Re: Trying to find LDN prescribing - try this Dr

[Guest guest]

Kim,

Now you've got me crying after I read this! Dont wait, do the phone

consult. I got Dr M. Sullivan from this list, 717-591-0920. 20

min phone call at $5/min was $100, and he called the script into a

Fairview pharmacy, 717-540-7031, experienced with LDN.

I've kept doing Avonex while Im starting LDN (1mo so far, sleeping

through for the first time in a decade!) If you keep doing shots, see

if you can get a visiting nurse. This would make it less emotional,

and they might have different techniques to try. I can't do the quick

jab approach, I have to poke it in slowly, like I used to do Copaxone

shots for 5 yrs. Icing the area beforehand sometimes helps. Maybe

have hime watch TV while its going on too. Gosh I hope LDN can help

your son! Im working hard at finding our how the reseach world works,

maybe we can move this mountain and get the medical community to take

note!

--- In low dose naltrexone , " petessweetheart " > was

switched to Rebif by the neuro, and the injections are just

> killing him. Luckily, he doesn't have the flu like symptoms from

> them, but the injections themselves are so painful that he can

hardly stand it, and I cry everytime I give him one.

[Guest guest]

Thanks, . Hopefully we are making some headway with our

PCP...he's looking it over and discussing it with a neuro friend of

his and supposed to let us know something tomorrow. Meanwhile, I'm

standing on my head...As if that isn't enough to stress about, my

son has strep throat now, which terrifies me, since an exacerbation

usually follows most illnesses like this with him. I honestly think

the Rebif is why he catches so many things, his immune system is too

suppressed. Can't wait to kiss it goodbye...Regardless, I have your

Dr's name and number, and a phone consult is my next move if the pcp

says no. Take care, and thank you!

Kim

> Kim,

> Now you've got me crying after I read this! Dont wait, do the

phone

> consult. I got Dr M. Sullivan from this list, 717-591-0920.

20

> min phone call at $5/min was $100, and he called the script into a

> Fairview pharmacy, 717-540-7031, experienced with LDN.

>

> I've kept doing Avonex while Im starting LDN (1mo so far, sleeping

> through for the first time in a decade!) If you keep doing shots,

see

> if you can get a visiting nurse. This would make it less

emotional,

> and they might have different techniques to try. I can't do the

quick

> jab approach, I have to poke it in slowly, like I used to do

Copaxone

> shots for 5 yrs. Icing the area beforehand sometimes helps. Maybe

> have hime watch TV while its going on too. Gosh I hope LDN can

help

> your son! Im working hard at finding our how the reseach world

works,

> maybe we can move this mountain and get the medical community to

take

> note!

>

> --- In low dose naltrexone , " petessweetheart " > was

> switched to Rebif by the neuro, and the injections are just

> > killing him. Luckily, he doesn't have the flu like symptoms

from

> > them, but the injections themselves are so painful that he can

> hardly stand it, and I cry everytime I give him one.