Re: Hello-- I'm new here mas. for Lynda

[Guest guest]

Dear Lynda,

I'm 56 and have had EN since I was in my early 20's. I have also

read that EN can be a result of mono. My feeling is that we have

different genetic predispositons to various illness and disease. I

would not be surprised if a common bacteria or virus is the culpret to

all our woes. We also have members who have both MS and EN on my EN

Group. In fact it is rare that a person will only have EN--in that I

am in the minority. When I formed the EN Group 7 months ago I wanted

to include everyone with a " related " illness as I felt we had more in

common than not, and that by talking together we'd discover

similarities. This hunch seems to be true. When I formed the group I

had never met another with EN and now we have over 120 members. Some

of us have a mild form and others suffer with a debiliting type. But I

have a good feeling that we will get further working together than

waiting for research that never comes.

Feel free to join my EN group at:

erythema nodosum/

We welcome everyone--we all have a piece of the puzzle to contrubute.

Best wishes and I hope the LDN research proves the cure we all so

much need.

Love,

> Dear ,

> You are on the right track. I am 60 years old and have had MS for many

> years, AND I had erythema nodosum when I was 18. I was told then

that it

> was a complication of mononucleosis. I have since read (sorry I

don't know

> where, but it wouldn't be hard to find) that in one study all people

> diagnosed with MS also test positive for mono. There are many

> interconnected things going on here. Good luck, and keep us posted.

>

> Lynda

> ----- Original Message -----

> From: " Strecker " <rebeccastrecker@y...>

> <low dose naltrexone >

> Sent: Monday, March 01, 2004 5:13 PM

> Subject: [low dose naltrexone] Hello-- I'm new here

>

>

> > I just found out about LDN yesterday and joined the group today. I

> > have a condition called " erythema nodosum " and am moderator of an EN

> > Group on :

> >

> > erythema nodosum/

> >

> > I also have a webpage for those who are unfamiliar with EN:

> >

> > http://www.geocities.com/erythema_nodosum/Home_Page.html

> >

> > I am interested in the effects of LDN on autoimmune disorders. EN

> > often presents with Crohn's and sarcoidosis, but is just as often

> > idiopathic where no underlying trigger or concurrent disorder is

> > discovered. I am one of those idiopathic types.

> >

> > I have posted the link to this group on my EN Group, and have told

> > them of the Crohn's Trial. I am hoping that the LDN treatment will

> > help those with EN, and am looking forward to getting updates to see

> > how the research is going. I will pass on info. to my EN Group. I wish

> > you all the best.

> >

> >

> >

> >

> >

> >

> >