Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Reg, Reference your P.S.: Mine isn't 100%, but I'm ecstatic with the 75 -80%!!! LDN for life for me too! (Even if this is all that it does!) Dragging the restroom around like a ball and chain was miserable!! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Just an update on my progress 152 days on ldn. I have always had the stiffness problem with ldn. I have tried many different amounts over the last 150 plus days that I have been on ldn. but none will stop the stiffness. I never had this before starting ldn. I don,t think it is a repair byproduct as some have suggested, and if it was the nurons refiring as I read some where by now I should be running on all cylinders,I think in my case it is a side effect of ldn. Not an unbearable one by no means, it is far better than the burning it replaced, that was unbearable, I can feel for anyone with that! But why is it only in the left arm, the one that is disabled due to M.S.? I can stretch it till the cows come home but it does nothing to alleiviate the symptoms.Stretching usually sets off a spastic attack.It only lasts for seconds but still it is uncomfortable. I have been supplimenting my diet with mega amounts of vitamins and even Myelin M.S. so far nothing noticeable has changed.Taking the D.L.Phenylalanine seems to have done the most amount of good though but it is hard to remember to take it half hour before breakfast, my pains that were a constant companion are mostly gone. Well today I will go see this physiotherapist friend of mine to get the disability forms for income tax filled in and we will see what advice he has for me! Ever since the Kline govt. took private physio off Medicare I havn't been able to see him as it is now out of reach for us unemployed. Maybe there is nothing more happening with symptom improvement ,but also nothing more is getting lost I can still walk even though it is slow and tiring. but my wheel chair can sit in the same spot for a while yet. I can see no harm for me by taking ldn. for the extended future neither financial or health wise so I guess just so I retain what came back, I will be on it for LIFE. Reg. Ps. this bladder control thing was the best thing to come out of ldn. -------Original Message------- From: low dose naltrexone Date: 03/08/04 06:56:09 low dose naltrexone Subject: [low dose naltrexone] Stiffness and pain Also had the stiffness problem. Started at 3.0mg LDN for a week then to 4.5 for three weeks. Pain and stiffness became unbearable so stopped LDN for three weeks. Stiffness and pain subsided after three weeks. Started LDN again at 1.5mg, five days on, two days off. Some stiffness returned but began to diminish after two weeks. Starting week three feel pretty good. bladder control returning, pain and stiffness and tremors are intermittent and subsiding. We are all different. I suspect some of the differences are due to the area of the brain affected by lesions.Tom ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Marcie/Reg: Amen to that!!! And Reg, the DL-Phenylalanine (I believe) is making a difference as well for me also. To whomever recommended that (Zil?) Thank you. Take care everyone and have a Great Day Jim ----- Original Message ----- From: marciemjm@... low dose naltrexone Sent: Monday, March 08, 2004 7:22 AM Subject: Re: [low dose naltrexone] Stiffness and pain Reg, Reference your P.S.: Mine isn't 100%, but I'm ecstatic with the 75 -80%!!! LDN for life for me too! (Even if this is all that it does!) Dragging the restroom around like a ball and chain was miserable!! Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Marcie. I will agree that when Bahari said, Most of what you lost in the last three months will come back. it is true! I think if I would have known about ldn. sooner things would have been way different, but how are we to know if that is actually the case? Some of my friends who are not as bad off as I was and they also have RRMS are afraid to try this as they are scared it will set them back. I think that is the cruncher right there when I knew there was nothing the doctors could do for me I was open for anything. I didn't even have the hope that some drug I was injecting would help regardless of the cost or pain or side effects, it just wasn't there. Where as my friends still hang on to hope that the crabs will turn them around. Are we just people grasping at straws? I am very sad today as a young lady whom I grew up with and has had M.S. as long as I Is going to be heading for the operating room to get a feeding tube installed. She can no longer swallow and her parents are still calling the shots, and wouldn't let her try ldn when I let her know about it four months ago. My wifes Sister went that way and when we buried her two years ago I swore that wasn't the way I was going! Sometimes I feel so helpless.Why can't they see the turnaround in my brothers condition and mine? It's not like there is no hope, or do they feel it is better to let her go, I hope we have not come to that. Sadly yours Reg. -------Original Message------- From: low dose naltrexone Date: 03/08/04 08:24:23 low dose naltrexone Subject: Re: [low dose naltrexone] Stiffness and pain Reg, Reference your P.S.: Mine isn't 100%, but I'm ecstatic with the 75 -80%!!! LDN for life for me too! (Even if this is all that it does!) Dragging the restroom around like a ball and chain was miserable!! Marcie ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 I AGREE 100% EVERYBODY IS DIFFERENT! AFTER A MONTH ON 3 MG, STARTED TO EXPERIENCE REAL STIFFNESS AND KNEE PAIN... NOW TRYING TO ADGUST THE DOSAGE AND ON - OFF SCHEDULE... --- In low dose naltrexone , Ts N433R <tspeckman@f...> wrote: > Also had the stiffness problem. Started at 3.0mg LDN for a week then to > 4.5 for three weeks. Pain and stiffness became unbearable so stopped LDN > for three weeks. Stiffness and pain subsided after three weeks. Started > LDN again at 1.5mg, five days on, two days off. Some stiffness returned > but began to diminish after two weeks. Starting week three feel pretty > good. bladder control returning, pain and stiffness and tremors are > intermittent and subsiding. We are all different. I suspect some of the > differences are due to the area of the brain affected by lesions. > > Tom Quote Link to comment Share on other sites More sharing options...
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