Re: long whiny letter, sorry...

[Guest guest]

Hey ,

The one thing that comes to mind pretty

quickly is the type of filler you used locally, (VS) the filler skips used? That could make up the difference in your

sleeping patterns? Those of us with

MS have overactive immune systems and we normally don’t get sick with the

latest bug that’s going around.

Why this is happening to you now is a mystery, it might very well have

to do with the fact that you’re taking ldn, but

without a medical degree I’m at a loss. Hope you find the kind of answers that

help put the puzzle together for you.

(MS)

-----Original Message-----

From:

[mailto:jatrac1@...]

Sent: Saturday, March 27, 2004 6:40 PM

To:

low dose naltrexone

Subject: [low dose naltrexone] long

whiny letter, sorry...

My first script was filled

locally, well just an hour away. I started with 3mg and saw immediate

improvement in strength, balance, proprioperception, bladder issues, and sense

of touch. I had no trouble at all sleeping, in fact started sleeping

better than I had in years, but I did develop some limited stiffness in my

legs, nothing to complain about. The nasty burning sensations on my

abdomen left almost immediately, one of the best effects of LDN as far as I'm

concerned...

Then a couple of weeks

after I started the LDN I had some sort of virus or something, chills and

fever, on and off again nausea, extreme fatigue and weakness. It is

finally getting some better, but now my legs are very stiff, as well as my

abdomenal and lumbar area muscles. I thought I was having a flare up for

a while, until my husband began exhibiting the same symptoms... his

abs have even gotten tight on him. His symptoms were not as severe,

except for the fatigue, and he's pretty much back to normal except that his

legs are still feeling tired.

During this period of

weakness I haven't lost any of the other gains I've made with the

LDN. The overall weakness and trembliness was not at all like the

muscle weakness prior to LDN. I retained the bladder control, sense of

touch, clearer thinking etc, so I'm sure it's some kind of virus or such.

I received my prescription

from Skip's a week ago; now I've joined the ranks of those who don't sleep

well. My legs and abs are ridiculously tight. First thing in the

morning life is very unpleasant. Throughout the day I stiffen up if I sit

for just a few minutes. While I was so weak with the bug I pulled

something in my right lower back, and that is driving me nuts too.

Well, I didn't mean to

turn this into a big complaining whine fest. I really just wanted to know

if other folk's sleep patterns changed from time to time while on LDN,

especially since my original prescription seemed to help me sleep and the one I

had filled by Skip's seems to be keeping me awake.

And I know a lot of people

have experienced stiffness. Quinine water (ick) or inosine seem to help

some, but I'm hoping it will go away eventually. Have any of you just

stayed all tied in knots? and how long did it take to get better for those who

did lose the stiffness? Any good tricks for dealing with it? The DL

phenalalanine doesn't seem to help very much lately, if at all.

The Benfotiamine really

seems to have helped my energy level, and general outlook. I finally got

over the fatigue when I started taking it earlier this week.

Has anyone else come down

with any unusual illnesses within a couple weeks of starting LDN? I

normally do not catch anything that is going around. My crew of 11 people

will pass around the flu or a cold and I just never join them in their

misery. I'm wondering if the LDN somehow made me more susceptible to

whatever got a hold on me.

Any thoughts?

Again, I apologize for

venting and whining. Sometimes it just has to come out!

(MS)

----- Original Message -----

From: LarryGC

low dose naltrexone

Sent: Saturday,

March 27, 2004 3:39 PM

Subject: Re:

[low dose naltrexone] changing doses

My first prescription 4/03 was for

3.0, when I went to see my neuro 10/03, I told him I would eventually want to

trial 4.5 and asked him for a script for 1.5 MG caps for 4.5 per day for 2

months. So he wrote me a 2nd script for 1.5 X180.

My pharmacist says they are totally

different scripts, so I COULD fill BOTH of them.

If I'm not going to bother with 4.5

testing any more, I'll just refill my 3.0's and not worry about it.

----- Original Message -----

From: Edith

low dose naltrexone

Sent: Monday,

March 22, 2004 10:42

Subject:

[low dose naltrexone] changing doses

I am waiting for an Rx from my neuro for LDN and asked

for 3.0 to

start with. But I'm reading about some people going from 3.0 to 4.5

and back again. Do you have two prescriptions? How does this work?

Edith

[Guest guest]

The local filler was lactose, Skip used avicel (sp?).

You're right; maybe getting sick is actually an unpleasant indication the LDN is causing my immune system to become more "normal"...

Anybody else getting sick a short time after starting the med? I seem to remember someone developing sinus trouble.

If this is something that happens to many of us maybe we should let the "newbies" know it's a possibility? For several days I was afraid I was having a nasty exacerbation.

Thanks

----- Original Message -----

From: Baden

low dose naltrexone

Sent: Sunday, March 28, 2004 5:57 AM

Subject: RE: [low dose naltrexone] long whiny letter, sorry...

Hey ,

The one thing that comes to mind pretty quickly is the type of filler you used locally, (VS) the filler skips used? That could make up the difference in your sleeping patterns? Those of us with MS have overactive immune systems and we normally don’t get sick with the latest bug that’s going around. Why this is happening to you now is a mystery, it might very well have to do with the fact that you’re taking ldn, but without a medical degree I’m at a loss. Hope you find the kind of answers that help put the puzzle together for you.

(MS)

-----Original Message-----From: [mailto:jatrac1@...] Sent: Saturday, March 27, 2004 6:40 PMlow dose naltrexone Subject: [low dose naltrexone] long whiny letter, sorry...

My first script was filled locally, well just an hour away. I started with 3mg and saw immediate improvement in strength, balance, proprioperception, bladder issues, and sense of touch. I had no trouble at all sleeping, in fact started sleeping better than I had in years, but I did develop some limited stiffness in my legs, nothing to complain about. The nasty burning sensations on my abdomen left almost immediately, one of the best effects of LDN as far as I'm concerned...

Then a couple of weeks after I started the LDN I had some sort of virus or something, chills and fever, on and off again nausea, extreme fatigue and weakness. It is finally getting some better, but now my legs are very stiff, as well as my abdomenal and lumbar area muscles. I thought I was having a flare up for a while, until my husband began exhibiting the same symptoms... his abs have even gotten tight on him. His symptoms were not as severe, except for the fatigue, and he's pretty much back to normal except that his legs are still feeling tired.

During this period of weakness I haven't lost any of the other gains I've made with the LDN. The overall weakness and trembliness was not at all like the muscle weakness prior to LDN. I retained the bladder control, sense of touch, clearer thinking etc, so I'm sure it's some kind of virus or such.

I received my prescription from Skip's a week ago; now I've joined the ranks of those who don't sleep well. My legs and abs are ridiculously tight. First thing in the morning life is very unpleasant. Throughout the day I stiffen up if I sit for just a few minutes. While I was so weak with the bug I pulled something in my right lower back, and that is driving me nuts too.

Well, I didn't mean to turn this into a big complaining whine fest. I really just wanted to know if other folk's sleep patterns changed from time to time while on LDN, especially since my original prescription seemed to help me sleep and the one I had filled by Skip's seems to be keeping me awake.

And I know a lot of people have experienced stiffness. Quinine water (ick) or inosine seem to help some, but I'm hoping it will go away eventually. Have any of you just stayed all tied in knots? and how long did it take to get better for those who did lose the stiffness? Any good tricks for dealing with it? The DL phenalalanine doesn't seem to help very much lately, if at all.

The Benfotiamine really seems to have helped my energy level, and general outlook. I finally got over the fatigue when I started taking it earlier this week.

Has anyone else come down with any unusual illnesses within a couple weeks of starting LDN? I normally do not catch anything that is going around. My crew of 11 people will pass around the flu or a cold and I just never join them in their misery. I'm wondering if the LDN somehow made me more susceptible to whatever got a hold on me.

Any thoughts?

Again, I apologize for venting and whining. Sometimes it just has to come out!

(MS)

----- Original Message -----

From: LarryGC

low dose naltrexone

Sent: Saturday, March 27, 2004 3:39 PM

Subject: Re: [low dose naltrexone] changing doses

My first prescription 4/03 was for 3.0, when I went to see my neuro 10/03, I told him I would eventually want to trial 4.5 and asked him for a script for 1.5 MG caps for 4.5 per day for 2 months. So he wrote me a 2nd script for 1.5 X180.

My pharmacist says they are totally different scripts, so I COULD fill BOTH of them.

If I'm not going to bother with 4.5 testing any more, I'll just refill my 3.0's and not worry about it.

----- Original Message -----

From: Edith

low dose naltrexone

Sent: Monday, March 22, 2004 10:42

Subject: [low dose naltrexone] changing doses

I am waiting for an Rx from my neuro for LDN and asked for 3.0 to start with. But I'm reading about some people going from 3.0 to 4.5 and back again. Do you have two prescriptions? How does this work?Edith

[Guest guest]

, you are the 3rd or 4th person who has said they have felt that Skips script was different. Maybe his measuring is a liitle off or can it be his filler releases differently?

[Guest guest]

There is no problem whatsoever with using

that as a filler. My compounding pharmacy is one on the list of pharmacies for

getting LDN and they do all theirs with Calcium Carbonate unless something else

is requested )

From: Arlene Lizotte

[mailto:alcha508@...]

Sent: Sunday, March 28, 2004 3:15

PM

low dose naltrexone

Subject: Re: [low dose naltrexone]

long whiny letter, sorry...

:

I haven't written before and not on LDN yet, but hope

to get a script soon. I am in a group that follows a special diet

for the management of MS. The diet avoids all dairy products b/c of milk

proteins, so any lactose is a no-no for us. It is well-known that dairy

products contribute to a worsening of sinus problems and excess

phlegm. Maybe the getting " sick " was a result of the lactose

filler that was used. I was cautioned to make sure the filler I used was

not lactose.

What is wrong with calcium carbonate, if

anything? Someone else was asking about what fillers would be best for

heartburn prone people and I would think calcium carbonate would be a good

choice b/c it is what they use in Tums and other antacids.

Does anyone know if there is a problem with using this

as a filler?

Arlene

<jatrac1@...>

wrote:

The local filler was lactose, Skip used

avicel (sp?).

You're right; maybe getting sick is

actually an unpleasant indication the LDN is causing my immune system to become

more " normal " ...

Anybody else getting sick a short time

after starting the med? I seem to remember someone developing sinus

trouble.

If this is something that happens to many

of us maybe we should let the " newbies " know it's a

possibility? For several days I was afraid I was having a nasty

exacerbation.

Thanks

----- Original Message -----

From: Baden

low dose naltrexone@groupscom

Sent: Sunday, March 28,

2004 5:57 AM

Subject: RE:

[low dose naltrexone] long whiny letter, sorry...

Hey ,

The one thing that comes to mind pretty

quickly is the type of filler you used locally, (VS) the filler skips

used? That could make up the difference in your sleeping patterns?

Those of us with MS have overactive immune systems and we normally dont get

sick with the latest bug thats going around. Why this is happening

to you now is a mystery, it might very well have to do with the fact that

youre taking ldn, but without a medical degree Im at a loss.

Hope you find the kind of answers that help put the puzzle together for you.

(MS)

-----Original Message-----

From:

[mailto:jatrac1@...]

Sent: Saturday,

March 27, 2004 6:40 PM

low dose naltrexone

Subject: [low dose naltrexone] long

whiny letter, sorry...

My first script was filled

locally, well just an hour away. I started with 3mg and saw immediate

improvement in strength, balance, proprioperception, bladder issues, and sense

of touch. I had no trouble at all sleeping, in fact started sleeping

better than I had in years, but I did develop some limited stiffness in my

legs, nothing to complain about. The nasty burning sensations on my

abdomen left almost immediately, one of the best effects of LDN as far as I'm

concerned...

Then a couple of weeks

after I started the LDN I had some sort of virus or something, chills and

fever, on and off again nausea, extreme fatigue and weakness. It is

finally getting some better, but now my legs are very stiff, as well as my

abdomenal and lumbar area muscles. I thought I was having a flare up for

a while, until my husband began exhibiting the same symptoms... his

abs have even gotten tight on him. His symptoms were not as severe,

except for the fatigue, and he's pretty much back to normal except that his

legs are still feeling tired.

During this period of

weakness I haven't lost any of the other gains I've made with the

LDN. The overall weakness and trembliness was not at all like the

muscle weakness prior to LDN. I retained the bladder control, sense of

touch, clearer thinking etc, so I'm sure it's some kind of virus or such.

I received my prescription

from Skip's a week ago; now I've joined the ranks of those who don't sleep

well. My legs and abs are ridiculously tight. First thing in the

morning life is very unpleasant. Throughout the day I stiffen up if I sit

for just a few minutes. While I was so weak with the bug I pulled

something in my right lower back, and that is driving me nuts too.

Well, I didn't mean to

turn this into a big complaining whine fest. I really just wanted to know

if other folk's sleep patterns changed from time to time while on LDN,

especially since my original prescription seemed to help me sleep and the one I

had filled by Skip's seems to be keeping me awake.

And I know a lot of people

have experienced stiffness. Quinine water (ick) or inosine seem to help

some, but I'm hoping it will go away eventually. Have any of you just

stayed all tied in knots? and how long did it take to get better for those who

did lose the stiffness? Any good tricks for dealing with it? The DL

phenalalanine doesn't seem to help very much lately, if at all.

The Benfotiamine really

seems to have helped my energy level, and general outlook. I finally got

over the fatigue when I started taking it earlier this week.

Has anyone else come down

with any unusual illnesses within a couple weeks of starting LDN? I

normally do not catch anything that is going around. My crew of 11 people

will pass around the flu or a cold and I just never join them in their

misery. I'm wondering if the LDN somehow made me more susceptible to

whatever got a hold on me.

Any thoughts?

Again, I apologize for

venting and whining. Sometimes it just has to come out!

(MS)

----- Original Message -----

From: LarryGC

low dose naltrexone@groupscom

Sent: Saturday,

March 27, 2004 3:39 PM

Subject: Re:

[low dose naltrexone] changing doses

My first prescription 4/03 was for

3.0, when I went to see my neuro 10/03, I told him I would eventually want to

trial 4.5 and asked him for a script for 1.5 MG caps for 4.5 per day for 2

months. So he wrote me a 2nd script for 1.5 X180.

My pharmacist says they are totally

different scripts, so I COULD fill BOTH of them.

If I'm not going to bother with 4.5

testing any more, I'll just refill my 3.0's and not worry about it.

----- Original Message -----

From: Edith

low dose naltrexone@groupscom

Sent: Monday,

March 22, 2004 10:42

Subject: [low dose naltrexone]

changing doses

I am waiting for an Rx from my neuro for LDN and asked

for 3.0 to

start with. But I'm reading about some people going from 3.0 to 4.5

and back again. Do you have two prescriptions? How does this work?

Edith

Do

you ?

-

More reliable, more storage, less spam