Re: Possible MS dx and Lupus dx

[Guest guest]

brady, try to find someone in your area to do a red blood cell mobility test

and a flicker fusion. This info can be found in roy swanks book for ms. He

found these to be very reliable indicators in obtaining a diagnosis. His

research in ms was ridicled for many years and now his diet is what the AMA

IS BASICALLY ADVOCATING. iS THAT NOT PAR FOR THE COURSE? HOPE ALL GOES WELL

FOR YOU. LASTLY, THE HEAT ISSUE WOULD TEND TO MAKE ME RESEARCH THE MS MORE

THAN OTHER AUTOIMMUNE CONDITIONS. KATHY

----- Original Message -----

From: " brady961 " <brady961@...>

<low dose naltrexone >

Sent: Saturday, April 03, 2004 12:56 PM

Subject: [low dose naltrexone] Possible MS dx and Lupus dx

> Hi everyone

> I was dx'd with Lupus and lupus related seizures in 1991. Went on

> Rheumatrex and predinsone for several months. Haven't been treated

> for the lupus since at least 1995 if not a little before, as there

> was no need. Sure have had the joint/muscle type pain esp in summer

> but still wasn't worth seeing doctors. My history with doctors hasn't

> been that good i.e. tool 4 years to find doc that dx lupus. others

> just say it's stress etc.....

>

> anyway, this last year been having many symptoms i.e. imbalance, legs

> cramps/twitches/jerks, major fatigue, etc... Returned to seeing

> docs. MS Clinic says Possible MS but will not treat anything without

> a Def MS dx. But they also say that I do not meet the clinicial

> criteria and MRI criteria for MS.

>

> I am seeing a Rheum this coming week to see if I have lupus, ever had

> lupus, or if symptoms could be related to lupus or not.....

>

> am on B12 sublingual (was on injections for last two months) due to

> low B12 but other labs show that i am not truly b12 def. go figure.

>

> so wondering if others with possible MS dx or with lupus have tried

> LDN and if so what results?

>

> is it worth taking the info to Rheum next week, or to the Neuro (not

> the MS Clinic, private Neuro)?

>

> Summer is here in FLorida and I do have problems in the heat i.e.

> more fatigue, overall " sick " at times, more swelling in legs/ankles,

> much more pain in legs/ankles, headaches.... If I stay in cool im ok

> but just going into a hot car or walking from car to inside i

> get " yucky " feelings and sensations.

>

> i would appreciate hearing from anyone that has tried LDN for lupus

> or other autoimmune disorders.

>

> thanks

> brady

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