Re: trauma brought on my MS too

[Guest guest]

I, too, am a strong believer that trauma brings out the ugliness of MS. After a 16 car pile up, which, thank God, I came out with only back injuries, I started having symptoms. None of which I Ever put together with MS...until yrs later. Had alot of stress in my marraige, which, I feel brought on my first major attack, thats when I was dx. Going back in time with my Neuro, after my accident is when I realized my first symptoms.

You're so right about strength and not realizing it until "youre in it"!!! In the Mix of being dx. hubby couldnt handle the ms, asked for a divorce, a week later my home was lost to a fire (hmmm, what a coincidence,,,yes i believe he did it my name wasn't on the title to the house either)..... and I found the strength to start my life over with nothing. It amazed not only everyone in my life, but even me!! That was 2 yrs ago. It was 2 months after all of that that I started LDN and my life has been wonderful ever since. Too bad the jerk didn't stick around, cause MS is pretty much a part of my past! I think he took it with him!! All I know is the inner strenght found has been amazing. It's always there when one needs it, thats for sure!

I'm happy to hear stories about others that have found theirs as well.

Strength and Tenderness my 2 favorite words!

God Bless you all

Carol

~~~ true love is neither physical nor romantic. ~~~ true love is the acceptance of all that Is, Has been, and Will be.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Dear Carol:

I believe that stress brings on flares of whatever your illness or weakness is

but now that we realize what do you do

about it.

Sherrie

-------------Forwarded Message-----------------

From: INTERNET:low dose naltrexone ,

INTERNET:low dose naltrexone

, INTERNET:low dose naltrexone

Date: 5/3/2004 8:48 AM

RE: Re: [low dose naltrexone] trauma brought on my MS too

I, too, am a strong believer that trauma brings out the ugliness of MS.

After a 16 car pile up, which, thank God, I came out with only back injuries, I

started having symptoms. None of which I Ever put together with MS...until yrs

later. Had alot of stress in my marraige, which, I feel brought on my first

major attack, thats when I was dx. Going back in time with my Neuro, after my

accident is when I realized my first symptoms.

You're so right about strength and not realizing it until " youre in it " !!! In

the Mix of being dx. hubby couldnt handle the ms, asked for a divorce, a week

later my home was lost to a fire (hmmm, what a coincidence,,,yes i believe he

did it my name wasn't on the title to the house either)..... and I found the

strength to start my life over with nothing. It amazed not only everyone in

my life, but even me!! That was 2 yrs ago. It was 2 months after all of that

that I started LDN and my life has been wonderful ever since. Too bad the jerk

didn't stick around, cause MS is pretty much a part of my past! I think he

took it with him!! All I know is the inner strenght found has been amazing.

It's always there when one needs it, thats for sure!

I'm happy to hear stories about others that have found theirs as well.

Strength and Tenderness my 2 favorite words!

God Bless you all

Carol

~~~ true love is neither physical nor romantic.

~~~ true love is the acceptance of all that Is, Has been, and Will be.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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Subject: Re: [low dose naltrexone] trauma brought on my MS too

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[Guest guest]

I would think that one thing that could be done in times of stress is

increased supplementation of the nutrients that support the many systems

involved in dealing with stress. Of course I don't know what they all are,

but I'll bet others here can help some with that.

.

----- Original Message -----

From: " Sherrie O'fiero " <holycow75@...>

" low dose naltrexone " <low dose naltrexone >

Sent: Monday, May 03, 2004 6:53 AM

Subject: Re: [low dose naltrexone] trauma brought on my MS too

> Dear Carol:

>

> I believe that stress brings on flares of whatever your illness or

weakness is but now that we realize what do you do

> about it.

>

> Sherrie

>

> -------------Forwarded Message-----------------

>

> From: INTERNET:low dose naltrexone ,

INTERNET:low dose naltrexone

> , INTERNET:low dose naltrexone

>

> Date: 5/3/2004 8:48 AM

>

> RE: Re: [low dose naltrexone] trauma brought on my MS too

>

>

> I, too, am a strong believer that trauma brings out the ugliness of MS.

> After a 16 car pile up, which, thank God, I came out with only back

injuries, I

> started having symptoms. None of which I Ever put together with MS...until

yrs

> later. Had alot of stress in my marraige, which, I feel brought on my

first

> major attack, thats when I was dx. Going back in time with my Neuro,

after my

> accident is when I realized my first symptoms.

> You're so right about strength and not realizing it until " youre in it " !!!

In

> the Mix of being dx. hubby couldnt handle the ms, asked for a divorce, a

week

> later my home was lost to a fire (hmmm, what a coincidence,,,yes i believe

he

> did it my name wasn't on the title to the house either)..... and I found

the

> strength to start my life over with nothing. It amazed not only everyone

in

> my life, but even me!! That was 2 yrs ago. It was 2 months after all of

that

> that I started LDN and my life has been wonderful ever since. Too bad the

jerk

> didn't stick around, cause MS is pretty much a part of my past! I think

he

> took it with him!! All I know is the inner strenght found has been

amazing.

> It's always there when one needs it, thats for sure!

> I'm happy to hear stories about others that have found theirs as well.

> Strength and Tenderness my 2 favorite words!

> God Bless you all

> Carol

>

>

> ~~~ true love is neither physical nor romantic.

> ~~~ true love is the acceptance of all that Is, Has been, and Will be.

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

>

>

>

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[Guest guest]

I know I havent had the stress of traumatic accidents or anything

like that, but I do remember the events leading up to the eventual

diagnosis of MS when I was 21.

I was overweight, working at the local council as a junior clerk,

some co-worker upstairs in accounts showed me this diet she was

doing - which was extremely strict and had warnings to follow it for

only 3 weeks - like a cleansing diet i suppose - I stayed on it for 4

months - during those 4 months, you couldnt put food in my mouth

unless you held me down. Chemicals in my brain started going haywire

I guess because I started halucinating, going into extreme panic

attacks, thinking I was going to die and doing 'checking' behaviour,

and my mentrual cycle had stopped-- in those 3 months - my body

weight plummited severely - shortly after, my optic neuritis and pins

and needles started in one leg.

I know many others go through alot worse in life and come out of it

all unscaithed - some of us a just more suseptible I guess

Friday

- In low dose naltrexone , " Sherrie O'fiero "

<holycow75@c...> wrote:

> Dear Carol:

>

> I believe that stress brings on flares of whatever your illness or

weakness is but now that we realize what do you do

> about it.

>

> Sherrie

>

> -------------Forwarded Message-----------------

>

> From: INTERNET:low dose naltrexone ,

INTERNET:low dose naltrexone

> , INTERNET:low dose naltrexone

>

> Date: 5/3/2004 8:48 AM

>

> RE: Re: [low dose naltrexone] trauma brought on my MS too

>

>

> I, too, am a strong believer that trauma brings out the ugliness of

MS.

> After a 16 car pile up, which, thank God, I came out with only back

injuries, I

> started having symptoms. None of which I Ever put together with

MS...until yrs

> later. Had alot of stress in my marraige, which, I feel brought on

my first

> major attack, thats when I was dx. Going back in time with my

Neuro, after my

> accident is when I realized my first symptoms.

> You're so right about strength and not realizing it until " youre in

it " !!! In

> the Mix of being dx. hubby couldnt handle the ms, asked for a

divorce, a week

> later my home was lost to a fire (hmmm, what a coincidence,,,yes i

believe he

> did it my name wasn't on the title to the house either)..... and I

found the

> strength to start my life over with nothing. It amazed not only

everyone in

> my life, but even me!! That was 2 yrs ago. It was 2 months after

all of that

> that I started LDN and my life has been wonderful ever since. Too

bad the jerk

> didn't stick around, cause MS is pretty much a part of my past! I

think he

> took it with him!! All I know is the inner strenght found has been

amazing.

> It's always there when one needs it, thats for sure!

> I'm happy to hear stories about others that have found theirs as

well.

> Strength and Tenderness my 2 favorite words!

> God Bless you all

> Carol

>

>

> ~~~ true love is neither physical nor romantic.

> ~~~ true love is the acceptance of all that Is, Has been, and Will

be.

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

>

>

>

> ----------------------- Internet Header ----------------------------

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[Guest guest]

Stress and depression are associated with elevated levels of IL-6 (inter-lukin 6) a cytokine, a growth factor for the cancer my wife has. IL-6 is also associated with inflamation, ie if one has an arthritic joint, they will have elevated IL-6 levels in apparent response to the inflammation.

How does this relate to MS. I don't know. I can only offer that stress, emotional depression, even if it does not approach clinical depression, is bad for one's health.

LDN should be effective in offsetting some of the effects of such stress/depression.

A merry heart doeth good like a medicine: but a broken spirit drieth the bones. Proverbs 17:22 Don Schultz (no medical training, and not terribly bright)Near Joliet IL. Husband and Caregiver to Barb Schultz, born '49 Multiple MyelomaDx'd June/01; IgA Kappa @5,880, B2M 7.8, Radiation to L3, Aredia 6X now Zometa monthly, 100mg Thal daily & 40mgX4days pulsed Dex thru Dec '01 when failed; Mar-Jun/02 2 rounds VAD no effect & 2 rounds DTPACE modest effect; autoSCT July/02 full remission in Sep/02. Interferon maint' Aug/02 to Jan 03; Jan 03 IgA climbing; Feb 03 Hi dose Dex Failed, Velcade Phase3 trial Mar/03 complete response in 2 cycles, Jan 2004 Velcade failed, Starting Revimid Phase 2 open label March 04.Blessed be the Lord, who daily loads us with benefits, even the God of our salvation. Selah (pause, consider this) Psalms 68:19

-----Original Message-----From: Arlene Lizotte [mailto:alcha508@...]Sent: Monday, May 03, 2004 9:14 AMlow dose naltrexone Subject: Re: [low dose naltrexone] trauma brought on my MS too

Yes, I think it's quite common to have trauma/stress of some sort to bring on the MS symptoms.

In my case there were several very stressful events in a relatively short time. In January, 1991, I lost my job of 17 years, b/c of an aquisition by a new company and a total reorganization. It was quite a high paying job and I was a single mom. It was a shock when 40 of us were let go. The total number of employees was only 200+.

In the next few months, my dog was killed by a car, my 21 year old son moved out of state, my daughter was graduating high school, my mother was dying of lymphatic cancer, and my dad had started to show advanced signs of Ahlzeimers.

My first sign was so slight. I lost control of the pen I was writing with as it slid off the paper and fell to the floor. My hand was numb, but only for maybe 15 seconds.

Nothing then for several years, but that was the start.

We don't associate these slight signs with anything until they or others keep recurring, but I think it's quite prevalent.

At least we have sites like this to share!!

Arlene

[Guest guest]

Carol,

I understand you troubles completely. My life partner (of ten years) left

me before I knew I had MS. Some of the MS symptoms she just blamed on me

for being lazy and not caring about her.

Then I was under a lot of stress, Had just lost 75 LB. (two years later it

is till off) was in the process of an employer change for a job I had been

doing for three years. The person that I worked with daily for the last

three years was fired!

One day I was a little clumsy. Two weeks later I could barely walk with a

cane. Prednisone IV brought most things back. My hands remain numb

(Playtex living gloves on all the time).

I was getting more fatigued all the time. Memory was getting bad. Then I

found LDN, and life is beautiful once again. Now if only I could remove

these damn rubber gloves and hopeful some day find love once again.

Original Message:

-----------------

From: sunynbrite56@...

Date: Mon, 3 May 2004 08:38:08 EDT

low dose naltrexone

Subject: Re: [low dose naltrexone] trauma brought on my MS too

I, too, am a strong believer that trauma brings out the ugliness of MS.

After a 16 car pile up, which, thank God, I came out with only back

injuries, I

started having symptoms. None of which I Ever put together with MS...until

yrs

later. Had alot of stress in my marraige, which, I feel brought on my

first

major attack, thats when I was dx. Going back in time with my Neuro, after

my

accident is when I realized my first symptoms.

You're so right about strength and not realizing it until " youre in it " !!!

In

the Mix of being dx. hubby couldnt handle the ms, asked for a divorce, a

week

later my home was lost to a fire (hmmm, what a coincidence,,,yes i believe

he

did it my name wasn't on the title to the house either)..... and I found

the

strength to start my life over with nothing. It amazed not only everyone

in

my life, but even me!! That was 2 yrs ago. It was 2 months after all of

that

that I started LDN and my life has been wonderful ever since. Too bad the

jerk

didn't stick around, cause MS is pretty much a part of my past! I think he

took it with him!! All I know is the inner strenght found has been

amazing.

It's always there when one needs it, thats for sure!

I'm happy to hear stories about others that have found theirs as well.

Strength and Tenderness my 2 favorite words!

God Bless you all

Carol

~~~ true love is neither physical nor romantic.

~~~ true love is the acceptance of all that Is, Has been, and Will be.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

--------------------------------------------------------------------

mail2web - Check your email from the web at

http://mail2web.com/ .

[Guest guest]

I really think that trauma brought on my MS also. Unfortunately it was the

trauma of taking care of my wife, who was diagnosed with MS in 1985. After

watching her slip for eight years I was suddenly diagnosed with the disease

myself. Don't try to tell me that the environment doesn't cause MS because there

is no history of the disease in either family. I was also raising our two kids

virtually as a single parent and I was working a high stress job so I was under

a lot of pressure. I was able to get the kids off to a good start in life but my

wife had to go into a nursing home in 1997. The disease really started to

cripple me in 2000 and now I live alone suffering through what I watched my wife

go through ten years ago. It can be pretty hard to find a reason to go on but I

try. This damn disease took my wife from me and now it's trying to take my life.

I spend my time writing about my experiences because I'm not aware of anyone

else who has experienced this rotten disease both as care partner and patient. I

hope to come up with a compelling story that will raise public awareness of MS.

They have to find a cure to this disease and give us our lives back. I feel very

alive mentally but completetly dead physically. My body does what it wants to

do, which isn't much and certainly not what my brain tells it to do. Hang in

there and let's hope that better days are coming. Best,

Chris

[Guest guest]

Dear Chris:

Your story is truly remarkable. Have you talked to anyone else about it.

-------------Forwarded Message-----------------

From: INTERNET:low dose naltrexone ,

INTERNET:low dose naltrexone

, INTERNET:low dose naltrexone

Date: 5/3/2004 5:14 PM

RE: Re: [low dose naltrexone] trauma brought on my MS too

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[Guest guest]

Hi

....wow....Thank you for sharing.

Jim(ms)

----- Original Message -----

From: <chrdana7@...>

<low dose naltrexone >

Sent: Monday, May 03, 2004 1:22 PM

Subject: Re: [low dose naltrexone] trauma brought on my MS too

[Guest guest]

It has been said that the first 15 yrs of our lives plays a huge roll as far as Enviorment. In the Northern States (Washington State having the largest number of MS patients in the country) we seem to have contracted, what doctors say, is a virus, that stays dormant for years. The way my doctor explained it to me, which was his way of seeing it anyway. During the winter months, when our homes are closed up, and heat is on, a bacteria forms, which is where the virus possibly comes from. Later on, symptoms (which, like I believe were brought out moreso by trauma) were brought out. Not saying they wouldn't have come out on their own....they just had some xtra help. Maybe this doesn't make sense, but I haven't been given much else to think about when it comes to answers about where MS comes from.

As for the story you wrote about your wife and yourself.......If I were standing next to you, I'd hug you. My husband left me because of my MS, and made sure he wasn't even responsible to pay for insurance for me. And to hear about a man taking care of his wife who has MS they way you did, AND has MS himself, it warms my heart to know there are actually REAL MEN out there. I truly look up to you for your strength and compassion. Don't ever give up Chris. You are truly a Special Human Being, one of which we are lucky to have here on Earth. There's always Hope for a better tomorrow.

God Bless

Carol

~~~ true love is neither physical nor romantic. ~~~ true love is the acceptance of all that Is, Has been, and Will be.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

DEAR CAROL,

MY HEART ACHES FOR YOU TO THINK YOUR HUSBAND WOULD STAND BY YOUR SIDE DURING THIS TIME OF YOUR LIFE AND RUN AWAY. WHAT A COWARD HE IS. YOUR BETTER OFF WITHOUT HIM. I'M FORTUNATE ENOUGH TO HAVE A HUSBAND WHO IS MY GUARDIAN ANGEL AND IS WITH ME EVERY STEP OF THE WAY. TONIGHT WILL BE MY FIRST DOSE OF LDN I PRAY THAT I HAVE AS MUCH SUCCESS AS EVERYONE I'VE READ ABOUT. GOOD LUCK TO YOU AND YOU WILL BE REWARDED.

GOD BLESS YOU, KIM R.

[Guest guest]

DEAR CHRIS - SORRY TO HEAR ABOUT YOUR MS WITH BOTH A HUSBAND AND WIFE. A NURSE AT MY FAMILY DR. HAS MS AS DOES HER HUSBAND AND TWO SONS, AND THEY SAY IT'S NOT HEREDITARY? MAKES YOU WONDER. I HAD GRAVES DISEASE QUITE A FEW YEARS BEFORE MS AND HAD RADIATION IODINE TREATMENT. ANYONE ELSE HAVE THYROID PROBLEMS ALSO? STARTING TO THINK THERE'S A CONNECTION.

KIM R.

[Guest guest]

Carol,

Thanks so much for your kind words. I never considered abandoning my wife or

kids despite the fact that I had MS too. I'm just thankful that I was able to

get the kids off to a good start in life and find a good place for my wife to go

oncw she needed 24 hour care. Now that I'm very disabled I just sit here living

alone trying to find a literary agent who is interested in the story. Not many

people have experienced MS as both a care partner and patient. I do want to keep

this a story about life so I wrote about my first 50 years. Who knows if

something in my past might give a clue as to what causes this. The night after I

was born the baby next to me in the nursery died suddenly. He was born a few

days before me and had polio at birth. Could that be a link?

i Started LDN in January and saw some small improvements. Not as much as I

had hoped for but there's no reason to stop taking it. I've been going through a

rough stretch and just finished 7 days of Solu-Medrol treatment. I hope it helps

because I'm anxious to get my book published but I don't have much energy these

days. Keep in touch and hold on to that good attitude. I know how difficult that

can be. You can also reach me at chrdana7@.... Best,

Chris

[Guest guest]

Dear andria,

I respondind to your message but mistakenly addressed it Carol so when you

see it, it's to you. Best, Chris

[Guest guest]

Thank you Carol, I'll write you within the next day or so. You have a great

attitude and I'd like to correspond with you. Best, Chris

[Guest guest]

<alex raising my hand up in the air>

A year after I had that pitch by the horse, I was diagnosed with hyper

thyroid (11 or 12 yrs old). They, then, (tried to) used drugs to

control it.

On a rollercoaster ride of emotions for the next 12 years- Then they

took it out and burned it in 1984.

I'm much better now, thank you.

alex

> DEAR CHRIS - SORRY TO HEAR ABOUT YOUR MS WITH BOTH A HUSBAND AND

WIFE. A

> NURSE AT MY FAMILY DR. HAS MS AS DOES HER HUSBAND AND TWO SONS, AND

THEY SAY IT'S

> NOT HEREDITARY? MAKES YOU WONDER. I HAD GRAVES DISEASE QUITE A FEW

YEARS

> BEFORE MS AND HAD RADIATION IODINE TREATMENT. ANYONE ELSE HAVE

THYROID PROBLEMS

> ALSO? STARTING TO THINK THERE'S A CONNECTION.

>

> KIM R.

[Guest guest]

Sheila,

Thanks for your encouragement. I'm trying to find a reason to go on but the

loneliness is awfull. The encouragement that I get from this web-site is

invaluable. Chris

[Guest guest]

Sherrie,

I'm trying to find a literary agent who will submit my story to publishers

because I'm struggling too much physically to do that. It was hard enough to

write it because the dexterity in my hands is so poor. If I get this story into

the right hands I believe that it will really raise public awareness of MS but I

need help. Best, Chris