Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 My name is Kate and I was dx'd some 16 years ago. 40 something, married with 3 growing boys. I found out about LDN nearly a year ago and was able to source some from Dr Lawrence here in the uk. I started taking it 8 months ago, started on 3mg for a month and then moved up to 4mg. In about the second or third week after starting I noticed an improvement in some symptons but only for a few days. Since then there has been nothing like it and if anything I have got 'worse'. For the last week and on MD's advice I am now back on 3mg, with a cupboard full of supplements, and am waiting to see if there is any change. This is a big disappointment, in view of what I read about the benfits and in particular the hailting of progression. My main symptoms are, stiffness, mobility, balance, weakness, intolerance to changes in temperature and bladder control. Am currently taking my LDN anywhere beteen 9 and 10, depending upon when I get the chance to sit down and eat with my husband. I know I must be patient and see if the reduced dosage does anthing (I'm worse off now than when I started) but in the meantime has anyone any suggestions or similar experiences? In anticipation, Kate _________________________________________________________________ Express yourself with cool new emoticons http://www.msn.co.uk/specials/myemo Quote Link to comment Share on other sites More sharing options...
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