MGUS and LDN

[Guest guest]

Greetings,

My wife has had active mm for nearly 3 years. I'd really like to hear more

detail re your

path to try LDN, and some word also on how your numbers are tracking with it.

Are you a member of the ACOR mm listserver?

My signature includes much of Barb's treatment history.

[To Join or Leave the list, go to => http://www.acor.org/myeloma.html ]

A merry heart doeth good like a medicine: but a broken spirit drieth the bones.

Proverbs 17:22

Don Schultz (no medical training, and not terribly bright)

Near Joliet IL. Husband and Caregiver to Barb Schultz, born '49

Dx'd June/01; IgA Kappa @5,880, B2M 7.8, Radiation to L3, Aredia 6X now Zometa

monthly,

100mg Thal daily & 40mgX4days pulsed Dex thru Dec '01 when failed; Mar-Jun/02 2

rounds VAD no

effect & 2 rounds DTPACE modest effect; autoSCT July/02 full remission in

Sep/02. Interferon

maint' Aug/02 to Jan 03; Jan 03 IgA climbing; Feb 03 Hi dose Dex Failed,

Velcade Phase3

trial Mar/03 complete response in 2 cycles, Jan 2004 Velcade failed, Starting

Revimid Phase 2

open label March 04.

Blessed be the Lord, who daily loads us with benefits, even the God of our

salvation. Selah

(pause, consider this) Psalms 68:19

http://www.medhelp.org/NIHlib/GF-456.html

http://www.healthtalk.com/multiplemyeloma/diseasebasics.cfm

http://www.labtestsonline.org/

http://www.myeloma.org/

http://www.multiplemyeloma.org/

-----Original Message-----

From: Allan Eisel [mailto:faddle54444@...]

Sent: Sunday, March 28, 2004 10:28 PM

low dose naltrexone

Subject: [low dose naltrexone] Re: LDN long-term & Stiffness

Importance: High

Good evening,

I wanted to follow up on the side effect of stiffness. I know that I've seen it

addressed off

and on over the months I've been on this board, but I didn't pay the close

attention that I

should have - probably because it hasn't affected me that way. My wife and I

have taken LDN

for about eight months now - me for MGUS (smoldering multiple myeloma) and her

for MS. She

took a 3 mg. dosage for about six months until the stiffness got to be too much

for her . . .

and then cut back to 1.5 mg. That seemed to help for nearly two months, but now

even the 1.5

seems to be giving her a lot of stiffness problems. I guess I'm looking for

suggestions as to

where she can go from here. She doesn't want to give up the use of LDN, but she

doesn't want

to have to deal with the degree of stiffness and soreness that she's

experiencing now either.

Anybody have any luck minimizing stiffness problems, and, if so, how did you do

it? Any

insights or recommendations would be greatly appreciated. Thanks in advance.

-Al