Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi all...kind of concerned about this email. Got it off the MSWatchers site. Any explanations or has this happened to anyone here. Cabbie Date: Thu, 18 Mar 2004 10:31:59 -0500 (Eastern Standard Time) From: "janie gilliland" <janieg@...>Subject: Re: I got my Rx for LDN today !!!!janebee please do not think ldn is a miracle cure it is not , it worked wellfor me for a year , it helps it truly does , but i know one area it does notsucceed in for me anyway and that is the optic neuritus part of the ms , iam going thru a major flare up now, it is not a cure , but it does help.congrats on getting it and many of us of had positive results in the firstweek , good luck with it , Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi Cabbie .. The mail is correct ... LDN is not a miracle cure. It only promises to halt progression which may be perceived as a miracle to some but not a cure. The lucky ones pull back about 3 to 6 months. It has helped some with ON .. others it has not .. It is good to see LDN in perspective to be honest. However, couple LDN with the positive outlook of Tom and many others on this board and who knows where it will take them. > > > Hi all...kind of concerned about this email. Got it off the MSWatchers site. > Any explanations or has this happened to anyone here. > > Cabbie > > Date: Thu, 18 Mar 2004 10:31:59 -0500 (Eastern Standard Time) > From: " janie gilliland " <janieg@f...> > Subject: Re: I got my Rx for LDN today !!!! > > janebee please do not think ldn is a miracle cure it is not , it worked well > for me for a year , it helps it truly does , but i know one area it does not > succeed in for me anyway and that is the optic neuritus part of the ms , i > am going thru a major flare up now, it is not a cure , but it does help. > congrats on getting it and many of us of had positive results in the first > week , good luck with it , Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 I forgot to say that 'flare ups' do happen when on LDN .. old scars flare up during times of stress or infection but I don't know of anyone who has progressed .. ie reached a point lower than their worst day pre LDN. All the Best > > > Hi all...kind of concerned about this email. Got it off the MSWatchers site. > Any explanations or has this happened to anyone here. > > Cabbie > > Date: Thu, 18 Mar 2004 10:31:59 -0500 (Eastern Standard Time) > From: " janie gilliland " <janieg@f...> > Subject: Re: I got my Rx for LDN today !!!! > > janebee please do not think ldn is a miracle cure it is not , it worked well > for me for a year , it helps it truly does , but i know one area it does not > succeed in for me anyway and that is the optic neuritus part of the ms , i > am going thru a major flare up now, it is not a cure , but it does help. > congrats on getting it and many of us of had positive results in the first > week , good luck with it , Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 I first thought of growing pains too. I never experienced my older 2 children with them. At least they never said anything. I will definitely call the school and doc tomorrow. Thanks > > > > Hi everyone. My 5 year old son Nolan had his 1st injection of xolair just over a week ago. He was fine till Friday and that is when he started limping. He can't explain where the pain is it just hurts. I know leg pain can be one of the side effects. Just wondering how concerned I should be. Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2010 Report Share Posted May 2, 2010 Xolair has been on the market for almost 7 years and then several months (maybe years) of trials before being approved by the FDA. To my knowledge there has never been a report of anyone getting leg pain from xolair, however, the drug was originally meant for people over 12. Addy is right. Let your doctor know asap and then keep us informed. Doug Group founder Quote Link to comment Share on other sites More sharing options...
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