talking about LDN

[Guest guest]

Hello everyone.

I need a little supportive feedback. Yesterday was my monthly MS support group. I was excited about sharing my LDN experience, which has been like a miracle for me. The 10 others with MS were interested in hearing my story. I told them that I had now been able to go off of ALL my other MS prescriptions (except for thyroid). Three or four of them wrote stuff down and asked questions. Several of them were reserving judgement I am sure, and several had grave doubts about LDN. One remarked that there was no evidence that LDN 'actually caused lesions to heal.' The group responded to that by saying, that even if it wasn't healing leasions, there was symptom relief. Then my turn was over, and the group went on to discuss many other of the perscription drugs they were taking. Most of them take not only an ABC, but also two or four or five or MORE other symptom relief drugs, that often are not helping. They complained of being overdosed, and not monitored properly, etc.

What I learned is that people are so tied in to the medical/pharmaceutical corporate mythology, that they have a hard time thinking for themselves, or seeing the obvious, which is that the doctors don't know and are dependent on the manipulation of statistics by drug companies. SO, I am now eager to have 'studies' done, so that more wretched beings can get the help LDN offers. It seems like the only way to get attention is to get someone to get statistics for us. People just aren't going to trust the reports of friends, especially if they can't even trust their own experience.

I felt pretty glum after group. Maybe people have just tried so many things that they have lost hope, and just stick with the doctors out of desperation. I want better things for all of us. How can we get studies done?

Lynda