RE: RE: Thanks Alan

[Guest guest]

Alan,

Well said, it just confirms the fact that

those of us who are not on the CRAB drugs only LDN made a very good choice! Let’s hope that everyone on this

board makes a concentrated effort to tell the LDN story to their neurologist. There

has been plenty of great information sent out to this group as well as on the

LDN website to back up your claims.

Many of us are MS rebels, it might take some time but we will win the

battle! Good luck Alan!

-----Original Message-----

From: alanms1579

[mailto:alanms@...]

Sent: Monday, March 29, 2004 8:01

PM

To:

low dose naltrexone

Subject: [low dose naltrexone] Re:

Advise needed

This is the first time I have replied to a post after

being

diagnosed about a month ago after Optical Neuritis

and MRI. I posted

questions several times.

After extensive research on the CRAB drugs and ldn

(I am an engineer

and tend to over study things) I decided to do a

phone consult with

Dr. Bihari. My insurance would also pay for all

treatments (at least

for now). I decided to take only LDN based on my

consult and

reading - including going back many months on this

site. The reason

I chose LDN only was in part the positive

commentary (time and time

again) on LDN, plus a most informative and

complete consult about

LDN and MS with Dr. Bahari. I did consider also

using Copaxone

(which I understood to be compatible with LDN -

not clear on the

other's compatibility - didn't think so). Dr.

Bahari told me that he

has had parients on both LDN and Copaxone but that

most, over time,

stop Copaxone with no noticable effect on their

condition (other

than eliminating side effects and itching).

Clearly this is a very personal, and difficult

decision. At least it

was for me. But I am quite comfortable with it and

am just finishing

my first week on LDN at 4.5 mg. My advice would be

a phone consult

with Dr. Bihari before making your

" final " choice. I'd also urge you

to read the LDN site completely and review past

posts on this site

in addition to commentary on other sites about the

effectiveness and

side effects of the crab drugs. What appears to be

defined as " WELL

TOLERATED " by many neuros, does not appear to

be considered as such

by many MS'ers.

Hope that helps as I clearly recall how I felt

being in your

position several short weeks ago. The folks that

regularly

participate on this site are truely doing a

" good " thing (cudos on

the petition) as is Dr. Bahari (and some other

docs). They certainly

have my thanks and admiration, and support with

getting LDN

recognized as an etremely viable option to the

CRAB drugs.

Personally I feel it is borders on criminal that

LDN has to be

stumble upon, in some cases(as in Mine) by shear

luck, rather than

being presented (clinical trials or not given the

low dosage and

approval for other uses) as one of the treatment

options by the MS

society and all neuros. We all need to take

primary responsiilty for

our health and health care, and that means we

should be told all the

facts, including LDN, regardless of liability

issues (and yes I

recognize - big profits).

Sorry I got carried away - no way not to get mad -

Hope this helps

Alan

> 1) Avonex v/s copaxone is the question. My

insurance covers both,

so

> cost is not the issue. The docs advise

avonex, mostly because its

a

> weekly injection as opposed to daily

copaxone. They claim that

> compliance with the weekly protocol is

better.

> 2)I know LDN works better with copa, but I

have read in a

scientific

> paper that interferons increase endorphins.

Is there anyone who

takes

> Avonex and LDN ?. Does it work ?.

>

> Many thanks, based on the MRI I must start

treatment soon, even

> though I have no symptoms as yet. Any

feedback appreciated.

> Yash