Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Lynda, Maybe you planted a seed in the minds of anyone who might be skeptical!! That's about all you can do. I, too, believe that many people have just lost hope and are being led by whomever. I choose to believe that a higher power who is much smarter than myself has led me to LDN and that it is a good thing! Keep spreading the word! If you help one person it is worth it!! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 THANK YOU ALL who have responded to my email. It is sort of like being part of an underground organization. I want to believe that truth will win out about LDN, but sometimes when I feel the political climate, I have this vague paranoia that not only will they not recognize the benefits, but the great greedy THEY will make it hard to get. I am not usually this doubtful, and I guess I am very attached to Naltraxone and don't want anyone to tell me I can't take it!!!! These are strange times. Blessings on us all, and thank you for being there. Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Lynda, You are 100% right. At this point the success of those of us with LDN will have to suffice. Unfortunately, "You can lead a horse to water but you can't make him drink". Eventually the word will get out. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 I call this the "If it sounds too good to be true it probably is Syndrome" It is just too bad that many of us in the past have had real life experiences with M.L.M get rich quick schemes and fad diets etc. ( you all know of which I speak) So many are around that when I tell someone how L.D.N. has improved me and they see my cane of course they will be sceptical. But they didn't see me last year in that wheelchair, so how can they know? I have already gone thru the save the world from this disease stage and now rely on what I read here to support me, otherwise I might believe it is all in my head. It isn't right? With my progressive type the doctor only wants me out of his office, so whatever it takes is good by him, By the way my fingernail growth is about 30 percent faster.Reg (message trimmed for some peoples benefit) -------Original Message------- From: low dose naltrexone Date: 02/11/04 10:27:27 low dose naltrexone Subject: [low dose naltrexone] talking about LDN Hello everyone. I need a little supportive feedback. Yesterday was my monthly MS support group. I was excited about sharing my LDN experience, which has been like a miracle for me. The 10 others with MS were interested in hearing my story. I told them ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Lynda, I, we, are banging our heads against that same wall. I'm experienced in antibiotics, food, allergies and now more and more LDN. But who listens? Nobody does, unless they are told by a doctor. So few ppl are eiger to do their own studies and/or experiment. And even if you do so, like my group and me, the doctors just nod their heads and say; if it works for you... But actually do something with the tons of experience of the patients self? No! I frustrates me. That is the reason I never attend a support group, its banging against a wall. Sometimes it looks like patients rather complain then do something to help themselfs. Thats the great thing about this group, yohoo LDNners;o) Let us keep on spreading the good (and some bad, be realistic) things about LDN. Maybe if we keep on talking, we'll get it through. Although that would be very hard working here in Holland. Thank the Lord I know more LDN users here. Unfortunatly their experiences are not all good. I blame that on Nalorex, but who am I?;o)) Chey > What I learned is that people are so tied in to the medical/pharmaceutical corporate mythology, that they have a hard time thinking for themselves, or seeing the obvious, which is that the doctors don't know and are dependent on the manipulation of statistics by drug companies. SO, I am now eager to have 'studies' done, so that more wretched beings can get the help LDN offers. It seems like the only way to get attention is to get someone to get statistics for us. People just aren't going to trust the reports of friends, especially if they can't even trust their own experience. > > I felt pretty glum after group. Maybe people have just tried so many things that they have lost hope, and just stick with the doctors out of desperation. I want better things for all of us. How can we get studies done? > > Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 I agree that it is extremely frustrating to try to get people to listen seriously about the benefits of LDN. If it was expensive, it would be easier to accept that people won't listen. I can't even get my wife to try it for her fibromyalgia. I think she would rather complain about how she feels. However, she doesn't complain to me as much as she used to since I told her I didn't want to hear her complaints now that there is something available that will help her that she refuses to take. Noland ----- Original Message ----- From: " cheystay " <c_chey@...> <low dose naltrexone > Sent: Wednesday, February 11, 2004 2:06 PM Subject: [low dose naltrexone] Re: talking about LDN > > Lynda, I, we, are banging our heads against that same wall. > I'm experienced in antibiotics, food, allergies and now more and > more LDN. But who listens? Nobody does, unless they are told by a > doctor. So few ppl are eiger to do their own studies and/or > experiment. And even if you do so, like my group and me, the doctors > just nod their heads and say; if it works for you... But actually do > something with the tons of experience of the patients self? No! I > frustrates me. That is the reason I never attend a support group, > its banging against a wall. Sometimes it looks like patients rather > complain then do something to help themselfs. > > > Shipped direct from the grower with a 7 day freshness guarantee and prices so low you save 30-55% off retail! > http://us.click./_iAw9B/xdlHAA/3jkFAA/DxgolB/TM > ---------------------------------------------------------------------~-> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Hi Noland, It seems like we have one more thing to add to the list of subjects not to be brought up at a party.....Religion, Politics, and now LDN...lol Love, Sally " Noland R. Durnell, P.E. " wrote: > I agree that it is extremely frustrating to try to get people to listen seriously about the benefits of LDN. If it was expensive, it would be easier to accept that people won't listen. > I can't even get my wife to try it for her fibromyalgia. I think she would rather complain about how she feels. However, she doesn't complain to me as much as she used to since I told her I didn't want to hear her complaints now that there is something available that will help her that she refuses to take. > Noland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Lynda, I totally understand your disappointment, I've been down that road myself. I tell everyone I know about ldn, but that's usually because THEY ask ME. I live in a very small town (800 people) and people noticed how much better I was and asked what happened, and they were all totally amazed. My best friend came to visit me one weekend, and when he went home he told everyone he knows about it, and gave out my phone number lol. I was amazed at how many people he knew with MS, but one by one they all called and asked questions. It got to the point that when the phone rang, and if it was an unfamiliar number on the call display, my husband would just hand me the phone and say " ldn call " lol. It was easy to talk to these people because they WANTED to hear about it. It's a different story in your case with your MS support group. You have planted a seed tho, and I'm sure every single one of those people will be thinking about ldn, and possibly even be researching it. I must admit that I myself was one of those " it sounds too good to be true, so it probably is " people in the beginning. I kept on researching it tho, and finally realized that nobody had anything to gain by telling people how well they were doing on it. Nobody was selling anything, they were just sharing their experiences with ldn, and wanted to pass on the good news. Besides, I would have done almost anything to get off the Rebif injections. Ldn was the best decision I ever made, and I've never looked back (just don't go into a tanning bed if you have ms, ldn can only do so much lol) What I wanted to tell you about was my frustration with another good friend of mine. She has had MS for 18 years, and has been in a wheelchair for about 3. She seen for herself what a differece ldn made for me, yet she wouldn't even try it. She was not on any kind of medication, so I kept thinking that she had nothing to lose, but there was no way she would try it. My hubby and her hubby and I had a long chat, and all agreed that she had given up and was letting the MS take over her life. We were all sooooo frustrated, but what can you do? She is a very stubborn and bull headed woman. The day before yesterday she called me and asked me how I got my prescription!!!! I was in total shock. She told me that she had been thinking, and realized that she was letting the MS take over her life , and that it was time to do something about it. That was step one, now she just has to stick with it....she is also not a patient woman lol. I just told her to keep on taking it, and not to give up, and she assured me that she wouldn't, I'm soooooo happy. So Lynda, don't give up on these people that don't listen, if my friend Deb will finally come around (they don't come any more stubborn than her)I'm sure that you'll get at least some of your support group to try it. If not, then at least be happy that you made an awesome decision for yourself! Kerry " Lynda Phelps " <padma108@c...> wrote: > Hello everyone. > > I need a little supportive feedback. Yesterday was my monthly MS support group. I was excited about sharing my LDN experience, which has been like a miracle for me. The 10 others with MS were interested in hearing my story. I told them that I had now been able to go off of ALL my other MS prescriptions (except for thyroid). Quote Link to comment Share on other sites More sharing options...
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