Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Sue, I had that yes HAD it is totally gone now on LDN. If I skip or reduce my does it comes back fast. Just what happened to me, hope it happens to you too. ZilNever give up, never surrender Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 WOW! I have that burning pain from a c-spine injury all the time, but it is incredibly worse at night, preventing me from sleeping, except in the daytime. I just got my prescription for LDN and will call a pharmacy on Monday. I also have chronic Epstein-Barr Virus for the past 9 months. This is why I want to try LDN, but if it cures my burning pain, WOW, that would indeed be a miracle! God bless you!-- ette > Sue, > I had that yes HAD it is totally gone now on LDN. If I skip or reduce my does > it comes back fast. Just what happened to me, hope it happens to you too. > > > Zil > Never give up, never surrender Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 Our expereince with this has been NO! We are now going to try benfotiamine which quite a few people in this group take. Their website, benfotiamine.org gives quite a bit of info on the subject of neuropathic pain which is what I believe you are describing. We are also waiting on a chi machine which I hope will offer some relief as well. Good Luck Debbie --- In low dose naltrexone , B Burk <raedwulf@r...> wrote: > > >The burning I feel is like having a muscle rub like Icy/Hot on my skin > >24/7. I can't stand it anymore and I have tried so many other medications > >that my neuro prescirbed to help relieve it...nothing has worked yet. Just > >hoping for some relief! > > A one woman at the MS support group here was having burning sensations in > her feet all the time, and like you say, the Dr. tried all sorts of stuff > that did nothing. I do pressure point therapy, I worked with a couple > spots on her lower back for a few minutes and she told me her pain was > gone. So maybe see if someone around you does something like that. Her > Dr. was always trying to do something for her feet and the medicate the > pain, he never bothered to look for the source to notice it was in her > back. As for LDN, I'm not on it just yet myself, so I don't know if it > may help. Good luck, Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2004 Report Share Posted April 11, 2004 Thank you for all the replies to my question. My LDN just arrived in the mail today from Skip's and I will start it tonight. I am a bit nervous and excited at the same time. I will post later and let you all know how it goes. Sue Quote Link to comment Share on other sites More sharing options...
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