Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 What is naramig? Is that an herb? If so, I won't use it unless my GI says it is OK. As of late, she is not willing to let me have anything that doesn't go by her! Debby [ ] A question about flares > > > > When one has an AIH flare, can you have severe headaches? Just curious. It makes sense to me, but I have not heard of this before. Just wondering if anyone else has had a problem like this. > > Debby > > > > > __________________________________________________________________________ > Freeserve AnyTime - Go online whenever you want for just £6.99 a month for > your first 3 months, that's HALF PRICE! And then it's just £13.99 a month > after that. > > For more information visit http://www.freeserve.com/time/ or call free on > 0800 970 8890 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Jerry, I have had headaches for the past two to three years. Indeed, it was around this time that my liver counts started going up and they just said it was all from the gall bladder (the liver counts) Actually, I just didn't bother telling the doctors about the headaches because they wouldn't have believed me anyway. There WAS major stress in my life during this time too...our son's death, my grandmothers deaths, my Dad's sudden death, ....people kept dying, major surgeries for family members, litigation against the brain injury facility in which our son died.....it was a pretty ugly time from 1996 until recently through the death of Mom in March...bad times. So, I just thought the headaches were from that....that is what everyone told me...stress, stress.... So, when out of the clear blue, NOW WHEN THINGS ARE GOING WELL in my life.......the headaches come out of the blue. I don't get it. Actually, our lives have been the BEST in YEARS! My daughter is happily married, we have a wonderful marriage.....we have a wonderful church family...I have a wonderful job.....I want for NOTHING! So, stress just doesn't fit in here! That is why I am thinking these headaches are from AIH....or suspecting. Thanks for your input. I see the GI next week and will have the labs drawn tomorrow for that visit. Debby Re: [ ] A question about flares > Debby...did you have severe headaches when you first developed this > condition? > A flare is nothing more than a increase of activity of autoantibodies > attacking the liver and most likely would show up as increased LFT > levels.on a blood test, otherwise you may not even know you're having a > " flare " . > Most headaches are caused by stress. > The stress may in turn cause a " flare " > A temporary increase in prednisone usually will return the liver tests > to normal. > > love jerry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Debby, I am so happy to hear you share about how you and your family have experience contentment, contentment is a wonderful gift, it means you are thankful for the blessings in your life and you are at peace. Debby, I really admire you and your family sounds wonderful. God Bless, Ruth --- tdcc <tdcc2000@...> wrote: > Jerry, I have had headaches for the past two to > three years. Indeed, it was > around this time that my liver counts started going > up and they just said it > was all from the gall bladder (the liver counts) > Actually, I just didn't > bother telling the doctors about the headaches > because they wouldn't have > believed me anyway. There WAS major stress in my > life during this time > too...our son's death, my grandmothers deaths, my > Dad's sudden death, > ...people kept dying, major surgeries for family > members, litigation against > the brain injury facility in which our son > died.....it was a pretty ugly > time from 1996 until recently through the death of > Mom in March...bad times. > So, I just thought the headaches were from > that....that is what everyone > told me...stress, stress.... > > So, when out of the clear blue, NOW WHEN THINGS ARE > GOING WELL in my > life.......the headaches come out of the blue. I > don't get it. Actually, > our lives have been the BEST in YEARS! My daughter > is happily married, we > have a wonderful marriage.....we have a wonderful > church family...I have a > wonderful job.....I want for NOTHING! So, stress > just doesn't fit in here! > That is why I am thinking these headaches are from > AIH....or suspecting. > > Thanks for your input. I see the GI next week and > will have the labs drawn > tomorrow for that visit. > > Debby > Re: [ ] A question about > flares > > > > Debby...did you have severe headaches when you > first developed this > > condition? > > A flare is nothing more than a increase of > activity of autoantibodies > > attacking the liver and most likely would show up > as increased LFT > > levels.on a blood test, otherwise you may not even > know you're having a > > " flare " . > > Most headaches are caused by stress. > > The stress may in turn cause a " flare " > > A temporary increase in prednisone usually will > return the liver tests > > to normal. > > > > love jerry > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Debby..... One morning in 1993, I got up and felt worse than usual so I drank my usual breakfast.. a Budweiser.. that first one usually got me going and after two I could take another into the bathroom and get in te shower. But this morning 2 didn't do it so I drank another, was on my way to the shower with my 4th when something unusual happened (for me) I felt sick to my stomach.... I ran to the toilet where I erupted like a fire hydrant disgorging torents of bright red blood on my walls,toilet and bowl. I never thought I'd stop..... I managed to get to the phone in the kitchen 1st spew what seemed like another gallon or two into the sink....called the paramedics and sat down by the front door. I was very weak and struggled with consciousness, but they got there and rushed me to the hospital...not before decorating the inside of the ambulance and I suspect the medics clthes wth some more. They tok me in the ER slaped me on a table and SHOVED a plastic tube up my nose (man I hated that) ,stripped me and jammed what I thought was a bazilion needles and tubes in my body They started a transfusion with univesal donor plasma and one of whole bloo after they typed me. I was barely able to speak but I asked the Dr. if Iwas dying. He said I was. I was hemorrhaging s badly that the nasal was sucking blood out of my stomach almost as fast as they were putting it in. found out later from a nurse friend of mine that between the ER and IC(i was in IC for 5 days) that they used 21 units of blood and plasma before I stablized. The worst part to me was that 2 of mighty daughters came home to all the blood and didn't know what happened . They frantically called around and found out which hospital I was in.I'l never forget the wide eyed frightened look on their faces. standing in the ER at the foot of that gurney surrounded by all these scurrying DRs. and staff and in my usual manor I tried to say something to make them laugh .which probably was lost in the translation as it is extremely hard to communicate with a nasal tube down your throat. I'm sure the girls were flashing back on ther beautifl mothe , whom we had watche\ die 4 yrs prior I was sent to floor after IC only to be sent back the same day when I threw up a torrent of blood against the rooms closet door scaring the bejeezus out of the student nurse and my mother who were in the room. All total I was in the hospital 13 days during which time I was told by everyone who came in contact with me (no less than 406 people I think) That just 1 more drink may kill me.it didn't but I finally had enough April 29 the next year and quit.with a lot of help and prayers. Anyway that ws the 1st time I became aware of esophageal varices although I had been having black tarry stools and spitting up " coffee grounds " for a long time prior. I ran the gamut of cirrhosis complications from then til Oct. 1995 when I was transplanteed. I must have ben endoscopied and sclerotized a dozen times or more and transfused just as many times. You name the complication of cirrhosis and i displayed it (including " man-breasts " --- where was Seinfeld when I needed him?) As you can see its a long story and this is just a small part of it. Anyway I survived all the procedures we obsess about here sometimes. I've had 4 biopsies and 4 paracetesisand my blood has been drawn 43 quadrilbazilion times and I don't remember any pain that couldn't handle WITHOUT drugs. OFal the things I think the nasal tubes ( 5 or 6 times) were my least favoriteand 2 aterial blod draws were kind of uncomforable Nowadays I'm limited to monthly blood draws and bi-annual colonoscopies. (Of course three was that time they dug a 6 ft. by 3 ft diameter needle in my hip bone to draw bone marrow, which took longer than it should''ve because I was making the assissting nurse laugh and the doctor got a little chuckle too...but thats another story. Along the way I've lost my fear of death (except by certain,too horrible to mention means) " Pain is only pain... " after all tommorow is another day. I went thru all this and more and I'm still my cute, cuddly ,adorable self.....except of course for that toe I stubbed yesterday which is a DIRECT consequence of AIH Jerry, thanks......I suppose I shold just sit back and not stress over small stuff! LOL......I keep hearing of people have the portal hypertension, and don't understand it except that sometimes they have major bleeds. That must be one of the MOST frightening things that could happen.....yikes.....don't want to go through that! I flip out over a hang nail that I bit off and bleeds lots! Debby Re: [ ] A question about flares > Debby..... could be.... but I can't see a connection other than perhaps > hypertension from blocked portal tract or biliary tracts...could lead to > small vessels swelling in body (and head area) The swollen vessels could > elicit in pain in those areas..... I'm going to research it ...if for no > reason other than my own edification. > BTW.... those people who wanted to know about small red pinpoint dots > under the skin....they are called ... " petachiae " .... . > > .....don't confuse this with little ceramic animals with weeds growing > out of their backs... > > Anyway petachiae are tiny broken blood vessels near the > skin.....probably from too much pressure...there may be many causes and > liver disease is listed as one of them ...in themselves they are > harmless but do indicate a condition that should be looked into...unless > one already has been Dx with one of the causes. They may be a common > phenomena in those with liver disease They are related to spider veins > and varicose veins etc. > I'll send some info on them also > > love jerry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Debby..... One morning in 1993, I got up and felt worse than usual so I drank my usual breakfast.. a Budweiser.. that first one usually got me going and after two I could take another into the bathroom and get in te shower. But this morning 2 didn't do it so I drank another, was on my way to the shower with my 4th when something unusual happened (for me) I felt sick to my stomach.... I ran to the toilet where I erupted like a fire hydrant disgorging torents of bright red blood on my walls,toilet and bowl. I never thought I'd stop..... I managed to get to the phone in the kitchen 1st spew what seemed like another gallon or two into the sink....called the paramedics and sat down by the front door. I was very weak and struggled with consciousness, but they got there and rushed me to the hospital...not before decorating the inside of the ambulance and I suspect the medics clthes wth some more. They tok me in the ER slaped me on a table and SHOVED a plastic tube up my nose (man I hated that) ,stripped me and jammed what I thought was a bazilion needles and tubes in my body They started a transfusion with univesal donor plasma and one of whole bloo after they typed me. I was barely able to speak but I asked the Dr. if Iwas dying. He said I was. I was hemorrhaging s badly that the nasal was sucking blood out of my stomach almost as fast as they were putting it in. found out later from a nurse friend of mine that between the ER and IC(i was in IC for 5 days) that they used 21 units of blood and plasma before I stablized. The worst part to me was that 2 of mighty daughters came home to all the blood and didn't know what happened . They frantically called around and found out which hospital I was in.I'l never forget the wide eyed frightened look on their faces. standing in the ER at the foot of that gurney surrounded by all these scurrying DRs. and staff and in my usual manor I tried to say something to make them laugh .which probably was lost in the translation as it is extremely hard to communicate with a nasal tube down your throat. I'm sure the girls were flashing back on ther beautifl mothe , whom we had watche\ die 4 yrs prior I was sent to floor after IC only to be sent back the same day when I threw up a torrent of blood against the rooms closet door scaring the bejeezus out of the student nurse and my mother who were in the room. All total I was in the hospital 13 days during which time I was told by everyone who came in contact with me (no less than 406 people I think) That just 1 more drink may kill me.it didn't but I finally had enough April 29 the next year and quit.with a lot of help and prayers. Anyway that ws the 1st time I became aware of esophageal varices although I had been having black tarry stools and spitting up " coffee grounds " for a long time prior. I ran the gamut of cirrhosis complications from then til Oct. 1995 when I was transplanteed. I must have ben endoscopied and sclerotized a dozen times or more and transfused just as many times. You name the complication of cirrhosis and i displayed it (including " man-breasts " --- where was Seinfeld when I needed him?) As you can see its a long story and this is just a small part of it. Anyway I survived all the procedures we obsess about here sometimes. I've had 4 biopsies and 4 paracetesisand my blood has been drawn 43 quadrilbazilion times and I don't remember any pain that couldn't handle WITHOUT drugs. OFal the things I think the nasal tubes ( 5 or 6 times) were my least favoriteand 2 aterial blod draws were kind of uncomforable Nowadays I'm limited to monthly blood draws and bi-annual colonoscopies. (Of course three was that time they dug a 6 ft. by 3 ft diameter needle in my hip bone to draw bone marrow, which took longer than it should''ve because I was making the assissting nurse laugh and the doctor got a little chuckle too...but thats another story. Along the way I've lost my fear of death (except by certain,too horrible to mention means) " Pain is only pain... " after all tommorow is another day. I went thru all this and more and I'm still my cute, cuddly ,adorable self.....except of course for that toe I stubbed yesterday which is a DIRECT consequence of AIH Jerry, thanks......I suppose I shold just sit back and not stress over small stuff! LOL......I keep hearing of people have the portal hypertension, and don't understand it except that sometimes they have major bleeds. That must be one of the MOST frightening things that could happen.....yikes.....don't want to go through that! I flip out over a hang nail that I bit off and bleeds lots! Debby Re: [ ] A question about flares > Debby..... could be.... but I can't see a connection other than perhaps > hypertension from blocked portal tract or biliary tracts...could lead to > small vessels swelling in body (and head area) The swollen vessels could > elicit in pain in those areas..... I'm going to research it ...if for no > reason other than my own edification. > BTW.... those people who wanted to know about small red pinpoint dots > under the skin....they are called ... " petachiae " .... . > > .....don't confuse this with little ceramic animals with weeds growing > out of their backs... > > Anyway petachiae are tiny broken blood vessels near the > skin.....probably from too much pressure...there may be many causes and > liver disease is listed as one of them ...in themselves they are > harmless but do indicate a condition that should be looked into...unless > one already has been Dx with one of the causes. They may be a common > phenomena in those with liver disease They are related to spider veins > and varicose veins etc. > I'll send some info on them also > > love jerry > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Jerry....OH MY GOSH!!!!!!! Your poor daughters. They must have been totally terrified! Poor babies! I cannot EVEN imagine the horror they had when they saw that! Not to mention how horrible YOU must have felt during the entire process. NOW, it makes sense why you can tolerate pain! Heck, you have had so much poking and prodding that pain is NOT really pain unless you pass out and then you don't NEED any pain meds! God bless you! Wow! You truly ARE amazing and make my problems seem like truly nothing! Thanks for reminding me that there is ALWAYS someone worse off! Debby Re: [ ] A question about flares > Debby..... One morning in 1993, I got up and felt worse than usual so I > drank my usual breakfast.. a Budweiser.. that first one usually got me > going and after two I could take another into the bathroom and get in te > shower. But this morning 2 didn't do it so I drank another, was on my > way to the shower with my 4th when something unusual happened (for me) > I felt sick to my stomach.... I ran to the toilet where I erupted like > a fire hydrant > disgorging torents of bright red blood on my walls,toilet and bowl. I > never thought I'd stop..... I managed to get to the phone in the kitchen > 1st spew what seemed like another gallon or two into the sink....called > the paramedics and sat down by the front door. I was very weak and > struggled with consciousness, but they got there and rushed me to the > hospital...not before decorating the inside of the ambulance and I > suspect the medics clthes wth some more. They tok me in the ER slaped me > on a table and SHOVED a plastic tube up my nose (man I hated that) > ,stripped me and jammed what I thought was a bazilion needles and tubes > in my body They started a transfusion with univesal donor plasma and one > of whole bloo after they typed me. > I was barely able to speak but I asked the Dr. if Iwas dying. He said I > was. I was hemorrhaging s badly that the nasal was sucking blood out of > my stomach almost as fast as they were putting it in. found out later > from a nurse friend of mine that between the ER and IC(i was in IC for > 5 days) that they used 21 units of blood and plasma before I stablized. > The worst part to me was that 2 of mighty daughters came home to all the > blood and didn't know what happened . They frantically called around and > found out which hospital I was in.I'l never forget the wide eyed > frightened look on their faces. standing in the ER at the foot of that > gurney surrounded by all these scurrying DRs. and staff and in my usual > manor I tried to say something to make them laugh .which probably was > lost in the translation as it is extremely hard to communicate with a > nasal tube down your throat. I'm sure the girls were flashing back on > ther beautifl mothe , whom we had watche\ die 4 yrs prior I was sent to > floor after IC only to be sent back the same day when I threw up a > torrent of blood against the rooms closet door scaring the bejeezus out > of the student nurse and my mother who were in the room. All total I was > in the hospital 13 days during which time I was told by everyone who > came in contact with me (no less than 406 people I think) That just 1 > more drink may kill me.it didn't but I finally had enough April 29 the > next year and quit.with a lot of help and prayers. Anyway that ws the > 1st time I became aware of esophageal varices although I had been having > black tarry stools and spitting up " coffee grounds " for a long time > prior. I ran the gamut of cirrhosis complications from then til Oct. > 1995 when I was transplanteed. I must have ben endoscopied and > sclerotized a dozen times or more and transfused just as many times. You > name the complication of cirrhosis and i displayed it (including > " man-breasts " --- where was Seinfeld when I needed him?) As you can see > its a long story and this is just a small part of it. Anyway I survived > all the procedures we obsess about here sometimes. I've had 4 biopsies > and 4 paracetesisand my blood has been drawn 43 quadrilbazilion times > and I don't remember any pain that couldn't handle WITHOUT drugs. OFal > the things I think the nasal tubes ( 5 or 6 times) were my least > favoriteand 2 aterial blod draws were kind of uncomforable > Nowadays I'm limited to monthly blood draws and bi-annual colonoscopies. > (Of course three was that time they dug a 6 ft. by 3 ft diameter needle > in my hip bone to draw bone marrow, which took longer than it should''ve > because I was making the assissting nurse laugh and the doctor got a > little chuckle too...but thats another story. Along the way I've lost my > fear of death (except by certain,too horrible to mention means) > > " Pain is only pain... " > after all tommorow is another day. > > I went thru all this and more and I'm still my cute, cuddly ,adorable > self.....except of course for that toe I stubbed yesterday which is a > DIRECT consequence of AIH > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Jerry, So you like " Gone With the WInd " also. Kat Re: [ ] A question about flares > Debby..... One morning in 1993, I got up and felt worse than usual so I > drank my usual breakfast.. a Budweiser.. that first one usually got me > going and after two I could take another into the bathroom and get in te > shower. But this morning 2 didn't do it so I drank another, was on my > way to the shower with my 4th when something unusual happened (for me) > I felt sick to my stomach.... I ran to the toilet where I erupted like > a fire hydrant > disgorging torents of bright red blood on my walls,toilet and bowl. I > never thought I'd stop..... I managed to get to the phone in the kitchen > 1st spew what seemed like another gallon or two into the sink....called > the paramedics and sat down by the front door. I was very weak and > struggled with consciousness, but they got there and rushed me to the > hospital...not before decorating the inside of the ambulance and I > suspect the medics clthes wth some more. They tok me in the ER slaped me > on a table and SHOVED a plastic tube up my nose (man I hated that) > ,stripped me and jammed what I thought was a bazilion needles and tubes > in my body They started a transfusion with univesal donor plasma and one > of whole bloo after they typed me. > I was barely able to speak but I asked the Dr. if Iwas dying. He said I > was. I was hemorrhaging s badly that the nasal was sucking blood out of > my stomach almost as fast as they were putting it in. found out later > from a nurse friend of mine that between the ER and IC(i was in IC for > 5 days) that they used 21 units of blood and plasma before I stablized. > The worst part to me was that 2 of mighty daughters came home to all the > blood and didn't know what happened . They frantically called around and > found out which hospital I was in.I'l never forget the wide eyed > frightened look on their faces. standing in the ER at the foot of that > gurney surrounded by all these scurrying DRs. and staff and in my usual > manor I tried to say something to make them laugh .which probably was > lost in the translation as it is extremely hard to communicate with a > nasal tube down your throat. I'm sure the girls were flashing back on > ther beautifl mothe , whom we had watche\ die 4 yrs prior I was sent to > floor after IC only to be sent back the same day when I threw up a > torrent of blood against the rooms closet door scaring the bejeezus out > of the student nurse and my mother who were in the room. All total I was > in the hospital 13 days during which time I was told by everyone who > came in contact with me (no less than 406 people I think) That just 1 > more drink may kill me.it didn't but I finally had enough April 29 the > next year and quit.with a lot of help and prayers. Anyway that ws the > 1st time I became aware of esophageal varices although I had been having > black tarry stools and spitting up " coffee grounds " for a long time > prior. I ran the gamut of cirrhosis complications from then til Oct. > 1995 when I was transplanteed. I must have ben endoscopied and > sclerotized a dozen times or more and transfused just as many times. You > name the complication of cirrhosis and i displayed it (including > " man-breasts " --- where was Seinfeld when I needed him?) As you can see > its a long story and this is just a small part of it. Anyway I survived > all the procedures we obsess about here sometimes. I've had 4 biopsies > and 4 paracetesisand my blood has been drawn 43 quadrilbazilion times > and I don't remember any pain that couldn't handle WITHOUT drugs. OFal > the things I think the nasal tubes ( 5 or 6 times) were my least > favoriteand 2 aterial blod draws were kind of uncomforable > Nowadays I'm limited to monthly blood draws and bi-annual colonoscopies. > (Of course three was that time they dug a 6 ft. by 3 ft diameter needle > in my hip bone to draw bone marrow, which took longer than it should''ve > because I was making the assissting nurse laugh and the doctor got a > little chuckle too...but thats another story. Along the way I've lost my > fear of death (except by certain,too horrible to mention means) > > " Pain is only pain... " > after all tommorow is another day. > > I went thru all this and more and I'm still my cute, cuddly ,adorable > self.....except of course for that toe I stubbed yesterday which is a > DIRECT consequence of AIH > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Anita: I am sending prayers your way for all of your concerns. May our dear Lord hear you and us and give you peace and comfort. Love and prayers - gina Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.