Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 are you taking your LDN in liquid form? Is so just use an eye dropper or a syringe that has ml measurements. As for increacing your dose, just go to 2 mg and see how you feel next day. You can always go back to 1.5ml/mg > Hi all > > I am on day 4 LDN at 1.5mg. Any guidance on how and when to increase dosage > and how I can be specific with this dosage. > > > Pat > (Glasgow, Scotland) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Hi Pat, If your not having any side effects, and your able to sleep through the night without waking for hours at a time, it might be time to increase your dose. If you only have 1.5 capsules try increasing to two pills making an even 3.0mg. Good luck! (SPMS) From: pmpma1@... [mailto:pmpma1@...] Sent: Saturday, May 01, 2004 10:42 AMlow dose naltrexone Subject: [low dose naltrexone] Increasing Dosage Hi allI am on day 4 LDN at 1.5mg. Any guidance on how and when to increase dosage and how I can be specific with this dosage.Pat(Glasgow, Scotland) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 Hi Pat, -Sorry about delay! Where to begin?........ As I said, I have been taking LDN for about 9 weeks & , it`s working! It`s difficult to know what would be most useful to focus on here as I know so little about what`s happening with you. My own situation & experience is as follows: Age 59, dx.MS 13yrs, have been secondary progressive for prehaps 10yrs. Apart from taking IV steroids (prednisone) 13yrs ago, I have avoided all medications, (until LDN cropped up!) choosing to manage the MS with an holistic approach -incl. dietary modifications & supplements, yoga, deep breathing, exercise, meditation & so on. I found this approach to be quite successful in moderating the course of the MS & generating an improved sense of wellbeing, but unfortunately, I didn`t manage to actually stop the progression altogether: Hence my interest in trying LDN! I commenced with 4.5mg, (I chose to commence with the max. recommended dose as I was keen to stop progression a.s.a.p. as I was already using 2 sticks for walking & I really wanted to stop the progression before a wheelchair became necessary!) I did seem to feel subtle changes occurring pretty much immediataly after commencing LDN & on the 3rd. day I felt REALLY GOOD!.......but... it didn`t continue:Possibly there were occasional flickers of well being, But I was often feeling slightly more "strained" than before I commenced it - not to mention the increased stiffness & more interrupted sleep patterns! When out walking, not something I was doing much of at the time , I seemed to be slower & weaker. The sense of weakness & fatigue became such that I felt disinclined to continue jeopardizing my rather fragile sense of homeostasis. I concluded that this just seemed to be too fierce for me! (One advantage of being "independent" has been that I have been able to adjust dosages as I wish! -I have been basing my decisions on what I understand about my own body & what I have learned from my rather obsessive haunting of the LDN site since Jan.! -I find it a valuable resource, provided you have the time to filter through the rather large number of e-mails!)....So, after 8 days, I took 1 day off & then cut my dose to 3mg. This improved things somewhat, But gradually, the sense of it being too much built up again....., so after 12 days at 3mg, I cut to 2.25mg (for 15 days),..... & then finally to 1.5mg.!(-The exact size of the doses was fixed by the need to divide up the 4.5mg caps. easily, ie:Firstly, two 4.5`s became three 3mg`s, then one 4.5 became two 2.25`s, thenfinally, one 4.5 became three 1.5`s.....Have now been on 1.5mg LDN for 1 month & now it actually seems to be working! -Things seem to be becoming more stable in a good direction.There has been an improvement in nocturnal bladder control, but by far the most important change has been a considerable ( & sustained) improvement in my energy level/sense of vigour & also mental buoyancy. I am now free of any sense of strain, just very occasionally there is the slightest, fleeting hint of stiffness. - However, I don`t believe that this upswing is due only to lowering the LDN dosage: Nearly 6 wks ago, having read of other people`s good results with it, I started taking Benfotiamine, (a modified, lipid form of thiamine, vitamin B1.) This has turned out to be an important discovery for me! -Justwhat the doctor (should have) ordered! From the first dose, I noticed a significant increase in energy/vigour & mental buoyancy, feeling more "up".This improvement has continued, my legs seem to be getting stronger & with this, my balance is better. Taking Benfo., along with the drop to 1.5mg LDN really does seem to be stabilizing things in a good, stronger & more consistent way, that I have been hoping for but hadn`t managed to realize previously. Basically, I seem to be more robust, inclined & able to exert myself physically for much longer periods, & recovering more rapidly when I really do over do it. (-I`m a bit prone to doing that!)I was already taking loads of nutritional sups., incl.decent B vit. levels, so I don`t think it was simply a thiamine deficiency, not in any "normal" sense anyway! -This Benfo.really does seem to be a significant improvement on ordinary vit.B1:My experience with it seems to be consistent with what some other LDN users have been enthusiastically reporting about it.-I do seem to have "gone on about it "(Benfo.) somewhat, -it does seem to be a significant support!In case you are interested & haven`t noticed it on the LDN site, here are the addresses for info.on Benfotiamine & for obtaining it..... Plenty of info at: http://www.benfotiamine.orgCan be ordered from: http://www.benfotiamine.net-Seems to me that medicinally, LDN is currently far & away our "best shot"(maybe "only shot") for ceasing the insidious progression of MS, & also moderating (to varying degrees) symptoms that have already developed. This being so, it seems to be very important that we persevere with it , trying all the possible permutations etc until it works for us: It does seem as though the number of people for whom it really doesn`t work is minute! -I`m certainly glad that I carried on experimenting rather than giving up when things became problematic! My impression, based on my experience to date & the accounts of others, is that I am quite likely to experience a continued slow improvement in my condition, provided that I continue my broad based holistic approach, along with the LDN: Time will tell! You don`t say what stage the MS is at, (relapsing/remitting or secondary progressive etc.) but it would seem that if you are fortunate enough to still be in the early stages, before significant long term damage has accrued, you chances of a very much more speedy & completely successful outcome with LDN are very high indeed! (-almost certain?!) I don`t know if any of this (-rather loong-) message has been helpful to you, I hope so! If there is anything that you would like to go into more fully, I would be happy to do so: But ,as I type rather slowly, I would much prefer to do it by phone! It`s so much quicker having a 2 way conversation -Do you have a good cheap phone rate?? -If you would like to call, my number is: 01-527-525-014 (-PM is good, as currently I`m rather nocturnal!) , (By the way, I don`t understand what you mean by "how can I be specific with this dosage?" Also, I am aware that I haven`t specifically answered your question about when to increase dosage: My opinion is that we are all so variable that, what it comes down to is, what suits us individually?-The most common starting dose & maintenance dose seems to be 3mg, though some are more cautious & go for 1.5 initially. My own sense is that a week or 2 is probably sufficient to get some feel for what`s happening, though again, some may wish to take it more slowly. The range of LDN doses that people are taking for MS etc, -from 1.5 to 4.5mg- is so tiny, compared to the 50-150mg naltrexone doses that people are taking for other purposes, that it seems perfectly safe & reasonable to experiment within this tiny range as one wishes, simply staying at a specific dose for long enough to start getting a sense for what that particular amount is doing for you! ) For many of us, having sufficient patience seems to be very important if we are to fully realize the potential benefits of LDN. -Of course, these statements has not been validated by the FDA !!! I hope things are going well! Gerald (Redditch, Worcs., England) ----- Original Message ----- From: pmpma1@... low dose naltrexone Sent: Saturday, May 01, 2004 3:42 PM Subject: [low dose naltrexone] Increasing Dosage Hi allI am on day 4 LDN at 1.5mg. Any guidance on how and when to increase dosage and how I can be specific with this dosage.Pat(Glasgow, Scotland) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 i have been on ldn for 5 month with great progress.i recived my prescription through dr bahari in ny and he told me to start at 4.5mg and if i noticed any side effects to reduce my dosage from there..so as far as starting at a lower dose and moving up to a higher dose over time. i dont know.i only know what doc b told me his protocol was..hope it works for you like it has for me.. hospitalmouth > Hi all > > I am on day 4 LDN at 1.5mg. Any guidance on how and when to increase dosage > and how I can be specific with this dosage. > > > Pat > (Glasgow, Scotland) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 Thanks Gerald for the information I have suffered from relapsing/remitting MS for the last seven years I am 54. The main problem is my eye sight as I am at present working on a doctoral thesis and I can do nothing when this happens. I am very interested in benfotiamine and will follow that up. I also appreciate your detailed e-mail and I hope I have not caused you too much discomfort. If I want any more information I will telephone you. Thanks again for taking the time to reply. regards Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 Sorry, Johanne, but are you the gentelman in Quebec who was looking for a Dr. to prescribe LDN for you there?? Tom From Edmonton ----- Original Message ----- From: Johanne F low dose naltrexone Sent: Saturday, May 01, 2004 3:06 PM Subject: [low dose naltrexone] Re: Increasing Dosage are you taking your LDN in liquid form? Is so just use an eye dropper or a syringe that has ml measurements.As for increacing your dose, just go to 2 mg and see how you feel next day. You can always go back to 1.5ml/mg> Hi all> > I am on day 4 LDN at 1.5mg. Any guidance on how and when to increase dosage > and how I can be specific with this dosage.> > > Pat> (Glasgow, Scotland) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 yes, I am but I'm a woman` and I'm still looking for a doctor who'll be willing to perscribe by phone LDN to people here in Quebec. > Sorry, Johanne, but are you the gentelman in Quebec who was looking for a Dr. to prescribe LDN for you there?? > > Tom From Edmonton > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Sorry I guessed the gender wrong, Johanne. I will see what I can do when I talk to my neuro. Tom from Edmonton ----- Original Message ----- From: Johanne F low dose naltrexone Sent: Sunday, May 02, 2004 5:42 PM Subject: [low dose naltrexone] Re: Increasing Dosage yes, I am but I'm a woman`:)and I'm still looking for a doctor who'll be willing to perscribe by phone LDN to people here in Quebec.> Sorry, Johanne, but are you the gentelman in Quebec who was looking for a Dr. to prescribe LDN for you there??> > Tom From Edmonton> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 no, offense. thanks for your interest. Hope your doctor will be willing to perscribe. > > Sorry, Johanne, but are you the gentelman in Quebec who was > looking for a Dr. to prescribe LDN for you there?? > > > > Tom From Edmonton > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 Hey Pat I took 1.5 for the first week and then went to 3 mg the night I went to 3 mg was miraculous for me I hope it is for you too. As for being specific on dosage my caps were made for me in 1.5 mg at first so was easy if you’re doing it differently I hope someone else can help with that. Best of luck! Rainbolt From: pmpma1@... [mailto:pmpma1@...] Sent: Saturday, May 01, 2004 10:42 AM To: low dose naltrexone Subject: [low dose naltrexone] Increasing Dosage Hi all I am on day 4 LDN at 1.5mg. Any guidance on how and when to increase dosage and how I can be specific with this dosage. Pat (Glasgow, Scotland) Quote Link to comment Share on other sites More sharing options...
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