Lyme's testing for my son

[Guest guest]

He has been tested, but I am unsure if we can consider the results

accurate or not. I have been unable to find any test results from

the onset of the illness, and a Western Blot test was done

approximately 5 months later by the current neuro. I read somewhere

that there was a testing " window " of dependable accuracy, and that

this could very well have been a false negative on these test

results. I recently found an article at

www.allergyresearchgroup.com in the January 2004 newsletter that

claimed there is a new test that is more reliable, but also claims

that 99% of the population tests positive, on the basis that it is

much more contagious than originally thought, and everyone has it,

whether they know it or not...So...Interesting reading. You should

take a look at it.

Thanks for all the input! When we started out with the encephalitis

diagnosis, it was very feasible to me, but I just didn't realize how

vague the diagnosis actually was. I believe that I would have done

alot of things differently for my son had I known that they really

had no clue. But, we were at Vanderbilt University Medical Center,

and after the initial diagnosis in Kentucky of multiple inoperable

brain tumors, we were relieved to hear anything other than that! I

think we were so shocked that we didn't question things enough, and

now I can't seem to find out if the proper testing was done. I'm

trying, though. I've been down the " Lyme's path " with the current

neuro, but he seems to be wearing MS blinders, and won't take that

walk with me. Encephalitis made total sense at the time, with all

the mosquito bites he had. Nothing has made sense since then.

Thanks, again!

Kim