Re: Physical Disabilities per individual with MS

[Guest guest]

Here goes - I'm completely wheelchair dependent. Balance, what's that? Even with grab bars in the restroom, I have a difficult time getting up, and I can't stand up very straight - abdomen muscles are weak. I am in some type of pain constantly, burning, tingling, numbness, pressurre. At times, it is worse than others but always there. Not complaining. Just stating a fact , and there isn't anything that can be done. I still have tremendous stiffness and spacticity. I'm on Keppra, but it hasn't made that go away. I believe it helps somewhat, but not a whole lot. Sometimes my legs are so weak that I can't make a transfer. I'm trying to figure out if that is the Keppra or what. Yesterday, my legs were so stiff that my 270 lb friend (a man) had a hard time getting my (110 lb) leg to bend! That is stiff!

I had Optic Neuritis to begin with that lasted a long time. It's gone now. I think Pregnenolone, DHEA, and bee venom had a part in that. It was gone way before I started LDN.

Since starting LDN, bladder urgenct is probably 75% - 80% improved, thankfully. Fatigue is not as bad as it used to be. I still get tired, but not as bad. I'm about at day 170 of LDN (alternate 4.5mg and 3mg w/calcium carbonate filler), and I don't intend to stop now. My mood is better, and that's worth something!

I do bee sting therapy too, and I know for certain that the bees give me much needed energy. It seems to mix fine with LDN.

YHope this helps!

Marcie (PPMS)

[Guest guest]

Wow, yes everyone, that helps alot, i hope I get to read more on this

topic, its still abit early yet, but I must say, Marcie. your

situation is so close to mine, minus the pain though.

I hope in particular, YOU continue to post your progress on LDN - I

uderstand completely about the stiffness and i've had heavy people

even sit on my legs trying to bend them to get me into the car - I

also dont stand upright, i always lock my knees back to prevent

colapsing - much to my physio's horror cause she hates it when i lock

my knees, but hey, its not her that falls over everytime i try to do

it her way - and isnt it difficult trying to stand AND pull up or

down clothing? So, how long exactly have you been on LDN?

Friday (keep smiling) , gees we ppl with MS are intelligent arent we?

> Here goes - I'm completely wheelchair dependent. Balance, what's

that? Even

> with grab bars in the restroom, I have a difficult time getting up,

and I

> can't stand up very straight - abdomen muscles are weak. I am in

some type of

> pain constantly, burning, tingling, numbness, pressurre. At times,

it is worse

> than others but always there. Not complaining. Just stating a

fact , and

> there isn't anything that can be done. I still have tremendous

stiffness and

> spacticity. I'm on Keppra, but it hasn't made that go away. I

believe it helps

> somewhat, but not a whole lot. Sometimes my legs are so weak that

I can't make

> a transfer. I'm trying to figure out if that is the Keppra or

what.

> Yesterday, my legs were so stiff that my 270 lb friend (a man) had

a hard time

> getting my (110 lb) leg to bend! That is stiff!

>

> I had Optic Neuritis to begin with that lasted a long time. It's

gone now.

> I think Pregnenolone, DHEA, and bee venom had a part in that. It

was gone way

> before I started LDN.

>

> Since starting LDN, bladder urgenct is probably 75% - 80% improved,

> thankfully. Fatigue is not as bad as it used to be. I still get

tired, but not as

> bad. I'm about at day 170 of LDN (alternate 4.5mg and 3mg

w/calcium carbonate

> filler), and I don't intend to stop now. My mood is better, and

that's worth

> something!

>

> I do bee sting therapy too, and I know for certain that the bees

give me much

> needed energy. It seems to mix fine with LDN.

>

> YHope this helps!

>

> Marcie (PPMS)

[Guest guest]

---My doc faxed the script to Skips for 4.5mg and no one ever

mentioned 1.5mg to start out. I found the local pharm was good but I

really didn't feel better till I got the meds from Skip--The local

pharm was really not a componding pharm.

In low dose naltrexone , " Bev " <bbjtwo@c...>

wrote:

> Hi Steve,

> Did you have any problem with Skip wanting you to have just 1.5mg

with your

> first perception? That's what he told me he would do...I wanted

4.5 so I

> went to a local pharmacy...think I should change to Skip's?

>

> Thanks,

> Bev.

>

>

>

>

>

>

>

>

>

>

>

> -------Original Message-------

>

> From: low dose naltrexone

> Date: Monday, April 26, 2004 09:30:08

> low dose naltrexone

> Subject: [low dose naltrexone] Re: Physical Disabilities per

individual with

> MS

>

> ---I'm on 4.5mg that I get from Skips (Originally had a local

> pharmacy compound it but definate differance from Skips), I noticed

a

> strange sensation (a warm sensation) in my legs which have been

numb

> for 10 years, after the second day! After the first 2 weeks noticed

a

> sense of well being, mental contentment, and my symptoms started

ever

> so slowly to get better. Been on LDN for almost 5 months now and I

am

> still seeing improvements every week! I't's great!

> Steve

>

>

>

>

>

> In low dose naltrexone , YUK713@a... wrote:

> > Steve, I would like to know about how long were you

> > on LDN when you first noticed that it was working for you?

> > And what dose are you on?

> > ThankYou

>

>

>

>