Re: Re: OVERPRODUCTION OF RED BLOOD CELLS(ERYTHREMIA, POLYCYTHEMIA)

[Guest guest]

,

When I had my liver biopsy in 98, the drs were looking specifically for

Hemochromatosis. Apparently they were satisfied that I don't have it. Since

then, I haven't had my iron levels tested.

I think it is time to check it out again. I had done a little research

on this disease and understand that it can be a silent killer. But if we

know about it, it can definately be controlled. Has your family been tested

yet?

Thank you for your posting. We learn so much from each other here.

Sylvia

jthom39 wrote:

> Jerry,

> My brother had polycythemia. I have mentioned this to drs before

and

> they have had no comment. I test extremely high for iron. Tomorrow

I

> have an apt with the hepatologist and will bring up the issure of

> polycythemia and of also celiac sprue. Thank you for all your

research.

> Sylvia

> Hi Sylvia. You should also get tested for Hemochromatosis, with

your iron being high. I was just recently dx with Hereditary

Hemochromotosis. The VA found it due to my iron coming back high.

. Hep C 98,AIH 00,HH 02.

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[Guest guest]

,

thanks for the advise. I will definately ask to be tested for the gene.

Also, I asked the hep dr about milk thistle, I know that is a trigger for

lots of discussion here. Her comment was " it can't hurt you ". But she recommended

that a better choice would be Urso . does any one here use it? What are your

comments? Will be interested to hear!

Wishing everyone health for the New Year!!

Sylvia

jthom39 wrote:

> > > Jerry,

> > > My brother had polycythemia. I have mentioned this to drs

before

> > and

> > > they have had no comment. I test extremely high for iron.

Tomorrow

> > I

> > > have an apt with the hepatologist and will bring up the issure

of

> > > polycythemia and of also celiac sprue. Thank you for all

your

> > research.

> > > Sylvia

> > > Hi Sylvia. You should also get tested for Hemochromatosis,

with

> > your iron being high. I was just recently dx with Hereditary

> > Hemochromotosis. The VA found it due to my iron coming back high.

> > . Hep C 98,AIH 00,HH 02.

> > >> > To UNsubscribe send a blank e-mail to

> > > > -unsubscribeegroups

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi Sylvia,

I use urso and I have found it works for me. I have

had no side effects from it. It is considered a safe

drug. Urso is especially used for people with PBC, I

take it for my Autoimmune Cholangitis and AIH, it also

helps with the itching in liver disease. Hope this

helps.

Ruth

--- Sylvia Margolis <sylviam@...>

wrote:

> ,

> thanks for the advise. I will definately ask to be

> tested for the gene.

>

> Also, I asked the hep dr about milk thistle, I know

> that is a trigger

> for lots of discussion here. Her comment was " it

> can't hurt you " . But

> she recommended that a better choice would be Urso .

> does any one here

> use it? What are your comments? Will be interested

> to hear!

>

> Wishing everyone health for the New Year!!

>

> Sylvia

>

> jthom39 wrote:

>

> >

> > > > > Jerry,

> > > > > My brother had polycythemia. I have

> mentioned this to drs

> > before

> > > > and

> > > > > they have had no comment. I test extremely

> high for iron.

> > Tomorrow

> > > > I

> > > > > have an apt with the hepatologist and will

> bring up the issure

> > of

> > > > > polycythemia and of also celiac sprue.

> Thank you for all your

> > > > research.

> > > > > Sylvia

> > > > > Hi Sylvia. You should also get tested for

> Hemochromatosis, with

> > > > your iron being high. I was just recently dx

> with Hereditary

> > > > Hemochromotosis. The VA found it due to my

> iron coming back high.

> > > > . Hep C 98,AIH 00,HH 02.

> > > > >> > To UNsubscribe send a blank e-mail to

> > > > > > -unsubscribeegroups

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

[Guest guest]

Thank you Ruth. I will probably try it too! Sylvia

hrby97111@... wrote:

Hi Sylvia,

I use urso and I have found it works for me. I have

had no side effects from it. It is considered a safe

drug. Urso is especially used for people with PBC, I

take it for my Autoimmune Cholangitis and AIH, it also

helps with the itching in liver disease. Hope this

helps.

Ruth

--- Sylvia Margolis <sylviam@...>

wrote:

> ,

> thanks for the advise. I will definately ask to be

> tested for the gene.

>

> Also, I asked the hep dr about milk thistle, I know

> that is a trigger

> for lots of discussion here. Her comment was " it

> can't hurt you ". But

> she recommended that a better choice would be Urso .

> does any one here

> use it? What are your comments? Will be interested

> to hear!

>

> Wishing everyone health for the New Year!!

>

> Sylvia

>

> jthom39 wrote:

>

> >

> > > > > Jerry,

> > > > > My brother had polycythemia. I have

> mentioned this to drs

> > before

> > > > and

> > > > > they have had no comment. I test extremely

> high for iron.

> > Tomorrow

> > > > I

> > > > > have an apt with the hepatologist and will

> bring up the issure

> > of

> > > > > polycythemia and of also celiac sprue.

> Thank you for all your

> > > > research.

> > > > > Sylvia

> > > > > Hi Sylvia. You should also get tested for

> Hemochromatosis, with

> > > > your iron being high. I was just recently dx

> with Hereditary

> > > > Hemochromotosis. The VA found it due to my

> iron coming back high.

> > > > . Hep C 98,AIH 00,HH 02.

> > > > >> > To UNsubscribe send a blank e-mail to

> > > > > > -unsubscribeegroups

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >