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Re: LDN Survey – my neurologist’s attention! reply

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In a message dated 4/27/2004 8:37:26 PM Eastern Standard Time, borealis@... writes:

No more cane, can balance, even JUMP off the ground!

How long have you been dx with PLS? I've been on LDN for over two months...I can't say I saw good or bad. Connie

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Hi Connie,

I don't have PLS, although one person has answered the survey that

does. I've had MS for 10 years. 5 years on Copaxone with good

results, then slid into SPMS 2002 and went on Novantrone chemo. Only

for one year. Almost killed me! Started Avonex 08/2003, and was

slowly regaining my strength, but still lot of symptoms. Started LDN

02/2004, and things just took off from day 1, been getting better

ever since. Hang in there, we will get trials, then we will know

better how LDN works, what dose to take etc. It's crazy that we have

to be our own gunie pigs right now, but at least it is out there.

> In a message dated 4/27/2004 8:37:26 PM Eastern Standard Time,

> borealis@n... writes:

> No more cane, can balance, even

> JUMP off the ground!

> How long have you been dx with PLS? I've been on LDN for over two

months...I

> can't say I saw good or bad. Connie

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