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Re: Digest Number 526

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Glucose and Lactic Acid and borellia burgdorferi,

Sorry now that I didn't quote my sources but I'm pretty sure I found the

information about

the borellia thriving on glucose on this site but I couldn't tell you which

article. The same article mentioned that borellia give off lactic acid as they

live also.

http://www.x-l.net/Lyme/clinical.htm#HGE

Cheryl

Re: Lupus tests

To lymies concerned about lupus. A positive ANA is not specific to lupus. A

doctor not

proficient in diagnosing Lupus will almost always make this big mistake. You can

have a

high ANA titre during any kind of infection and it is seen in Rheumatoid

Arthritis as well .

Lupus in its beginning stages is also a clinical diagnosis for the most part .

Eventually

, and this could be at the time when you are just about ready to die from your

disease,

certain other DNA tests will become indicators in very late disease. My

diagnosis was based

on a cluster of autoimmune diseases which appeared and pancytopenias with low C3

and C4

along with malar rash and apthous ulcers and pericarditis with swelling of the

interstitial tissues

of the lungs.

This was before Lyme, however my LLD believes my immune system was over

activated by

the presence of Lyme but he can't prove it. I am of the negative ANA population.

Antinuclear Antibody Tests

" A laboratory hallmark for SLE is the ANA test, which is a screen for an array

of antibodies to various nuclear antigens. The test is usually performed by an

indirect immunofluorescence technique with resultant titers and patterns, the

latter usually of minor diagnostic value. The cutoff point for a positive test

result should be that titer at which 95% of the normal population is negative,

and each laboratory must determine its own point, as there is substantial

variation from one to another. With a 5% false-positive rate (ie, 95%

specificity), the sensitivity of ANA assay for SLE is around 95%.[1] Higher

titers of ANA are more predictive of SLE than lower titers.

Although only 5% of the normal population is falsely positive, the specificity

of ANA testing is lower in other subgroups. For example, ANA testing is positive

in 15% to 20% of the elderly, 14% to 35% of those with rheumatoid arthritis, 90%

of those with systemic sclerosis, and 75% to 90% of those with Sjögren's

syndrome. Because of its relative nonspecificity, a positive ANA test is hardly

diagnostic of SLE. However, its sensitivity may often allow SLE to be ruled out.

The case discussions that follow illustrate when an ANA test is necessary.

Recently, under increasing pressure to reduce costs, labs have begun switching

from the time- and labor-intensive gold standard immunofluorescence technique to

the simpler, enzyme-linked immunosorbent assay (ELISA), which can be automated

and computerized. A recent comparison of six commercially available ELISA tests

revealed sensitivities that varied from unacceptably low 62% (Gen Bio test) to

90% (Helix test) in patients with clinically diagnosed SLE.[2] However, of the

156 patients for whom an ANA test was ordered but who had no definable

connective tissue disease, the Helix assay was positive in 49%, whereas the

insensitive Gen Bio assay was much more specific, positive in only 1%; the

standard immunofluorescent assay was positive in 33%. In addition to the marked

variability in sensitivities and specificities, agreement a-mong the six ELISA

assays was generally poor. It is important that you know which assay your

laboratory is using and how it performs. Laboratories should use a sensitive

method, because the ANA test is a screening and not a confirmatory test. "

Systemic Lupus remains a clinical diagnosis and presents the same kind of

diagnostic problems

that Lyme does........there simply is no definitive testing method yet. This is

an excellent article

on the art of diagnosing Systemic Lupus from which the above material came:

http://internalmedicine.medscape.com/quadrant/HospitalMedicine/1999/v35.n04/hm35\

04.01.wern/pnt-hm3504.01.wern.html

Luv, Cheryl

Dear Byron

RE: NONI as immune system stimulant.

To tell you the truth, at this point, being a lupus and lyme person, I am less

and less inclined to try Noni.

Actually just reflecting on the fact that it is related to the coffee plant

bothered me. I can't even take

echinacea for more than 5 -7 days without getting a malar rash. I tried Bee

Venom injections and

I can truly state that they do stimulate your system. My blood sugar went up (I

am a type 1 diabetes

patient too) ....which indicated the stimulation of my adrenaline and then I ran

a fever and the swelling

at the site of injection became worse every time until it encompassed my entire

arm . I was completely

knocked out tired and unable to get out of bed. After a month I assessed that

this therapy was harming

me instead of helping. It was a shame because I could see that it really was

buffing up the immune

system's features but I have too many " missing links " in my immune system to be

able to hack it.

I stick to the non-stimulating herbs....I can't even use ginger....makes me

break out and swell even the

organic. My Chinese Medical Doctor / acupuncturist/herbalist has had a

challenging time with me as well.

She expected more out of a person whose diet consists of fish rice and

vegetables......she was excited that

I take no milk products, neither breads of any kind neither refined foods but

this is all because I have severe

allergies and have had celiac disease since childhood. Food cannot heal

everything as I am sure you know.

Berberine is gold for me ...especially golden seal. I vary the herbs I take too.

Take a lot of hot baths too.

Cheryl

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  • 9 months later...
Guest guest

Re: Kathy Bart's letter

The sexual symptoms that you describe are so difficult to understand- at first.

But what you will begin to see as you learn more about this disorder is that

even though OCD symptoms are sort of masters of disguise- changing all the time,

they all narrow down to a couple of basic themes. Whether it's making you feel

like a bad person or making you feel incomplete or wrong, it's all about doubt.

Step number one is sorting out your brain

mail....distinguishing what I call OCD junk mail (sounds urgent and important-

but has no credibility) from the thoughts your son wants to have, would

recommend to a friend etc. This is what Schwartz author of Brain Lock

calls " relabeling " . Once you have identified what's happening as an OCD moment,

different rules follow- you are not going to obey the rules of a " bad salesman " ,

ergo, you are not going to live your life by OCD's

commands. It sounds like you are at the beginning of what will be a difficult

,but ultimately liberating process for your son and the family. A specialist in

OCD will have the expertise to help you navigate through this confusing terrain.

Best of luck to you.

Tamar Chansky, Ph.D.

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  • 5 months later...
  • 1 month later...

hi, we have a liquid shower gel base from " From Nature With Love " and

whenever we use it to make our bubble bath, some of the essential oils turn

it from gel-like soap consistency to a watery,liquified,puddle :o) can anyone

tell me what to do to fix this problem? what we can do to thicken it or what

e.o.s not to use in a liquid soap recipes...if I have not worded this

correctly, please feel free to ask me what the heck I'm talking about because

I have just confused myself :) KB

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  • 3 months later...
  • 6 months later...

Terri,

She gets nothing but my Summer Time Lemon Mint Herbal Tea soap

That sounds very nice for a dog.What do you use to make this scent

lemon EO and Mint leaves made into a Tea ?

I have a cocker that needs a lot of baths.

I also have three long hair cats that get baths. Their hair is so long they can't

take care of it by them self they need help....

-- Re: Shampoo M & P bar for cats?LONG...I agree 100% about the Harts pet shampoo. Sure it took care of the fles, but it also caused all the hair to fall out on our black labs butt, part of her tail and up onto her back. She gets nothing but my Summer Time Lemon Mint Herbal Tea soap (psss Deb thats the one I just gave you.. good for human and dog) Her coat has come back and she is always sooooo shiney after a bath... though give her a few days of rolling around under her favorite tree out back and she's ready for another bath!I'll remember your info about EO's on cats... I have used this soap on our cats before.. they didn't appear to be effected by it.... but I won't do that again. (Won't push my luck!)Terri________________________________________________________________________________________________________________________________________________

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Yep. My Stephy (the younger of our two cats) is a med to long hair Oh I dont know she looks like a small main coone but prolly is not and really hasnt had a matt problem till last year but I try to keep it in check now. She does have occasional "danglers" due to the long hair on her fanny. Woulnt she look cute with her butt shaved?? LOL.

Shaye

-----Original Message-----From: Bob & Deb [mailto:poplar@...]Sent: Tuesday, November 20, 2001 8:26 AM Subject: Re: Digest Number 526

just a try on the cats-Mom used to raise angora & Persians and a daily brushing is a must for keeping knots out. I know she also had problems with consistent hairballs as they wash themselves and ingest a lot of hair so she gave them a remedy on a weekly basis(laxagel I think)She had to wash their "exit areas" every now & then due to the hair in the way. :o Spankey is so large he has problems with that sometimes too ! (that would be our smiling dog)

Deb-who owns all short hairs including the boys :D

Our members maphttp://.homestead.com/locations.htmlOur Message Boardhttp://www.voy.com/21568/Check out these great Molds!!http://soapwerks.com/martinworld.htmMember Kae's Site... Awesome oil Prices!http://www.olivetreesoaps.com/All posts to this list are copyrighted by post author. They may NOT be forwarded, copied, or used in anyway without the permission of the post author with the exception of answering posts to this list. Posts are personal opinions only.

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just a try on the cats-Mom used to raise angora & Persians and a daily brushing is a must for keeping knots out. I know she also had problems with consistent hairballs as they wash themselves and ingest a lot of hair so she gave them a remedy on a weekly basis(laxagel I think)She had to wash their "exit areas" every now & then due to the hair in the way. :o Spankey is so large he has problems with that sometimes too ! (that would be our smiling dog)

Deb-who owns all short hairs including the boys :D

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  • 1 year later...
Guest guest

Hi Missy (and everyone who replied to my email)

At three weeks post-op, I am feeling totally normal

except for being aware of my implant on my left ear.

Probably because I know I will be hooked up on July

21, the same day as you! We're hookup homeys!

Today, my ear is back to normal except for a little

sensitivity on the top ear lobe. it may go away in two

weeks as the ear continues to heal from inside out. It

hurt inside for a couple of days.

For up to ten days, I could not sleep on my implanted

side. My mom was very attentive to my incision with

the Rx. Followed the doctor's orders to the letter and

then a day more. Beacuse of that, I healed very well

with very minimal itching. I did have a slightly

metallic taste in my mouth that went away after a

couple of days.I resumed my normal eating habits

within two weeks. I ate like a bird the first two

weeks!

I know I have been very fortunate to go into surgery

with excellent health, and to recover well.

Next week, the hook up. I will keep you posted.

:)

=====

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  • 4 months later...

Joy, >

> DId they do an MRI on the cervical or Thorasic areas? The doctors THOUGHT

> My husband's leg problems were lumbar related - turned out to be cervical

> after all. And it's a good thing we insisted on a second option - massive bone

> spurs cutting into the spinal cord would have left him paralyzed had we waited

> another 6 months. If the lumbar MRI's dont show much .. keep insisting or

> find a better doctor , preferably a specialist who knows what to look for.

EMG

> tests, thorasic or Cervical MRI's.

>

Disc degeneration means just that .. the disks will start degenerating.

Depending on the pain levels, there isnt much you can do. Other than therapy and

pain managemetn, the only surgical option right now is to fuse.

Within the next year or so, god willing, the artifical disk will get out of

clinical trials, and into availability for insurances to cover. Right now, even

if open enrollment was available, insurance wont cover clinical trials. At

least here is hope for the future other than fusion. And the good news is, yours

is mild, and with no protrusion or stenosis.

> Hi,

> Well I juwst went and picked up the results since I won't see the doctor

> for another three weeks I wanted to know what is going on. Okay according to

> the

> Cervical MRi there are no changessince the last one before the accident.

> okay here is what the MRI of Lumbar spine say Slight signal changes on

> T2-weighted images at L4-5 and L5-S1 suggestive of mild disc degenerative

> disease. No

> disc protrusion, spinal stenosis or foraminal stenosis at any lumbar level.

>

> Okay I researched disc degenerative disease and I guess I don't really

> understand it. I can see that according to the treatments it is exactly

> what he is

> doing right now and that is without even seeing these results. I mean I

> have pt

> starting Dec 2, I hope it helps and I am on muscle relaxor, anti inflamatory

>

> and pain meds. Does anyone know what the future may hold with this? I am

> in

> pain constant with it shooting down the legs, not sure if what this says is

> why this is happening or what? any suggestions appreciated. I like to be

> ready

> with as much as I can find out before I see the doctor on the 13th.

>

> Thanks, Joy

>

" I came to a place where a Path split up till two. I choose the One I didn't

know and enriched my Life " ~The Tao of Pooh~

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In a message dated 11/25/2003 10:25:50 PM Eastern Standard Time,

vixn2tame@... writes:

Disc degeneration means just that .. the disks will start degenerating.

Depending on the pain levels, there isnt much you can do. Other than therapy

and

pain managemetn, the only surgical option right now is to fuse.

Within the next year or so, god willing, the artifical disk will get out of

clinical trials, and into availability for insurances to cover. Right now,

even

if open enrollment was available, insurance wont cover clinical trials. At

least here is hope for the future other than fusion. And the good news is,

yours

is mild, and with no protrusion or stenosis.

Thanks for the information. Its good to have some idea of what it means

before I go.

Joy

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  • 1 month later...

Dear All,

It's been some time since I last posted. I was scheduled for surgery with

Dr. Errico on Jan. 5th, but have decided against having the surgery there. I am

posting this because, despite the fact that I've been bedfast since early

Nov. due to unbelievable pain, Dr. Errico had absolutely NO earlier openings. I

was placed on a " waiting list " . So to the lady who was hoping for an earlier

date with him, you may be in luck since I cancelled my sugery.

With Blessings & Love,

Carla Kay

~ Ps. 96:1 O come let us sing unto the Lord: let us make a joyful noise to

the rock of our salvation.

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  • 2 months later...

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