Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Maybe for future problems like this, we should get everyone in the group who has a personal neuro/GP other than Dr. Bahari/Dr. Lawrence or the guys who do the phone consults, to write letters on their patients experience with LDN. If they wrote letters that they too were skeptical, but allow their patients to try it anyone because "it couldn't hurt" and how surprised they are by the results, maybe others could use these letters to get their own neuro /GP to write them scripts. If some one in this group had a scanner, where the letters could be scanned into their computer and then posted on the website so anyone who needed them could go and print the doctor letters or the doctors could be directed where to find them on the Internet, this would be great. There would probably need to be some type of release form signed by each group member that is willing to have their letter posted on the website. I am not sophisticated enough in the technology to know how to do this but for someone who is good with the computer, I think its very easy. I think most doctors are not into testimonials but letters from other doctors might help them make the right decision. I have thought for a long time that it would be great to have somewhere on the Internet to go and see how many members there are in this group, the breakdown of their illnesses, the amount of LDN they take, what time they take it, how long they have been taking it, what other drugs they do, what supplements they take and how much. I wish that I was extremely computer literate. I would have my own website with a very detailed survey that automatically updated itself with the results. It would be kind of like having our own study on an on going. Anyone out there retired, computer literate, that could take on something like this? Debbie ----- Original Message ----- From: wkendz 32 low dose naltrexone Sent: Wednesday, February 25, 2004 11:51 AM Subject: [low dose naltrexone] Hi group... I just received this e-mail from a girl that has been writing to me for information regarding finding someone to prescribe the LDN. I told her that perhaps others in this group might have a better comeback for her to use then I would be able to come up with so I told her I would pose her question to you all in hopes of being able to supply her with a more intelligent response for her doctor. She is located in Calgary, Alberta , Canada. JoyceF Ok her is her e-mail to me:Hi ... me again!! Just wanted to let you know, I spoke to my msspecialist about ldn and printed out the info and he says it is no good for ms asit stimulates and tries to build the immune system. And it was never putin a trial ao it's only what he thinks~! I'm still going to try .... doyou have any comebacks or suggestions for when I approach my family doctor????....angela_________________________________________________________________Click, drag and drop. My MSN is the simple way to design your homepage. http://click.atdmt.com/AVE/go/onm00200364ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 You might want to refer her to the following sites and she can copy however much she wants and present it to the Doctor's: www.LDNinfo.org http://www.mwt.net/~drbrewer/ http://goodshape.net/LDNHighlights.html http://www.remedyfind.com http://www.voy.com/156761/ http://www.digitalnaturopath.com/treat/T74481.html http://www.msrc.co.uk/index.cfm?fuseaction=show & pageid=628 & CFID=493365 & CFTOK http://www.vrhotwires.com/Bill_Meikle/MS/LDNandMS.html http://disc.server.com/Indices/148285.html http://www.thisisms.com/forum-10.html Also, at www.acam.org there are 13 Doctor's listed in the Calgary area that are supposed to be forward thinking Doctors that she could call and ask them if they are aware of LDN and write prescriptions for it. Also, she could call a number of Homeopathic or Naturopathic Doctors in the area and ask them the same. Another source might be to call some local compounding pharmacies and ask if they know of any Doctors who prescribe Low Dose Naltrexone. Noland ----- Original Message ----- From: " wkendz 32 " <wkendz32@...> <low dose naltrexone > Sent: Wednesday, February 25, 2004 10:51 AM Subject: [low dose naltrexone] Hi group... > I just received this e-mail from a girl that has been writing to me for > information regarding finding someone to prescribe the LDN. I told her that > perhaps others in this group might have a better comeback for her to use > then I would be able to come up with so I told her I would pose her question > to you all in hopes of being able to supply her with a more intelligent > response for her doctor. She is located in Calgary, Alberta , Canada. JoyceF > Ok her is her e-mail to me: > > Hi ... me again!! Just wanted to let you know, I spoke to my ms > specialist about ldn and printed out the info and he says it is no good for > ms as > it stimulates and tries to build the immune system. And it was never put > in a trial ao it's only what he thinks~! I'm still going to try .... do > you have any comebacks or suggestions for when I approach my family > doctor???? > ....angela > > _________________________________________________________________ > Click, drag and drop. My MSN is the simple way to design your homepage. > http://click.atdmt.com/AVE/go/onm00200364ave/direct/01/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.