parkinson's

[Guest guest]

Anyone here taking LDN for Parkinson's? It sounds too good to be true

that all 7 patients described by Bihari have stopped their progression

[Guest guest]

I’m started LDN 19 days ago. I personally don’t know of any other PD person on LDN. I’m not convinced that LDN is a therapy directed at Parkinson’s as much as a potentially useful therapy in treating many of the symptoms that are attributed to individual cases of Parkinson’s disease. Parkinson’s disease defies any consistent definition other than perhaps the relief of symptoms with sinemet therapy. My experience with LDN is preliminary at this time. I noticed muscle stiffness in the morning for the first week of so. The second week I felt increased energy and well being. Neither of these symptoms were significant enough to attach to a specific cause. I have read extensively about LDN and am convinced that it is scientifically and medically very effective in certain situations. It does carry a huge placebo effect at this time in history, but it would have a huge placebo effect whether it worked or not. The overwhelming anecdotal evidence of LDN being an effective treatment for a wide range of symptoms contributes equally to it’s placebo and scientific strength or credibility. Placebo relief of such magnitude, if even possible in so many people, in so many places, in so many situations, yet in the absence of verifiable biochemical action, is welcome at my doorstep. Whatever works! My interest in LDN turned sharply to my partners situation when she had a serious if not life threatening relapse of ulcerative colitis. I’m an extreme rationalist by nature. I think her situation has been positively affected by LDN. She is dramatically better. We started juicing carrots, spinach and apples a day before we started LDN. Juicing had an immediate positive effect on both of us as we were both eating poorly. She had not eaten anything for 19 days, and lost 28 pounds, when we started juicing and on the following day LDN therapy. Our nutrition is now good and stable. I do not think nutrition alone was the cause of her improvement. Also, I don’t think she has availed herself of Placebo effects to significantly explain her improvement. She has been a passive and totally drained in not partially conscious participant. At this time, based on what I’ve learned about ulcerative colitis and LDN, I think that LDN has played a central if not primary or singular role in her improvement. I do not think the emotional or situational conditions that I attribute to having triggered her relapse of ulcerative Colitis have improved enough to explain her rapid recovery.

LDN therapy is only explanation available. I would place every person with Ulcerative Colitis on LDN as a first and primary treatment for this diseases. All other treatments I know of are harmful if not unacceptably harmful. I think that any licensed physician, made aware of the overwhelming anecdotal evidence substantiating LDN therapy, who does not first try LDN therapy as very possibly the safest, most effective, and least harmful of treatment options, should be held in violation of their medical oath and made aware of the legal and moral position they are taking should a patient or any interested person or organization decide to pursue legal action against them for avoidable suffering, damage, pain, side effects, etc. of steroid therapy and surgery. I believe political and economic factors combined with ugly, as always, arrogance have kept LDN therapy from sparing possibly millions of people unnecessary suffering in this world. Malpractice laws may best have been written for this type of situation. The lack of acceptance of LDN therapy is not a simple error of omission!

I’m on a mission.

On 12/13/04 7:22 AM, " LarryGC " <larrygc@...> wrote:

Do we have a lot of people with PD taking LDN? How's it working for you?

[Guest guest]

L-Dopa seems to be the treatment of choice for Parkinson's. If that

is what he's doing, one of the side effects is tardive dyskenesia;

but in one of my orthomolecular books I have I read that keeping the

levels of magnesium up will prevent that. At least it works for

psychotropic drugs, I don't know if it would work in Parkinson's but

sounds like it would.

Another thought, how are his managnese/copper levels? Too much

manganese in the absence of sufficient copper leads to prion

problems like in mad cow disease, which symptoms are similar to

Parkinson's. (I just read something that said this is the only

factor in Mad Cow, and that even vegetarians are getting it!)

If he is going to do L-Dopa, this might be of interest (by the way,

the best alternative way I've found for getting rid of h. pylouri is

the yeast s. boulardii - you can find it on the internet, I got mine

from www.myvitanet.com):

H. pylori eradication improves L-dopa response in Parkinson's

disease patients

05 July 2006

Neurology 2006; 66: 1824-1829

Eradication of Helicobacter pylori infection increases the

absorption of

levodapa (L-dopa) treatment for Parkinson's disease, scientists

report.

" H. pylori eradication may improve the clinical status of infected

patients

with Parkinson's disease and motor fluctuations by modifying L-dopa

pharmacokinetics, " the authors write in the journal Neurology.

The Italian research team, led by A Pietroiusti, from Tor Vergata

University

in Rome, suggested that H. pylori might affect the absorption of L-

dopa

because of gastroduodenitis and the local production of oxygen

species that

may inactivate the drug.

They therefore validated this hypothesis in 34 H. pylori-positive,

motor

fluctuating patients with Parkinson's disease, half of whom were

given H.

pylori eradication therapy while the remainder received generic

antioxidant

treatment.

Fifteen of the patients in the eradication treatment group became H.

pylori-negative by the end of the study, compared with none of the

controls.

At both short-term (1 week) and long-term (3 months) follow-up,

patients who

received H. pylori eradication therapy elicited a significant

reduction in

active gastritis and duodenitis compared with controls.

For example, while antrum gastritis scores reduced from 5.16 to 1.17

in the

eradication group, they only decreased from 5.00 to 4.81 in the

controls.

Similarly, duodenitis scores decreased from 1.33 to 0.24 in the

eradication

group but actually increased, from 1.25 to 1.56, in the controls.

In addition, there was a significantly greater area under the plasma

L-dopa

concentration time curve among the individuals who received

eradication

therapy than controls, reflecting superior L-dopa absorption in

those who

experienced H. pylori eradication.

Importantly, the duration of responses to L-dopa treatment were

impressively

increased in patients who received H. pylori eradication therapy.

" These data demonstrate a reversible H. pylori-induced interference

with

L-dopa clinical response related to the impaired drug absorption,

probably

due to active gastroduodenitis, " Pietroiusti and co-workers

summarize.

Rodnitzky, from the University of Iowa in Iowa City, USA,

noted in an

accompanying commentary that a number of strategies have been

attempted to

address the gastric transit and absorption problems of L-dopa,

although

" none of these techniques has been entirely effective or entirely

acceptable

to patients. "

He concluded: " Pietroiusti et al have demonstrated that antibiotic

eradication of gastrointestinal H. pylori is a relatively simple and

inexpensive means of improving the absorption of L-dopa. "

[Guest guest]

Nutritional Treatment of Tardive Dyskenesia

http://www.alternativementalhealth.com/articles/td.htm

Wanita

L-Dopa seems to be the treatment of choice for Parkinson's. If that

is what he's doing, one of the side effects is tardive dyskenesia;

but in one of my orthomolecular books I have I read that keeping the

levels of magnesium up will prevent that. At least it works for

psychotropic drugs, I don't know if it would work in Parkinson's but

sounds like it would.