Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Hi all, Just a thought & reply to the messages about the interferon's: The only injectable I tried was the Betaseron. I took that from Feb of 2002, until November of 2003 when I found out about the ldn. Now I'm on it only. At first I didn't really tolerate it (beta), then the body became acclimated to it and it was ok. I iced the spots, took two Tylenol 1/2 before the injection along with a 25mg benadryl tablet, and all this was done just before bedtime. Now, the 6-7 months prior to November of 2003, it seemed that the Betaseron was starting to act up, side effects getting bad again etc. I never really got over the flu-like symptoms of it either. It just seemed it wasn't doing it's job or my body might be rejecting it, dunno! don't care. Since ceasing to take it, all the flu-like symptoms are now gone and that's a plus. One of the contributing factors "might have been" was, the way my insurance company worked, (or so I've been told), I would have to get refills every three months. ok. Each time, the doctor would have to call the Ins. Co. for a "pre- authorization" since the beta was not covered without it. Somewhere between the doctor's office and the insurance company, there would be a breakdown in communications, and I would have anywhere between a 3day wait(after running out of the beta) and a 3week wait. It didn't matter if I called to ask about the refills 2-3 days in advance or a month in advance. It was always late. So, I'd have a break in taking it. The doctor's office blamed the ins. co. and the ins. co. blamed the doctors office. Hmmm...there are 4 people in our MS support group who use the same neuro, and all of them (all are different ins. companies) have problems getting their meds. Leads me to believe there is a problem with the nurse or the doctor. Anyway, the good doctor and myself have parted company. All this boils down to is the last 6-7 months on the beta, it was no longer "tolerable." I started getting black & blue marks at the injection sites and lumps along with a new pain. Just me, I know. One of the guys I know has been on beta for 3 years and has no adverse reactions to it at all. We're all different. We all react differently not only to the CRAB's but to the LDN as well. Just my two cents worth. I'll go back into my hide-away for now. None of the above is meant as a negative, just my own reactions/problems to/with the Betaseron for anyones info that might be having similar problems. Hopefully it's helpful. Take care and Have a Great Day everyone! Jim(ms) ----- Original Message ----- From: Dervin low dose naltrexone Sent: Sunday, April 18, 2004 4:59 AM Subject: RE: [low dose naltrexone] LDN & Rebif I have seen so much negative said about Rebif. I think reactions are individual. I have been on Rebif for about 3 months and have no problems at all. .At 07:46 PM 4/17/2004, you wrote: In all my years with MS and the ABCR drugs, Rebif was by far my absolute lowest point ever. (SPMS) Quote Link to comment Share on other sites More sharing options...
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