Re: How can I help my Optical Neuritis

[Guest guest]

Alan,

My ON started the exact same way in the left eye. I had a Solumedrol IV for 7days, and my vision returned only to happen again in the right eye 13 months later. Three months later it happened again in the left eye. At that time, I decided no more steroids. The vision slowly returned, but not real good. I thought I would just have to live with it, and then I started bee venom injections, pregnenolone and DHEA. My vision is almost perfect, and I haven't had another round of ON in 3 years. I now do live bees, not injections. Bee venom, pregnenolone and DHEA are anti-inflammatory.

That is all I can attribute to getting better.

Marcie (MS)

In a message dated 3/19/2004 3:59:14 PM Central Standard Time, alanms@... writes:

Subj:[low dose naltrexone] How can I help my Optical Neuritis

Date:3/19/2004 3:59:14 PM Central Standard Time

From: alanms@... (alanms1579)

Reply-to: low dose naltrexone

low dose naltrexone

Been following this board for several weeks. Had a phone appointment with Dr. Bihari this week and waiting for my ldn. Located in Ontario Canada.

Diagnosed several weeks back after losing most vision in left eye and sent for MRI.

Things got very brigh and it's like looking through wax paper. Lost about 95%. My visionhas been coming back and can now see about 80% but progress has slowed or stopped. Things still "washed out" and still like looking through "thin" wax paper.

Has anyone with ON used anything that they found helpful?

Thanks and Best wishes

Alan

[Guest guest]

Alan,

That was one of the first signs I experienced. I went to an

ophthalmologist who immediately put me on a 3 day course of a cortisteriod

IV. It cleared up quite well after that.

Jim

At 04:55 PM 3/19/2004, you wrote:

>Been following this board for several weeks. Had a phone appointment

>with Dr. Bihari this week and waiting for my ldn. Located in Ontario

>Canada.

>

>Diagnosed several weeks back after losing most vision in left eye

>and sent for MRI.

>

>Things got very brigh and it's like looking through wax paper. Lost

>about 95%. My visionhas been coming back and can now see about 80%

>but progress has slowed or stopped. Things still " washed out " and

>still like looking through " thin " wax paper.

>

>Has anyone with ON used anything that they found helpful?

>

>Thanks and Best wishes

>Alan

>

>

>

>

>

>

[Guest guest]

Hi Alan,

Many of us with MS have ON, me included. Looking through was paper is a very good

description of my eye sight in left eye. Alan I’ve had this disease for over

20 years and you read and hear of all kinds of help for all kinds of symptoms

for MS. . . . except ON!! The only thing you hear over and over is you

will regain some if not all of you vision back, but many of us only regain a partial

back. I’ve been looking through

wax paper in my left eye for 23 years. If it’s any consolation, you get accustom

to it very quickly. Good luck, and if

you get any good feedback please share it with the group.

(MS)

-----Original Message-----

From: alanms1579

[mailto:alanms@...]

Sent: Friday, March 19, 2004 4:55

PM

To:

low dose naltrexone

Subject: [low dose naltrexone] How

can I help my Optical Neuritis

Been following this board for several weeks. Had a

phone appointment

with Dr. Bihari this week and waiting for my ldn.

Located in Ontario

Canada.

Diagnosed several weeks back after losing most

vision in left eye

and sent for MRI.

Things got very brigh and it's like looking

through wax paper. Lost

about 95%. My visionhas been coming back and can

now see about 80%

but progress has slowed or stopped. Things still

" washed out " and

still like looking through " thin " wax

paper.

Has anyone with ON used anything that they found

helpful?

Thanks and Best wishes

Alan

[Guest guest]

With M.S.there is always the chance that the symptoms you are experiencing will fade out and completely go away ....or not. This is what is so frustrating about this disease.

When I got these same symptoms you are describing I took large amounts of vitamins and beta carrotine(the eye vitamin),then lo and behold within a short time (looking back on it) I was mostly back to normal My 20 20 vision is still here but gets foggy when tired.

Now was this the vitamins ,or was it just going to happen? I don't know but I like to hedge my bets so to speak, and maybe it paid off? At least it didn,t hurt!

Reg.

-------Original Message-------

From: low dose naltrexone

Date: 03/19/04 19:20:53

low dose naltrexone

Subject: [low dose naltrexone] How can I help my Optical Neuritis

Been following this board for several weeks. Had a phone appointment with Dr. Bihari this week and waiting for my ldn. Located in Ontario Canada.Diagnosed several weeks back after losing most vision in left eye and sent for MRI.Things got very brigh and it's like looking through wax paper. Lost about 95%. My visionhas been coming back and can now see about 80% but progress has slowed or stopped. Things still "washed out" and still like looking through "thin" wax paper.Has anyone with ON used anything that they found helpful?Thanks and Best wishesAlan

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