New Member and Question

[Guest guest]

Hello.

I took LDN for a few weeks last summer and found that it made me very very

stiff, so I quit. Afterwards I read that that was normal for some people

and to stick with it.

I'm picking up a new Rx of 4.5 mg LDN on Monday, and I am wondering how

long to expect the stiffness to last. I was taking baby steps...

Some people had said it was the lactose filler, but I researched that and

the tiny amount used, unless one is very lactose intolerant, would not

affect the average person. I have no allergies or " intolerances " to

anything, and eat dairy on a regular basis.

I'm trying the LDN again cause I am out of options. I don't have a " real "

diagnosis of MS, since my spinal fluid and MRIs are both normal, but I have

the typical RRMS pattern. At 42, I now walk with a cane due to drop foot

and spasticity. I've been chasing a diagnosis for 16+ years, but my MRIs

are always normal. I've been to MS specialists, neurologists, internists,

have driven into the city for use of a 3 tesla MRI for a better view, and

Lyme, Lupus, B-12 deficiency, AIDS, HTLV-2, syphilis, infection and so on

have all been ruled out.

Even if I WANTED then (but I don't) I couldn't get the CRABS because of no

diagnosis. Or at least the insurance wouldn't cover them. I have been

offered IV pulse steroids recently, but read about side effects and the

fact that I'm not in a flare.. I'm passing.

Anyway, if anyone has any experience with the early LDN therapy stiffness,

I'd appreciate it.

Thanks,

ee