Re: Re: Can't sit back and read these attacks anymore

[Guest guest]

This petition is a world-wide grass roots effort to try to get some attention to LDN, Research and Trials. There has been no attention paid by the medical community for use with MS because the 4 drugs they want you to take instead costs 1200 per month and LDN only costs less than TWELVE. So doctors won't prescribe it, even though they CAN if you can some how convince them to.

The people in the UK, Ireland, Scotland, France, Brazil, Russia and who knows where else, do not have the same policies we're used to here in the USA. We can call up one of the docs on the list and pay for consultations and get LDN. Many of us have had our own doctors prescribe it (took me 6 months and 3 visits, but I got my own to do it).

But in those other countries there is ONE doc willing to prescribe it and work with patients, and his case load was filled up a long time ago. He's been having to turn people away.

Me, Personally, I couldn't care less for myself. I HAVE my script and I have my neuro's attention. I have the best compounder on the planet, or at least I'd like to think so. I can even get ReVia tabs from Mexico and make my own doses, that' even cheaper but seems like it's better to pay my professional compounder.

But those in other countries don't have these options. THEY created the petition. This is a European venture, and they've asked The Entire Planet to help. They have NO CLUE about pro life and pro choice and marches on Washington, and Certainly couldn't care less about those issues -- IN THIS FORUM, FOR THIS PURPOSE, FOR OUR GOAL. The USA abortion issues never came up in LDNland.

If LDN, itself, or Bristol-Myers Squibb, or Dr. Bihari, was doing something to offend people, ok, then make it an issue. But a temporary internet ad on a totally unrelated site, to our quest, is inconsequential and an unfortunate twist of events. Not only this one person, but the VENOM EMAILS is NOW receiving from all those people whom this person lead to believe that LDN is sponsored and supported by evil people.

The people who started the petition are being Harassed by people who are supposedly, I would assume, some sort of religious people who now think LDN is evil.

But this really doesn't matter, hopefully she will realize just what she has done. Nobody wanted it to be this way, it's a real shame, not to mention the biggest hypocritical act I've seen in a LONG time.

We now have 997 on the Petition. That's ALL that counts. The Petition.

Think of it another way -- if we are successful, then we had those poor Ad placers HELP >US< attain it. We're not helping them any and nobody gave them any attention except the person who complained about it in the first place. Now everyone knows about this rally! She gave them even MORE audience than they would have EVER had.

Most people go to the link, sign the petition, and close their browser. I have all ad servers blocked, I don't even see those kinds of ads.

Sorry this is so long. Just a bump in the road. But all things happen for a reason. This gives us opportunity to discuss it even more.

----- Original Message -----

From: ajalsevac

low dose naltrexone

Sent: Friday, March 26, 2004 12:09

Subject: [low dose naltrexone] Re: Can't sit back and read these attacks anymore

Steve,Fantastic! I understand where you're coming from and thank God for for what LDN has done for you! I've heard many stories like this and that's why I'm investigating it's use for Fibromyalgia patients. Certainly Fibro is not as serious as MS or other potentially disabling diseases, but the pain can be unbearable and causes many of us to be unable to work and live active lives.Correct me if I'm wrong, but is this petition in question the determining factor in whether or not LDN will be more widely available? My perception is that it is one action being taken as part of a wider mandate to increase awareness and availability of LDN. Perhaps I have underestimated the value of this particular petition, however, and if so I apologize.

[Guest guest]

Sorry about that A.J. No she never ever had stiffness and the ldn did nothing about her fibro symptoms

but then no doctor has actually said she has fibro, she is only going by what others say when she complains about the constant pain in her joints,

Actually I think she has, like me, got osteoarthritis( her joints creak and grind like mine) Also what I mean by no stiffness is that she never ever encountered it while taking ldn niether during nor after.

So ldn. itself on a healthy?person caused no side effects that we could see during this month.

But with me and M.S, yes there is stiffness, but I was glad to change that scalded feeling I had for months for the stiffness. And also you or any one would never get my ldn. away from me!

If they quit manufacturing it because of whatever reason we would have to stage a revolt!

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 03/27/04 09:57:12

low dose naltrexone

Subject: [low dose naltrexone] Re: Can't sit back and read these attacks anymore

Reg,Forgive me for my confusion. Are you saying your wife has benefitted from the LDN? Did her stiffness go away? If you could clarify I'd be grateful.Thanks,AJ> Hi all I won't get into the fray here with the petition as I think it has> all been said..> > > Now in regards to ldn. for fibro although no doctor has ever really> diagnosed her with it,my wife took ldn > > from my supply (3mgs.) for a month and nothing was better or worse! as far> as she new they were sugar > > pills, Now this is kinda interesting as she had no stiffness either or> dreams or sleeplessness, figure that > > out! I had all of them and finally now the dreams sleeplessness and> stiffness are going away. Day one > > hundred and seventy two on ldn for M.S. now at 3mgs.> > > Reg.> > -------Original Message-------> > From: low dose naltrexone > Date: 03/26/04 10:16:07> low dose naltrexone > Subject: Re: [low dose naltrexone] Can't sit back and read these attacks> anymore> > That's the thing, we didn't want to use a Nazi site. The site we're using> is for Human Rights. Unfortunately, there's a big problem during> presidential election years when the prolife and prochoice people start> campaigning for their Presidential hopeful.

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[Guest guest]

Thanks Annette The reason I posted was because of the lack of side effects encountered by her,

whereas I with P.P.M.S, have had stiffness and wild dreams but way more advantageous effects than

detrimental, and I just want others waiting to try this to know that it probably won't hurt you if you try it.

In regards to the Rhuematologist I imagine that if my wife would complain more to her Dr. then he would

give her a referall,right now I don't know if I had ever heard of a Rhuematologist ever before being on

here.But then I never heard of M.S. before I was diagnosed back in 1981 either.

Maybe I should climb out from under my rock and see the bigger picture huh?

Reg

-------Original Message-------

From: low dose naltrexone

Date: 03/27/04 11:38:43

low dose naltrexone

Subject: [low dose naltrexone] Re: Can't sit back and read these attacks anymore

Hey Reg,Thanks for your response. It does seem that your wife may have something other than Fibro. Fibro doesn't cause any swelling or pain in the joints. Without getting into too much detail here, the pain we Fibro people feel is linked to soft fibrous tissues in the body. The pain is almost ALWAYS on both sides of the body at the same time. I never have pain in just one foot or one hand (unless I happened to get one foot run over by a car). Although the pain is different for everyone, mine manifests itself as a burning, searing sensation as opposed to a throbbing pain. The other primary complaint is fatigue -- sometimes the fatigue is worse than the pain. Your wife should probably see a rheumatologist (if she hasn't already) who will check the designated tender spots on her body to see how she reacts. This is one key determining factor for Fibro.Here's a good web site for you to check out re: Fibro.http://www.fmnetnews.com/That's cool though that while she was taking LDN, your wife had no side-effects. I'm glad the LDN is such a benefit to you Reg. Don't worry -- I won't send my people to take it away from you. "Long live the revolution." :-)- Annette<regkreil@h...> wrote:> Sorry about that A.J. No she never ever had stiffness and the ldn did> nothing about her fibro symptoms > but then no doctor has actually said she has fibro, she is only going by> what others say when she complains about the constant pain in her joints,> Actually I think she has, like me, got osteoarthritis( her joints creak and> grind like mine) Also what I mean by no stiffness is that she never ever> encountered it while taking ldn niether during nor after.> So ldn. itself on a healthy?person caused no side effects that we could see> during this month. > But with me and M.S, yes there is stiffness, but I was glad to change that> scalded feeling I had for months for the stiffness. And also you or any one> would never get my ldn. away from me!> If they quit manufacturing it because of whatever reason we would have to> stage a revolt!> Reg.> -------Original Message-------> > From: low dose naltrexone > Date: 03/27/04 09:57:12> low dose naltrexone > Subject: [low dose naltrexone] Re: Can't sit back and read these attacks> anymore> > Reg,> > Forgive me for my confusion. Are you saying your wife has > benefitted from the LDN? Did her stiffness go away? If you could > clarify I'd be grateful.> > Thanks,> > AJ> > > > Hi all I won't get into the fray here with the petition as I think > it has> > all been said..> > > > > > Now in regards to ldn. for fibro although no doctor has ever really> > diagnosed her with it,my wife took ldn > > > > from my supply (3mgs.) for a month and nothing was better or > worse! as far> > as she new they were sugar > > > > pills, Now this is kinda interesting as she had no stiffness > either or> > dreams or sleeplessness, figure that > > > > out! I had all of them and finally now the dreams sleeplessness and> > stiffness are going away. Day one > > > > hundred and seventy two on ldn for M.S. now at 3mgs.> > > > > > Reg.> > > > -------Original Message-------> > > > From: low dose naltrexone > > Date: 03/26/04 10:16:07> > low dose naltrexone > > Subject: Re: [low dose naltrexone] Can't sit back and read these > attacks> > anymore> > > > That's the thing, we didn't want to use a Nazi site. The site > we're using> > is for Human Rights. Unfortunately, there's a big problem during> > presidential election years when the prolife and prochoice people > start> > campaigning for their Presidential hopeful.> > > > >

[Guest guest]

you can have joint pain in fibromyalgia-i have fibromyalgia-gena