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Larry J. Frieders,RPh |The Compounder575 W. Illinois Ave ~ Aurora, IL 60506 630-859-0333 FAX 630-859-0114 Sample newsletter http://www.theCompounder.com/NL-Sample.html

Any health related information on our web pages or in our newsletters is for educational purposes only. None of the information we provide is to be construed as medical advice. Before applying any therapy or use of herbs, you may want to seek advice from your health care professional. Our information should not be a substitute for physician evaluation or treatment by a health care professional and is not intended to provide or confirm a diagnosis.

----- Original Message -----

From: Tatiana

low dose naltrexone

Sent: Monday, March 08, 2004 11:23 AM

Subject: [low dose naltrexone] a question?

HELLO EVERYBODY!I HAVE A SILY GUESTION TO ASK :-)CAN I DO A PERM, WHILE ON LDN?THEY SAY YOU CAN'T DO IT BEEN ON SOME MEDS,I HOPE LDN IS NOT ONE OF THEM :-)ANY ADVICE IS APRICCIATED!TAKE CARE!Tatiana

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I just did a perm two weeks ago and I am fine. Why do you beleive that?

Marie

----- Original Message -----

From: " Tatiana " <tati@...>

<low dose naltrexone >

Sent: Monday, March 08, 2004 12:23 PM

Subject: [low dose naltrexone] a question?

> HELLO EVERYBODY!

> I HAVE A SILY GUESTION TO ASK :-)

> CAN I DO A PERM, WHILE ON LDN?

> THEY SAY YOU CAN'T DO IT BEEN ON SOME MEDS,

> I HOPE LDN IS NOT ONE OF THEM :-)

> ANY ADVICE IS APRICCIATED!

>

> TAKE CARE!

>

> Tatiana

>

>

>

>

>

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I can vouch for the nails and hair growing like crazy! I have naturally curly hair, so I don't know anything about perms!! Of course, I straighten mine out!! We always want what we don't have!!

Marcie

In a message dated 3/9/2004 2:51:42 PM Central Standard Time, regkreil@... writes:

Subj:Re: [low dose naltrexone] a question?

Date:3/9/2004 2:51:42 PM Central Standard Time

From: regkreil@... (Reg Kreil)

Reply-to: low dose naltrexone

low dose naltrexone

Now I just have to get in on this not that I claim to be an expert on perms or anything else for that matter, but it seems to me that just before any company no matter whether it's soap or shampoo or conditioner,releases a "new improved" type of product, the old product that has worked very well for many years seems to loose it's strength. Now is that just my take on things or are we being manipulated,being sold inferior goods for a short while so that the "new improved" type appears better. If I am right then the perm you are using will come out shortly as "new improved sudden hold" or some such thing!

All I have really noticed is how fast my nails are growing and my sister who cuts my hair is watching to see how fast I need a new haircut. I think it is growing faster too.

Reg. -------Original Message

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  • 5 years later...

There are kids with severe apraxia who are non-verbal and do not have

autism.

My son was what I call functionally non-verbal at age 4. He had under 100

words (if you counted animal sounds) that he used rarely. He didn't put two

words together. He was misdiagnosed with autism at age 2.5 and had been

treated for autism with no progress. At age 4 we stopped autism treatments

and started ones directed at apraxia and he made slow and steady progress.

He made words and sounds so he wasn't technically non-verbal, but he wasn't

really speaking.

He didn't speak because he could not motor plan the sounds together. Even

the words he had he would say about 6 different ways. Thank you was " da

do " , " tay too " , etc. He couldn't repeat the same word the same way twice in

a row. He could make some sounds in isolation, but could not say VCV

patterns of sounds like " ahh - mmm- ahh " It would just jarble or come out

as completely different sounds.

It's great that your son is saying so much so young. Many of us had very

different experiences!

Miche

On Fri, Oct 2, 2009 at 11:04 AM, Carolyn Tarpey <ctarpey20@...> wrote:

>

> Or do these 5,6 and 7 years really completely non-verbal and is that

> because they has autism on top of apraxia?

>

> Thank you so much

>

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Hi Carol, My son is verbal but the back and forth communication that you and I

have is not there.� His speech therapists all agree he is scatter across the

board from 3 to 5 1/2 years of age. He will be 6 at the end of this month. The

reason I'm giving him the fish oil is in the hope he can say a 3 to 5 word

sentence without being prompt to or thinking about what he wants. I'm waiting

for more spontaneity on his behalf.

Tracey

�

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My 8dd was never considered Autistic, but she was non-verbal at 4 and 5yrs old.

The doctors often didnt agree with my description as her being non-verbal. She

was signing about 30-40 words at the age of 4yrs...we started signing at 1yr

old. She always understood every word that was said to her--that was very

evident!! She had hydrocephalus as a baby and had four surgeries--so her

challenges were clearly neurological--so no one was surprised wiht the apraxia.

Every time I told one of her doctors--surgeon, physiatrist, pediatrician and

neurologist that she was non-verbal because she had no words--only dada at 3yrs

old--they'd correct me and say that Signing IS considered words and does count

towards the amount of language they are using. So if I said she's saying less

than 10 words, but signing 30---they'd write down that she had up to 40 words.

She started talking at just after 5yrs old and was quickly putting two words

together. Everyone around her was amazed how far she had come.

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Hi,

 

My son is 11 yo. He is considered just Severe oral and verbal Dyspraxic. He now

is talking in 3 word sentences on the average but can put together up to 5 words

in a sentence not in a sentence like we would the words can be in the wrong

order. I would say he is about 75 percent understandable at this point.  At  age

5,6, 7 he would of been considered completely non verbal. He had very little

speech only a handful of words total. He jumbled and mumbled every word. It was

like playing charades to guess what he saying. This non verbal due to Dyspraxia

.. He does not have autism at no point was he ever diagnosed with autism. Making

wonderful progress though.

 

Jeanne

NH

From: Carolyn Tarpey <ctarpey20@...>

Subject: [ ] A question?

Date: Friday, October 2, 2009, 1:04 PM

 

Hello group,

To start with, I love this group and have found it very helpful.

My question is: I am reading about a lot of non-verbal 5,6,7 years old in this

group. Are all these non-verbal children have just apraxia or do they have

autism as well? And, what exactly does one mean by non-verbal? My son is 2 years

and 8 months and has verbal apraxia. Six months ago, I would have said my son

was non-verbal, he only had about a handful or so of words and only really used

them if you asked him to say them. Now he can repeat or will try to repeat

anything I ask him. He uses about 35 or so words on his own all day long. He can

put 2 words together, example " all done " " want that " " thank you mama " . So now I

would not say he is not non-verbal anymore but he is still a good year or more

behind in his talking and in my view speaks like a 15 to 18 month old. He does

get speech 5x a week and I think that has made a HUGE difference. So, am I

fooling myself into to thinking my son is verbal when really at his age because

and he still has so few

words, he really is still non-verbal? Or do these 5,6 and 7 years really

completely non-verbal and is that because they has autism on top of apraxia?

Thank you so much

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