Re: Advice on obtaining naltrexone in Canada

[Guest guest]

Hi What 3 of us did in Montreal...we printed out lots of info on naltrexone

from ldninfo.org.......and went to our local clinic...and presented the info

as a New Pharmaceutical helping in our case cancer....and it WORKED..since

it is a pharmaceutical my clinic Doctor said ok..its a Pharmaceutical in Low

Dose no problem....if it was an Alternative like a Herb they would freak

....but not a Pharmaceutical....and then you find a Compounding Pharmacy your

way OR you send it to Bigalos in New York have it sent to a US address and

re shipped to you......or fax it to a Montreal Pharmacy who does ours and

they will ship it out......call Mel Alter at 514-484-2222 or

www.montrealpharmacy.com or rxp@... tell them you are a friend of

the girl with BC.....perhapss ask Mel directly for a User Friendly

Doctor your way....there is a Doctor in Calgary I will track down for

you......of course $500 US will get you a phone consultation and a script

from Br. Bihari ..all the best.Sandy at destress@...

----- Original Message -----

From: " onyxpect " <cub@...>

<low dose naltrexone >

Sent: Tuesday, April 27, 2004 3:34 AM

Subject: [low dose naltrexone] Advice on obtaining naltrexone in Canada

> I would appreciate any advice I can get for obtaining naltrexone in

> Canada.

>

> I may be an odd dog here, since I have Asperger's syndrome, not MS or

> a diagnosed autoimmune disease other than an anxiety disorder which

> is, almost literally, eating me alive (my kidneys seem to have been

> the first things to cry " uncle " ). There is little help I can find

> other than tetracyclics which I am VERY hesitant to try...sometimes

> seems like half the world is a walking clinical trial for what appear

> to be some pretty frightening substances, and I don't really need the

> kind of relief these substances supply anyhow.

>

> After a lot of study, I am almost desperate to try LDN and/or

> VLDN/ULDN to see if it makes any kind of difference in my

> condition...mostly I want my appetite back after it left with my

> record collection and credit cards in 1989.

>

> My consulting psychiatrist is not averse to the idea, but says I would

> be unlikely to get a scrip anywhere in this part of the country

> (southern BC, near the Alberta border) because of the professional

> hazards of off-label prescribing.

>

> I've considered heading into Vancouver for a week to see if I can

> perhaps find a doctor there who treats AIDS/IV drug use patients who

> may be more amenable to the idea...I've even thought seriously about

> trolling the streets of Vancouver for a junkie who may have some

> leftovers from their last detox...I really don't want to go that far,

> but at this point, I may.

>

> I don't like even IMPLYING that I'd resort to black market, but

> dammit, my life is too important to me and if there's a chance I'm

> missing out on a lot of it that I don't have to miss out on, then I'm

> prepared to say the law be damned.

>

> Any advice, experience or tips anyone has to offer would be greatly

> appreciated. I'd be willing to go quite a long way (literally...I'd

> travel a thousand miles or more if necessary) for a chance to give

> this a try.

>

> -Onyxpect-

>

>

>

>

>

>

[Guest guest]

Tom;

LDN is a " problem prescription " for several reasons, one being the

trouble caused by Dilantin and other off-label orphans in the 1990s,

another being the fact that it is labelled for use for a condition

with a moral stigma, another being the flak a lot of dr's are getting

in even with their peers over cannabis, methadone, SSRI's and

tetracyclic's, and another being that the health infrastructure in BC,

especially in the interior, has collapsed so badly (let's not forget,

it never recovered at all from the personnel raiding done by the US

hospital corps and HMO's in the 90s) that it took six weeks to even be

assigned a GP here, meaning you are severely limited in what you can

and cannot expect from the system, and in a bit of a lottery situation

re. the quality of help you get once you ARE in the system.

I also face a problem re. my reason for wanting it: there is still no

clear consensus on whether substances that enhance endorphin

production are beneficial or harmful for individuals in the autistic

spectrum; it's still believed by many that the elevated levels of

b-endorphin in spinal fluid reflects an EXCESS of endorphin, and the

notion of a genetically-determined need for large amounts in

ADD/Asperger's/autism is still pretty " fringe " , especially when the

notion stems from little hard information, and can't really be backed

by anything other than a " fringe " theory that these conditions may be

the result of recessive neanderthal DNA primarily in the genome of

people of European descent, and an even more " bizarre " notion that

neanderthals differed from homo sapiens in that they were able to

produce their own vitamin C in their livers and thus could produce -

and use - far more endorphin than homo sapiens.

In terms of applying LDN to a condition in the autistic spectrum, I'm

in adventurous territory. Assume I'll know within a week whether it's

of any use at all, but I expect it will be, considering what I've

noticed is a *dramatic* tendency among ASDs I've known to be attracted

to hard narcotics and behavior patterns that stimulate endorphin

production. (I've actually known or heard of many who've literally

stopped years of alcoholic drinking after acquiring a tattoo hobby, a

regular supply of prescription painkillers, or started a

supplementation regime known to significantly boost endorphin production.)

Sticky wicket, eh Smedley?

Tom, this is quality info. and very much appreciated. I checked out

many of your earlier posts prior to signing on. If you could get me

the name of your dr in Edmonton, that would be great...open-minded

practitioners tend to huddle together for safety and he could be a

great source for someone closer to me...altho Edmonton is only 6-1/2

hours' drive from here, so it's not exactly out of reach.

-Cub-

P.S.: " Proven safe " means nothing...I've actually had liver function

tests done against my will after telling one doctor I took a single

halibut liver oil capsule a day for vitamins A and D; I used to get

excruciating cluster headaches, and when UC Berkeley reported that

pure oxygen had been discovered as the first known means of stopping

these crippling tortures in their tracks, I burned through 4 doctors

none of whom would even consider letting me near an oxygen mask

without a full neurological workup to make sure I didn't have an

obscure and rare condition that could be worsened by oxygen. (Bitter?

Who me? No...I just carry these sidearms to attract da chickz.)

--- In low dose naltrexone , " Tom " <tomhfl@t...>

wrote:

> To onyxpect,

>

> My name is Tom . I live in Edmonton. According to my MS

neuro's nurse, he has just recently started to give some of his

patients LDN. I am supposed to go in to see him on May 11, and I

think I will be starting on it too. That is what she implied, at least.

>

> So he must know where to get it. He works with the University of

Alberta, so the U of A hospital may compound it right here. There is

also 1-800 number in Toronto - I think it is somewhere on the

low dose naltrexone web site - of a pharmacist who will deliver LDN.

LDN has been proven safe at much higher levels than what is prescibed

for MS patients, so I don't know why the hassle. I also suggest you

try contacting Dr. Bihari himself - I have heard other people have

been successful. And he might have a better idea if LDN would work on

Asperger's syndrome.

>

> Good luck, and let me know if I can be of anymore help.

>

> Tom

>

>

>

> ----- Original Message -----

> From: onyxpect

> low dose naltrexone

> Sent: Tuesday, April 27, 2004 1:34 AM

> Subject: [low dose naltrexone] Advice on obtaining naltrexone in Canada

>

>

> I would appreciate any advice I can get for obtaining naltrexone in

> Canada.

>

> I may be an odd dog here, since I have Asperger's syndrome, not MS or

> a diagnosed autoimmune disease other than an anxiety disorder which

> is, almost literally, eating me alive (my kidneys seem to have been

> the first things to cry " uncle " ). There is little help I can find

> other than tetracyclics which I am VERY hesitant to try...sometimes

> seems like half the world is a walking clinical trial for what appear

> to be some pretty frightening substances, and I don't really need the

> kind of relief these substances supply anyhow.

>

> After a lot of study, I am almost desperate to try LDN and/or

> VLDN/ULDN to see if it makes any kind of difference in my

> condition...mostly I want my appetite back after it left with my

> record collection and credit cards in 1989.

>

> My consulting psychiatrist is not averse to the idea, but says I would

> be unlikely to get a scrip anywhere in this part of the country

> (southern BC, near the Alberta border) because of the professional

> hazards of off-label prescribing.

>

> I've considered heading into Vancouver for a week to see if I can

> perhaps find a doctor there who treats AIDS/IV drug use patients who

> may be more amenable to the idea...I've even thought seriously about

> trolling the streets of Vancouver for a junkie who may have some

> leftovers from their last detox...I really don't want to go that far,

> but at this point, I may.

>

> I don't like even IMPLYING that I'd resort to black market, but

> dammit, my life is too important to me and if there's a chance I'm

> missing out on a lot of it that I don't have to miss out on, then I'm

> prepared to say the law be damned.

>

> Any advice, experience or tips anyone has to offer would be greatly

> appreciated. I'd be willing to go quite a long way (literally...I'd

> travel a thousand miles or more if necessary) for a chance to give

> this a try.

>

> -Onyxpect-

>

>

>

>

------------------------------------------------------------------------------

>

[Guest guest]

---Hi I live just outside of Toronto and I went to the neuro here at

the MS clinic and he had never heard of LDN and did not want to know

about it so I printed evrything that I could find and took it to my

GP and he agreed to let me try it and now he has asked me to speak to

his other patients that are interested in trying it!

See you local GP they seem to be more helpful when it come to LDN.

In low dose naltrexone , " onyxpect " <cub@c...> wrote:

> Tom;

>

> LDN is a " problem prescription " for several reasons, one being the

> trouble caused by Dilantin and other off-label orphans in the 1990s,

> another being the fact that it is labelled for use for a condition

> with a moral stigma, another being the flak a lot of dr's are

getting

> in even with their peers over cannabis, methadone, SSRI's and

> tetracyclic's, and another being that the health infrastructure in

BC,

> especially in the interior, has collapsed so badly (let's not

forget,

> it never recovered at all from the personnel raiding done by the US

> hospital corps and HMO's in the 90s) that it took six weeks to even

be

> assigned a GP here, meaning you are severely limited in what you can

> and cannot expect from the system, and in a bit of a lottery

situation

> re. the quality of help you get once you ARE in the system.

>

> I also face a problem re. my reason for wanting it: there is still

no

> clear consensus on whether substances that enhance endorphin

> production are beneficial or harmful for individuals in the autistic

> spectrum; it's still believed by many that the elevated levels of

> b-endorphin in spinal fluid reflects an EXCESS of endorphin, and the

> notion of a genetically-determined need for large amounts in

> ADD/Asperger's/autism is still pretty " fringe " , especially when the

> notion stems from little hard information, and can't really be

backed

> by anything other than a " fringe " theory that these conditions may

be

> the result of recessive neanderthal DNA primarily in the genome of

> people of European descent, and an even more " bizarre " notion that

> neanderthals differed from homo sapiens in that they were able to

> produce their own vitamin C in their livers and thus could produce -

> and use - far more endorphin than homo sapiens.

>

> In terms of applying LDN to a condition in the autistic spectrum,

I'm

> in adventurous territory. Assume I'll know within a week whether

it's

> of any use at all, but I expect it will be, considering what I've

> noticed is a *dramatic* tendency among ASDs I've known to be

attracted

> to hard narcotics and behavior patterns that stimulate endorphin

> production. (I've actually known or heard of many who've literally

> stopped years of alcoholic drinking after acquiring a tattoo hobby,

a

> regular supply of prescription painkillers, or started a

> supplementation regime known to significantly boost endorphin

production.)

>

> Sticky wicket, eh Smedley?

>

> Tom, this is quality info. and very much appreciated. I checked out

> many of your earlier posts prior to signing on. If you could get me

> the name of your dr in Edmonton, that would be great...open-minded

> practitioners tend to huddle together for safety and he could be a

> great source for someone closer to me...altho Edmonton is only 6-1/2

> hours' drive from here, so it's not exactly out of reach.

>

> -Cub-

>

> P.S.: " Proven safe " means nothing...I've actually had liver function

> tests done against my will after telling one doctor I took a single

> halibut liver oil capsule a day for vitamins A and D; I used to get

> excruciating cluster headaches, and when UC Berkeley reported that

> pure oxygen had been discovered as the first known means of stopping

> these crippling tortures in their tracks, I burned through 4 doctors

> none of whom would even consider letting me near an oxygen mask

> without a full neurological workup to make sure I didn't have an

> obscure and rare condition that could be worsened by oxygen.

(Bitter?

> Who me? No...I just carry these sidearms to attract da chickz.)

>

>

>

> > To onyxpect,

> >

> > My name is Tom . I live in Edmonton. According to my MS

> neuro's nurse, he has just recently started to give some of his

> patients LDN. I am supposed to go in to see him on May 11, and I

> think I will be starting on it too. That is what she implied, at

least.

> >

> > So he must know where to get it. He works with the University of

> Alberta, so the U of A hospital may compound it right here. There

is

> also 1-800 number in Toronto - I think it is somewhere on the

> low dose naltrexone web site - of a pharmacist who will deliver LDN.

> LDN has been proven safe at much higher levels than what is

prescibed

> for MS patients, so I don't know why the hassle. I also suggest you

> try contacting Dr. Bihari himself - I have heard other people have

> been successful. And he might have a better idea if LDN would work

on

> Asperger's syndrome.

> >

> > Good luck, and let me know if I can be of anymore help.

> >

> > Tom

> >

> >

> >

> > ----- Original Message -----

> > From: onyxpect

> > low dose naltrexone

> > Sent: Tuesday, April 27, 2004 1:34 AM

> > Subject: [low dose naltrexone] Advice on obtaining naltrexone in

Canada

> >

> >

> > I would appreciate any advice I can get for obtaining

naltrexone in

> > Canada.

> >

> > I may be an odd dog here, since I have Asperger's syndrome, not

MS or

> > a diagnosed autoimmune disease other than an anxiety disorder

which

> > is, almost literally, eating me alive (my kidneys seem to have

been

> > the first things to cry " uncle " ). There is little help I can

find

> > other than tetracyclics which I am VERY hesitant to

try...sometimes

> > seems like half the world is a walking clinical trial for what

appear

> > to be some pretty frightening substances, and I don't really

need the

> > kind of relief these substances supply anyhow.

> >

> > After a lot of study, I am almost desperate to try LDN and/or

> > VLDN/ULDN to see if it makes any kind of difference in my

> > condition...mostly I want my appetite back after it left with my

> > record collection and credit cards in 1989.

> >

> > My consulting psychiatrist is not averse to the idea, but says

I would

> > be unlikely to get a scrip anywhere in this part of the country

> > (southern BC, near the Alberta border) because of the

professional

> > hazards of off-label prescribing.

> >

> > I've considered heading into Vancouver for a week to see if I

can

> > perhaps find a doctor there who treats AIDS/IV drug use

patients who

> > may be more amenable to the idea...I've even thought seriously

about

> > trolling the streets of Vancouver for a junkie who may have some

> > leftovers from their last detox...I really don't want to go

that far,

> > but at this point, I may.

> >

> > I don't like even IMPLYING that I'd resort to black market, but

> > dammit, my life is too important to me and if there's a chance

I'm

> > missing out on a lot of it that I don't have to miss out on,

then I'm

> > prepared to say the law be damned.

> >

> > Any advice, experience or tips anyone has to offer would be

greatly

> > appreciated. I'd be willing to go quite a long way

(literally...I'd

> > travel a thousand miles or more if necessary) for a chance to

give

> > this a try.

> >

> > -Onyxpect-

> >

> >

> >

> >

> --------------------------------------------------------------------

----------

> >

[Guest guest]

I live in Burlington, Ontario. I get my LDN from Irmats in NY

because I did a consult with Dr. Bihari. My Neuro here refused to

write a script for LDN but " suggested " I asked my GP. He would have

done it.

I have moved onto a new neuro in Toronto who is ok with me using LDN

and not using a CRAB drug. Both had cetainly heard of LDN but seem

only too happy to pass the potential liability buck to someone else -

like a GP, for writing the prescription.

The rationale is that a GP can prescribe LDN given his " general "

scope but since LDN is not " approved " for MS the Neuro cannot. Of

course - they can - but best to focus on your family Doc (usually

better and longer relationship and therefore more sympathetic to

helping you) or finding a Naturopath that is also an MD.

Best

Alan

> > > To onyxpect,

> > >

> > > My name is Tom . I live in Edmonton. According to my

MS

> > neuro's nurse, he has just recently started to give some of his

> > patients LDN. I am supposed to go in to see him on May 11, and I

> > think I will be starting on it too. That is what she implied,

at

> least.

> > >

> > > So he must know where to get it. He works with the University

of

> > Alberta, so the U of A hospital may compound it right here.

There

> is

> > also 1-800 number in Toronto - I think it is somewhere on the

> > low dose naltrexone web site - of a pharmacist who will deliver

LDN.

> > LDN has been proven safe at much higher levels than what is

> prescibed

> > for MS patients, so I don't know why the hassle. I also suggest

you

> > try contacting Dr. Bihari himself - I have heard other people

have

> > been successful. And he might have a better idea if LDN would

work

> on

> > Asperger's syndrome.

> > >

> > > Good luck, and let me know if I can be of anymore help.

> > >

> > > Tom

> > >

> > >

> > >

> > > ----- Original Message -----

> > > From: onyxpect

> > > low dose naltrexone

> > > Sent: Tuesday, April 27, 2004 1:34 AM

> > > Subject: [low dose naltrexone] Advice on obtaining naltrexone

in

> Canada

> > >

> > >

> > > I would appreciate any advice I can get for obtaining

> naltrexone in

> > > Canada.

> > >

> > > I may be an odd dog here, since I have Asperger's syndrome,

not

> MS or

> > > a diagnosed autoimmune disease other than an anxiety

disorder

> which

> > > is, almost literally, eating me alive (my kidneys seem to

have

> been

> > > the first things to cry " uncle " ). There is little help I

can

> find

> > > other than tetracyclics which I am VERY hesitant to

> try...sometimes

> > > seems like half the world is a walking clinical trial for

what

> appear

> > > to be some pretty frightening substances, and I don't really

> need the

> > > kind of relief these substances supply anyhow.

> > >

> > > After a lot of study, I am almost desperate to try LDN and/or

> > > VLDN/ULDN to see if it makes any kind of difference in my

> > > condition...mostly I want my appetite back after it left

with my

> > > record collection and credit cards in 1989.

> > >

> > > My consulting psychiatrist is not averse to the idea, but

says

> I would

> > > be unlikely to get a scrip anywhere in this part of the

country

> > > (southern BC, near the Alberta border) because of the

> professional

> > > hazards of off-label prescribing.

> > >

> > > I've considered heading into Vancouver for a week to see if

I

> can

> > > perhaps find a doctor there who treats AIDS/IV drug use

> patients who

> > > may be more amenable to the idea...I've even thought

seriously

> about

> > > trolling the streets of Vancouver for a junkie who may have

some

> > > leftovers from their last detox...I really don't want to go

> that far,

> > > but at this point, I may.

> > >

> > > I don't like even IMPLYING that I'd resort to black market,

but

> > > dammit, my life is too important to me and if there's a

chance

> I'm

> > > missing out on a lot of it that I don't have to miss out on,

> then I'm

> > > prepared to say the law be damned.

> > >

> > > Any advice, experience or tips anyone has to offer would be

> greatly

> > > appreciated. I'd be willing to go quite a long way

> (literally...I'd

> > > travel a thousand miles or more if necessary) for a chance

to

> give

> > > this a try.

> > >

> > > -Onyxpect-

> > >

> > >

> > >

> > >

> > -----------------------------------------------------------------

---

> ----------

> > >

[Guest guest]

Hi,

I'm trying to find a doctor here in Quebec for the many MS patients

in my area. Do you know if your doctor would be willing to give a

telephone consultation or accept to send a perscription to the

person if they send him their medical file? How much would he charge?

He could have ,s(Skip'S?) pharmacy in Toronto fill the

perscription and mail it to the person(s).

Thank you

-- In low dose naltrexone , " jendimas1 " <jdimas@m...>

wrote:

> ---Hi I live just outside of Toronto and I went to the neuro here

at

> the MS clinic and he had never heard of LDN and did not want to

know

> about it so I printed evrything that I could find and took it to

my

> GP and he agreed to let me try it and now he has asked me to speak

to

> his other patients that are interested in trying it!

> See you local GP they seem to be more helpful when it come to LDN.

>

>

>

>

>

>

>

> In low dose naltrexone , " onyxpect " <cub@c...> wrote:

> > Tom;

> >

> > LDN is a " problem prescription " for several reasons, one being

the

> > trouble caused by Dilantin and other off-label orphans in the

1990s,

> > another being the fact that it is labelled for use for a

condition

> > with a moral stigma, another being the flak a lot of dr's are

> getting

> > in even with their peers over cannabis, methadone, SSRI's and

> > tetracyclic's, and another being that the health infrastructure

in

> BC,

> > especially in the interior, has collapsed so badly (let's not

> forget,

> > it never recovered at all from the personnel raiding done by the

US

> > hospital corps and HMO's in the 90s) that it took six weeks to

even

> be

> > assigned a GP here, meaning you are severely limited in what you

can

> > and cannot expect from the system, and in a bit of a lottery

> situation

> > re. the quality of help you get once you ARE in the system.

> >

> > I also face a problem re. my reason for wanting it: there is

still

> no

> > clear consensus on whether substances that enhance endorphin

> > production are beneficial or harmful for individuals in the

autistic

> > spectrum; it's still believed by many that the elevated levels of

> > b-endorphin in spinal fluid reflects an EXCESS of endorphin, and

the

> > notion of a genetically-determined need for large amounts in

> > ADD/Asperger's/autism is still pretty " fringe " , especially when

the

> > notion stems from little hard information, and can't really be

> backed

> > by anything other than a " fringe " theory that these conditions

may

> be

> > the result of recessive neanderthal DNA primarily in the genome

of

> > people of European descent, and an even more " bizarre " notion

that

> > neanderthals differed from homo sapiens in that they were able to

> > produce their own vitamin C in their livers and thus could

produce -

> > and use - far more endorphin than homo sapiens.

> >

> > In terms of applying LDN to a condition in the autistic

spectrum,

> I'm

> > in adventurous territory. Assume I'll know within a week whether

> it's

> > of any use at all, but I expect it will be, considering what I've

> > noticed is a *dramatic* tendency among ASDs I've known to be

> attracted

> > to hard narcotics and behavior patterns that stimulate endorphin

> > production. (I've actually known or heard of many who've

literally

> > stopped years of alcoholic drinking after acquiring a tattoo

hobby,

> a

> > regular supply of prescription painkillers, or started a

> > supplementation regime known to significantly boost endorphin

> production.)

> >

> > Sticky wicket, eh Smedley?

> >

> > Tom, this is quality info. and very much appreciated. I checked

out

> > many of your earlier posts prior to signing on. If you could get

me

> > the name of your dr in Edmonton, that would be great...open-

minded

> > practitioners tend to huddle together for safety and he could be

a

> > great source for someone closer to me...altho Edmonton is only 6-

1/2

> > hours' drive from here, so it's not exactly out of reach.

> >

> > -Cub-

> >

> > P.S.: " Proven safe " means nothing...I've actually had liver

function

> > tests done against my will after telling one doctor I took a

single

> > halibut liver oil capsule a day for vitamins A and D; I used to

get

> > excruciating cluster headaches, and when UC Berkeley reported

that

> > pure oxygen had been discovered as the first known means of

stopping

> > these crippling tortures in their tracks, I burned through 4

doctors

> > none of whom would even consider letting me near an oxygen mask

> > without a full neurological workup to make sure I didn't have an

> > obscure and rare condition that could be worsened by oxygen.

> (Bitter?

> > Who me? No...I just carry these sidearms to attract da chickz.)

> >

> >

> >

> > > To onyxpect,

> > >

> > > My name is Tom . I live in Edmonton. According to my

MS

> > neuro's nurse, he has just recently started to give some of his

> > patients LDN. I am supposed to go in to see him on May 11, and I

> > think I will be starting on it too. That is what she implied,

at

> least.

> > >

> > > So he must know where to get it. He works with the University

of

> > Alberta, so the U of A hospital may compound it right here.

There

> is

> > also 1-800 number in Toronto - I think it is somewhere on the

> > low dose naltrexone web site - of a pharmacist who will deliver

LDN.

> > LDN has been proven safe at much higher levels than what is

> prescibed

> > for MS patients, so I don't know why the hassle. I also suggest

you

> > try contacting Dr. Bihari himself - I have heard other people

have

> > been successful. And he might have a better idea if LDN would

work

> on

> > Asperger's syndrome.

> > >

> > > Good luck, and let me know if I can be of anymore help.

> > >

> > > Tom

> > >

> > >

> > >

> > > ----- Original Message -----

> > > From: onyxpect

> > > low dose naltrexone

> > > Sent: Tuesday, April 27, 2004 1:34 AM

> > > Subject: [low dose naltrexone] Advice on obtaining naltrexone

in

> Canada

> > >

> > >

> > > I would appreciate any advice I can get for obtaining

> naltrexone in

> > > Canada.

> > >

> > > I may be an odd dog here, since I have Asperger's syndrome,

not

> MS or

> > > a diagnosed autoimmune disease other than an anxiety

disorder

> which

> > > is, almost literally, eating me alive (my kidneys seem to

have

> been

> > > the first things to cry " uncle " ). There is little help I

can

> find

> > > other than tetracyclics which I am VERY hesitant to

> try...sometimes

> > > seems like half the world is a walking clinical trial for

what

> appear

> > > to be some pretty frightening substances, and I don't really

> need the

> > > kind of relief these substances supply anyhow.

> > >

> > > After a lot of study, I am almost desperate to try LDN and/or

> > > VLDN/ULDN to see if it makes any kind of difference in my

> > > condition...mostly I want my appetite back after it left

with my

> > > record collection and credit cards in 1989.

> > >

> > > My consulting psychiatrist is not averse to the idea, but

says

> I would

> > > be unlikely to get a scrip anywhere in this part of the

country

> > > (southern BC, near the Alberta border) because of the

> professional

> > > hazards of off-label prescribing.

> > >

> > > I've considered heading into Vancouver for a week to see if

I

> can

> > > perhaps find a doctor there who treats AIDS/IV drug use

> patients who

> > > may be more amenable to the idea...I've even thought

seriously

> about

> > > trolling the streets of Vancouver for a junkie who may have

some

> > > leftovers from their last detox...I really don't want to go

> that far,

> > > but at this point, I may.

> > >

> > > I don't like even IMPLYING that I'd resort to black market,

but

> > > dammit, my life is too important to me and if there's a

chance

> I'm

> > > missing out on a lot of it that I don't have to miss out on,

> then I'm

> > > prepared to say the law be damned.

> > >

> > > Any advice, experience or tips anyone has to offer would be

> greatly

> > > appreciated. I'd be willing to go quite a long way

> (literally...I'd

> > > travel a thousand miles or more if necessary) for a chance

to

> give

> > > this a try.

> > >

> > > -Onyxpect-

> > >

> > >

> > >

> > >

> > -----------------------------------------------------------------

---

> ----------

> > >

[Guest guest]

I live in Ontario and did a phone consult with Dr. Bihari, Cost is

$500 US. Irmats in NY ships my LDN. Less than $50 US a month

delivered. Irmats has done a good job thus far.

I use 's in Toronto for other stuff. They will ship. They have

been great to work with as well.

Don't know of any Dr.s that are willing to have their names posted

or do phone consults in Canada. There are some old posts (in the

last month or so) that talk about a Doc in Ontario and some others

in the US. Might want to have a look back.

I would agree with past posts that your family Doc is your best bet.

Print out Dr. Bihari's bio from LDN site and how LDN works etc. Also

print out the survey http://home.earthlink.net/~dflomer/LDN/. Once

my family doc was " educated " and saw that Naltrexone is

an " approved " drug (just not for MS) and the low dosage he said he

would prescribe it if I wanted to try it. I already had decided to

talk to Dr. Bihari (and had scheduled the appointment).

Best

Alan