Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 I have ALS and will be starting 3 mg. of LDN today or tomorrow. What concerns me is that since the neuros know little or nothing about this drug, they don't know how to answer the many questions I see on this board about stiffness, sleeplessness and other side effects. We have to rely on others' personal experiences, which as we know are different for each person. How does one decide whether a side effect is " normal " or if the drug should be stopped? Is it all hit and miss? Edith Quote Link to comment Share on other sites More sharing options...
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