Re: Can't sit back and read these attacks anymore

[Guest guest]

--Until you experience the benifits from LDN, you will not realize

how this drug has helped so many!!I would have been in a wheelchair

if I didn't start on LDN.. for me it is actually a life saver!!!!!

Steve

- In low dose naltrexone , " ajalsevac " <ajalsevac@y...>

wrote:

> Hello all,

>

> As a total newbie to this Group, forgive me for providing a

somewhat

> lengthy opinion on the debate that has been boiling over for the

> last day re: the petition site. I feel very compelled to do so,

> because I have been reading the responses to 's email and I'm

> appalled by the lack of respect and understanding in these

responses.

>

> (By the way, I was the one who asked about whether anyone knew of

> any evidence that pointed to LDN helping those with Fibromyalgia.

I

> did not receive any responses yet, so I'm assuming at this point,

no

> one has any experience with this. I have Fibromyalgia and I'm

> hopeful that LDN might help me with my painful condition.)

>

> Back to the issues at hand; took an action that was motivated

> by her conscience. I worked for the pro-life (anti-abortion)

> movement for over ten years and I share her pro-life beliefs. Now,

> I do agree with many of you that it was perhaps misguided to tell

> people not to sign the petition because there was an ad for a pro-

> abortion rally on the same site that sponsored the petition.

> Obviously, if we were publishing the results of a petition or

> announcing the petition in one of our daily newspapers there might

> also be in that same newspaper a similar ad promoting the abortion

> ad. It is virtually impossible to completely avoid media outlets

of

> any sort that will publish ads with which we disagree.

>

> As many of you have pointed out, one ad does not necessarily have

> anything to do with the LDN petition. However, one must admit that

> the www.care2.com site is quite left leaning and pro-Democrat (not

> that there's anything wrong with that if you happen to think

> abortion is fine...) and anyone who knows anything about politics

> should realize that this type of environmental web site will not

> hesitate to post a pro-abortion ad now AND IN THE FUTURE - I

> guarantee it.

>

> Let's imagine that this was a radical right wing site which posted

> ads inviting readers to attend a Neo-Nazi Rally? Would any of you

> think for maybe just the slightest moment that this site might NOT

> be the right one to use for your petition? You just might. 's

> conviction on abortion is the same as our convictions (I hope we

> would all share that conviction) that the neo-Nazi movement is

> evil. Think about this comparison.

>

> 's conviction about abortion is a deeply held one that compels

> her to distance herself from any site that might seem to be

> promoting abortion. Perhaps she is being a bit too scrupulous and

> unrealistic, hence I don't agree with her that the petition should

> not be signed because of the ad in question, but I understand her

> concern and I commend her for the courage of her convictions.

>

> Perhaps she could have handled this situation differently. I must

> say though that as a new reader looking in from an objective

> distance (I have not yet come to experience the benefits of LDN),

> I'm completely taken aback at the angry, volatile responses that

> have been posted as a result of 's stand. Calm down people and

> have some respect for a woman who did what she felt she had to do.

> Some have accused her of letting emotion get in the way of rational

> thinking. Perhaps those of you condemning so harshly should

> read back to some of YOUR emails and determine exactly whose

emotion

> is getting the better of them.

>

> Again, I apologize for this lengthy posting from someone who hasn't

> really earned the right to post a treatise as such, but MY

> conscience (aren't they nasty things?) led me to do this.

[Guest guest]

Steve,

Fantastic! I understand where you're coming from and thank God for

for what LDN has done for you! I've heard many stories like this

and that's why I'm investigating it's use for Fibromyalgia patients.

Certainly Fibro is not as serious as MS or other potentially

disabling diseases, but the pain can be unbearable and causes many

of us to be unable to work and live active lives.

Correct me if I'm wrong, but is this petition in question the

determining factor in whether or not LDN will be more widely

available? My perception is that it is one action being taken as

part of a wider mandate to increase awareness and availability of

LDN. Perhaps I have underestimated the value of this particular

petition, however, and if so I apologize.

I still do believe it's essential for those who suffer from chronic

diseases or conditions to be gentle with each other and not add to

each other's suffering by inflicting emotional pain.

Thanks for sharing Steve,

Annette

> > Hello all,

> >

> > As a total newbie to this Group, forgive me for providing a

> somewhat

> > lengthy opinion on the debate that has been boiling over for the

> > last day re: the petition site. I feel very compelled to do so,

> > because I have been reading the responses to 's email and

I'm

> > appalled by the lack of respect and understanding in these

> responses.

> >

> > (By the way, I was the one who asked about whether anyone knew

of

> > any evidence that pointed to LDN helping those with

Fibromyalgia.

> I

> > did not receive any responses yet, so I'm assuming at this

point,

> no

> > one has any experience with this. I have Fibromyalgia and I'm

> > hopeful that LDN might help me with my painful condition.)

> >

> > Back to the issues at hand; took an action that was

motivated

> > by her conscience. I worked for the pro-life (anti-abortion)

> > movement for over ten years and I share her pro-life beliefs.

Now,

> > I do agree with many of you that it was perhaps misguided to

tell

> > people not to sign the petition because there was an ad for a

pro-

> > abortion rally on the same site that sponsored the petition.

> > Obviously, if we were publishing the results of a petition or

> > announcing the petition in one of our daily newspapers there

might

> > also be in that same newspaper a similar ad promoting the

abortion

> > ad. It is virtually impossible to completely avoid media

outlets

> of

> > any sort that will publish ads with which we disagree.

> >

> > As many of you have pointed out, one ad does not necessarily

have

> > anything to do with the LDN petition. However, one must admit

that

> > the www.care2.com site is quite left leaning and pro-Democrat

(not

> > that there's anything wrong with that if you happen to think

> > abortion is fine...) and anyone who knows anything about

politics

> > should realize that this type of environmental web site will not

> > hesitate to post a pro-abortion ad now AND IN THE FUTURE - I

> > guarantee it.

> >

> > Let's imagine that this was a radical right wing site which

posted

> > ads inviting readers to attend a Neo-Nazi Rally? Would any of

you

> > think for maybe just the slightest moment that this site might

NOT

> > be the right one to use for your petition? You just might.

's

> > conviction on abortion is the same as our convictions (I hope we

> > would all share that conviction) that the neo-Nazi movement is

> > evil. Think about this comparison.

> >

> > 's conviction about abortion is a deeply held one that

compels

> > her to distance herself from any site that might seem to be

> > promoting abortion. Perhaps she is being a bit too scrupulous

and

> > unrealistic, hence I don't agree with her that the petition

should

> > not be signed because of the ad in question, but I understand

her

> > concern and I commend her for the courage of her convictions.

> >

> > Perhaps she could have handled this situation differently. I

must

> > say though that as a new reader looking in from an objective

> > distance (I have not yet come to experience the benefits of

LDN),

> > I'm completely taken aback at the angry, volatile responses that

> > have been posted as a result of 's stand. Calm down people

and

> > have some respect for a woman who did what she felt she had to

do.

> > Some have accused her of letting emotion get in the way of

rational

> > thinking. Perhaps those of you condemning so harshly

should

> > read back to some of YOUR emails and determine exactly whose

> emotion

> > is getting the better of them.

> >

> > Again, I apologize for this lengthy posting from someone who

hasn't

> > really earned the right to post a treatise as such, but MY

> > conscience (aren't they nasty things?) led me to do this.

[Guest guest]

Ajalsevac,

Your comments are most welcome and will hopefully settle this down.

Regards,

Tom

[Guest guest]

That's the thing, we didn't want to use a Nazi site. The site we're using is for Human Rights. Unfortunately, there's a big problem during presidential election years when the prolife and prochoice people start campaigning for their Presidential hopeful.

When you look at our petition, you don't see Ads. You see the petition. I don't like ads. I don't go looking around their site and checking out who else they allow on their site, didn't even consider it. There's not many petition sites that aren't with something that can be objected to. It's not even an issue. We want our voice to be heard, we picked a petition site that's open to Human Rights.

Besides, this is NOT an AMERICAN political group. This is not for a political cause. The 3 people who created the Petition live in United Kingdom, Ireland and Scotland. The supporters are from Australia, Canada, France, Finland, New Zealand, Russia, India, Belgium, Japan and other countries. Yes, there's a lot of people from the US also.

But people OUTSIDE the US don't care about American Local Political Games that take place every 4 years. I am sure they didn't go find a site that would allow an ad for something SOMEONE may object to.

It's INTENT. It's Worth. It's Cause. The ONLY concern should be can we host a petition and get a good copy of it once it's completed. This company is offering it for free. It seemed like a good place. They did it. It's not like it was done with any intent. The other sites all say they're for Anti-semitism, and other obviously controversial issues. This site said it was good for Human Rights, it seemed perfect.

When ever you have a World Wide situation (rare, nowadays, but WE are doing it), you have to also give a little slack for people who not only don't KNOW your customs, or what YOUR buttons MAY be, but they don't even consider it. When you're thinking you're doing the best thing for EVERYONE INVOLVED, you don't expect something like this to happen.

The problem isn't her objection, either. The problem is her objection is leading people to believe that LDN is an Abortion Pill, and IT, LDN, OUR MEDICINE, is SPONSORED by Abortionists. That's NOT the case on any planet. The site these God Inspired ladies from Europe found to host a petition FOR LDN Research & Trials just so happened to have an Ad, FOR A LIMITED AMOUNT OF TIME, AND CERTAINLY >NOT< WHEN THE PETITION WAS STARTED OR THE SITE WAS LOOKED AT AND PICKED TO BE USED.

The reason for the messages this morning was to try to set the record straight IMMEDIATELY.

All this hard work... it would be a greater sin to cause this kind of grief for LDN takers than an Ad nobody would have ever known about had it not been re-published and brought attention to.

I surely didn't know it was there. And by the time someone else got to go see the site to look for it, it was GONE already.

I can respect her views on the issue, but the accusations she made, and intimation of what she said to her contacts, and this group, caused the reaction.

There was more than what was seen in this group, so some of the messages Here was actually "tuning into the middle of a TV show already in progress"

Sorry for the way it looked.

Sorry you haven't gotten an answer about fibro... I am interested in the same answers you are, I'm just waiting to hear from someone with fibro having the desire to take LDN and report their progress. I have a few friends with it but they won't consider it unless someone else becomes a guinea pig first.

Sorry you had to join the group and see this. It was totally uncalled for. The responses may have been a little harsh, but that's how it panned out. Can't change the past. Can't let misinformation be spread and misunderstood, either.

----- Original Message -----

From: ajalsevac

low dose naltrexone

Sent: Friday, March 26, 2004 11:32

Subject: [low dose naltrexone] Can't sit back and read these attacks anymore

Hello all,As a total newbie to this Group, forgive me for providing a somewhat lengthy opinion on the debate that has been boiling over for the last day re: the petition site. I feel very compelled to do so, because I have been reading the responses to 's email and I'm appalled by the lack of respect and understanding in these responses.(By the way, I was the one who asked about whether anyone knew of any evidence that pointed to LDN helping those with Fibromyalgia. I did not receive any responses yet, so I'm assuming at this point, no one has any experience with this. I have Fibromyalgia and I'm hopeful that LDN might help me with my painful condition.)

[Guest guest]

--Annette

No drug company wants to do a study on LDN, because there is no money

for them to make! LDN is a cheap! drug and the less publicity the

better for the drug companies. For a one month supply it costs me

$11. My sister has fibro and she was going to contact her doctor

about LDN, I will find out what he said over the weekend.

Steve

- In low dose naltrexone , " ajalsevac " <ajalsevac@y...>

wrote:

> Steve,

>

> Fantastic! I understand where you're coming from and thank God for

> for what LDN has done for you! I've heard many stories like this

> and that's why I'm investigating it's use for Fibromyalgia

patients.

> Certainly Fibro is not as serious as MS or other potentially

> disabling diseases, but the pain can be unbearable and causes many

> of us to be unable to work and live active lives.

>

> Correct me if I'm wrong, but is this petition in question the

> determining factor in whether or not LDN will be more widely

> available? My perception is that it is one action being taken as

> part of a wider mandate to increase awareness and availability of

> LDN. Perhaps I have underestimated the value of this particular

> petition, however, and if so I apologize.

>

> I still do believe it's essential for those who suffer from chronic

> diseases or conditions to be gentle with each other and not add to

> each other's suffering by inflicting emotional pain.

>

> Thanks for sharing Steve,

>

> Annette

>

>

> > > Hello all,

> > >

> > > As a total newbie to this Group, forgive me for providing a

> > somewhat

> > > lengthy opinion on the debate that has been boiling over for

the

> > > last day re: the petition site. I feel very compelled to do so,

> > > because I have been reading the responses to 's email and

> I'm

> > > appalled by the lack of respect and understanding in these

> > responses.

> > >

> > > (By the way, I was the one who asked about whether anyone knew

> of

> > > any evidence that pointed to LDN helping those with

> Fibromyalgia.

> > I

> > > did not receive any responses yet, so I'm assuming at this

> point,

> > no

> > > one has any experience with this. I have Fibromyalgia and I'm

> > > hopeful that LDN might help me with my painful condition.)

> > >

> > > Back to the issues at hand; took an action that was

> motivated

> > > by her conscience. I worked for the pro-life (anti-abortion)

> > > movement for over ten years and I share her pro-life beliefs.

> Now,

> > > I do agree with many of you that it was perhaps misguided to

> tell

> > > people not to sign the petition because there was an ad for a

> pro-

> > > abortion rally on the same site that sponsored the petition.

> > > Obviously, if we were publishing the results of a petition or

> > > announcing the petition in one of our daily newspapers there

> might

> > > also be in that same newspaper a similar ad promoting the

> abortion

> > > ad. It is virtually impossible to completely avoid media

> outlets

> > of

> > > any sort that will publish ads with which we disagree.

> > >

> > > As many of you have pointed out, one ad does not necessarily

> have

> > > anything to do with the LDN petition. However, one must admit

> that

> > > the www.care2.com site is quite left leaning and pro-Democrat

> (not

> > > that there's anything wrong with that if you happen to think

> > > abortion is fine...) and anyone who knows anything about

> politics

> > > should realize that this type of environmental web site will

not

> > > hesitate to post a pro-abortion ad now AND IN THE FUTURE - I

> > > guarantee it.

> > >

> > > Let's imagine that this was a radical right wing site which

> posted

> > > ads inviting readers to attend a Neo-Nazi Rally? Would any of

> you

> > > think for maybe just the slightest moment that this site might

> NOT

> > > be the right one to use for your petition? You just might.

> 's

> > > conviction on abortion is the same as our convictions (I hope

we

> > > would all share that conviction) that the neo-Nazi movement is

> > > evil. Think about this comparison.

> > >

> > > 's conviction about abortion is a deeply held one that

> compels

> > > her to distance herself from any site that might seem to be

> > > promoting abortion. Perhaps she is being a bit too scrupulous

> and

> > > unrealistic, hence I don't agree with her that the petition

> should

> > > not be signed because of the ad in question, but I understand

> her

> > > concern and I commend her for the courage of her convictions.

> > >

> > > Perhaps she could have handled this situation differently. I

> must

> > > say though that as a new reader looking in from an objective

> > > distance (I have not yet come to experience the benefits of

> LDN),

> > > I'm completely taken aback at the angry, volatile responses

that

> > > have been posted as a result of 's stand. Calm down people

> and

> > > have some respect for a woman who did what she felt she had to

> do.

> > > Some have accused her of letting emotion get in the way of

> rational

> > > thinking. Perhaps those of you condemning so harshly

> should

> > > read back to some of YOUR emails and determine exactly whose

> > emotion

> > > is getting the better of them.

> > >

> > > Again, I apologize for this lengthy posting from someone who

> hasn't

> > > really earned the right to post a treatise as such, but MY

> > > conscience (aren't they nasty things?) led me to do this.

[Guest guest]

Hi all I won't get into the fray here with the petition as I think it has all been said..

Now in regards to ldn. for fibro although no doctor has ever really diagnosed her with it,my wife took ldn

from my supply (3mgs.) for a month and nothing was better or worse! as far as she new they were sugar

pills, Now this is kinda interesting as she had no stiffness either or dreams or sleeplessness, figure that

out! I had all of them and finally now the dreams sleeplessness and stiffness are going away. Day one

hundred and seventy two on ldn for M.S. now at 3mgs.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 03/26/04 10:16:07

low dose naltrexone

Subject: Re: [low dose naltrexone] Can't sit back and read these attacks anymore

That's the thing, we didn't want to use a Nazi site. The site we're using is for Human Rights. Unfortunately, there's a big problem during presidential election years when the prolife and prochoice people start campaigning for their Presidential hopeful.

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

If you go to the LDN site and click on WHAT OTHERS ARE SAYING,

you'll find something about Fibromyalgia

http://www.low dose naltrexone.org/index.htm

> Hello all,

>

> > (By the way, I was the one who asked about whether anyone knew

of

> any evidence that pointed to LDN helping those with Fibromyalgia.

I

> did not receive any responses yet, so I'm assuming at this point,

no

> one has any experience with this. I have Fibromyalgia and I'm

> hopeful that LDN might help me with my painful condition.)

[Guest guest]

to be honest with you, all I see is the petition, and you are

the ones reading into it a little too far!

[Guest guest]

Right now it is 11:42pm EST - I did not see a pro abortion ad.

I do not take LDN ... I sincerely doubt my neuro will prescribe it. (he is WAY into the ABCR drugs - if LDN was approved for MS, then I am sure he would have no problem writing a prescription for it.)

If there was an ad on that site on "How to kill kittens slowly" I still would have signed the petition. (I am a big animal rights person) I do not have to agree with that sites politics ... this petition is for LDN - a drug to help people. If someone wants to say LDN is an abortion drug then they had best throw Avonex & Betaseron in there as well. Both of those drugs will cause an abortion/miscarrage of a pregnancy. (That is why they tell you not to take it if you plan to become pregnant - or if you find yourself pregnant to stop taking it immediately.)

Okay ... so there is my .02

~Andi

----- Original Message -----

From: Reg Kreil

low dose naltrexone

Sent: Friday, March 26, 2004 9:57 AM

Subject: Re: [low dose naltrexone] Can't sit back and read these attacks anymore

Hi all I won't get into the fray here with the petition as I think it has all been said..

Now in regards to ldn. for fibro although no doctor has ever really diagnosed her with it,my wife took ldn

from my supply (3mgs.) for a month and nothing was better or worse! as far as she new they were sugar

pills, Now this is kinda interesting as she had no stiffness either or dreams or sleeplessness, figure that

out! I had all of them and finally now the dreams sleeplessness and stiffness are going away. Day one

hundred and seventy two on ldn for M.S. now at 3mgs.

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 03/26/04 10:16:07

low dose naltrexone

Subject: Re: [low dose naltrexone] Can't sit back and read these attacks anymore

That's the thing, we didn't want to use a Nazi site. The site we're using is for Human Rights. Unfortunately, there's a big problem during presidential election years when the prolife and prochoice people start campaigning for their Presidential hopeful.

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Thank you Johanne F. I appreciate the info.

> > Hello all,

> >

> > > (By the way, I was the one who asked about whether anyone knew

> of

> > any evidence that pointed to LDN helping those with

Fibromyalgia.

> I

> > did not receive any responses yet, so I'm assuming at this

point,

> no

> > one has any experience with this. I have Fibromyalgia and I'm

> > hopeful that LDN might help me with my painful condition.)

[Guest guest]

Reg,

Forgive me for my confusion. Are you saying your wife has

benefitted from the LDN? Did her stiffness go away? If you could

clarify I'd be grateful.

Thanks,

AJ

> Hi all I won't get into the fray here with the petition as I think

it has

> all been said..

>

>

> Now in regards to ldn. for fibro although no doctor has ever really

> diagnosed her with it,my wife took ldn

>

> from my supply (3mgs.) for a month and nothing was better or

worse! as far

> as she new they were sugar

>

> pills, Now this is kinda interesting as she had no stiffness

either or

> dreams or sleeplessness, figure that

>

> out! I had all of them and finally now the dreams sleeplessness and

> stiffness are going away. Day one

>

> hundred and seventy two on ldn for M.S. now at 3mgs.

>

>

> Reg.

>

> -------Original Message-------

>

> From: low dose naltrexone

> Date: 03/26/04 10:16:07

> low dose naltrexone

> Subject: Re: [low dose naltrexone] Can't sit back and read these

attacks

> anymore

>

> That's the thing, we didn't want to use a Nazi site. The site

we're using

> is for Human Rights. Unfortunately, there's a big problem during

> presidential election years when the prolife and prochoice people

start

> campaigning for their Presidential hopeful.

[Guest guest]

Steve,

I understand how money talks, especially in the pharmaceutical

industry. Let's hope and pray the efforts of everyone in this group

garners the positive results you're working so hard for.

I'm sorry to learn that your sister has Fibro. I hope she has more

good days than bad days. If you could pass along what she learns

from her doctor, I'd be most appreciative.

Best,

AJ

> > > > Hello all,

> > > >

> > > > As a total newbie to this Group, forgive me for providing a

> > > somewhat

> > > > lengthy opinion on the debate that has been boiling over for

> the

> > > > last day re: the petition site. I feel very compelled to do

so,

> > > > because I have been reading the responses to 's email

and

> > I'm

> > > > appalled by the lack of respect and understanding in these

> > > responses.

> > > >

> > > > (By the way, I was the one who asked about whether anyone

knew

> > of

> > > > any evidence that pointed to LDN helping those with

> > Fibromyalgia.

> > > I

> > > > did not receive any responses yet, so I'm assuming at this

> > point,

> > > no

> > > > one has any experience with this. I have Fibromyalgia and

I'm

> > > > hopeful that LDN might help me with my painful condition.)

> > > >

> > > > Back to the issues at hand; took an action that was

> > motivated

> > > > by her conscience. I worked for the pro-life (anti-

abortion)

> > > > movement for over ten years and I share her pro-life

beliefs.

> > Now,

> > > > I do agree with many of you that it was perhaps misguided to

> > tell

> > > > people not to sign the petition because there was an ad for

a

> > pro-

> > > > abortion rally on the same site that sponsored the

petition.

> > > > Obviously, if we were publishing the results of a petition

or

> > > > announcing the petition in one of our daily newspapers there

> > might

> > > > also be in that same newspaper a similar ad promoting the

> > abortion

> > > > ad. It is virtually impossible to completely avoid media

> > outlets

> > > of

> > > > any sort that will publish ads with which we disagree.

> > > >

> > > > As many of you have pointed out, one ad does not necessarily

> > have

> > > > anything to do with the LDN petition. However, one must

admit

> > that

> > > > the www.care2.com site is quite left leaning and pro-

Democrat

> > (not

> > > > that there's anything wrong with that if you happen to think

> > > > abortion is fine...) and anyone who knows anything about

> > politics

> > > > should realize that this type of environmental web site will

> not

> > > > hesitate to post a pro-abortion ad now AND IN THE FUTURE - I

> > > > guarantee it.

> > > >

> > > > Let's imagine that this was a radical right wing site which

> > posted

> > > > ads inviting readers to attend a Neo-Nazi Rally? Would any

of

> > you

> > > > think for maybe just the slightest moment that this site

might

> > NOT

> > > > be the right one to use for your petition? You just might.

> > 's

> > > > conviction on abortion is the same as our convictions (I

hope

> we

> > > > would all share that conviction) that the neo-Nazi movement

is

> > > > evil. Think about this comparison.

> > > >

> > > > 's conviction about abortion is a deeply held one that

> > compels

> > > > her to distance herself from any site that might seem to be

> > > > promoting abortion. Perhaps she is being a bit too

scrupulous

> > and

> > > > unrealistic, hence I don't agree with her that the petition

> > should

> > > > not be signed because of the ad in question, but I

understand

> > her

> > > > concern and I commend her for the courage of her

convictions.

> > > >

> > > > Perhaps she could have handled this situation differently.

I

> > must

> > > > say though that as a new reader looking in from an objective

> > > > distance (I have not yet come to experience the benefits of

> > LDN),

> > > > I'm completely taken aback at the angry, volatile responses

> that

> > > > have been posted as a result of 's stand. Calm down

people

> > and

> > > > have some respect for a woman who did what she felt she had

to

> > do.

> > > > Some have accused her of letting emotion get in the way of

> > rational

> > > > thinking. Perhaps those of you condemning so harshly

> > should

> > > > read back to some of YOUR emails and determine exactly whose

> > > emotion

> > > > is getting the better of them.

> > > >

> > > > Again, I apologize for this lengthy posting from someone who

> > hasn't

> > > > really earned the right to post a treatise as such, but MY

> > > > conscience (aren't they nasty things?) led me to do this.

[Guest guest]

Hey Reg,

Thanks for your response. It does seem that your wife may have

something other than Fibro. Fibro doesn't cause any swelling or

pain in the joints. Without getting into too much detail here, the

pain we Fibro people feel is linked to soft fibrous tissues in the

body. The pain is almost ALWAYS on both sides of the body at the

same time. I never have pain in just one foot or one hand (unless I

happened to get one foot run over by a car). Although the pain is

different for everyone, mine manifests itself as a burning, searing

sensation as opposed to a throbbing pain. The other primary

complaint is fatigue -- sometimes the fatigue is worse than the

pain. Your wife should probably see a rheumatologist (if she hasn't

already) who will check the designated tender spots on her body to

see how she reacts. This is one key determining factor for Fibro.

Here's a good web site for you to check out re: Fibro.

http://www.fmnetnews.com/

That's cool though that while she was taking LDN, your wife had no

side-effects.

I'm glad the LDN is such a benefit to you Reg. Don't worry -- I

won't send my people to take it away from you. " Long live the

revolution. " :-)

- Annette

<regkreil@h...> wrote:

> Sorry about that A.J. No she never ever had stiffness and

the ldn did

> nothing about her fibro symptoms

> but then no doctor has actually said she has fibro, she is only

going by

> what others say when she complains about the constant pain in her

joints,

> Actually I think she has, like me, got osteoarthritis( her joints

creak and

> grind like mine) Also what I mean by no stiffness is that she

never ever

> encountered it while taking ldn niether during nor after.

> So ldn. itself on a healthy?person caused no side effects that we

could see

> during this month.

> But with me and M.S, yes there is stiffness, but I was glad to

change that

> scalded feeling I had for months for the stiffness. And also you

or any one

> would never get my ldn. away from me!

> If they quit manufacturing it because of whatever reason we would

have to

> stage a revolt!

> Reg.

> -------Original Message-------

>

> From: low dose naltrexone

> Date: 03/27/04 09:57:12

> low dose naltrexone

> Subject: [low dose naltrexone] Re: Can't sit back and read these

attacks

> anymore

>

> Reg,

>

> Forgive me for my confusion. Are you saying your wife has

> benefitted from the LDN? Did her stiffness go away? If you could

> clarify I'd be grateful.

>

> Thanks,

>

> AJ

>

>

> > Hi all I won't get into the fray here with the petition as I

think

> it has

> > all been said..

> >

> >

> > Now in regards to ldn. for fibro although no doctor has ever

really

> > diagnosed her with it,my wife took ldn

> >

> > from my supply (3mgs.) for a month and nothing was better or

> worse! as far

> > as she new they were sugar

> >

> > pills, Now this is kinda interesting as she had no stiffness

> either or

> > dreams or sleeplessness, figure that

> >

> > out! I had all of them and finally now the dreams sleeplessness

and

> > stiffness are going away. Day one

> >

> > hundred and seventy two on ldn for M.S. now at 3mgs.

> >

> >

> > Reg.

> >

> > -------Original Message-------

> >

> > From: low dose naltrexone

> > Date: 03/26/04 10:16:07

> > low dose naltrexone

> > Subject: Re: [low dose naltrexone] Can't sit back and read these

> attacks

> > anymore

> >

> > That's the thing, we didn't want to use a Nazi site. The site

> we're using

> > is for Human Rights. Unfortunately, there's a big problem during

> > presidential election years when the prolife and prochoice

people

> start

> > campaigning for their Presidential hopeful.

>

>

>

>

>