Guest guest Posted April 11, 2004 Report Share Posted April 11, 2004 BETH, I AM SO GLAD YOU GOT THE PAPERS BECAUSE THERE IS SO MUCH INFO TO READ. WHERE DO YOU LIVE AND WHAT ARE YOUR SYMPTOMS IF YOU DON,T MIND ME ASKING. CHRISTINA WHITE AT THE LIBRARY 608-647-6513 WILL GIVE YOU A LIST OF THE DOCTORS IN YOUR AREA. IT IS MUCH MORE COST EFFECTIVE TO GET IT HERE IN THE US. IF YOU GO TO DR MOORE IN INDIANA IT WILL PROBABLY COST YOU ABOUT 700.00 INITIALLY AND THEN MAYBE 125.00 A MONTH THEREAFTER. IT ONLY COSTS ME ABOUT 75.00 A MONTH BECAUSE I HAVE BEEN ABLE TO WEAN MYSELF OFF DUE TO NEUROLOGICAL IMPROVEMENT. WHAT A SMALL PRICE TO PAY TO CONTINUE WORKING. PLEASE DON,T MISTAKE THIS AS BOASTING BUT I WAS ABLE TO CARRY MY MASSAGE TABLE TODAY AND DO 6 DEEP TISSUE MASSAGES. I DO AT LEAST 3 A DAY. I WANT EVERYONE TO KNOW WHAT THIS HAS DONE FOR MANY OF US SO YOU MAY HAVE THE SAME OPPORTUNITY.MY HUSBAND LEARNED HOW TO GIVE ME THE INJECTIONS. THE REASON I STARTED LDN IS BECAUSE MANY PEOPLE FEEL LIKE THEY DON,T HAVE MS ANYMORE WHEN THEY DO EAP AND CHEAT TOO MUCH WITH THE DIET.THAT IS WHAT HAPPENED WITH ME PLUS I AM IN IT FOR THE LONGEVITY OF THE TREATMENT AND WANT TO PRESERVE MY VEINS SO LDN WORKS GREAT WITH EAP. MY NUMBER IS 561-741-2877 IF YOU NEED ANY HELP OR NUMBERS OF OTHERS ON TREATMENT. YOU MIGHT ALSO CALL THE LIBRARY AND ASK FOR RESULTS OF THE TWO SURVEYS. THE RESULTS ARE ASTOUNDING. HEALTH AND HAPPINESS, KATHY ----- Original Message ----- From: Beth Ravenelle krl74th@... Cc: low dose naltrexone Sent: Saturday, April 10, 2004 11:15 AM Subject: [low dose naltrexone] LND site RE: Calcium EAP Kathy, I noticed your post on Calcium EAP and am very much interested in starting it. Would you be wiiling to share how you found someone to do this, how much it costs and how you manage the injections? l purchased Dr. Niepers papers and am convinced that this is the answer to MS. Thanks for any help you can offer. Beth Ravenelle Limited-time offer: Fast, reliable MSN 9 Dial-up Internet access FREE for 2 months! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 I remember looking into going to Germany for the Cal. EAP treatment. After researching and writing to people who actually did this I was afraid to try because of what a few reponses were. They said that once they stopped treatment thr MS symptoms were worse than ever. That once you start, you cannot stop. Can anyone respond to this that is experienced? Fact only please, not opinions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 Please remove me from your list. I hate e mail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Facts only Dr. Neiper states that discontinuation of the therapy results in a worsening of the condition because a large number of lympocytes are permitted to attack at once. At one point I stopped injections and continued with oral. Did not have exaserbation. Just slowly got to the point I needed to resume injections and improvements came about quickly. One thing to remember; Dr. Neiper has passed and did not know about ldn for ms. The two treatments seem to br very powerful together but that has only been my experience and about 18 others. Kathy----- Original Message ----- From: noclue915@... low dose naltrexone Sent: Tuesday, April 13, 2004 5:38 PM Subject: Re: [low dose naltrexone] LND site RE: Calcium EAP I remember looking into going to Germany for the Cal. EAP treatment. After researching and writing to people who actually did this I was afraid to try because of what a few reponses were. They said that once they stopped treatment thr MS symptoms were worse than ever. That once you start, you cannot stop. Can anyone respond to this that is experienced? Fact only please, not opinions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 ----- I found my papers. The aforementioned therapy, especially the iv injections of EAP should be continued for unlimited time at least 7 years. In select cases the IV can be replaced by a higher intake of the oral. We have ample documentation that a discontinuation of the therapy after 4 years results in a worsening. The discontinuation of the therapy within the first 12-18 months of the treatment may result in a severe worsening of the condition since an important number of so-far-repelled lympcells are all permitted to attack at once. KATHYnal Message ----- From: noclue915@... low dose naltrexone Sent: Tuesday, April 13, 2004 5:38 PM Subject: Re: [low dose naltrexone] LND site RE: Calcium EAP I remember looking into going to Germany for the Cal. EAP treatment. After researching and writing to people who actually did this I was afraid to try because of what a few reponses were. They said that once they stopped treatment thr MS symptoms were worse than ever. That once you start, you cannot stop. Can anyone respond to this that is experienced? Fact only please, not opinions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 > Facts only Dr. Neiper states that discontinuation of the therapy results in a worsening of the condition because a large number of lympocytes are permitted to attack at once. At one point I stopped injections and continued with oral. Did not have exaserbation. Just slowly got to the point I needed to resume injections and improvements came about quickly. One thing to remember; Dr. Neiper has passed and did not know about ldn for ms. The two treatments seem to br very powerful together but that has only been my experience and about 18 others. Kathy----- Original Message ----- > Do you think it is possible that now with the LDN a person might not need to take the injections for as long a period of time or that the oral supplements might work better with the LDN? I am thinking that if the EAP repairs the damage and the LDN stops the disease progression (i.e. stops new attacks)then possibly once the EAP has repaired the damage if you are on LDN you might not have to continue taking it. Do you think that the LDN might prevent worsening of the condition upon stopping the injections? Also I wanted to ask if after the seven year time period you stop the injections and don't need them or the supplements anymore? If you are already taking a calcium supplement do you need to stop it when you start the EAP? Diane Quote Link to comment Share on other sites More sharing options...
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