronger! Now I still felt like I > had MS but it > > was so much easier to deal with. Now after a month the pins and > needles have > > vanished, the cramps in my feet, legs and arms are gone. The Low Dose > > Naltrexone Homepage > > that is the link, I will be the first one to say it reads like an > ad, but > > there is no money in it. The drug is safe and cheap, There are no > double blind > > clinical studies for that very reason. The patent has expired, the > drug company > > cannot make any money on it so who would sponsor an expressive trial? > > Now I did not stop with this homepage, I went and joined a LDN > group, I > > wanted to hear what real people were saying about it. I was amazed > people all > > over the world were using this. And the range of effects were just as > > amazing. From people getting no help with symptoms, to people > getting up out of > > wheelchairs and everywhere in between! > > Sir, I, no we, need your help. I have gotten two doctors on board > and I need > > YOU. Sure I could sit here and do nothing, after all I am more > comfortable as > > I wait for a cure. But I know the absolute horror of this disease. > Why should > > we suffer because there are no clinicals to convince doctors this is > for > > real? It is for real and this can improve the quality of people's > lives while we > > all wait for a cure. That is what we are all doing isn't it? LDN is > not a > > cure and you will find no one who will claim it is. I am already > going off > > medicines I have been taking because I no longer need them. > > Please sir, I have no idea who shifts through the many emails you > must get > > here, But I do hope this letter finds you somehow, as much as we are > loved and > > supported, NO one understands this disease like those of us living > with it. > > I thank you for your time and all you have done in education. Now I > ask you > > to step up once more, to have the courage to take a chance, it > really is > > harmless (allergy excepted but that is rare) and the rewards can be > so great! You > > have been a champion for MS in many ways, how about one more? > > Sincerly, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Don’t just send emails to Montel go to his board we’re trying to reach him there too! He does read there when he has time to. From: [mailto:jatrac1@...] Sent: Friday, March 05, 2004 12:38 AM To: low dose naltrexone Subject: Re: [low dose naltrexone] Re: Reply to Zil I sent my letter this evening, briefly detailing my experiences of the last 30 days and asking Mr help in getting research started. The more the better! With as many people as are posting here we should be able to send a lot of emails to Mr Montel ... ----- Original Message ----- From: " Strecker " <rebeccastrecker@...> <low dose naltrexone > Sent: Thursday, March 04, 2004 7:56 PM Subject: [low dose naltrexone] Re: Reply to Zil > Dear Zil, > That is a very well written and sincere letter. You are not > kissing anyone's butt (ladylike way to say it) you simply stated what > is, and as you so rightly mentioned only those with MS can fully > appreciate what you have experienced. Your letter should get a lot of > attention. But it is easy to overlook a few letters as Montel must get > tons of letters. So please send in a letter especially if you have > gotten good results. We need to flood Montel with testimonals so his > people will notice us. > Love, > > > > > > > > > hey thats me! > > My letter to montel, sorry its long. sure it's kiss ass but maybe > I'll get > > something back *chuckleling, Can I say kiss ass on here?* the > subject line > > reads, while we wait for a cure. > > > > Dear Mr. , > > I write to you about a very important drug that may stop the > progression of > > MS. It also has improved the life of many of us living with MS. My > GP didn't > > know about it, my neurologist didn't either. I only got them to > prescribe it to > > me by asking them to find what harm it could do to try it. They > found no harm > > in it and I have been on it one month. The drug is called LDN > standing for > > Low Dose Naltrexone. LDN is a FDA approved drug at a 50 mg dose, > for MS I take > > 4.5 mgs, less than one-tenth. This is not the first drug to be used > " off > > label " they do it for cancer patients a lot. > > > > I won't speak for others but allow me to tell you what happened to > me. I was > > on a cane and considering getting one of those four footted ones, I was > > leaning on it so heavy. The MS fatigue was killing me, all I could > do was sit in my > > easy chair the whole day long. I was losing bladder control which > was very > > upsetting being potty trained for some time. I was taking the drug > rebif and > > spiraling into a depression like I had never felt. Every day I woke > to new > > symptoms. ly I was frightened, if this is what MS was about I > didn't know if I > > could do it. I started the LDN and I really thought it was my > imagination, but > > after only five days I had to admit I didn't have that active of an > > imagination, I was feeling better! I sat down my cane and I ran > down the steps to my > > house. I walked so much that day I made my legs sore. I had better > bladder > > control, I had more energy I felt stronger! Now I still felt like I > had MS but it > > was so much easier to deal with. Now after a month the pins and > needles have > > vanished, the cramps in my feet, legs and arms are gone. The Low Dose > > Naltrexone Homepage > > that is the link, I will be the first one to say it reads like an > ad, but > > there is no money in it. The drug is safe and cheap, There are no > double blind > > clinical studies for that very reason. The patent has expired, the > drug company > > cannot make any money on it so who would sponsor an expressive trial? > > Now I did not stop with this homepage, I went and joined a LDN > group, I > > wanted to hear what real people were saying about it. I was amazed > people all > > over the world were using this. And the range of effects were just as > > amazing. From people getting no help with symptoms, to people > getting up out of > > wheelchairs and everywhere in between! > > Sir, I, no we, need your help. I have gotten two doctors on board > and I need > > YOU. Sure I could sit here and do nothing, after all I am more > comfortable as > > I wait for a cure. But I know the absolute horror of this disease. > Why should > > we suffer because there are no clinicals to convince doctors this is > for > > real? It is for real and this can improve the quality of people's > lives while we > > all wait for a cure. That is what we are all doing isn't it? LDN is > not a > > cure and you will find no one who will claim it is. I am already > going off > > medicines I have been taking because I no longer need them. > > Please sir, I have no idea who shifts through the many emails you > must get > > here, But I do hope this letter finds you somehow, as much as we are > loved and > > supported, NO one understands this disease like those of us living > with it. > > I thank you for your time and all you have done in education. Now I > ask you > > to step up once more, to have the courage to take a chance, it > really is > > harmless (allergy excepted but that is rare) and the rewards can be > so great! You > > have been a champion for MS in many ways, how about one more? > > Sincerly, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 I sent it via the foundation website... http://www.montelms.org/. Is there another route we should use? From: I AM CANADIAN low dose naltrexone Sent: Thursday, March 04, 2004 9:48 PM Subject: RE: [low dose naltrexone] Re: Reply to Zil Don’t just send emails to Montel go to his board we’re trying to reach him there too! He does read there when he has time to. From: [mailto:jatrac1@...] Sent: Friday, March 05, 2004 12:38 AMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: Reply to Zil I sent my letter this evening, briefly detailing my experiences of the last30 days and asking Mr help in getting research started.The more the better! With as many people as are posting here we should beable to send a lot of emails to Mr Montel ...----- Original Message ----- From: " Strecker" <rebeccastrecker@...><low dose naltrexone >Sent: Thursday, March 04, 2004 7:56 PMSubject: [low dose naltrexone] Re: Reply to Zil> Dear Zil,> That is a very well written and sincere letter. You are not> kissing anyone's butt (ladylike way to say it) you simply stated what> is, and as you so rightly mentioned only those with MS can fully> appreciate what you have experienced. Your letter should get a lot of> attention. But it is easy to overlook a few letters as Montel must get> tons of letters. So please send in a letter especially if you have> gotten good results. We need to flood Montel with testimonals so his> people will notice us.> Love,> >>>>>> > > hey thats me!> > My letter to montel, sorry its long. sure it's kiss ass but maybe> I'll get> > something back *chuckleling, Can I say kiss ass on here?* the> subject line> > reads, while we wait for a cure.> >> > Dear Mr. ,> > I write to you about a very important drug that may stop the> progression of> > MS. It also has improved the life of many of us living with MS. My> GP didn't> > know about it, my neurologist didn't either. I only got them to> prescribe it to> > me by asking them to find what harm it could do to try it. They> found no harm> > in it and I have been on it one month. The drug is called LDN> standing for> > Low Dose Naltrexone. LDN is a FDA approved drug at a 50 mg dose,> for MS I take> > 4.5 mgs, less than one-tenth. This is not the first drug to be used> "off> > label" they do it for cancer patients a lot.> >> > I won't speak for others but allow me to tell you what happened to> me. I was> > on a cane and considering getting one of those four footted ones, I was> > leaning on it so heavy. The MS fatigue was killing me, all I could> do was sit in my> > easy chair the whole day long. I was losing bladder control which> was very> > upsetting being potty trained for some time. I was taking the drug> rebif and> > spiraling into a depression like I had never felt. Every day I woke> to new> > symptoms. ly I was frightened, if this is what MS was about I> didn't know if I> > could do it. I started the LDN and I really thought it was my> imagination, but> > after only five days I had to admit I didn't have that active of an> > imagination, I was feeling better! I sat down my cane and I ran> down the steps to my> > house. I walked so much that day I made my legs sore. I had better> bladder> > control, I had more energy I felt stronger! Now I still felt like I> had MS but it> > was so much easier to deal with. Now after a month the pins and> needles have> > vanished, the cramps in my feet, legs and arms are gone. The Low Dose> > Naltrexone Homepage> > that is the link, I will be the first one to say it reads like an> ad, but> > there is no money in it. The drug is safe and cheap, There are no> double blind> > clinical studies for that very reason. The patent has expired, the> drug company> > cannot make any money on it so who would sponsor an expressive trial?> > Now I did not stop with this homepage, I went and joined a LDN> group, I> > wanted to hear what real people were saying about it. I was amazed> people all> > over the world were using this. And the range of effects were just as> > amazing. From people getting no help with symptoms, to people> getting up out of> > wheelchairs and everywhere in between!> > Sir, I, no we, need your help. I have gotten two doctors on board> and I need> > YOU. Sure I could sit here and do nothing, after all I am more> comfortable as> > I wait for a cure. But I know the absolute horror of this disease.> Why should> > we suffer because there are no clinicals to convince doctors this is> for> > real? It is for real and this can improve the quality of people's> lives while we> > all wait for a cure. That is what we are all doing isn't it? LDN is> not a> > cure and you will find no one who will claim it is. I am already> going off> > medicines I have been taking because I no longer need them.> > Please sir, I have no idea who shifts through the many emails you> must get> > here, But I do hope this letter finds you somehow, as much as we are> loved and> > supported, NO one understands this disease like those of us living> with it.> > I thank you for your time and all you have done in education. Now I> ask you> > to step up once more, to have the courage to take a chance, it> really is> > harmless (allergy excepted but that is rare) and the rewards can be> so great! You> > have been a champion for MS in many ways, how about one more?> > Sincerly,>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 http://www.spotlighthealth.com/common/SG/topics.asp?m=2 & sb2= & sb=12 From: zillba@... [mailto:zillba@...] Sent: Friday, March 05, 2004 1:15 AM low dose naltrexone Subject: Re: [low dose naltrexone] Re: Reply to Zil In a message dated 3/5/2004 12:59:37 AM Eastern Standard Time, jatrac1@... writes: Don’t just send emails to Montel go to his board we’re trying to reach him there too! He does read there when he has time to I cna't find where to get to his board Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Yep go to all fronts Montel could hear through or see through he is part of Spotlight Health they’re his boards too we’ve started threads there too about LDN asking him abut it etc… lots of people talking about their experiences yada yada he looks in from time to time and reads what he has time to when he does so we hope he will sit up and notice our LDN threads here: http://www.spotlighthealth.com/common/SG/topics.asp?m=2 & sb2= & sb=12 Also don’t just send to the foundation send it to his actual talk show as a show idea as well ;o) Doesn’t hurt! Best of luck! Rainbolt By the way are you aware a study has been agreed to already by Bihari the patent holder? They’re looking for funding now… From: [mailto:jatrac1@...] Sent: Friday, March 05, 2004 12:58 AM To: low dose naltrexone Subject: Re: [low dose naltrexone] Re: Reply to Zil I sent it via the foundation website... http://www.montelms.org/. Is there another route we should use? From: I AM CANADIAN low dose naltrexone@groupscom Sent: Thursday, March 04, 2004 9:48 PM Subject: RE: [low dose naltrexone] Re: Reply to Zil Don’t just send emails to Montel go to his board we’re trying to reach him there too! He does read there when he has time to. From: [mailto:jatrac1@...] Sent: Friday, March 05, 2004 12:38 AM low dose naltrexone Subject: Re: [low dose naltrexone] Re: Reply to Zil I sent my letter this evening, briefly detailing my experiences of the last 30 days and asking Mr help in getting research started. The more the better! With as many people as are posting here we should be able to send a lot of emails to Mr Montel ... ----- Original Message ----- From: " Strecker " <rebeccastrecker@...> <low dose naltrexone > Sent: Thursday, March 04, 2004 7:56 PM Subject: [low dose naltrexone] Re: Reply to Zil > Dear Zil, > That is a very well written and sincere letter. You are not > kissing anyone's butt (ladylike way to say it) you simply stated what > is, and as you so rightly mentioned only those with MS can fully > appreciate what you have experienced. Your letter should get a lot of > attention. But it is easy to overlook a few letters as Montel must get > tons of letters. So please send in a letter especially if you have > gotten good results. We need to flood Montel with testimonals so his > people will notice us. > Love, > > > > > > > > > hey thats me! > > My letter to montel, sorry its long. sure it's kiss ass but maybe > I'll get > > something back *chuckleling, Can I say kiss ass on here?* the > subject line > > reads, while we wait for a cure. > > > > Dear Mr. , > > I write to you about a very important drug that may stop the > progression of > > MS. It also has improved the life of many of us living with MS. My > GP didn't > > know about it, my neurologist didn't either. I only got them to > prescribe it to > > me by asking them to find what harm it could do to try it. They > found no harm > > in it and I have been on it one month. The drug is called LDN > standing for > > Low Dose Naltrexone. LDN is a FDA approved drug at a 50 mg dose, > for MS I take > > 4.5 mgs, less than one-tenth. This is not the first drug to be used > " off > > label " they do it for cancer patients a lot. > > > > I won't speak for others but allow me to tell you what happened to > me. I was > > on a cane and considering getting one of those four footted ones, I was > > leaning on it so heavy. The MS fatigue was killing me, all I could > do was sit in my > > easy chair the whole day long. I was losing bladder control which > was very > > upsetting being potty trained for some time. I was taking the drug > rebif and > > spiraling into a depression like I had never felt. Every day I woke > to new > > symptoms. ly I was frightened, if this is what MS was about I > didn't know if I > > could do it. I started the LDN and I really thought it was my > imagination, but > > after only five days I had to admit I didn't have that active of an > > imagination, I was feeling better! I sat down my cane and I ran > down the steps to my > > house. I walked so much that day I made my legs sore. I had better > bladder > > control, I had more energy I felt stronger! Now I still felt like I > had MS but it > > was so much easier to deal with. Now after a month the pins and > needles have > > vanished, the cramps in my feet, legs and arms are gone. The Low Dose > > Naltrexone Homepage > > that is the link, I will be the first one to say it reads like an > ad, but > > there is no money in it. The drug is safe and cheap, There are no > double blind > > clinical studies for that very reason. The patent has expired, the > drug company > > cannot make any money on it so who would sponsor an expressive trial? > > Now I did not stop with this homepage, I went and joined a LDN > group, I > > wanted to hear what real people were saying about it. I was amazed > people all > > over the world were using this. And the range of effects were just as > > amazing. From people getting no help with symptoms, to people > getting up out of > > wheelchairs and everywhere in between! > > Sir, I, no we, need your help. I have gotten two doctors on board > and I need > > YOU. Sure I could sit here and do nothing, after all I am more > comfortable as > > I wait for a cure. But I know the absolute horror of this disease. > Why should > > we suffer because there are no clinicals to convince doctors this is > for > > real? It is for real and this can improve the quality of people's > lives while we > > all wait for a cure. That is what we are all doing isn't it? LDN is > not a > > cure and you will find no one who will claim it is. I am already > going off > > medicines I have been taking because I no longer need them. > > Please sir, I have no idea who shifts through the many emails you > must get > > here, But I do hope this letter finds you somehow, as much as we are > loved and > > supported, NO one understands this disease like those of us living > with it. > > I thank you for your time and all you have done in education. Now I > ask you > > to step up once more, to have the courage to take a chance, it > really is > > harmless (allergy excepted but that is rare) and the rewards can be > so great! You > > have been a champion for MS in many ways, how about one more? > > Sincerly, > > > > > Quote Link to comment Share on other sites More sharing options...
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