Re: LDN for Long Time Progressive MSers

[Guest guest]

On Tue, 20 Apr 2004 12:01:02 -0000, you wrote:

>Ok, you can all tell I'm new to this from all my posts - like the

>thorn in your sides - I have another question:

>

>I have progressive MS for 15 years now, I never walk anymore, I am

>very stiff and spasm almost every time i go to stand. My sensations

>are very confused from the knee's down.

>

>So, for someone like me who uses a wheelchair 99% of the time (except

>in bed, lol) whats the prognosis on LDN? Any chance?

>

>(almost dreading the responses - im negative already - but strangely

>optimistic as I have never taken any MS treatments to date)

>

>Tah ppl

>Friday

>

Friday,

I too have PPMS and I'm in a similar situation to you although I can

still walk a few steps. LDN does not work with PPMS very well at all

but it can help a little when first taken. It is difficult to find a

dose level that does not make muscle stiffness and spasms worse. In my

experience a dose of just 1.5mg is best for PPMS.

LDN is worth trying but don't expect any miracles.

Steve

[Guest guest]

---Friday

Ldn can help!

Steve

In low dose naltrexone , " Friday " <paraschick@y...>

wrote:

> Ok, you can all tell I'm new to this from all my posts - like the

> thorn in your sides - I have another question:

>

> I have progressive MS for 15 years now, I never walk anymore, I am

> very stiff and spasm almost every time i go to stand. My

sensations

> are very confused from the knee's down.

>

> So, for someone like me who uses a wheelchair 99% of the time

(except

> in bed, lol) whats the prognosis on LDN? Any chance?

>

> (almost dreading the responses - im negative already - but

strangely

> optimistic as I have never taken any MS treatments to date)

>

> Tah ppl

> Friday