Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 Logan: Go on the PLS Friends web page and you'll find several people who are using LDN. Just post your question. I have been dx with ALS and started using LDN about 2 weeks ago. I see some subtle changes, but I'm not talking about them until I see anything more concrete. I see no harm in taking LDN. Edith > After 5 years I have been diagnosed with PLS. Has anyone with PLS > and spasiticity been helped with LDN? > > Logansonnewland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Hi Gail, Don't know whether it was coincidence, ESP or prior knowledge that saw you use my posting to reply to with your question about PLS. :-) There are a couple of us on here using LDN for PLS with positive results and I also know of a few people finding it good for ALS, although probably an equal number who don't think they have had any real benefit (most of whom didn't stick to it for long enough). Reiter, Gail wrote: > My son has primary lateral sclerosis. I have only read of one person > taking LDN with the diagnosis of PLS with some good results. Is there > anyone out there who has taken this medication for PLS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Did PLS affect your speech and has that improved? Thanks Re: [low dose naltrexone] PLS Hi Gail, Don't know whether it was coincidence, ESP or prior knowledge that saw you use my posting to reply to with your question about PLS. :-) There are a couple of us on here using LDN for PLS with positive results and I also know of a few people finding it good for ALS, although probably an equal number who don't think they have had any real benefit (most of whom didn't stick to it for long enough). Reiter, Gail wrote: > My son has primary lateral sclerosis. I have only read of one person > taking LDN with the diagnosis of PLS with some good results. Is there > anyone out there who has taken this medication for PLS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Unfortunately my speech is severely affected (probably the worst and most frustrating symptom of all as it exacerbates all the other problems) and it is something LDN hasn't helped. However, by coincidence I saw someone mention Tom Lahey's name on here earlier today so I will give it a second mention. I know of someone with PLS who has had big improvements in speech using Tom's product Lutimax (see www.lutimax.com) and says a lot of others with speech problems (MS and PD mainly I think) have also had improvement. I tried Lutimax but again unfortunately it didn't help my speech (also avoided carbohydrates which Tom feels are bad for us). Mike (the guy I just mentioned) was also on this low dose naltrexone group, so if he doesn't email you about it in a few days email me privately and I will give you his email address. Reiter, Gail wrote: > Did PLS affect your speech and has that improved? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Thank you so much. Re: [low dose naltrexone] PLS Unfortunately my speech is severely affected (probably the worst and most frustrating symptom of all as it exacerbates all the other problems) and it is something LDN hasn't helped. However, by coincidence I saw someone mention Tom Lahey's name on here earlier today so I will give it a second mention. I know of someone with PLS who has had big improvements in speech using Tom's product Lutimax (see www.lutimax.com) and says a lot of others with speech problems (MS and PD mainly I think) have also had improvement. I tried Lutimax but again unfortunately it didn't help my speech (also avoided carbohydrates which Tom feels are bad for us). Mike (the guy I just mentioned) was also on this low dose naltrexone group, so if he doesn't email you about it in a few days email me privately and I will give you his email address. Reiter, Gail wrote: > Did PLS affect your speech and has that improved? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 how much lutimex did you take? i am using 4x4 daily for myeloma and i have seen that for PD steve martin on his GK blog reported people taking 10 lutimex and getting relief in 15 minutes! this is on a DVD steve reports. so i don't know if you would get some temporary change with a very high dose. joe > Unfortunately my speech is severely affected (probably the worst and > most frustrating symptom of all as it exacerbates all the other > problems) and it is something LDN hasn't helped. However, by > coincidence I saw someone mention Tom Lahey's name on here earlier today > so I will give it a second mention. I know of someone with PLS who has > had big improvements in speech using Tom's product Lutimax (see > www.lutimax.com) and says a lot of others with speech problems (MS and > PD mainly I think) have also had improvement. I tried Lutimax but again > unfortunately it didn't help my speech (also avoided carbohydrates which > Tom feels are bad for us). > > Mike (the guy I just mentioned) was also on this low dose naltrexone > group, so if he doesn't email you about it in a few days email me > privately and I will give you his email address. > > > > Reiter, Gail wrote: > > > Did PLS affect your speech and has that improved? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Have you checked into calcium eap injections for speech problems? it greatly helps symptoms of the medulla oblongata which is related to respiration. swallowing and speaking. Once again, this is what I have personally witnessed working for me within seconds. My throat was numb and I didn't even know it. I never have had anymore problems swallowing either thank God. Kathy Re: [low dose naltrexone] PLS Unfortunately my speech is severely affected (probably the worst and most frustrating symptom of all as it exacerbates all the other problems) and it is something LDN hasn't helped. However, by coincidence I saw someone mention Tom Lahey's name on here earlier today so I will give it a second mention. I know of someone with PLS who has had big improvements in speech using Tom's product Lutimax (see www.lutimax.com) and says a lot of others with speech problems (MS and PD mainly I think) have also had improvement. I tried Lutimax but again unfortunately it didn't help my speech (also avoided carbohydrates which Tom feels are bad for us).Mike (the guy I just mentioned) was also on this low dose naltrexone group, so if he doesn't email you about it in a few days email me privately and I will give you his email address.Reiter, Gail wrote:> Did PLS affect your speech and has that improved? Thanks Quote Link to comment Share on other sites More sharing options...
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