LDN Survey - Results posted

[Guest guest]

Great Job!!! Can you add . Are you taking LDN + CRABS ,? Which CRAB? Taking only LDN.?

[Guest guest]

Go to:

http://home.earthlink.net/~dflomer/LDN/

For the summarized results, click the link:

" Summarized statistics for 75 respondents as of 03/06/04 "

This is designed to print and show your doctor, to add to your

evidence material. I've done some statistical summary which is

shorter than the Live survey results. This is just a survey, but it

does show the overall positive experience that people are having with

this drug.

Whatever your experience, please go to this page and take the survey.

Until we get clinical trials, we only have each other, and sharing

your experience helps other users.

WE NEED REAL RESEARCH & TRIALS!

Don't forget to go to the site Yash alerted the list to, and post

your feelings on government spending for LDN research. This is likely

the only way it will happen, since there's no $$ for big pharma in

this. NIH - National Center for Complementary and Alternative

Medicine:

http://nccam.nih.gov/about/plans/2005/index.htm

They are also taking public testimony, anyone in Bethesda or Seattle

able to attend and speak for this issue?

[Guest guest]

> Great Job!!! Can you add . Are you taking LDN + CRABS ,? Which

CRAB? Taking only LDN.?

I thought about this when I set it up, but decided that since NARCOM

is out there surveying all MS treatments, I would just stick to LDN,

and the core issue of " Is it helping " . Also, the survey application

is pretty touchy, it blew up when I expanded it to ask what problem

other than MS are you taking LDN for, and I had to reload by hand. So

I hope this will help anyone who needs to print something to show

their Dr. I'm going to try it on my neurologist, who refused to

prescribe LDN for me, saying he'd never heard of it.

[Guest guest]

Great job, keep it up.

> > Great Job!!! Can you add . Are you taking LDN + CRABS ,? Which

> CRAB? Taking only LDN.?

>

> I thought about this when I set it up, but decided that since

NARCOM

> is out there surveying all MS treatments, I would just stick to

LDN,

> and the core issue of " Is it helping " . Also, the survey

application

> is pretty touchy, it blew up when I expanded it to ask what

problem

> other than MS are you taking LDN for, and I had to reload by hand.

So

> I hope this will help anyone who needs to print something to show

> their Dr. I'm going to try it on my neurologist, who refused to

> prescribe LDN for me, saying he'd never heard of it.