autism article

[Guest guest]

yep...that's the article from PROUD. I think maybe I

wrote about this article many moons ago...I don't

remember. Personally, I thought it was yucky. Sorry,

Sherry....I remember that the author is a friend of

yours.

Anyway, what I was afraid of in regards to this

article seems to be happening. All the Down Syndrome

groups and newsletters are passing this article

around. It's a scratch-the-surface type of article -

but we all know this is a COMPLICATED diagnosis that

deserves much more attention and information -

especially for people who may be reading this article

and are contemplating the possibility of a dual

diagnosis for their child.

Blah.

Jill

[Guest guest]

Sherry,

Thank you for the info on the book! I am gonna head over to and

Noble later and check it out!

Jeannie

Mom to Mark and

[Guest guest]

Jill, if you all are talking about the article written by Cyndi Ringoen

and stimming again(???) let me insert here that she is not a friend of

mine...in fact I have never even met her. I know her from NACD which she

left and formed her own similar but Christian based developmental group

called ICAN. NACD has always been very aggressive about the stimming

issue. Like it's better to tie your kid up with duct tape than to ever

let him stim because stimming is like a drug and the more they get the

more they want.(their opinion)

In any case I am really psyched about this very small book I am just

finishing called " Autism and Sensing " by Donna . It is

unbelievable...she discusses all these very weird things our kids

do...tapping, closing doors, mouthing etc. etc. She explains WHY she did

all these things, why she HAd to do all these things and the very weird

and lengthy and painful transition to becoming a person who no longer

does all this stimming. It's been like a religious exerience for me, and

in fact the stimming was sort of like a religious experience for her.

It's a very unsettling book with information, admittedly difficult to

grasp sometimes (I mean it is written by a young lady who licked her

shoes for many many years) but boy do I wish I had this information

earlier. All these lightbulbs just kept going off in my head.

, is it you with the tapper? Donna says she could

categorize things by tapping them and she could also comfort herself by

knowing that that particular sound was stil nearby. Because she was

incapable of " thought " and " interpretation " but only of " sensing " ...much

like Helen Keller, and because she simply remained in this infantile

state for so long she had a whole system mapped out that makes perfect

sense when you read about it...but it was all based on sense...which to

us looks like nonsense.

Oh well, enough of my book review for the month. Jim Mac from

" Communicating Partners " recommends this book highly on one of his

videotapes which is why I checked it out. What puzzles me is how the

ICAN people like Cyndi Ringoen can endorse a program like his while at

the same time being so brutal about self stim. And guess what? I'm gonna

ask her.

Sherry

[Guest guest]

Yes, I read the article Sunday while at the doctor's office with my husband.

I am afraid that it is almost hitting too close to home. Evan is not quite

so big but neither am I. He is toilet trained so i do not have to carry

around a diaper bag. But he is getting larger and more demanding about

going where he wants to go. At 55 " and 93 lbs. he is solid muscle. So far

I have been able to make him leave the store when he starts screaming but

the day is getting closer when I will not be able to. He hates for me to go

out the door without him but it is getting harder and harder to take him

places. Yes, I read the article and it scared me. Too much like looking in

the mirror.

Holiday Greetings

Betty -60 - Effexor, Omega 3's

grandma and guardian to

- 11 yo-- Bipolar/ADHD on Depakote, Adderall, Omega 3's

Evan - 8 yo nonverbal autism on 4 mg Risperdal

- 6 - Bipolar/ADHD/RAD/PTSD on Tegretol, Adderall, Clonidine .1 mg,

Omega 3's

mother to , -31- their mom - Bipolar/ADHD on Topamax

wife to Bob -71- Effexor and too many more to remember

----- Original Message -----

From: " Alyson Gardner " <alykatg@...>

> Has anyone read the new article on " What it's like to

> raise a child with autism " in the January issue of

> parents magazine. It's nice to read about somebody

> else going through what we go through all the time.

> Alyson

[Guest guest]

<PRE>Read it....Nice to know im not the only one with these problems, and to let

the general public realize that we are not abusing our kids, just trying to

control them. I cant tell you how many " LOOKS " get. CB is a Very Big 5 year

old, with a pacifier, and when he has a meltdown we girls have to fall to the

floor with him and cuddle until he calms down, otherwise we are done for.I

have often made threats to make and T-shirt that reads I AM Autistic ...Mind

your own business ! for CB to wear in public. CB's

Granny

[Guest guest]

..I

> have often made threats to make and T-shirt that reads I AM Autistic

....Mind

> your own business ! for CB to wear in public.

CB's

> Granny

www.unlockingautism.org/ Unlocking autism has a few shirts that I have

purchased for Evan. He has three different ones that speak of unlocking

autism one child at a time and one that his brother wears that says 'my

brother has autism, help me, help him. Their price is reasonalble and the

little profit helps the autism awareness movement. There is even shirts for

the adults. I bought one for Halloween in a bright orange. Now that

catches the eye. I once had a license plate that I placed in the window but

someone stole it. lol Well if it gets the word out. They also sent me a

bumper sticker which is still on the vehicle so I guess it was not a total

loss.

I have started having Evan wear them more often than I used to. One of his

says, unlocking autism, changing the world we live in.

Holiday Greetings

Betty -60 - Effexor, Omega 3's

grandma and guardian to

- 11 yo-- Bipolar/ADHD on Depakote, Adderall, Omega 3's

Evan - 8 yo nonverbal autism on 4 mg Risperdal

- 6 - Bipolar/ADHD/RAD/PTSD on Tegretol, Adderall, Clonidine .1 mg,

Omega 3's

mother to , -31- their mom - Bipolar/ADHD on Topamax

wife to Bob -71- Effexor and too many more to remember

[Guest guest]

That article is brilliant - I agree that there needs to be more coverage and knowledge of low functioning autism along with the severe learning disabilties and mental retardation that often accompanies it(as in the case of my son)

(s mum)

Autism article

Hi all,

My nefrew has a magazine and he has put in about living with low-funtioning autism and how it affects familes. He has written about my s on JJ and our family and a couple other familes. Please click on here and look for the autism article. Thanks!!! Lois http://www.apomhq.org/magazine/dl/OO_Mar_Apr_05_22.pdf

Lois Noland 240-420-3692

Always in search for the "cure"

I don't give inI don't give upAnd I don't take NO for an answer.

If God Brings you to it,He will Bring you though it.

[Guest guest]

Hi,

What a fabulous article. Finally something in print about low functioning autism. I am going to try and print it and show it around. That's what life really is.

We live that life every day and my grandson in only 10 1/2. He too is highly anxious and becoming more aggressive.

It would be nice if the major publications could print this article. They always write about high functioning which makes my friends think....."that's not so terrible". Oh yes it can be.......

Thanks for sharing.

Lois

[Guest guest]

Thank you so much for sharing your story

and article with us. I work with students’ ages 5-22 who are low-functioning

and also exhibit severely challenging behaviors and have been rather upset with

all of the media coverage focusing on the higher functioning kids. It really

is a whole different world. I truly believe that the stories of our

low-functioning kids need to be shared with the world. I wholeheartedly feel

that my students have as much to offer as anyone else it just takes a little

extra time to experience their treasures. I also truly believe that my

students can exceed others’ expectations. Thanks again for sharing. I hope that

more people will focus their attention on the lower functioning kids…maybe I’ll

have to get busy.

From: autism

[mailto:autism ] On Behalf Of lois noland

Sent: Thursday, April 21, 2005

8:29 PM

To:

MoMAMissionPossible ; AutismMeds ;

autism ; Justlawstudent@...; MH6EH@...;

Diller; Goldie

Subject: Autism

article

Hi all,

My nefrew has a magazine and he has

put in about living with low-funtioning autism and how it affects familes. He

has written about my son JJ and our family and a couple other familes.

Please click on here and look for the autism article. Thanks!!! Lois

http://www.apomhq.org/magazine/dl/OO_Mar_Apr_05_22.pdf

Lois Noland 240-420-3692

Always in search for the " cure "

I don't give in

I don't give up

And I don't take NO for an answer.

If God Brings you to it,

He will Bring you though it.

[Guest guest]

Your welcome! I am sending this on to Jimmy-My nefew who did the article. thanks! Lois

Autism article

Hi all,

My nefrew has a magazine and he has put in about living with low-funtioning autism and how it affects familes. He has written about my son JJ and our family and a couple other familes. Please click on here and look for the autism article. Thanks!!! Lois

http://www.apomhq.org/magazine/dl/OO_Mar_Apr_05_22.pdf

Lois Noland 240-420-3692

Always in search for the "cure"

I don't give inI don't give upAnd I don't take NO for an answer.

If God Brings you to it,He will Bring you though it.

[Guest guest]

Thank you Betsy for your wonderful recommendation!! I bought the Time magazine and I found the Autism article very interesting, not only for the pictures, also for all the detailed information to help those who train Autism. Probably them may conclude things like: Must to do when training ASD: * Increase low frequenies coherence * Decrease high frequencies coherence * Train interhemispheric protocols (C3-C4, T3-T4, P3-P4, F3-F4) If is true that they have excellent interconnection between all neurons in each particular site, but no good connection between hemispheres, is logical to think that probably interhemispheric training will work better than single protocols (e.g. F3/A1,etc) And besides this, interhemispheric training will work indirectly to coherence issues. * If they have much more white matter than grey, probably they will respond

better to lower frequencies reward, because faster frequencies are located in the grey matter. Maybe thy will respond to Alpha training. Thanks again for your recommendation Regards, JR Strawderman <straw856@...> wrote: Greetings List Mates: There is a very interesting article on Autism in the May 15, 2006 issue of Time magazine. Included in the article is an excellent picture of the brain, which you may find helpful as you explain NF to others. Betsy

[Guest guest]

JR,

I've also found the article very interesting. I think the frontal lobe and cerebellum stuff really implicates a role for prefrontal HEG training. The enlarged amygdala leading to increased anxiety, for me, confirms the role of right temporal training that I often find so helpful with ASD ... particularly rewarding down into the alpha band as you have suggested.

Mark

Re: Autism Article

Thank you Betsy for your wonderful recommendation!! I bought the Time magazine and I found the Autism article very interesting, not only for the pictures, also for all the detailed information to help those who train Autism. Probably them may conclude things like:

Must to do when training ASD:

* Increase low frequenies coherence

* Decrease high frequencies coherence

* Train interhemispheric protocols (C3-C4, T3-T4, P3-P4, F3-F4)

If is true that they have excellent interconnection between all neurons in each particular site, but no good connection between hemispheres, is logical to think that probably interhemispheric training will work better than single protocols (e.g. F3/A1,etc)

And besides this, interhemispheric training will work indirectly to coherence issues.

* If they have much more white matter than grey, probably they will respond better to lower frequencies reward, because faster frequencies are located in the grey matter. Maybe thy will respond to Alpha training.

Thanks again for your recommendation

Regards,

JR Strawderman <straw856@...> wrote:

Greetings List Mates:

There is a very interesting article on Autism in the May 15, 2006 issue of Time magazine. Included in the article is an excellent picture of the brain, which you may find helpful as you explain NF to others.

Betsy

[Guest guest]

This talks about federal courts conceding that autism is linked to

vaccines.

http://www.huffingtonpost.com/david-kirby/government-concedes-vacci_b_88323.html

cw