Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 How about we send a bottle to Montel , he has RRMS and his own talk show.... oh the power of the media,even in daytime TV! Hey he has a website, I think I will drop him a note maybe if we ALL drop him a note we can get his attention. Montel MS Foundation Just a thought. Zil Never give up, never surrender Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 Dear Larry, What you say is well taken, but it only takes the right connection --like a celebrity who tried and got results with LDN to get research funded. I would rather live in hope. If you don't expect a miracle how will you recognize it when it appears? " Connections " is what this internet is all about. I have just had a computer 3 yrs, (late bloomer) and I am still jazzed over it. Please, be a realist, but don't give up hope. Love, > Unless the government or some big university with excess cash decide to study LDN, it isn't going to happen. Naltrexone is off patent and it is very unlikely that any drug company will spend cash to do research knowing that any other manufacturer can duplicate their product and steal market share. The good of the patient is of no concern to a drug manufacturer when sales are at stake (witness the myriad of products that have left the market because of low sales). > > Larry J. Frieders,RPh |The Compounder > 575 W. Illinois Ave ~ Aurora, IL 60506 > 630-859-0333 FAX 630-859-0114 > > Sample newsletter > http://www.theCompounder.com/NL-Sample.html > > Any health related information on our web pages or > in our newsletters is for educational purposes only. > None of the information we provide is to be > construed as medical advice. Before applying any > therapy or use of herbs, you may want to seek > advice from your health care professional. > Our information should not be a substitute for > physician evaluation or treatment by a health care > professional and is not intended to provide or > confirm a diagnosis. > ----- Original Message ----- > From: Strecker > low dose naltrexone > Sent: Thursday, March 04, 2004 1:12 PM > Subject: [low dose naltrexone] Re: Endorphins/LDN ??????? > > > Dear Larry, > Thanks for that explanation. I guess we don't have many " long > term LDN users " to consult with. Sounds like the longest use has been > about a year, right? If the endorphins can be brought back to a > pre-disease state, I would think it could very well prevent > deterioration, and possibly some improvement. My hubby has glaucoma > and his visual field tests can vary a bit--the doc told him that the > cells don't die off quickly, but a slow death and on some days they > will be strong on others weak before they give out. So once they are > dead, that's it, but until they are, they flicker so to speak and > maybe MS is like that--if total damage hasn't yet occurred, it may > well regain function. The " theory game " is kind of fun. I hope some > medical people are reading this stuff and can make sense of it. I like > to post theories hoping they fall into the right hands--a new idea for > those who can work with it if it is promising. > The group is so large and growing so quickly that I feel LDN will > get more research soon. The internet is such a wonderful tool! I am so > happy to be a part of the " ground floor " movement. I hope all of you > who have MS and belong to MS support groups will alert them to this > new LDN use. Actually, I imagine that is why we have so many MS > patient members, DUH! Ok, I've rambled enough! > Enjoy your day, Everyone! > Love, > > > > > --- In low dose naltrexone , " LarryGC " <larrygc@s...> wrote: > > > > I'm not sure about these endorphins that everyone is saying LDN > increases. > > > > The way I understand it, a " normal " person has X amount of chemical > production, per day, certain productions happen at different times > during the day. > > > > With MS, we do not have proper productions and orchestrations. > > > > LDN is not giving you MORE than a " normal " person, it's just helping > your body produce, no more, than a " normal " person, or maybe what > could have been your old normal value before all the damage. > > > > We're not getting More than a " normal " person, we're just getting > >what we Should [have] Be[en] Getting<, enough so that the body can > orchestrate it's " normal " tasks. > > > > Sort of like using a Cane to walk as well as a " normal " person with > 2 good legs. You're not getting a 3rd leg, you're not getting an > advantage over a " normal " person, you still have a problem, but you > can now get from point A to point B a bit better. > > > > If the LDN creates a temporary blockade, it's like putting sugary > chewing gum over a slow dripping faucet. The gum causes a blockade, > the water builds up in quantity and pressure and starts to dissolve > the gum. When the gum is dissolved, a larger spurt of water flows > through, until the water goes back to dripping. Then you put some > more gum there the next day, and the process continues. Sometimes it > creates a steady flow, other times it just looks like a biorhythm > chart of peaks and valleys? > > > > Nothing scientific, just came to mind.... though I'd put it out there. > > > > > > > > > > ----- Original Message ----- > > > > LDN causes increase of endorphins. Right? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Hi Zil, I too have e-mailed Montel, and there is also Clay , the band against MS. I just fired off an e-mail to that site telling him/his people about us here. We keep going at this and sooner or later someone is going to sit up and take notice. Great work everyone. There is a list of famous people with MS that was posted back in Dec. If you want it, I'll send it to you or anyone else that wants it. Take care everyone and have a Great Day. Jim ----- Original Message ----- From: zillba@... low dose naltrexone Sent: Thursday, March 04, 2004 6:25 PM Subject: Re: [low dose naltrexone] Re: Reply to Larry How about we send a bottle to Montel , he has RRMS and his own talk show.... oh the power of the media,even in daytime TV! Hey he has a website, I think I will drop him a note maybe if we ALL drop him a note we can get his attention. Montel MS Foundation Just a thought. Zil Never give up, never surrender Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.