Re: Re: LDN for copaxone users

[Guest guest]

In a message dated 4/22/2004 12:54:03 PM Central Daylight Time, david@... writes:

May every one here receive my sending of the healing white light of love.

, Thank you for sending us the healing white light of love. I want it to work for you and everyone else here.

My symptoms go back to when I was a young teenager. A lot of things have happened to me over all these years.

My neuro won't prescribe the LDN. I really do not know where to go from here. I am pretty much apt bound. I do have a scooter but the weather is not nice enough to go out on it. Do you need to get your present records from your neuro to get one of the doctors to give you the LDN? Right now I am lost at what to do.

Love and hugs.

Carol

[Guest guest]

Hi,

So happy to read your e mail!

I am about to start LDN...as soon as I get it from Florida! I was on Rebiff but went off a week ago...waiting for LDN and so far no problem. Am tired of the pain of the injection and the bruise spot.

I've had MS a long time..

Thanks for the lift/

Bev.

-------Original Message-------

From: low dose naltrexone

Date: Thursday, April 22, 2004 13:52:19

low dose naltrexone

Subject: Re: [low dose naltrexone] Re: LDN for copaxone users

I have been on LDN for somewhere around a year now. I gave up Copaxoneshortly after starting LDN. I got sick of having sores and welts all over.I have not had a relapse since starting LDN. I did have one during the sixmonths I was on Copaxone. Since LDN my since of balance (inner ear) has returned. (I can now walkalong and look at something to the side without veering off course.) Mybladder control has returned to near normal. (no longer have to take no peepills.) I do still have leg stiffness (It went away for a short time andthen returned.) I now have much less fatigue (an 8 hr. day is now more likea 12 hr. day for other people, I was close to have to give up work.) Donot like having to take speed and downers to exist! I now longer have tohave six cups of coffee just to be. No more provigal!I am 56 year old male. I was Dx in Nov 2002 with advanced MS. My nuronever used the term but I believe I was well into secondary progressionafter my only major relapse in Nov. 2002. (In a matter of two weeks I wentfrom clumsy to not being able to walk.) Looking back it is difficult todetermine when the first symptoms appeared. I can remember feeling like Ineeded a neck brace in my early 20s. In my 30s my girl friend of the timeaccused me of being to lazy to pick my feet up when walking, said I shouldnot have been dragging my feet. In my forties my hands went numb one time,I thought it was corporal tunnel, only it was the wrong sides of my fingersand hand that was numb.LDN has given me a life back!May every one here receive my sending of the healing white light of love.Original Message:-----------------From: hellkell1@...Date: Fri, 23 Apr 2004 01:29:56 +1000<tt>hey guys<BR>has anyone gone off copaxone or other standard ABCS and just on LDN now?IM<BR>very interested to hear any changes especially from people just on ldn fora<BR>quite a while?day 8 of ldn good results so far - sleep much better. Iwould<BR>like to stop injecting copax but a bit concerned...<BR>Its not suggested to go off copaxone is it - to just continue as well as<BR>ldn? please respond guys.... .thanx<BR>sending healing energy to all- kellie from sydney australia<BR>--------------------------------------------------------------------mail2web - Check your email from the web athttp://mail2web.com/ .

[Guest guest]

Hi Carol,

There is a Doctor in Wisconsin who will precribe for you..

The # is 608-785-0038. The cost is $150.00. His name is Dr. I hope this will help.

Bev.

-------Original Message-------

From: low dose naltrexone

Date: Thursday, April 22, 2004 17:15:36

low dose naltrexone

Subject: Re: [low dose naltrexone] Re: LDN for copaxone users

In a message dated 4/22/2004 12:54:03 PM Central Daylight Time, david@... writes:

May every one here receive my sending of the healing white light of love., Thank you for sending us the healing white light of love. I want it to work for you and everyone else here.My symptoms go back to when I was a young teenager. A lot of things have happened to me over all these years.My neuro won't prescribe the LDN. I really do not know where to go from here. I am pretty much apt bound. I do have a scooter but the weather is not nice enough to go out on it. Do you need to get your present records from your neuro to get one of the doctors to give you the LDN? Right now I am lost at what to do.Love and hugs.Carol

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[Guest guest]

Hi Kelli

I was on Copaxone for four months and not doing very well. I was having shooting pains in my head and ears plus loosing my upper body strength. So i got off of Copaxone and started LDN one month later. I am doing good on LDN. I have been on it for 10 1/2 months. Can sleep much better, my spasms eased up, my balance is better, in the last couple of weeks, I have noticed that I don't have to get up every couple of hours at night to use the bathroom. I get up every 4 or 5 hours now. I had an MRI in January and there is NO progression of my disease.

Hope this helps

Marie

----- Original Message -----

From: hellkell1@...

low dose naltrexone

Sent: Thursday, April 22, 2004 11:29 AM

Subject: Re: [low dose naltrexone] Re: LDN for copaxone users

hey guyshas anyone gone off copaxone or other standard ABCS and just on LDN now? IMvery interested to hear any changes especially from people just on ldn for aquite a while?day 8 of ldn good results so far - sleep much better. I wouldlike to stop injecting copax but a bit concerned...Its not suggested to go off copaxone is it - to just continue as well asldn? please respond guys.... .thanxsending healing energy to all- kellie from sydney australia----- Original Message ----- From: "tazzertazzer2003" <tazzertazzer2003@...><low dose naltrexone >Sent: Thursday, April 22, 2004 9:45 PMSubject: [low dose naltrexone] Re: LDN for Smokers with MS> --- I smoke and since being on LDN i've noticed I smoke less , about> 5 cigarettes a day. It also cuts cravings for beer and alcohol!> Steve>>>>> In low dose naltrexone , "Friday" <paraschick@y...>> wrote:> > Do any of you MSers smoke (cigarettes) and how does the cravings> for> > nicotine change, if at all , whilst you are on LDN?> >> > Im so anxious to start LDN and report back to you all too. Damn> > Doctors not co-operating. grrrrrr> >> > Friday>>>>>>

[Guest guest]

----- Original Message -----

From: Bev

low dose naltrexone

Sent: Thursday, April 22, 2004 3:27 PM

Subject: Re: [low dose naltrexone] Re: LDN for copaxone users

Hi, Carol,

There is a Dr. in Edmonton, Alberta, Canada who I understand is prescribing LDN. I know 'cause I live there. I am to see him May 11 to see about getting it for myself. Contact me if you don't have any luck yourself.

Tom

Hi Carol,

There is a Doctor in Wisconsin who will precribe for you..

The # is 608-785-0038. The cost is $150.00. His name is Dr. I hope this will help.

Bev.

-------Original Message-------

From: low dose naltrexone

Date: Thursday, April 22, 2004 17:15:36

low dose naltrexone

Subject: Re: [low dose naltrexone] Re: LDN for copaxone users

In a message dated 4/22/2004 12:54:03 PM Central Daylight Time, david@... writes:

May every one here receive my sending of the healing white light of love., Thank you for sending us the healing white light of love. I want it to work for you and everyone else here.My symptoms go back to when I was a young teenager. A lot of things have happened to me over all these years.My neuro won't prescribe the LDN. I really do not know where to go from here. I am pretty much apt bound. I do have a scooter but the weather is not nice enough to go out on it. Do you need to get your present records from your neuro to get one of the doctors to give you the LDN? Right now I am lost at what to do.Love and hugs.Carol

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Thanx so much for info mary.- I'm going off copaxone for a while just LDN

now...love kellie from sydney

----- Original Message -----

From: " mboylebradley " <mboylebradley@...>

<low dose naltrexone >

Sent: Friday, April 23, 2004 6:38 AM

Subject: [low dose naltrexone] Re: LDN for copaxone users

> When my husband (PPMS) was slipping fast he was on Avonex. August

> 2002 his Neuro suggested that if he didn't want to stay on the Avonex

> then he should switch to copaxone. I argued with the Neuro that as my

> husband was PPMS the CRABS wouldn't work for him anyway .. but the

> Neuro insisted something was better than nothing .. and also that he

> was very lucky to be on Avonex as he would be much worse without it!

> I went crazy!

> I asked Dr Bihari at the time what he would do if he were in my

> husband's position .. would he personally take copaxone with the LDN?

> He said no, he said that if it were him he would just take the LDN ..

> he would stop the other drugs ... so my husband did .. and pulled

> back a bit and has stabilized. The only other thing he takes is a

> calcium based multi vitamin.

> All the Best

>

>

> > > > Do any of you MSers smoke (cigarettes) and how does the cravings

> > > for

> > > > nicotine change, if at all , whilst you are on LDN?

> > > >

> > > > Im so anxious to start LDN and report back to you all too. Damn

> > > > Doctors not co-operating. grrrrrr

> > > >

> > > > Friday

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

laura -thanx so much for reply -I have had so many-I am experimenting ceasing LDN for now and just using LDN..to see what happens-have already improved only day 9 on it...kell

----- Original Message -----

From: Baden

low dose naltrexone

Sent: Friday, April 23, 2004 4:18 AM

Subject: RE: [low dose naltrexone] Re: LDN for copaxone users

Hey HellKell,

I went from Copax to ldn. . taking only ldn presently. Some feel taking both fits their lifestyle, I had no problem discontinuing the daily shots. Have only been on ldn for a couple of months, but I feel confident that I've stopped the progression of my MS. Have lots of energy and am finally starting to get a full nights sleep! Good luck with you decision.

(SPMS)

From: hellkell1@... [mailto:hellkell1@...] Sent: Thursday, April 22, 2004 11:30 AMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: LDN for copaxone users

hey guyshas anyone gone off copaxone or other standard ABCS and just on LDN now? IMvery interested to hear any changes especially from people just on ldn for aquite a while?day 8 of ldn good results so far - sleep much better. I wouldlike to stop injecting copax but a bit concerned...Its not suggested to go off copaxone is it - to just continue as well asldn? please respond guys.... .thanxsending healing energy to all- kellie from sydney australia----- Original Message ----- From: "tazzertazzer2003" <tazzertazzer2003@...><low dose naltrexone >Sent: Thursday, April 22, 2004 9:45 PMSubject: [low dose naltrexone] Re: LDN for Smokers with MS> --- I smoke and since being on LDN i've noticed I smoke less , about> 5 cigarettes a day. It also cuts cravings for beer and alcohol!> Steve>>>>> In low dose naltrexone , "Friday" <paraschick@y...>> wrote:> > Do any of you MSers smoke (cigarettes) and how does the cravings> for> > nicotine change, if at all , whilst you are on LDN?> >> > Im so anxious to start LDN and report back to you all too. Damn> > Doctors not co-operating. grrrrrr> >> > Friday>>>>>>